Scared and waiting

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Kine
Kine Member Posts: 30
edited June 2014 in IDC (Invasive Ductal Carcinoma)

Hi you all

I just found this forum searching the internet looking for information. I leave in Norway, but I hope it is OK for me to join anyway? It looks like a fabulous place to read other experiences.

I am in the process of having the diagnose IDC in my right breast.

First they thought it to be DCIS, but after the biopsy they found it to be invasive.

The lump is 18 mm i size. This lump showed in the ultrasound with microcalcifications. 

On the ultrasound, the nodes in the armpit looked OK (doctor was looking at them), but I am so scared that the cancer has spread to the nodes. The reason that this lump was found at all, was due to me feeling my armpit nodes was irritated. 

The mammo did not reveal the lump, but it was found on the ultrasound.

Does anyone have any insight on symptoms on node involvement? Will it show on the ultrasound?

I am going to a meeting with the sergeant, for further treatment and investigations.

(sorry about the english, hope you understand) 

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  • InTwoPlaces
    InTwoPlaces Member Posts: 354
    edited January 2011

    Hi Kane,

    I'm sorry you have to join this club, but there is a lot of wonderful women here who can answer a lot of questions that comes up.

    (I'm Swedish but live in California.)

    The nodes is my armpit is where I found the lump, not in my breast, I would assume you are going to have breast surgery to remove the lump and most likely they will take out some lymph nodes in your armpit to test.

    My tumors in my armpit was easily found on the ultrasound, but the tumors in my breast was very small and difficult to find.

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  • Letlet
    Letlet Member Posts: 1,053
    edited January 2011

    Hello Kine, so sorry to hear about your diagnosis. I just wanted to let you know that in my experience my nodes looked "clean" on mammo, ultrasound and MRI but when they my surgery there were 6 nodes positive.

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  • Anniemomofthree
    Anniemomofthree Member Posts: 608
    edited January 2011

    Hello Kine - I just had a bilateral mastecomty for a stage 0 DCIS (mom/sis with BC).  They were unable to diagnose the IDC until it was on the table at my final pathology report after surgery - 15 mammos, countless biopsies, and MRI and no luck seeing it.  It is really frustrating.  However, please know that the stage where you are "waiting without a plan" is the most difficult time.  There are a series of diagnostics that need to happen, but with my experience (extremely dense breasts and I am 43) it was very difficult to figure out what was happening until I had the sentinel node biopsy and the surgery.  

    Good luck...if you can, try not to think about it too much or to google.  Find the best doctor, get aggressive with the appointments, then keep yourself really busy until then.  I will say some prayers for you!

    Annie 

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  • Kine
    Kine Member Posts: 30
    edited January 2011

    Thank so much for your replies and kind words!

    One more question from my worried mind:

    I have had the flu with high fever for the last week, now fever free again.

    Will this affect the cancer? Maybe overload the immune system, giving the cancer cells a free ride?

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  • changes
    changes Member Posts: 622
    edited January 2011

    Hi Kine,

    Sorry you are going through this. You won't know for sure about the nodes until they are biopsied, but your tumor is very small, which is a good thing. As Annie said, this phase of waiting for your treatment plan to be in place is the worst.

    With regard to your last question, I'm not aware that ordinary illnesses like the flu have any real impact on the cancer.

    Wishing you the best,

    Karen

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  • Kine
    Kine Member Posts: 30
    edited January 2011

    Just a small update, I going to have surgery on Thursday this week (20th January). On February 8th I will have a meeting with the med. team and receive my path. results. Looking forward to it and am nervous at the same time.

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  • Anniemomofthree
    Anniemomofthree Member Posts: 608
    edited January 2011

    Hi - I have been thinking about you and have kept you in my prayers...one of your Norwegian sisters!  I hope all goes well....

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  • Kine
    Kine Member Posts: 30
    edited January 2011

    Thanks Annie!

    Well, now the surgery is over. They took out 2 nodes, one beeing positive Cry

    And they also took some more nodes to check further.

    I have a follow up scheduled on February 8th, more scare and more waiting. 

    Thank you for reading! 

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  • Anniemomofthree
    Anniemomofthree Member Posts: 608
    edited January 2011

    Hi Kine - more prayers and well wished coming your way....sounds like we have a simliar diagnosis, I am just a few weeks ahead of you.  So, so sorry that you have to go down this path.  I was thinking you would not be here with me.

    Kindly,

    Annie

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  • Kine
    Kine Member Posts: 30
    edited February 2011

    Today I have been for a follow up.

    As it turns out, they removed 13 nodes, 3 of them positive. The cancerous tumor was 1.2 cm, with a band of dcis around it (1.3 cm). They need to do more surgery, and I am going back to remove the rest of the dcis 4th of March.

    I do not know the status on ER/PR or HER2 yet.

    A lot of waiting.... Still scared! 

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  • Mimidi
    Mimidi Member Posts: 231
    edited February 2011

    Kine my prayers are with you.  I was diagnosed with IDC November, 2011.  I too have just found this forum.  Reading the posts have helped me so much.  I have felt like I have been drowning for months now and all the great members here have made me realize that I am a good swimmer and a fighter.

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  • mdg
    mdg Member Posts: 3,571
    edited February 2011

    Kine, just wanted to say hang in there.  Glad you found us on here.  We are here for you!!!! I am hoping all goes smoothly and you are feeling well.  I know how hard the waiting is.  I am done with BLMX but waiting for chemo. We aren't ever even waiting for anything good either.... :) Best of luck.  Keep us posted.  Be well!

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