Starting chemo January 2009?

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  • ktym
    ktym Member Posts: 2,637
    edited January 2011

    Will do Kathy.  Friend of mine died Christmas day.  She was such a help to me when I was coming back after chemo.  Just breaks my heart

  • PLUTZ
    PLUTZ Member Posts: 133
    edited January 2011

    HAPPY NEW YEARS  to all of you!   Nothing but good wishes for all of you for a new year. I'm finally getting my exchange this Friday. Can't wait. I'm not even nervous. I did have a scare the other day. I had my 6month CT scan and the dr. found some new nodules on my lungs. The nurse called me and assured me its probably nothing but I have another CT scheduled for April. Also, I'm seeing an orthopedic surgeon for my shoulder. Both my drs said its not right. Its not dislocated but its leaning so I'll find out what has to be done with that. I thought I would start the new year with a clean slate and here I am again, seeing another dr. Oh well. Have a great week and I'll stay in touch.

  • jillyG
    jillyG Member Posts: 401
    edited January 2011

    Phyllis, I am so excited for you, I will be thinking of you on Friday!!  Wishing you all the best because you really deserve it!  About your CT scan, I'm sure it's nothing too, keep us updated.  I think if they thought it looked like something more serious, they would certainly express that to you, they can tell alot in those CT scans. 

    I am 2 weeks out from my exchange and very happy with the results.  I was more excited than scared as well.  It's nice to have a 'good' surgery for once! 

  • ktym
    ktym Member Posts: 2,637
    edited January 2011

    Phyllis, hugs.  I'll not worry too then!  Let us know how the exchange goes.  Is it the shoulder the same side as the exchange?  Those expanders can be wicked.

  • PLUTZ
    PLUTZ Member Posts: 133
    edited January 2011

    Hi ladies- well saw the orthopedic dr. yesterday. the good news is that I don't need surgery. The bad- the radiation damaged some nerves in my shoulder and neck so I can't lift my arm up much. It is the same side as my surgery. I had physical therapy after I had  my mastectomy but it didn't help much then. Now I know why. Tomorrows the big day. I'll keep you posted

  • Renrel
    Renrel Member Posts: 497
    edited January 2011

    I had a tough week.  Thursday I got written up at work because I have such a large backlog they need to take me off the schedule if I am to have any chance of getting it down.  I was expecting this though so I did not get to worked up and just it happen.  Then I get home and open the mail and there is a letter than my Oncologist is moving to another hospital.  So had have to decide whether to move with him or choose another doctor at my hospital.  I love my hospital and it is walking distance from work and has so many wonderful support programs but I should problably follow the doctor whose opinion I hold in such high regard.  Good news is I am joining a new Reiki share group and we are meeting on Sunday, so I will get some good energy to go forward into the year.  Also my DH was told that his salary, which was cut due to economics, is expected to be restored next quarter and since there was no furthoug this year he may actually have enough vacation to take more than a week this summer allowing us to concider somewhere that his more than a half days drive from home.  And DS has indicated an interest in the theater club his Sunday school is running.  He is likely to have his first real stage experience (not counting preschool graduation) in April.  They are putting on Joseph and the Technicolor Dream Coat. 

  • momand2kids
    momand2kids Member Posts: 1,508
    edited January 2011

    kt

    I too found out that a couple of colleagues were diagnosed recently---- it is great to be helpful--I feel like I have all this knowledge--shame to waste it!

    Happy New Year all

  • ktym
    ktym Member Posts: 2,637
    edited January 2011

    Renrel, your post was so like you I wish I could hug your for real and not just send cyberhugs.  It is so like you to be willing to talk about your feelings, and then spend the time to remind yourself of some positives.  As you've heard from my postings, I can so relate to the difficulty and pressure of work issues after breast cancer.  I can see why you'd want to transfer over to follow your Onc.  I've thought of going out of state to my previous PS.  When you find someone who treats you well and can relate to you well it is a blessing.

  • PLUTZ
    PLUTZ Member Posts: 133
    edited January 2011

    Hi ladies!  Had my exchange and breast reduction. It took 2 1/2 hrs and 2 hrs recovery. I was in  lot of pain Fri. Slept alot. The meds make me sleepy. Its all I've been doing ths weekend is napping. Thank God my DH and DD are helping out. I get dizzy and can't stand for long. I see the dr. Tues. My boobs are alotsmaller than I anticipated, but I can live with it. I was huge before so It's actually a relief. I'll be able to wear cute bras! Well its nap time again. Have a good week.

  • ktym
    ktym Member Posts: 2,637
    edited January 2011

    Phyllis, thanks for checking in.  Happy to hear things went so well

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited January 2011

    Yeah Phyllis, cute bras.  I haven't bought any since way before my final implant.  I guess I was waiting for the nipple tatoo and have changed my mind about that and put it off.  My implant is so tight from rads, I am content to let the foob sit, but the idea of buying pretty bras....yeah, that might just be what I need.  Good idea! 

  • momand2kids
    momand2kids Member Posts: 1,508
    edited January 2011

    renrel

    when I was pregnant with #2, my gyn told me she was moving to another hospital--I was so upset.... I didn't really care for the hospital she was going to--but I decided to follow her--and I was so glad I did.... she is still my gyn--- and the hospital that she moved to has gotten progressively better over the years----

    where is your onc going???

    sorry to hear about the work thing-I have to say, i sometimes feel like I am lagging behind as well.... I work hard to keep up-but there have been some projects that have just not gotten done.... I feel like I don't multi-task or manage as well as I used to.......

  • PLUTZ
    PLUTZ Member Posts: 133
    edited January 2011

      Hi ladies.  Well, the swelling is finally going down but my boob looks really bad.Its saggy and I thought my dr. was going to lift it up. I guess I'll ask him when I see him next week. My implant is ok, but I am so much smaller than I was.The dr. said he put in the largest implant but the radiation scarred alot of the tissue so it couldn't expand any bigger. So right now, I'm lopsided. Good thing I can't wear a bra yet, still wearing the surgical. Well have a good week and I'll keep in touch.

  • Renrel
    Renrel Member Posts: 497
    edited January 2011

    momand2kids - He is moving to Tufts Cancer Center. Still in the city but not walking distance from work and I doubt it will have all the wonderful support things that MGH has.  I still haven't called to reschedule my March appt.  Have to move on that. 

    Plutz - Sorry you are not very happy with the results so far.  Hopefully when you see your doctor he will have some ideas for fixing things up. 

  • Renrel
    Renrel Member Posts: 497
    edited January 2011

    Got an e-mail today that the mom of one of the kids in my son's after school program died today after a 5 yr fight with cancer. I don't k now what kind but it really hits home.  I am wondering if DS will make a connection to this child's experience and his own.  I asked him about the boy today and he told me he is a 5th grader.  DS is a 1st grader. 

  • ktym
    ktym Member Posts: 2,637
    edited January 2011

    Renrel, sorry to here about that.  Sounds like you've been open and DS knows he can talk to you about it if it starts to scare him.  Things at work a little better?  I know for me the pressure I feel from others to work up to previous standards that my current stamina neuropathy lymphedema and chemo brain don't let me do is a constant struggle

  • Renrel
    Renrel Member Posts: 497
    edited January 2011

    I try hard not to let work get to me.  I am off the schedule for 10 days to let me catch up to where I should be and then I have to really really really work at staying caught up because I am definately on the radar.  But my boss is more upset at the sitation than I am.  Her boss made the decision to take some action.  The writing is going slower than I had hoped but writing the oldest cases take the longest because I have to listen to the record again to remember the details. 

  • ktym
    ktym Member Posts: 2,637
    edited January 2011

    Told DH last night I'm trying to think of the pressure right now as a positive sign that I'm stronger and can handle more than a year ago. 

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited January 2011

    Hello JJs!  I am just checking in to say hi.  I have been under a huge amount of stress at work.  HOpefully the congress from the state of Michigan will decide soon how, when, where and what I should teach, plus decide when I can take a bathroom break!  It is the deregulation regulation policy, I say.  Congress is at odds with unions and unfortunately it is hurting the number one force:  the students!!!!!!!!!!!!!!!!!!!!!  Gr.......just wish I could teach.

    Speaking of teaching, I am excitedly planning an activity with 13 female high school students.  We are going to see my  dd dance at U of M!  She made it into an Irish dance troupe and will be performing the 5th of Feb.  I was able to get tickets for a reduced amount and since I can drive a bus, I am taking them down there.  I am a bit nervous about driving in the snowy weather, but I think I can do it.  Then of course I am VERY nervous about parking.  Anyone from a big city have that issue?  Undecided

    I have a cough and now a sore throat and of course I am trying not to "go there" with the worry. Sigh.  Plus, still having issues with weight gain.  Pants are getting tight now.  Yikes!

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited January 2011

    Hi all! Sitting inside on a rainy day, recovering from stomach flu. Yes I "went there" on Weds--had TERRIBLE chills for an hour then followed by extreme intestinal "distress." But was told by co-teacher next day that 6 kids called in sick and 2 others thew up--so it wasn't just me, but poor babies.

     I'm sitting here wondering how I can keep it up. Sometimes I'm just so tired, and I'm just not recovering from this virus the way I used to (well--just had my 55 Birthday 1-17, so maybe age is part of the reason). KMMD--can so relate to the constant struggle, but I too am able to handle more I think than last year--well at least 2 yrs ago.

     And I was cleaning my room for the 1st time really since chemo (ha!!) and found my box of my wig and some hats that were just stacked on the floor, and at least got them put up on a shelf. I feel like I'll jinx myself if I give them all away. Anyone else hanging onto that stuff?

    Phylliss--congrats on your recon and good luck wiht the shoulder. Renrel-hope things are smoothing out at work. Jess--I gained 5 lbs over the holidays that were so hard to lose until I got this flu, which I wouldn't recommend as a weight-loss strategy. Good luck on your ambitious field trip, and congrats to your dd for getting into the troupe! I can park great in the city---but just a station wagon not a bus!!! And hugs to all jewels--2 years since we started this road together. When the going got rough you sure all helped! (and still do!)

  • momand2kids
    momand2kids Member Posts: 1,508
    edited January 2011

    Kim

     so funny about the wig-- I had 2 of them-really expensive human hair wigs.... I had wig stands for them--one was always on my bureau..... when i was done, I put the stands with the wigs on them in a bag and covered them with tissue and they are buried in my closet.

     I looked into donating them to the American Cancer Society, but for some reason, I just could not...Like you I felt like I was tempting fate.... I kept one small cotton hat that I wore to bed- --threw everything else out..... 

    On another note, went to the gyn today for my annual..... vaginal dryness has been an issue--- using replens and coconut oil (not as often as I should) ---- but the damage is not that bad--- and she highly recommends more intercourse as a solution-- apparently our bodies can help us here---- 

    I am going to pursue the idea of vagifem with my onc in May--i think she is ok with it, as was the gyn....... but for now.... apparently it is more oil and more sex...... 

  • ktym
    ktym Member Posts: 2,637
    edited February 2011

    Milestone for me this week.  I ate mashed potatoes for the first time since chemo. I haven't been able to look at them since that time.  Next step yogurt, I still gag when someone mentions the word so I think that will take a bit more time

  • ktym
    ktym Member Posts: 2,637
    edited February 2011

     Jess, thinking of you and your planned outing today.   Hope you all have a wonderful time

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited February 2011

    Kmmd--I know what you mean about certain foods.  I will never be able to drink the brand -Vitamin drink flavored water, nor jolly ranchers candies.   I held off eating mashed potatoes because I didn't want to hate them later.  I also don't really like cottage cheese anymore, either.

    TRIP TO ANN ARBOR-- wouldn't you know there was a unexpected mini snow storm around the Ann Arbor area when I drove an activity 15 seat-er school bus with 13 teen-aged girls. In spite of that,  we made it on time, went to the back stage of a wonderful and beautiful theater on U of M college campus and talked to some sweet college students.  They enticed all 13 girls to try a few simple Irish dance steps.  Only one girls from my group volunteered at first( after I pushed her --gently!-- into  the middle). Somehow, in spite of their reticent actions, the complete group tried something new.  This is HUGE for my group of students.  I was/am ecstatic!

    The show was very well done.  Of course dd stood out during every dance!Laughing  The 'lil stinker arranged with the director to present a gift to me before the show started.  Of course when he said my name- I kind of tuned him out because I was helping the students read the program- then my loudest girl, shouted out my name and the rest of the students shoved me toward the stage.  It was a pleasant surprise and dd is still a 'lil stinker!

    I may have mentioned on earlier posts that parking is a premium in Ann Arbor and with the snow and no time to plow the roads, I was in a bit of a panic, because I wanted to get there early to find parking.     Snow was hitting the roads hard and there were several fender benders and cars in ditches.I did have  a back up plan to have dd follow me 1.5 miles to Crisler Arena- no basketball game- only tennis /and or go to a mall nearby and then he can take me back to the theater but the parking gods were on my side!  Fortunately through all of that, there were four parking spaces right in from the the theater.  We took them! 

  • ktym
    ktym Member Posts: 2,637
    edited February 2011

    Jess, that brought tears to my eyes, how lovely, I'm sure DD was the BEST

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited February 2011

    kmmd, it's vanilla pudding for me. Blech...

    Jess, glad the trip went well. What a great experience for your girls--and how sweet of your dd! Isn't it great when our kids recognize and appreciate  US!

    mom--so it's hurts if you do, hurts if you don't, until you do it enough that it doesn't hurt? I think I need an attiude adjustment, more than anything at this point.

    Well--I never like going to the onc, but today I rushed out of work only to find that my appt isn't til Thurs!!! I think they rescheduled with me when I was really sick with the stomach flu. I probably said "fine" to the change and promptly forgot. Or,just chemo brain still..

  • Renrel
    Renrel Member Posts: 497
    edited February 2011

    Well I have finally gotten myself doing some regular exercise thanks to Wii Fit. i did virtual hula hooping for 10 minutes this morning, over 3000 spins and I ran around Wii Island last night before working on my golf swing, flying like a bird and take a few turns sking down the mountain.  I love it , but now I am sleeping even less as I get up early to do it and tend to try to sqeeze some more in in the evening.  All I need is a 27 hour day and I think I can have it all. :)  sigh.  Really though, my next goal is to get more sleep.  I am eattiing reasonably well and will continue to work on moving bad stuff out and good stuff in while not be obsessive, I am exercing at least 15 minutes most day and I try for 30 or more if I can, my reiki during my commute sort of counts as 15-20 minutes of meditation, I take time to count my blessing every day, I have made real progress in getting caught up at work (though not quite enough yet) but sleep is still eluding me.  Its not that I can sleep if I actually go to bed, I just don't go to bed.  I think I average about 6 hours on weekday and then make it up by sleeping till 10 on Saturday and taking a nap on sunday.  

    OH, I am signed up to give blood tomorrow.  Apparently the no donation period after cancer treatment is now 1 year not 5 years.  It makes me nervous since I would hate for my good deed to give someone cancer but I assume the Red Cross know what they are doing. 

    but first I have to get out of my back log at work which requires doing some work at home in the evening. 

  • ktym
    ktym Member Posts: 2,637
    edited February 2011

    Renrel, you might want to go over and join us on the motivation thread.  A group of us who talk about our work outs and support each other getting back in healthy lifestyles and shape.  Very supportive group.  Even if we don't see you there, good for you, you are always a motivator for me when I read your posts

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited February 2011

    Hello, everyone.  I so miss you all.  I guess we are all doing well- we are too busy to post.  My lovely mother went into hospice on Friday. I love the nurses already. 

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited February 2011

    Jess--Sorry to hear about your mother. My thoughts are with you. Is she at home hospice or elsewhere? I'm glad you like the nurses.

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