DCIS for sure-path report

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sweetjolieblon
sweetjolieblon Member Posts: 43

I am going to abbreviate this as much as possible:  Microcalcifications were found upon my rountine mammorgram in Dec.  Radiologist suspicious as linear, branching.  Had a diagnostic mammogram done January which led to a Sterotactic Biopsy.  It came back as ADH bordering on DCIS.  I then had a lumpectomy. It showed DCIS intermediate to high grade, Comedo. Cribriform. Central necrosis.  My surgeon took out a good chunk surrounding the small area, but the margins came back as not clean on three sides and deep.  I am scheduled for a MRI tomorrow, had my creatinine drawn today for that.  She did send me to see an oncologist and told me the same thing my surgeon told me.  My options are the re-excision (lumpectomy) with radiation/Anti-Hormone ( My ER is strong at 80%, PR 5% moderate both favorable  ER clone: ID5PR clone:636) or simple mastectomy/simple mastectomy with reconstruction.  Will need to make the final decision after the MRI.  I feel like I am going through all the right channels as I navigate through this maze.  My head spins with all the information.  Would value your input!

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  • Staffielover
    Staffielover Member Posts: 3
    edited February 2011

    It is a hard decision but I hope this helps.  I don't know how old you are but I had a mastectomy without reconstruction almost a year ago.  I am 55 and quite active.  The recovery was fast and I still have the option of reconstruction at a later date using "material" from my stomach.  I have full use of my arm including a full extension.  The main problem I encounter is with underwear and tops.  I wear a FF or G cup bra so the choice is limited.  I have found good underwired bras (not mastectomy bras) in a department store and just slip the prosthesis inside it.  However, even with pocketed bras, when bending forward, the weight of the prosthesis pulls it away from my chest wall.  I now find I can only wear tops with a higher neckline.

     I am now considering a stick on prosthesis but have not done any research as yet.

  • sweetjolieblon
    sweetjolieblon Member Posts: 43
    edited February 2011

    Thanks for yor reply.  I am 63.  I am seriously researching all options.  I am trying to understand this DCIS.  If it CAN become invasive is it invasive only to the breast?

  • Beesie
    Beesie Member Posts: 12,240
    edited February 2011

    Sorry you've had to join us.  There are a couple of posts with a lot of info about DCIS that I will bump to the top of the list for you.  Also here are some good websites with information about DCIS:

    DCIS Info

    http://www.breastcancer.org/symptoms/types/dcis/ 

    And here's a great article that explains pretty much everything you want to know about DCIS treatment:  Current Treatment and Clinical Trial Developments for Ductal
    Carcinoma In Situ of the Breast

    To your question, DCIS cancer cells are confined to the milk ducts so DCIS cannot spread outside of the breast.  However if a DCIS cancer cell evolves to become invasive (i.e. it breaks through the milk duct), then it is not longer considered to be DCIS. At that point it's invasive cancer and like all invasive cancer, it can move into the nodes or into the bloodstream and from there into the body.  

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