Radiation and Emotions

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Hi Ladies - this is my first post. I've been following the site since June last year and have received so much useful information from listening in (thank you all)!  I have a question in regards to radiation and emotions. For some reason, I can't stop crying. I'm not a big crier usually and I held up really strong through surgery and chemo. Now I have 1.5 more weeks of my 6 weeks of radiation and it's like my emotions have been kicked into high gear and are making up for lost time. I'm not sure if this is the right place to ask but has anyone else had this happen at the radiation stage?  Is it a phase a lot of women experience? 

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Comments

  • starbeauty
    starbeauty Member Posts: 327
    edited February 2011
    I too had a difficult time deailing with emotions during radiation.  First - the radiation I had didn't compare with what I thought others had suggested would happen... this was due to the size of my breast, the location of the BC and the pathology.  Second - I found that laying there in a very vulnerable position for 45 minutes each day looking up into a mirror that reflected my MX - with no reconstruction - left me hurting and lonely and very emotional.  Third - when I started to burn - I really burned...nothing was stopping it - and the pain was overwhelming - the site of skin falling off what was left of my chest just paralyzed me... I didn't do the last three days of the boost because emotionally I was a wreck and physically I was so exhausted and in pain.  So... I totally get what you are going through - 8 rounds of ACT were easier on me than the radiation.  We are all different.  One last thing - you will see that others shared that you go through an emotional change as you move out away from all the treatements too... so right after the radiation - I shot into depression big time.  You need to really stay on top of your needs, get help, ask for depression meds if you need them and recognize you are not alone - we have all walked the same road and are more than willing to listen and encourage you.  Stay strong - try to envision the rads killing each little leftover micro dot of BC - trying to starve off any chance that BC will come back locally.
  • Shirlann
    Shirlann Member Posts: 3,302
    edited February 2011

    This is not unusual, ask your onc for some medication to get through the last few days.  Just a little Ativan and you can sail in and out and be done with this thing.

    You have come so far, finish it.

    Gentle hugs, Shirlann

  • bevin
    bevin Member Posts: 1,902
    edited February 2011

    Hi there, I am sorry you are feeling this way. I too cried, but it was on my last day. The oncologists stated this was really normal, and when people dont cry, they  find it more odd. Ending active treatment makes you think youre not doing anything else to kick cancer out the door. But you'll still be in tx. You'll be seeing your oncologist frequently, they'll be keeping an eye on you, perhaps running some scans.  Your tx will continue, it will just change.  Good luck.  I know you'll get through this last part. And don't be afraid to ask for something or someone to  help you emotionallly, whether thats medication from your Onco, or seeing your friends and talking or yoga or just doing something nice for yourself.  Good luck to you.

    Hugs

    Bevin

  • lrr4993
    lrr4993 Member Posts: 937
    edited February 2011

    My goodness star, I would cry too.  I am so glad my rads experience has not been like that.  It lasts all of about 3 minutes and there is no mirror.  

    I have not been crying any more than usual, but I can tell I am growing more anxious as the end of treatment gets near.  I am not sure if it is just the last 6 months finally hitting me . . . like the adrenaline of treatment has stopped and now I am just worn out.  Or if it is the fear of entering a phase where I am less actively watched by the doctors.  Or if it is the fear of entering the "wait and see if it comes back" phase, which I think is going to be the hardest part.  Probably all three in combination.

  • Sherbear
    Sherbear Member Posts: 215
    edited February 2011
    I agree with you all, I'm sure it's a combination of so much.   Tomorrow is my last day of rads and I'm so torn, it feels so bittersweet.  I have met so many great people where I am treated, fellow patients, techs, and my radiologist (who is such a sweetheart and I adore him, he's so positive!), that I feel like I am kind of, in the weirdest way, going to miss it all.  Oh, I know I will be over it (give me 5 minutes to realize I have freedom, lol), but I just can't help but be happy AND sad about the whole situation. Since june it's been such a large part of your life (me too!) and suddenly, even though you will have follow-ups and your life has changed, it feels strange to get back to 'normal'. And to me, the radiation experience if somehow different because you see the same people almost every day and you build, however little, relationships with them.  Feels like high school graduation to me.  Best of luck to you, glad we're not the only ones who, for whatever reason, have been crying or sad (I'm sure I'll bust out some tears tomorrow).  Smile
  • jw523
    jw523 Member Posts: 87
    edited February 2011

     The experience for me was like a daily dose of "Oh my god - I have cancer".  It's right there, in your face, everyday. It was also very isolating in that you are in there by yourself and it felt lonely even though I had lots of support and the staff was great.  It was certainly overwhelming at times but it does get better. I was so ready to be done at the end. I'm one month done and feeling much better.  Hang in there - you can make it.

  • sheuber
    sheuber Member Posts: 36
    edited February 2011

    Thank you all - everything each of you said makes so much sense. Thankfully, I have only one more week to go and than I can start to get my life back on track. While accepting it's not the worst thing in the world to shed a few tears :)  Thank-you again!

  • soulswithin
    soulswithin Member Posts: 154
    edited February 2011

    I'm on that road too, Sheuber. We have been through so much. There is something very upsetting about watching this radiation run through the body. It's like the final smack of torture we endure. It gives us moments to reflect on what damage has been done during the session, and as brave as I usually am, it became an emotion of pure frustration.

    I am two weeks ahead you you, and I can say I am feeling better already! Good luck to you all!

  • bugsbunny1957
    bugsbunny1957 Member Posts: 2
    edited February 2011

    Hi there, I can certainly relate to what everyone else has shared here. I had my last radiation treatment on November 10, 2010, and although I did not cry so much during those six weeks, I am an emotional wreck on any given day, now. In fact I joined this site, because I was so emotional, and felt like I had nowhere to turn at the time. I am so glad I signed in, reading the posts from you all helps me lots.....

    Thank you all,

  • ruthbru
    ruthbru Member Posts: 57,235
    edited February 2011

    About half way through rads, I felt like, "No, no, no, I can't do this anymore.....I just want to run away." Of course that would not have worked because I would have had to take my body with me! I think it is such an emotional time because a person has had both such an emotional and physical shock, and really has had to stay strong and focused on just getting through it all, so when you finally at the finish line of 'active treatment'...that's when it all hits you.....but it does recede, and what a friend who is a 30 plus year BC survivor told me is true, it becomes just a tiny drop of time in the whole rest of your life. Best of Luck! Ruth

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited February 2011

    Rad treatments were extremely emotionally challenging for me, I felt so in need of holding it all together that I barely let my emotions out from the first day that I went in the building. I will always hate that building, although I never regret having gone through rads as I find comfort in knowing that with each zap I was sticking it to any darn bc cell that had the fortitude to try and thrive.

    On that last day, I fought back tears in the waiting room, fought back tears as I got my final boost, and when I was leaving the table, I cried and cried and cried. Tears of fear, tears of relief, tears of sadness, tears of relief, tears of anger, tears of unfairness. I think it's actually healthier to allow yourself to cry throughout the weeks of treatments, but we each have to get through our treatments in the best way that we can.

  • krista613
    krista613 Member Posts: 34
    edited February 2011

    I too feel a ton more emotional now going trhough radiation.  Maybe it's all finally hitting home now and the reality of what we've been through has totally set in. I get tearful rather easily and can barely talk about getting breast cancer without feeling very emotional/sad about it. I am halfway through radiation and I am so ready to give up. I know my emotions are playing a role.  (that and the painful red skin I have)

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited February 2011

    I'm approaching my 1 year anniversary on starting rads. Hang in there everyone, it does get easier being on the other side of this process. The fear of the unknown bc future is always in the back of my mind; when those fears creep in, it helps remind me to appreciate every day that I'm not on that table. I'm not a "rah rah pink ribbon person" so I'm not going to say anything about how this has made me a better and more appreciative person. I already appreciated things and loved my life before bc, but when I was in your place dealing with the treatments, I treasured reading from those that finished up and how the skin really does go back to normal. My blisters and redness cleared up quickly, I've just got a ever so light tan.

    Slam dunk those rad robes in the bin when you are done each time!

  • Raili
    Raili Member Posts: 435
    edited March 2011

    Hi CTMOM. :)  And hi everyone else! 

    I, too, am approaching my one-year anniversary of starting rads... and I, too, had a very difficult time with it, emotionally.  I was fine through the surgical phase of treatment, but it was during rads that I became depressed.  For me it was a number of factors, but the three biggest were: 1) I really liked my surgeon, and really did NOT like the rad. onc. and did not connect with the techs, 2) Although I had surgery 3 times (lump. plus two reexcisions), it was only one day each time, whereas rads meant being a cancer patient EVERY SINGLE DAY for 6 weeks (with weekends off), and that felt awful, and 3) Surgery = taking something harmful out of my body = definitely a good thing, whereas radiation = putting something dangerous and scary into my body to get rid of something else dangerous and scary = confusing and overwhelming. 

    I had my sobbing meltdown on approximately day 10, over having to wear the hospital gown, of all things.  I cried and cried about how I didn't want to wear the gown, because it made me feel like a sick person every day when I wasn't.  I was crying too much to hold still on the table, so I got a 10-pill Lorazepam prescription from my oncologist and took half a pill during the particularly difficult days.  This was hard for me to agree to, because in general, I'm really anti-drug and prefer natural treatments.  The problem was that while I knew natural treatments would help my anxiety and depression (herbs, psychotherapy, vitamins and diet, etc.), I did not have TIME to try natural treatments, since radiation was every single day and I couldn't take a break from it, and a drug was the only thing that would work IMMEDIATELY.

    I didn't cry at all on my last day... I was as giddy as a teenager, so happy that it was all over.  I literally RAN out of the treatment room and out of the cancer center.  I hated that whole experience so much that I begrudgingly went to the 6-week follow-up with the rad. onc., but I'm refusing to go for any more follow-ups, despite having breast lymphedema.  I'll continue to see just my surgeon, medical oncologist, and naturopath.

  • Ween62
    Ween62 Member Posts: 10
    edited March 2011

    Hi Raili

    Wow you put into words what I couldnt. Thank you. I've been feeling the very same thing. I am in week 2 of 6 and thus far has been very emotional for me. As you said surgery was easy.

    it so nice to know I am not the only one feeling this way. I initally thought I was screwed up in my thinking. I like you, love my surgeon and find my RO weird no real connection. Love my Onocolgist too. well at least it is temporary. Thanks again.

    Lisa

  • Gingerbrew
    Gingerbrew Member Posts: 2,859
    edited March 2011

    I only have 8 boosts left to complete. I missed rads yesterday and today, I felt dizzy and funky. I think it is emotional and not illness. Unless you count illness in my head. :(

     I have wound up with 27 rads and 10 boosts total due to me missing appointments. This is absolutely crazy, I can hardly believe I have done this.  I think I need a keeper who would force me out of the bed and out the door. I haven't heard of anyone else doing this dumb thing. I would say it was passive agressive except I don't have any agressive feelings connected to this. I am sure I am annoying the heck out of the staff, I am pretty sure one of the staff is not speaking to me. I can hardly blame her, she knows how stiupid this is of me to do this.

    Trying to spell it out in the light so that maybe I can see what I am doing. 

    Hugs, I hope you are all doing better than I am.

    Ginger

  • Gingerbrew
    Gingerbrew Member Posts: 2,859
    edited March 2011

    So I vented here and am feeling a bit better now that I have confessed my insanity.

    I will not miss any treatments. I will not miss any treatments, I will not miss any treatments.

    GInger

  • starbeauty
    starbeauty Member Posts: 327
    edited March 2011

    Ginger - who cares what the staff think - it is their job to put up with our emotions too.  We are a whole person - not just a piece of meat to radiate... and as that whole person they need to support our emotional needs too.  What you did - you did.  Move forward knowing you have done the majority of the treatments - and you are almost done with it.  Hang in there Ginger... and let your inner voice lead you.  Warm hugs for your day...

  • Gingerbrew
    Gingerbrew Member Posts: 2,859
    edited March 2011

    Thanks Starbeauty, I needed that.

    Ginger

  • lestwin
    lestwin Member Posts: 83
    edited March 2011
    Gingerbrew:  You know you can do it, don't give up, you are past the worst part.  We had the same schedule only I got 7 boosts not 10.   I go for my final today and honestly it is do-able.  Hang in there, it will soon be over.  Hugs! Cool
  • Hope60
    Hope60 Member Posts: 223
    edited March 2011

    Hi all - I don't post much but I'm here a lot reading.  I am so happy I found this thread! I have been an emotional wreck since I started radiation, and I thought there was something wrong with me. I sailed through surgery and DD ACT chemo....figured I was on the home stretch when rads started, but I was so wrong.  Emotionally , this has been the most challenging time for me so far.   I think there are a few reasons.  Mainly, I was so terrified of chemo, I really geared myself up for it, and was able to power through.  By the time I got to rads, I thought it would be a breeze in comparison, so I let my defenses down in a way.  Mistake!  Also, I loved my BS and medical onc....the chemo treatment center was wonderful and the whole staff made the experience easier.  For rads I'm going to the hospital every day -- hate it -- my RO has zero bedside manner and its hard to connect with the techs.  I feel like a piece of meat being radiated. Last but not least, my disability ran out & I had to return to work this week, even though I'm feeling lousy.  And here's the real kicker.....I will finish rads on Monday, can chill out on Tuesday, and then I need to have a biopsy of my thyroid gland on Wednesday.  So after all this, I possibly have more cancer treatment ahead of me.  Where does it end?  Sorry about the rant and thanks for listening.  Your posts were all so helpful to me.

    Hope 

  • angelfromabove
    angelfromabove Member Posts: 40
    edited March 2011

    Hello,

    Wow...so nice to read what you wrote.  I feel the same way about the surgery being a "good" thing in the sense it was removing something that was harming me.  I do not know if I can go through radiation for a 4% reduction in recurrence knowing that it will damage 10% of my lung.  I had extensive DCIS with a margin only clearing by half millimeter so now it is radiation or tamoxifen.  I just want it to go away!  I can't not make a decision as to what to do! Thanks for expressing so well!

  • Cat123
    Cat123 Member Posts: 296
    edited March 2011

    I think your emotions are well justified.  This is a long journey and a hard one.  I have my last chemo next week and I actually feel depressed and scared.  How weird?  I had a left mx but radiation has been recommended although I think I am going to opt out.  Only a reduction of 5% in my case.  As my friend says (who is also going through bc) are they just going to release us into the general population? Ha!  Yeah, you feel like....is this it after treatment....what now?They haven't studied the psychology of all of this.....it is very emotional.

  • sunflower9
    sunflower9 Member Posts: 4
    edited October 2015

    having same problem and just started radiation.. I feel I should be fine since I didn't need chemo..what's the matter with me

  • sunflower9
    sunflower9 Member Posts: 4
    edited October 2015

    and very concerned about taking AIs after this

  • StillSurprised
    StillSurprised Member Posts: 14
    edited October 2015

    Hey sunflower9 - so sorry you are going through this, too. I was glad to find this thread on emotions. I'm about 2/3 through rads and it's gone well. I love the techs. Surgery was also fine. Really liked my surgeon. My emotional issue - started shortly after I started rads - has been Rage - not at techs or radiation or even cancer, but just super quick to anger and slow to subside. Don't much like my oncologist - no communication - and am also seriously doubting whether to move on to AIs. His "here, take this drug and I'll see you in a year" approach doesn't do much for my confidence. But don't want to make a decision based on anger.

    There is nothing wrong with you. You are navigating a situation that's hard on your body and mind and you arefaced with difficult decisions at the same time. I wish you lots of luck in this sucky process.

  • One_Bad_Boob
    One_Bad_Boob Member Posts: 40
    edited November 2015

    I'm so glad you posted this! I started Nov 4 and physically this is the best I've felt since my ending chemo but I'm swinging from anger to sadness. I've been on Paxil since my April diagnosis but this week it feels like it's not helping. I've been holding on to the card of a counselor who is a BC survivor and I'm on the fence about contacting her. A lot of what you all said is what I'm emotionally feeling. Was not expecting to feel this way

  • bclibrary
    bclibrary Member Posts: 12
    edited June 2017

    I'm so glad I found this page! I googled the topic since I couldn't find it by typing in "Crying and radiation" in this search box. :)

    It's my last week of radiation (6 1/2 weeks after 3 months of bi-weekly chemo--Stage III, cancer in most lymphnodes on left side, cancer in both breasts. Sorry, I never figured out how to do my profile at the bottom....

    I had to tell myself to "toughen up" before going in for my boost today. I think it's exactly as one woman just wrote that it's a combination of so many things. For me, too, it's letting go of trying so hard to be a good patient and do everything they told me to do for 9 months...

    But I am an emotional person anyway, and I cried sometimes on chemo. I remember my oncologist (who I switched to one at Dana Farber who had a heart...) saying that she never heard of crying or being emotional as a side affect of chemo--REALLY?? I doubted that one, and just quietly replied that she did now.

    I have learned to accept that my body has gone through hell, including the hormonal havic, the estrogen sucked out of me, and that my facial hair did return (the first to return) I have to add humor or I'll go mad.

    Anyway, ladies, I'm going to try to stop when beating myself up for crying. It's a great outlet, too, and can be very therapeutic -- Here Here for showing emotions!!

  • Castigame
    Castigame Member Posts: 752
    edited June 2017

    Barbara, I was officially DXd early Jan 2017 w Stage 3a and 1a w 4/17 pos nodes. I am done w 4 month of bi-weekly chemo today. I cried and cried because it was really rough for me. More psychologically than physically. I am also facing 30 sessions right breast and lymph nodes 5 of 30 are boosts. I probably will cry definitely towards the end. After radiation, I know the dreaded hormonal therapy is coming and total hystrectomy. I miss my boobs and sometimes when I look.at my long scar going across my chest BMX wo recon. it feels like I lost my youth and womanhood all at once. And I had no choice in it. I told my DH who took pictures of my boobs that I want to look at those someday. Right now I cannot handle it.


    I dearly wish I can console you better. All I can say is I know and feel your pain. Please cry all you want and when you want and I will do the same for both of us.

    Mimi


  • Ken1212
    Ken1212 Member Posts: 2
    edited June 2017

    Thank you for such a positive message. My girlfriend,in her early 50's is the most exciting, loving, funny and normally confident girl. She was diagnosed just before last Christmas with an aggressive breast cancer in one breast. It was a fast growing cancer and between diagnosis and her lumpectomy the site had developed from 7mm to 28. She subsequently had potentially vulnerable lymph node biopsies carried out and thankfully they were not affected. She then went through a daily bout of radiotherapy which was often painful and left her listless and tired. She is going through the menopause at the same time as taking a daily dose of tamoxifen and has experienced major doubts and fears about the future. She has become so unsure about herself and feels lost. When she was having surgery and the follow up treatment she felt she had a plan. Now she is having to try to get back to work and pick up her life again she is feeling unsure about everything and that includes me. Is there anyone out there who has gone through this situation? I just want to know how to help this wonderful loving girl find a way forward

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