Starting Chemo October 2009

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  • suz45
    suz45 Member Posts: 796
    edited February 2011

    Val, good to here another step done! Take it easy as you recover.

    Michelle, skiing here is great as we have 3 ski mountains right in the city and lots of world class skiing just a few hours away. I haven't gone skiing in quite a few years and really miss it. Im gonna try just a few hours of night skiing to see how out of shape I really am..... lol I'm sure I'll pay for it but I'm gonna just stick to a couple of easy runs.

    Soooo happy happy happy! I had my appointment with my onc today and everything is looking good. She said its not unusual to still have pain in the rib even after it was radiated. I was concerned that maybe it was spreading, but she said my bone scan looks the same as the last and there is no new area's of concern. She doesn't think I need the PARP Inhibitor trial yet (so no chemo) but I will have a ct done on my liver & area before my next visit (in 2 months) to keep everything highly monitored... I think my liver test came back a little high but not serious this time around.

    I try my best to stay upbeat & positive but this visit I really felt like a weight was lifted off my shoulders and I can breathe easier.

    Big Hugs All

  • one-L
    one-L Member Posts: 1,110
    edited February 2011

    Suz, what good news.  I  am so happy for you, I know this is relief for you.

    Val, keep resting and get well soon.  Glad  the girls are going to be a matched set and are doing nicely.

    Cold here in Texas.  Something we are not use to, but we are managing somehow.  Mainly we just stay in and off the roads.  We don't know how to drive in the ice and snow and do not want to learn how.

    Juannelle

  • txstardust
    txstardust Member Posts: 599
    edited February 2011

    Suz, I'm glad to hear that you are stable right now.  Keep on with the easy breathing!

    I'm breathing easier today too - heard from the doc's office, and there has not been a progression of the abnormal cervical cells to cancer.  Since I only got to talk to the nurse, I didn't ask what exactly he saw, but for now, all I care about is that he didn't see any cancer.  So, I can postpone the surgery until late March, and I'll just need to have a cold knife cone biopsy to remove the cells.  Day surgery, and in most cases, it solves the problem!  I am so relieved.

    We had SNOW here overnight!!  Very cold, then some freezing drizzle, which coated everything with a thin layer of ice, then a bit of snow.  They closed all of the freeways until late morning, so there was no school - a surprise vacation day for the girls and I!  We ended up making a mini-snowman, and slid around in the parking lot.  Thankfully, it mostly melted and evaporated by the end of the afternoon.  It's supposed to warm up to the upper 60's by Sunday, but another freeze and possible ice is expected next Wednesday.  It's fun for a little while, but I couldn't make it like this for a long period of time.

    Hope you're all having fun tonight!

    Hugs to all... 

  • jeanl151
    jeanl151 Member Posts: 146
    edited February 2011

    Shelby....what a relief for you - congrats

    Suz - glad you got a good report

    Val - feel better soon

    have a good weekend, here in Boston area we are hoping for a break in the snow storms. Right now my driveway has 5 foot snowbanks...there is no place left to put the snow!!!

      Jean

  • micheleboots
    micheleboots Member Posts: 1,993
    edited February 2011

    Jean, yuck on the snow shoveling...

    Suz, sounds like some good news for a change...love being able to breath a little easier..

    Shelby, I watched your video on FB. so funny and cute...you should bring your sled here for a little sledding adventure.

    Juanelle, sounds like a good reason to stay indoors and bundle by the fire..

  • valeriekd
    valeriekd Member Posts: 287
    edited February 2011

    R U having side effects Michele? I am having trouble deciding if i should just suck it up and take it (muscie/joint pain and fatigue!) or get back to my normal self. I am curious what other folks here are doing. :)

  • micheleboots
    micheleboots Member Posts: 1,993
    edited February 2011

    So far I have had nothing much.   a little joint pain, but then that could also be because I am getting older.  It goes away soon after getting up in the morning.  I have lost a little weight and I think that may be from it, but who knows.  I also have been having trouble with a annoying vaginal itch.  I think that is more a hormone change thing caused from having my body thrust into menopause during chemo.  I figured that I may as well give it a go and see what happens. I could always stop if I needed to.  I think some times women are scared to take it because of all the crazy SE,s, but then if you watch any of those commercials on tv, the se's are scarier than the disease.  You know like death or diereah from using zit cream.  They have to warn you of the WORST se's.

  • txstardust
    txstardust Member Posts: 599
    edited February 2011

    Death or diarrhea from zit cream - LOL Michele!  It always blows my mind to hear on the commercials those long lists of side effects that sometimes seem worse than the medical problem that prompts taking the medication in the first place.  As far as the Tamox question goes - Val, I'm in the same position myself, trying to make a decision.  I have the added issue of having to consider my other health problem of bipolar disorder.  I've learned over the years that flare-ups in me are sometimes influenced by hormonal fluctuations, and I know that mood swings are a common side effect of Tamox.  I can't afford to make myself more vulnerable to mood swings because they can be deadly for me.  Now that I've discovered that I'm officially in menopause (at least for now), I'm not sure what to do.  I guess it's all about risks and benefits, which vary from person to person.

    My girls did have a lot of fun in the snow yesterday.  Michele, I think they'd love a Canadian sledding adventure!  Our "sled" was actually the lid to the plastic hamper, haha!  I think that hindered their efforts because it wasn't a smooth surface, but living in south TX, we made do with what we could find.  It was so cute to see them feeling and acting like little kids again in the snow!  And of course they loved having the day off of school.

    Jean, you guys have really been slammed this winter!  Let's hope that the groundhog was right when he forecasted an early spring... 

    Have a great Saturday everyone! 

  • micheleboots
    micheleboots Member Posts: 1,993
    edited February 2011

    Shelby, cardboard is great in a pinch...we have  a huge dumpster of cardboard and a huge pile of snow out front where I work...we are just waiting for a quiet moment and watch out.

  • valeriekd
    valeriekd Member Posts: 287
    edited February 2011

    Hi Shelby, I have problems with depression and anxiety not to mention subsequent drug addiction and alcoholism (been clean 25 yrs knock on wood). The AIs are BRUTAL on mood....f'ed me up big time....tamox is less severe there....difficult questions but if it can snow in south texas i guess anything can happen! Good luck!

    Glad its working for you Michelle.Be well! (It rhymed) :) 

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited February 2011

    Shelby ~ I am so glad to hear of your good news.  Hope you are resting easier now.  :)

    Valerie ~ how is your reduced tata feeling?  Matching the other one better I hope ~  Congrats on 25 years of sober life !  I gave up the drink when I was diagnosed with cancer.  (OF all times)  My brother and father are both alcoholics.  I was getting afraid I was turning into one.  I did have a glass of champagne New Years.  Drinking gives me a headache! 

    The tamoxifen side effects aren't so bad and aren't so good.  I have days I don't even know I take it.  Then days my knees are killing me, shoulder etc.  Michele ~ I had the itching for months.  Doctor finally gave me a diflucan even though testing showed no sign of infection and wala !  NO MORE itching so go figure?!  Biggest problem for me is not sleeping..........  but that's been an issue for me always.  Thankful onc gave me some ambien to have on hand.

    Hugs girls !

    :)

    Alicia

  • snuziq
    snuziq Member Posts: 107
    edited February 2011

    Ladies,

    I was thinking of all of you the other day.   I realized that most of us have about reached the one year anniversary of the end of chemo!   Hopefully, this finds every one doing well.  

    I will be raising a glass in toast to our anniversaries.    Laughing

  • suz45
    suz45 Member Posts: 796
    edited February 2011

    I'll chime in too with having anxiety problems and giving up alcohol... they seem to go hand in hand. Addictions run high on both sides of my family so I'm a much better person without it.

    It was funny, I went out Saturday night for dinner then on to a blues & reggae club with a group of 4 couples. I used to party with all these people but haven't socialized with most of them in about 10 years. One of them asked me if it was possible to still have a good time without drinking (as I got off the dance floor) I had to smile as I was having a blast and all my drinks were DD so they were free (club soda with a splash of cranberry) . Yes its possible to have an even better time because I could get up & dance in high heels all night and not suffer too much the next day. I will admit I was was extremely tired Sunday but I'm not used to late nights.

    Hoping everyone is well! Lots of love & hugs Suz

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited February 2011

    SnuzQ ~ nice to see YOU !!!!

    HAPPY CHEMO anniversary ~ mine was yesterday !  what a difference a year makes.

    Suz ! I too hit up the seltzer and a splash of cranberry too funny. 

  • one-L
    one-L Member Posts: 1,110
    edited February 2011

    Congrats to everyone that has reached their Chemo anniversary.  Last year I biggest wish was to have hair.  We are always evolving and what are our wishes now?

    Mine is to never have to worry about BC again.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited February 2011

    Me too, Juanelle.  You know it is funny, but I have forgot/blanked out all those first/last dates...I guess I just want to put it all behind me.  The only thing I remember is when I started Tamoxefin.  In fact I have it written on my prescription.  Every time I get a new one I mark on the bottle the date I started and how many prescriptions I have completed..

  • MaryNY
    MaryNY Member Posts: 1,584
    edited February 2011

    Alicia: Happy end-of-chem anniversary! I can't believe that mine went by without me remembering it. And it was even an easy date to remember Feb 1. I thought it would always be etched in my mind.

    Juanelle's comment prompted me to look back to see what people were saying this time last year. The talk was mostly about hair (as she guessed) and Tamoxifen. One year ago today:

    Feb 19, 2010 05:32 am joanneasiata wrote: ...About hair ,my head feels like velvet i love the feel so does my kids they are always rubbing my head i sooo love that. well ill be at work cutting peoples hair and doing all sorts of fab hair cuts when you all would be reading this , soon you all will be sitting in the salons for your first hair cuts oh how exciting.

    Feb 19, 2010 11:33 am JustmeAlicia wrote (from vacation in Vermont, lucky thing!): ...I want hair too. HECK I'm freezing bald up here. I put a bandana on, a wool hat and my hood. 

  • jeanl151
    jeanl151 Member Posts: 146
    edited February 2011

    Wow - a year!!   Michelle I am like you, blanked out the dates. I just looked it up and tomorrow is my anniversary of my last chemo.  I am liking where I am in the world right now  and how I feel  !!!!!!!!!!!!!!

      Congrats to all

    Jean

  • feistybluegecko
    feistybluegecko Member Posts: 133
    edited February 2011

    Wow - just catching up after a few days offline and we are in anniversary season!!  We have come SUCH a long way together.  I am a little behind you all - I started taxotere just over a year ago so my endofchemoversary is not till 4 April but I remember all the chemo dates (I've always been a bit anal about dates!!)

     But I wanted to share this (pasted below) -  it's a few (slushy) words I wrote the other evening prompted after an open air guitar recital and followed the next day by my morning sunrise swim.Being thankful for those small and special things ....

     Big hugs to you all

    Philippa

    The sound of thankfulness

    Classical guitar

    playing

    under the lakeside stars

    harmonising

    with gentle evening birdsong.

    The sounds of water

    lapping

    as the sun creeps over the horizon

    harmonising

    with chatty sunrise birdsong.

    Blessings

    truly

    simply

    counted.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited February 2011
  • valeriekd
    valeriekd Member Posts: 287
    edited February 2011

    Oh That was beautiful-that evoked some lovely images after thinking about chemo a year ago! Life has a lot to offer, some painful and others awesome. All part of it. Well, getting another haircut tomorrow! Oh and the girls match with just minimal discomfort left. They feel reunited.

    Have a great weekend! 

  • MaryNY
    MaryNY Member Posts: 1,584
    edited February 2011

    Philippa: that was beautiful.

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited February 2011

    Mary ~ how nice of you to go back and look at last year.  I was so thankful to be done with chemo and do our annual trip we have done for many years with my kids.  I was sad I couldn't ski last year but walked to the bottom of the mountain to watch them ski down.  THIS year I will SKI ! woo HOO.

    Philippa ~ beautiful !  :) thanks for sharing.

    Juanelle ~ Michele ~  I too hope to never have to deal with BC but somehow feel I will.  AND will kick it's ass again.  Maybe because my mother in law had to do it twice.  AND she is still here. 

    Happy chemo anniversary to all.

    Have a great day !

    Alicia

  • txstardust
    txstardust Member Posts: 599
    edited February 2011

    Alicia, do a black diamond run for me!  (haha, I have only gone skiing once in my life about 25 years ago :P )

    Philippa, that is a lovely poem.  You have a way with words!

    My last day of chemo was Jan. 27.  I ended up hospitalized with febrile neutropenia a week later, from Feb. 3-7.  Ugh.  So glad that's in the past!

    Alcohol - I stay away from it for the most part.  I have personally experienced the hugely negative impact that addiction can have (my ex-husband Frank and my own issues in the past...).  You forgot an additional benefit of being the designated driver - the hilarity of watching your friends' behavior when they are drunk.  Not to mention knowing that you are keeping them safe.

    I also have the nagging fear that I have not seen the last of bc.  Trust me, I, more than anyone, hope that I am wrong and it is just lingering paranoia!  I hate that my mind hangs out there.  Over the past few days, I have had an awful pain in my back that doesn't seem to be going away.  Of course, I immediately jump to the fear of mets, when in all likelihood, my back is probably just reacting to getting up and down from the floor in my new teaching apprenticeship with the 3-year-olds.  Oh, for the good old days when a backache meant I was just getting old!  

    By the way - I wonder what our Princess JoJo is up to?  I hope she's simply busy living and enjoying life, and just doesn't have much time to stop by.  I MISS YOU JOJO!!  :)

    Much love to all! 

  • one-L
    one-L Member Posts: 1,110
    edited February 2011

    I had my annual mammo today, nothing to report, they will  let me know something in about a week.  They said they would call if there were any problems and I told them if they called me I  would probably have a  heart attach.  I am not sure I could stand a call like the last one, it was a really bad day.  Anyway, every other time I have been there, I have seen a doctor, today I did not see a doctor, so I think that is good.  This was just a regular mammo. 

    I will have a bone density test next month, then have a visit with my Onc and my Rad Onc on the same day.  She wanted all the test to be done, so she  would have the results before my visit.  I am feeling so good these days and am not having any problems.

    Hope everyone has a great weekend and is having some beautiful weather.

    Hugs,

    Juannelle 

  • micheleboots
    micheleboots Member Posts: 1,993
    edited February 2011

    Juannelle, phew..love good news like that.  I have one scheduled for end of March, but I changed it to mid April.  I am going on vacation at the beginning of April and didn't want any risk of screwing up this trip.  If they came back with bad news I would be just sick.  At least I can relax until then..

  • one-L
    one-L Member Posts: 1,110
    edited February 2011

    Michele, that is probably a good idea to change it, no reason to ruin a perfectly good vacation.  We will all keep our fingers crossed that you will only get good news.

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited February 2011

    Juanelle ~ praying you get nothing but an ALL good ! 

    Michele ~ I did the same thing, we have a cruise booked for Easter break.  My appts are all AFTER that.  Don't want to risk getting any bad news to ruin or cancel my trip. 

    Enjoy the weekend girls.

    :)

    Alicia

  • MarieK
    MarieK Member Posts: 911
    edited February 2011

    Happy Chemo-versary to Everyone!

    I'm just like the rest of you - treading water - following up with drs, going to tests, waiting and hoping that the C does NOT come back.

    I did have my exchange surgery last week (2/3) and I'm getting through the aches and pains of that.  Funny thing is while I'm dealing with "chest pains" my jaw/neck pain has subsided.  Not sure if it was the anti-inflammatory, or pain meds from this last surgery or my new pillow that has helped.  I'm enjoying it though!

    I won't bore you with all the details of my exchange surgery but I will tell you that I'm feeling pretty good about the results and the feeling that I'm getting through this stage of my life! 

    This July will be 2 years since I was dx!  At the time it seemed like my life was over and now I realize that it was a wake up call to enjoy every day!

    I hope you all have a lovely weekend and enjoy your days!

  • micheleboots
    micheleboots Member Posts: 1,993
    edited February 2011

    Marie, so glad that you are happy with your new "girls"..

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