February 2011 chemo pals

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  • JeanH
    JeanH Member Posts: 281
    edited February 2011

    Lynne,



    I used Dr. Heerdt and thought she was great as well.



    I can relate to the pink ribbon feeling I had just been told I had a lump during my routine mammogram and was never able to put it out of mind that weekend because of all the think pink signs everywhere, even the mall had huge BC awareness signs everywhere.



    I will take the positive that friends who were putting off mammograms did finally schedule them due to my surprise. I am taking silver linings wherever I can find them.



    Jean

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2011

    Lynne,

    My first TX will be a week from tomorrow, I am receiving TCH and they have told me I will be there 5 and 1/2 hours, at least for the first TX. The waiting my husband has done is for the 5 surgeries I have had.  How are you handling the unbalanced chest?  I have a "girl" on one side and a "raisin" on the other!  My left side expander was in for two months but not expanded beyond what was put in during the BMX/Recon surgery.  I have to go to a formal dinner on Sat. and I am stressing with disguising it.  Because I don't know most of the people who will be there (a large military function) I don't want to freak them out.

    Strategies, anyone?

    Kathie

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  • crog234
    crog234 Member Posts: 801
    edited February 2011

     I have not been on here very much the last couple of days.  Tuesday afternoon and evening I was just wiped from my low blood counts.  Hoping they are coming back up as my next treatment is next Monday.  Feeling better this morning....

     Hi Lynne  Next Monday will be my 2nd chemo treatment.  Will think of you as we get treatment

     Michelle  Glad everything seems to be going good for you since your 1st treatment.

     Jean  I have not had a sore throat yet....  My soreness has been with the bowel end....

     Hope everyone has a good day.

    Cindy

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  • Babyswim
    Babyswim Member Posts: 62
    edited February 2011

    Good morning everyone, just checking in......... Glad to hear most of us are getting through the first wave of Chemo. I find myself continually saying "it's a major inconvenience" or "it's going to be a challeging year" just to make other people around me feel better. To tell you the truth I am a Virgo that hates change so I wasn't really looking for another challenge in my life and I hate to be inconvenienced!..............

    That being said, I made it through port surgery. I was in the unlucky few that took 3 tries until my surgeon found a cooperative vein YAY! I am frightened to hear that others are posting that this is the easy part... but I will cross that bridge later.

    In the meantime, gearing up for 1st Chemo on Feb 15th AC (4 doses every two weeks) followed by T not sure the doseage probably the same. What I really need to know is what I should have ready in "My Chemo Tool Box" don't really want to think of it as a first aid kit. So far Dr. has prescribed Compazine and Zofran, but I keep hearing about Claritan and even Chemo popsicles. Any suggestions...... what's in the popsicles??

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  • Lawteach
    Lawteach Member Posts: 18
    edited February 2011

    Hi, Kathie,

    My husband is in the Coast Guard Aux as a pilot so I know just what you are referring to.  I have purchased really nice oversized and unconstructed long tops with slinky tight pants.  Then I buy an oversized gorgeous scarf that covers my top down to my waist, and drape it over both breast areas.  I look and feel chic, and only i know what lies underneath.  My DH of 40 years bragged to his guypals that I've never looked better---and he isn't the type of flowing emotional support, so he really must have meant it.  I subscribe to large ladies' catalogues for those flowing tops, even as I am losing weight.  Avoid your usual form-fitting tops, which is all I have ever worn.  But I must say, the flowing tops feel great and I don't have to obsess over my tummy anymore which is a bonus.

    hope that helps,

    Lynne

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  • Paula66
    Paula66 Member Posts: 1,728
    edited February 2011

    Hi girls.  I hope everyone is having a good day.  Im so glad Im starting to feel like my regular self.  I now know what to look for and am ready for it.  I even go back to work, finally.  It has been a long 6 weeks.  I also get to do a light duty job and that will be so different as Im not used to that.

    Hi Babyswim! I think the chemo popsicles they are talking about are the ones from childhood that are on a woodenstick.  I also know that some women use the real fruit popsicles instead.  I also found that ginger does do better then peppermint.  I did find that ginger was way more powerful then the peppermint, so be careful.  The compazine is for nausea.  The other Im not for sure.  I talked with my MO and she never heard of taking Claritin.  So for my first shot I didnt take it and I never and any bone pain.  But that doesnt mean its not gonna happen.  I was still pretty quezzy and the thought of taking one more pill just put me over the edge. Stock up on your favorite headache remedy.  That I have needed.  I also found that I can handle triscuit crackers way better then saltines.  Plus chicken noodlesoup was my best friend.  I had a few issues with neasua for days so eating was a challenge.  I hope this doesnt scare you.  Im just the one who had tummy issues and had to watch what I ate.

    Cindy take care!

    OMG the hazlenut coffee worked like a charm.  Thanks so much!!!  No more java withdraws.

    Have a good day all.

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  • Melanie_Ann
    Melanie_Ann Member Posts: 414
    edited February 2011

    Hey all,

    I wanted to make a comment about the PINK everywhere! I actually found my lump myself, since I'm "too young" for mammograms. I found it in October, and I don't really know if it was because of all the pink everywhere or just decided to do an exam. I wasn't even sure it was anything b/c it was so small. 

    But anways...after I got my diagnosis, the PINK started flooding in. Everyone around me was wearing a pin in support. Someone made me a knit hat with the pink ribbon. I got breast cancer measuring cups. I got a PINK BC bag...ugh. STOP with the pink! haha

    I like pink, but I'm not ready to be a poster child yet. =)

    And I hate the comments now about chemo...1 down, ONLY 5 more to go. I want to say, YOU go to those 5 appointments and tell me they're ONLY 5. I'm much more of a fan of silent support and when people will actually listen. 

     Babyswim-1st chemo was hard, but it's doable and you will be ok! I only have advice on one, b/c that's all I've been through so far. I'm 10 days out and feeling pretty much back to normal. I actually thought the port placement was awful! But I had it done at the same time as my other surgery. So I could hardly use either arm and that was frustrating. 

    The popsicles are used to prevent mouth sores. They have you suck on them as the chemo is being administered. But they only offered that to me with the Adriamycin so I'm not sure if they do it for others. I chose ice chips though instead of a popsicle. I wasn't sure I could stomach the sugar. 

    My Dr. also gave me Emend and Aloxi by IV before my chemo. They prevent nausea for 3-5 days afterwards. It really helped. I felt slightly nauseated at times in the couple of days afterwards but I also took a Phenergen and was able to stomach some food with it. And I never threw up!

    Also, I had a girl suggest Cream of Wheat as a good food in the days after chemo b/c it's really bland and is a good source of iron. And she was right! I've been eating it every morning since and it really sits well on my stomach. 

    Have a great day ladies!

    Melanie

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  • crog234
    crog234 Member Posts: 801
    edited February 2011

    Paula  I am finally feeling better..  Feel like I have more energy today.  Hopefully I will have a few good days before #2......

     Did anyone else have to go on an antibiotic because their blood counts were so low?  Actually I had to go on them because my defense was 0.  I am just wondering if this will happen everytime or not.   I eat good so I am not sure if there is anything I can do to try to brting the blood counts up or not...

     Cindy

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  • Melanie_Ann
    Melanie_Ann Member Posts: 414
    edited February 2011

    Cindy,

    They said my counts were as low as they could get, but they didn't put me on an antibiotic. They said they were confidant that the Neulasta should kick in soon. They just told me to be extra careful and about washing my hands and avoiding sick people.

    Do you have your next chemo next week? Mine is every 3 weeks so my body may have longer to recover so that might be why they're not as worried. 

    Melanie

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  • crog234
    crog234 Member Posts: 801
    edited February 2011

    Melanie   I guess providing that my counts are back up then I will have a treatment next week.  I am suppose to have A/C every other week for 4 weeks, then Taxol every other week for 4 weeks...

    You may be right about the every 3 weeks giving you more time to recover..  I do feel better today.  Have more energy.  So hopefully they are on the upward swing....

    Cindy

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  • charlottesmama
    charlottesmama Member Posts: 250
    edited February 2011

    Hey ladies... I just came back from a short but brisk walk. The sun is shining and it's COLD, but I just needed to get some fresh air and sunshine. Also checked out the ice rink at the top of my street, and if I'm feeling up to it next week, I might take a few spills on it.

    Had a decent night's sleep, just one minor bout of heartburn which I vanquished with some baking soad in water. Woke up another time with mild aching in my right leg, so downed 2 Tylenol. So far that's been it. I had toast and tea and yogurt for breakfast and just had a hard-boiled egg for lunch. I feel a little bit funny-woozie, but nothing debilitating. I keep waiting for that bus to hit me, and no doubt it will.

    I don't mean to brag about things not being bad so far, I just expected so much worse. I want those soon to start their chemo to read all of our experiences and see how they differ. I may not have it so good in a few days, or even the next time around. It's such  crap shoot.

    Here's a little of what I've done so far: I drank massive quantities of water and chewed lots of ice (a bad habit of mine). I took one tab of Senekot avery 6 hours starting the day before chemo, and so far have been regular. TMI, I know!

    I chewed my ice right through the infusions. No mouth sores so far and no off tastes. My appetite seems ok too. I took the Claratin yesterday AM a few hours before Neulasta shot. Had the shot in my belly. It stung a little, but was over fast. Nurses made up a meds chart for me, I added my extras (Claratin, Tylenol, Senekot, etc.) and I just tick them off as I go. Took Claratin this morning along with other meds (Kytril, Decadron (the steroid), Tylenol and Senekot). Ask your nurse or doc to make a chart for you. It makes it SO much easier to remember when to take what.

    Lynn~ I'm very interested in reading your blog. I will have lots of questions, I'm sure. I'd like to explore a more integrative approach to BC, though at this point, I feel like I really need the BIG GUNS.

    Glad you coffe gals have found a solution! I used to be a serious coffee drinker, but over the last few years have gravitated toward tea. Huh? I dunno. Tea still tastes good so far.

    I have a lot to catch up on, but it sounds like everyone is doing pretty well. F**ck the pink ribbon sh*t! Y'all know by now that's MY attitude. I support my causes without the need to make a big display of it. I prefer my Doc Martens with the skulls on them and my skull & crossbones bandaids! LOL. Gallows humor, I know.

    Later, gals.

    Michelle 

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2011

    Hello all,

    Cindy - Were both your red and white counts low, or just your white?  The antibiotic would only assist your white but low counts for both can delay your next chemo.  Are you eating iron rich foods?  They may have to allow longer time between treatments to allow you to bounce back, they will check your counts right before treatment.  You want to avoid anemia (low red counts) because they may decide to transfuse you to boost your red cells.  I work in transfusion services in the same hospital I had my BMX in.  Nurses and OR staff kept saying "you look familiar" and I would say yes, I work in the Blood Bank. 

    Michelle - All I can say is YAY!  Hope all stays well.  I am afraid of the Senekot the night  before because I tend to have the opposite of constipation, especially when I am stressed.  Apparently the crap can be scared out of me!

    Kathie

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  • EmilyInOntario
    EmilyInOntario Member Posts: 626
    edited February 2011

    Paula..so glad the hazelnut coffee worked! It's my new best friend..

    I made this suggestion on the January group thread but have been following along here too as my treatment was Jan 28 th. My suggestion was to post at the top of each post where you all were treatment - wise. I have been trying to follow along on both January and February chemo threads to see how everyone was feeling and where they were at but my "chemo fog brain" makes it hard for me to concentrate and I've become quite lost. My suggestion was to put treatment, start date, which round you are on and which day: I am:

    FEC-D, Start date : Jan.28/2011 Cycle1/6 Day 14

    Would this help anyone else besides me?

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2011

    Zofran is also anti-nausea.  They gave it to me during my hospital stay for BMXbut it did not work at all.  I had nausea the night after surg. and they attributed it to anesthetic but it happened after they hung a bag of antiobiotic, like within 5 minutes.  Turned out I was SEVERELY allergic to it, developed a nasty rash all over and eventually had to go on steroids to control it.  Phenergan works much better for me.  They may have prescribed two similar meds for that reason, we are all react differently.

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  • crog234
    crog234 Member Posts: 801
    edited February 2011

    Kathie   Just my white blood count was low and what they call the defense.  Red count was fine.  I think I am eating fine.  My appitite has not changed. 

    Michelle  Glad you are having few problems and hope it stays that way for you.  I made a chart for all my pills.  I would never be able to keep track if I didn't.... 

     Cindy

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  • Lawteach
    Lawteach Member Posts: 18
    edited February 2011

    Hey, Michelle,

    Where are you in NY?  Anywhere close to Westchester Co. or the TappanZee Bridge?  I'm right off the Garden State Pkwy exit 172.  If we were close, it would be great to meet or just talk on the phone together,.

    http://integralexperiencewithbreastcancer.blogspot.com/

    This is the latest entry in my blog that deals specifically with my fear of TX SEs. Integral spirituality, which I practice and teach, encourages me to use 110% of every medical/scientific weapon against BC while also encouraging 110% use of the wisdom of our multiple faith traditions.  I call frequently on Buddhist, Jewish, and interfaith wisdom, from every holy text or practice, that speaks to universal Love.

    I am teaching a class this weekend, and I hope that helping others gets me out of my little puddle of fear about Mon and Tues. and the resulting down days which seem to be Day 3 and 4, right? I asssume that the unknown is what is messing me up right now, and maybe I'll have a more hopeful outlook once I see how my body responds.  All I want to do right now is cuddle under my quilt....

    Big Hugs to All Feb. Pals. Kiss

     BTW---the chemo is red, is that what I understand?  Well, I can think of Big Red Hearts going into me on Mon. for Valentine's Day instead of AC.  Reframe, reframe, reframe.....

    Lynne

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  • charlottesmama
    charlottesmama Member Posts: 250
    edited February 2011

    A/C, Start date: 2/8/2011 Cycle1/4 Day 3

    Great idae, Emily! I copied yours and pasted into my post, changing it appropriately.

    I'm off to the grocery store to buy a big juicy steak to be sure I keep those red blood cells healthy! LOL! Does Red wine help too? It's red, after all...

    Michelle 

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  • Paula66
    Paula66 Member Posts: 1,728
    edited February 2011

    Oh man a big fat juicy yummo.  I ant wait until TX is done for that.  I eat my steaks very rare.  The doctor advised me no raw foods, UGH!!!!  Dont care for steaks any other way, so I will wait and treat myself in the end with a big fat juicy steak!  Enjoy Michelle, I have my cofffee back, so its all good.

    As far as the pink stuff goes, Im cool with it.  I havent been bombed with a bunch of it so I havent had the same experences as others.  Plus BC has had a huge foothold in my family and in the early days buying the pink was a good thing, so I did buy a few things.  I did however make sure that the prceeds did go for a cause not just a pocket liner.  Some pink stuff is just that "pink stuff".  I think some people buy it and give it as a way to show that they support you, and dont know what it really is doing to you inside.  They are in thier own little way think they are doing something good.  My gma, aunt and my sissy all have lost thier boobs to this as well as me.  My sissy lost both within 2 yrs.  The 2nd time I was dx all of the gals in my family got "fight like a girl " sweatshirts and we did a whole photo shoot and had a blast.  It was a time that meant alot cause I had family that I know support me.  Ok Im done rambling.

      

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  • Mimidi
    Mimidi Member Posts: 231
    edited February 2011

    Good afternoon everyone.  I hope it has been a good day for you.  Cold here in the southeast but we have been promised by the weatherman that our weather is going to get better after this cold front moves though.  Come on spring.

     I am a hummingbird and butterfly lover so I am so looking forward to warm weather and being able to get outside and work in my flowers.  My two boys are married but live close to me.  I have 6 grandchildren  5 girls and 1 boy.  18-6 years old.

     I had my third chemo visit today.  All went well. Taking all the medicine I am supposed to take.  Just have to remember to take my Claritin in the morning before that "shot".

    All of you are in my prayers.  We will make it through the journey, be survivers, and be so much stronger.  I love the line from the movie "Steel Magnolias",  That which does do kill us makes us stronger.

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  • charlottesmama
    charlottesmama Member Posts: 250
    edited February 2011

    I DO like "Fight like a girl!"

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  • charlottesmama
    charlottesmama Member Posts: 250
    edited February 2011

    Well, I had a bit of steak--not a big portion, and it wasn't as rare as I like it, Paula. But the side was a pile of lightly sauteed spinach, which was delicious. I'm hankering for a salad, but think I'll wait until tomorrow. Feel like I've had enough food for the day!

    It's only 8 PM, but I think I'll hop into a warm shower, then curl up with a book.

    Sweet dreams everyone!

    Michelle 

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  • Melanie_Ann
    Melanie_Ann Member Posts: 414
    edited February 2011

    TAC, Start date: 2/1/2011 Cycle1/6 Day 11

    Michelle,

    I'm glad to hear your doing so well with your chemo. I think the Taxotere is what caused most of my side effects. Everyone is different though. It's so good to hear that yours isn't too bad right now. I'm hoping with a little more pre-medication next time, mine won't be either.

    I've always been an avid runner. It's been a little hard to get back into it, but it's been six weeks since surgery and I went on my first mini-jog this evening- about half a mile. Yay!

    Can someone remind me what the Claritin is for? I haven't heard of that.

    Thanks!

    Melanie

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  • JeanH
    JeanH Member Posts: 281
    edited February 2011

    EC, start date: 2/3/2011 Cycle 1/4 Day 8 Next round T



    Melanie, some say Claritan helps prevent bone pain from the Nuelasta Shot. My doctor said not sure but it couldn't hurt, the nurses said it would help prevent the stuffiness from the E or C can't remember which. I started the day of transfusion and took for 4 day - mainly for stuffiness. I had some back pain but used to get before Chemo too. plus in the vein of TMI I was constipated which I thnk aggravated the back pain.



    I have not felt as bad as I feared, nothing debilitating but today if the first day I felt good all day! I went back to work on Monday Day 5

    Tonight I was hungry...actually still am :) I have
    been able to eat, no weird tastes, some aversions, weird but sweet not appealing to me...not a bad thing.

    Are you getting Blood tests between treatments? I get my CBC done when I show up for the next session, unless I run a temp 100.5 or more then it is call and in for a blood test?

    Michelle, until tonight I felt the same, small meals were all I wanted. Still ate a small meal tonight, to
    be cautious. I have been eating salads for lunch, I have friends that were told not to eat raw veggies, but I was not restricted... Can't really give up meat, but trying to cut back a bit...

    Mimidi, glad you have family around. I have many of my sisters and mom checking on me and it feels good. I love hummingbirds but rarely see them up here even with feeders. my kids and I loved to watch at my MIL window when she was in Virginia. I love that movie line as well.

    Melanie we will switch places as I start the Taxotere after the 4 cycles of EC.

    Glad everyone is doing OK.


    Lynne, The A&E Chemos are red...very timely imaging for for Valentines Day, I think I will use it as well.

    baby swim, popsicles are standard issue popsicles to prevent mout sores and help with uneasy stomach. I have not used much but many swear by them.

    Chemo bag:
    RX, tylenon, saline for eyes and nose, lemon drops for dry mouth or metallic taste some get, aleve or motrin for muscle pain nuelasta, claritan for stuffiness, tums for hearburm, tissues, digital
    thermometer, lip balm, unscented moisturizer antibiotic ointment, toothbrush and biotine. gin gin candiesI keep in my briefcase in small makeup bag. so far tylenol, lip balm and gin gins have been what was needed but it is sort of like a security blanket for just in case needs.

    CHEMO DAY bring some lite snacks, even though the AC/EC infusion time is short there is a lot of waiting time and you need to eat lightly.
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  • charlottesmama
    charlottesmama Member Posts: 250
    edited February 2011

    Well look who's up at 5 AM! I actually woke up at 3 with a minor lower back ache so got up to take some Tylenol, decided a pee was in order, and have been awake since! I blame it on the Decadron. I tried taking an extra Ativan, but it didn't help me get back to sleep. I finally came downstairs, turned up the heat a bit and made a nice cup of hot cocoa. The REAL stuff! Think I'll watch an episode of Iron Chef. LOL!

    I have a call in to my NP to ask her about eating raw fruits and veg, and if I can ramp down the Decadron to avoid the "crash" I've been reading about.

    Someone menioned Cream of Wheat as a good source of iron and easy on the tummy. I bought the Farina version and it had way mor iron. I think I'll whip up a pot of blandness for breakfast.

    Be careful with trying to stoke the iron, ladies. That too can cause constipation!

    OK. Off for another cup of cocoa and some mindless entertainment.

    Michelle 

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  • charlottesmama
    charlottesmama Member Posts: 250
    edited February 2011
    PS: I think Melanie's suggestion of listing our chemo protocol, number of times, where we are in process is great. I just changed my signature to reflect my info. May I suggest we all do it? I don't think it will interfere with your diagnosis signature. Anyway, it's the best way for me to remember, and let's hope I remember to change it next month! Gentle reminders then please.Undecided
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  • charlottesmama
    charlottesmama Member Posts: 250
    edited February 2011
    Wow. Let me tell you, that warm Farina cereal with a dollop of my homemade butter and some local maple syrup is out of this world! Warming me right up. Laughing
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  • crog234
    crog234 Member Posts: 801
    edited February 2011

    Good Morning all  Feeling quite normal today.  Actually yesterday was a good day too. 

    Michelle  will have to try some of that Farina cereal...  Great idea about putting info in signature line.  Now I just have to remember to change the day daily......

    Off to eat some breakfast. 

    Cindy

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  • Paula66
    Paula66 Member Posts: 1,728
    edited February 2011

    Morning all!  Today is a decent day.  No pain yet from the Nuelasta.  Im still eating small meals as well.  I dont wanna try and push it, so I dont.  Hey Michelle my MO says its of to eat fruits and veggies.  I just have to peel everything.  Ugh.  Taters are so yummy with the skin on, grrrr.  Oh well I better do what the doc says to stay safe.

    Jean Im the same way.  I do do weekly blood tests.  They want to check on WBC if they are to low for chemo they wanna wait a few days for chemo so they can build up.  I think on the off week its just to keep an eye on them.

    Well Im off to see what kind off trouble I can get into on my last free friday.  Have a fun filled day all!

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  • Melanie_Ann
    Melanie_Ann Member Posts: 414
    edited February 2011

    Hmmm I might try that Claritin next time, b/c I had awful aches and pains. I also had leg cramps. I was afraid my potassium was low, but when I talked to the nurse, she said the Taxotere can cause those.

    I was also told that I can eat raw fruits and veggies. Just to make sure and wash them before I eat them. My doctor said that when a person on chemo usually gets an infection, its from the normal bacteria on the person's own skin. They do say though to avoid sick people and wash, wash, wash those hands. But I'm sure you all know that. =)

    My Med bag: Decadron for 3 days around chemo, nexium, tums, multi-vitamin, colace, milk thistle, ginger, fish oil, Vitamin D (I had mine checked and I was VERY low), and for the next chemo treatment I'm going to start a Glutamine supplement. Hopefully to cut down on my GI distress. That's where most of my problems have been. Indigestion and stomach cramps. No real nausea though. And other meds I have but do not or rarely take...xanax, phenergen, emend, aloxi, and benadryl.  Most of mine are supplements that I reasearched and am choosing to take. But it is weird to swallow multiple pills every morning.

    On another note, my hair started falling out this morning. =( I had it cut real short about a week ago so I could send my hair to Tampa for the underhair. It should be here by next Wednesday. So I'm hoping my hair holds on til then. Unless it starts to come out faster, then I'm going to shave the rest. I don't want hair everywhere! I also got a real wig, which I ordered 3 weeks ago and decided to call yesterday. They hadn't processed it yet...grrr. So it won't ship til Monday. So it might just be hats for me for a few days. 

    Oh and I'm getting my blood drawn once a week to track my counts. 

    I'm off for a follow up with the surgeon today. Have a great friday everyone!

    Melanie

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  • golfergrandma
    golfergrandma Member Posts: 176
    edited February 2011

    Hello all!  I'm a newbie here, but thought I would participate in the February group.  Had my first CMF treatment a week ago and am feeling really good!  Took Emend the first 3 days which caused some dizziness and constipation, but no nausea!  10 years ago I had AC chemo and was nauseous the whole week after a treatment.  Had some constipation but took Miralax and it solved the problem.  Also am taking prilosec once a day.  I hope I continue to tolerate chemo throughout the next 6 months.  I have 7 more treatments 3 weeks apart.  Will have a blood count next Monday.  Hope all goes well for everyone.

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