Anyone starting chemo in June 08

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  • SanDeeLou
    SanDeeLou Member Posts: 96
    edited January 2011

    Thanks KKing.

    I don't often due to the trouble I have typing with only two fingers after 26 years of being a secretary.  Two fingers suck in that situation.

    My best to all and better health to all of us.

    LOL

    Sandy

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  • Kellke
    Kellke Member Posts: 424
    edited January 2011

    SanDeeLou,

    I am sorry I am not familiar with CEA markers.  I did a quick search and noted that they can be at much higher levels so I would think your oncologist is taking good care of you.  I do hope you can reduce them for your peace of mind. 

    Good luck and feel free to post even with sticky fingers :)   Kelly

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  • SanDeeLou
    SanDeeLou Member Posts: 96
    edited January 2011

    Back home now.  The PET Scan sis not show any cancer over 5mm.  Onc believes there may be some cancer in my blood and has change my medicine and added a monthly shot to put me in menepause (look out DH).  Bloodwork every 7 weeks to track how it's going.  Thanks . lol
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  • Kellke
    Kellke Member Posts: 424
    edited January 2011

    OK everyone time to get back to posting...

    I just returned from a girls weekend in Arizona.  Nice to sit in the sun and bask. On the home front things are quiet, I am fatigued almost all the time but am able to get out and do one or two things a day.  My younger son did not do well again with school so I made him stay home.  He is taking one class at the local community college and is looking at a delayed enlistment with the Air Force.  Many changes in his life and ours.

    My TM's are up and my oncologist is suggesting a triple treatment of herceptin, tykerb, and avastin.  Anyone else doing that?  I have had herceptin and stopped it when I had progression, I had tykerb in 09 and if I recall I stopped it because we were not sure if it or xeloda caused my liver to stop functioning properly.  Probably xeloda since he is advising starting tykerb again. I have heard the horror stories of avastin but think that 2% chance of heart failure may be worth the risk.  I am getting nervous about still being alive when I was diagnosed in April 08. I know it is silly but I feel morbid these days. I also don't want to have to tell my husband about my treatment since we disagree so much about it and I feel no support or help from him.  It is easier to ignore than deal with. I guess a lot of life is like that...

    I will try post something happier tomorrow  :)    Kelly

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Good to see some posting.  I am at work trudging along.  My life is not the same, but going forward at this point.  I still have not met my new oncologist.  Guess I will call them in a week or so.  I had my last appt in Nov. with a stand in so I really don't want to go back for a bit.  Sick of Dr.'s, Hospitals, etc.  Sandy, I am glad you are getting good care from your onc.  Leggy, how are you doing?  Kelly, hope you can keep your health up with the new treatment.  I know nothing about those trts you will be on.  I keep counting the years...I keep remembering back to the 5 year odds that I was given as a late stage girl.  Guess nobody knows really.  I just want to say to you gals that aren't working and are able to live withought worry in this shady economy, you are lucky.  I must keep working.  I have no choice until I become disabled.  Hope you are doing well on your Arimidex? Karen.  I thought I might be switching over to that but haven't yet.  I have been on the Tamoxifen for 2 years.  Guess they both have their SE's.  Bonnie, how are you doing?  It is so cold here sitting in the sun and basking sounds so nice Kelly.  Well, I'm at work and better get busy.  Later all!  HD

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  • SanDeeLou
    SanDeeLou Member Posts: 96
    edited January 2011

    Hello ladies

    Kelly, how hig were your tumor markers?  My were July 2.4, November 6.2 and December 30 11.9.  I am not familiar with the drugs you are going to be taking.  GOOD LUCK with it.  My onc doesn't want to do chemo if this other treatment will work.  I got my bloodwork back reguarding my overies and all three state I am in postmenepause.  I got my first shot yesterday and the nurse said maybe a week I start feeling the effects of it.

     Just a clue about filing for disability.  It takes forever to get anything done.  I was terminated this past June due to the fact I could not perfrom my duties as a housekeeper efficiently.  I continue to have neurophathy i my hands and feet.  MRI showed my right shoulder a small tear in my rotator cuff, arthurist and spurs thus reducing my range of arm movement and weight I can lift or carry.  Doctor said surgery would not help and to come back for a shot if the pain gets too bad.  My PET Scan also showed arthurisist in my left shoulder.  I have spurs on both feet and my neck.  Fibromylia, diabetes, sleep apnea, high blood pressure, disfunctional thyroid among some others medical issues.  I received a letter from the disability office stating my court date could be as long as 24 months and another 2-3 months for the judges dicision.  Luckily I has retirement to fall back on and my husband was able to add me to his insurance.  No wonder I am tired all the time.  Fib, diab, sleep apnea, thyroid and post chemo causes fatigue, imagine that. 

    It rained here this morning at daybreak, we got .7 of inch at our house and needed everybit of it.  The horses were soaking wet when I went out to feed them. 

    Hope all have a wonderful weekend.

    LOL

    Sandy

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  • KKing
    KKing Member Posts: 425
    edited January 2011

    Wow, I guess we are all busy with our lives.  Maybe the weather is getting everyone down.

    Hope you are all well.   I did get a nasty virus and missed a week of work but now I am back at it.   This month has flown by and not much going on.    My chemo buddy just went through breast reconstruction so I have been keeping tabs on her, she has come through it well but has a slight infection at the moment.  

    Well, I hope we can all get back to keeping in touch.   Talk to you all soon.

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited February 2011

    Hi, I just kept waiting for someone to post besides me!!!  Same old problems here, MY FEET!!!!  Does anyone remember the movie called, "They shoot horses, don't they"...  That's about how I feel right now, someone put me out of my misery.

    Peace and Love

    Leggyj

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  • Kellke
    Kellke Member Posts: 424
    edited February 2011

    Hello........................hello.............hello.......

    My impersonation of an echo  :)  

    Where is everyone?  Huddled inside during these cold snowy months?  

    I just turned on the superbowl channel so I could see the half time show.  Hope it is fun to watch. 

    Kelly

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited February 2011

    Hi Kelly, or anyone else who is out there........I watched the whole game!  I've been a Steelers fan, since, I was a kid, and even though we lost, it was a good game.  I kind of like the tall long haired Viking looking guy on the Packers team.  What a cutey, and your never to old to look!  Right LADIES!  Ollie Ollie OXEN FREE! 

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  • KKing
    KKing Member Posts: 425
    edited February 2011

    Sorry Ladies, not a football fan.  I am more into English premier soccer or hockey.    Did your favourite team win??

    Yes, we are all very quiet, it must be the cold days.   I am sitting around being jealous of all the people I talk to that are going away somewhere warm.  (I work in the bank, so I see a lot of people).  Any lucky ones here that are indulging??   We have had some cold and snowy days here, it is -20 Celsius today.

    Hope everyone is well, spring will be here before we know it.  

    Enjoy your day.

    Karen

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited February 2011

    Hi Ladies, I have been cold too.  I have just been trying to work.  I am starting physical therapy tomorrow.  I won't bitch about it though now.  I will wait until after tomorrow.  LOL!  Leggy, did you have to try physical therapy?  I watched the game also Leggy.  I didn't really care who won but I guess was happy the Green Bay won.  I was dissappointed in the commercials and halftime though....boo hoo.  DH has a cold....I am trying to fight one off....just living day to day.  I also am jealous of those in the warm places.  I am trying to build my leave back up at work, but still have had plenty of Dr appts to eat up some hours here and there.  Big hugs to you all...Hunkydory

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  • Bonnie02
    Bonnie02 Member Posts: 193
    edited February 2011

    Hi everyone,   Yes, I am still here but have been feeling kind of down these days. Felt a bit better after I went outside to look at everything coming up and the fruit tree are all budding up. I thought if it would stay nice and sunny just one more day I would go out and weed my raspberries. We will see what happens tomorrow. My doctor now wants me to come in for awhile and get my blood pressure checked because it has been very high. Always something although I shouldn't complain because that is a very small thing compared to others.  Still miss choc. a lot, can't believe she is gone, then I turn on face book and all kinds of pictures of her and her girls and of course her dog and husband.

    Got to go now big hugs to you all

    Bonnie

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited February 2011

    Hiya Bonnie!  I am hoping you get to feeling better.  I had to go on high blood pressure meds this last year.  It is something to take care of for sure.  Just hard to think of another thing wrong.  You must be having some warm weather.  We are all still freezing south of ya.  I miss Choc too.  Funny how only a handful of us continued with this thread.  I understand people moving on, and not wanting to think about it anymore.  Unfortunately, I don't know when I won't think about it again, and it's nice being able to discuss things with people I started this journey with.  Just wanted to pop in again.  Kelly, how is your new trt?  Is it tolerable?  What tough decisions women battle with who have this horrible crap.  Hugs to you all....enjoy the day and may the day be pain free!  HD

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited February 2011

    Oh Thank God, you girls are still out there!!!!  Kelly and I were, getting worried. 

    It's been really nice out here, and the daffodils are blooming in my garden, so spring is on it's way.  In fact, I'm looking out my window at a nice sunset, so life can't be all that bad, eh?  I've been doing a bit of work in my little garden, trying to get ahead of the weeds. 

    Now that I don't have Auberge Du Soleil, to feed me, I've been learning to cook, and not doing to bad of a job, it I don't say so myself.  I'm starting out recipes, that don't have to many ingredients, and soups are easy enough.  The trick is to do something easy, good, and will last for a few days.   The hardest thing for me is standing on my feet, on the kitchen floor. In the kitchen, I playing hopscotch, trying not to touch the floor.  Ah well, now it's time for me to get off my butt.

    Miss you all terribly, so please post more often....guilt trip.....

    Love ya'll

     Leggyj 

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  • KKing
    KKing Member Posts: 425
    edited February 2011

    Sorry to hear you are feeling so down Bonnie, like you said maybe the sun and warmth will make things seem better, nice to hear from you.

    Well we are still in the minus degrees,  we try to get out with the dogs each day to get in a bit of exercise.  I actually joined a yoga group once a week.  Oh my God, it is hard.  I feel like a stiff old lady.  I go through the motions, | am not a human pretzel at all but I must say the relaxation at the end of class is the best part.  I will stick to it as it is different and there is no pressure during the class.  Will let you know how that goes.    

    So glad to see we are all posting a bit more.  Hope you are all enjoying your Sunday and Happy Valentines Day to all of you.  Love  Karen

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited February 2011

    It's turned cold again, in the Napa Valley.  We had snow on the mountains this morning, so pretty.  I've been working on changing the hardware on the doors, this past week.  There's this little old man, in my neighborhood, and he's a retired pastor, who likes to help people and he's been helping me.  He shows me how to do handyman stuff, and then let's me do it myself. He had cancer ten years ago, so we hit it off right away.  It's like having a grandpa and he doesn't preach to me, but shows me that there are good people out there. He's 81yrs old, and is still out there helping others.  Now I know someone is praying for me....and I don't even go to his church!  At least not yet anyway.  One of my good friends belongs to his church, and I just might tag along.

    Bonnie, I've been depressed myself,  lately, but I've been keeping busy, so I don't have to much time to wallow in it too much.  But it's hard to turn off my mind at night, when it's dark and still.  I have trouble going to sleep, although I always have, it get's too much sometimes.  Lord knows we could all use some good times right now, but keep the faith girl.

    Love to you all, where ever you are!

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited February 2011

    Hiya Leggy.  Sounds like you are keeping busy.  That is good for the mind.  It is very nice you have a new friend.  When you get really handy, can you come and re-roof my house....LOL!  Isn't it funny that when we were young we thought old people were full of Sh!t and now we realize what a valuable resource and wealth of information they are.  I still am going to the torture chamber, I mean physical therapy.  Wow, I am feeling muscles I haven't felt in 3 years.  I can't feel a lot of stuff do to the surgeries and neurapathy, but I can sure feel this!  There is no sign of spring for me yet....still cold.  Hoping to be doing better when we get some nice spring days.  Hoping everyone is doing OK.  Hugs....HD 

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited February 2011

    Hi HunkyD, Yes my bones are reminding me of all the gardening, I've done over the years.  We had snow on the moutains around Calistoga, and they say this weekend it may even snow in San Francisco, so I know we will have some more here.It's really pretty, when your not knee deep in it though, we really only get a little here, and it usually melts quickly, so we'll see.

    Hope your PT helps, and take care.l

    Leggyj

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  • Bonnie02
    Bonnie02 Member Posts: 193
    edited February 2011

    HI Everyone,

    I was kind of glad to hear you guys are having some of the same troubles that I am.  Like week and sore muscles and my body doesn't even feel like it belongs to me. I have always been very active and fairly strong also, now I can hardly do anything takes me 10 min. to get up off the couch. If this weather would get a little nicer I could go outside and try working in the garden. Actually the yoga sounds like a good idea and I think I will look into that, might be a good place to start. I wish I could find someone to swimming at the pool with me, I will try for awhile and then I guess I will have to go it alone.  Unless one of you ladies would like to come for a swim one day!! 

    My future sister in law's niece had breast cancer just shortly after I had it. She thought she had got over it just fine and then started not feeling so good and found out she had lung cancer. As everyone knows that is a very bad one to get and she passed away on last Friday. She leaves behind a boy 17 and a girl 12 and no father for the kids.  You hear things like this and it makes you feel pretty lucky.

    Got to go and try and get some sleep I hope, Everyone take care

    Bonnie

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  • Kellke
    Kellke Member Posts: 424
    edited February 2011

    Freeeeeeeeezing here in Colorado.  My daughter was signed up to sell Girl Scout cookies at the grocery store.  We hardly sold any because it was really too cold for anyone to make an extra stop on the front display area.  Hope we can finish them up on a sunny day.

    oops gotta go,  Kelly

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited February 2011

    Kelly, we are cold here too...with snow.  I hope you can get those girl scout cookies sold.  Good comfort food for those of you who are sugar lovers.  I am not and my teeth cant take it.  This weekend has been stay inside and watch movies.  We rented this last season of Weeds.  It's a dark comedy TV series aired on Showtime.  I started renting it when we were all going through our first round of trt.  I don't know why I liked it but I did! 

    Bonnie, that is so sucky about your brothers wifes daughter.  I still hate this and always will.  Hope spring hits soon for all of us.  I am still doing my physical therapy and see my surgeon this week.  Take care my friends....HD

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  • Kellke
    Kellke Member Posts: 424
    edited February 2011

     I was trying to carry on a conversation between my husband and looking at this board and couldn't accomplish both last night.  This is why I hate chemo brain~ I used to do things like that with no problem back in the healthy days.  :)

    Hunky you're great about changing your photo, this one really is funny. I had a bad reaction to my medicine last night (reglan for nausea) and my face really did get kind of stuck like that.  It was like a seizure that made my back, neck, and facial muscles clench.  I thought we would be heading to the emergency room but benedryl helped to stop it.  Later I looked it up online and it was called tardive dyskinesia.  Has anyone else ever had that?  This was the second time for me with anti nausea meds. I will have to read the possible side effects list more carefully from now on.

    Today was so much nicer than yesterday.  Sunny and nice in Colorado~ too bad we didn't plan to sell cookies today.  Next year I am making a rule that if it is below 40 we do not do grocery store sales.  

    Off to have a cup of tea and a few girl scout cookies,   What are all of you doing this weekend? Kelly

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  • KKing
    KKing Member Posts: 425
    edited February 2011

    So glad to hear from all of you.  I sure would like some girl scout cookies. 

    Well, we have had nothing but snow this weekend, I dont know when it will end.   They say that if March comes in like a lion it will go out like a lamb, I sure hope that happens.   Sounds like everyone is having to cope  with this weather.  

    I have some great news, I am going to Scotland in May.  My daughter is going to travel to Europe with a group through the month of May, so I am going to fly over with my sis in law and meet my daughter there and stay with my cousin for about 8 days.  I was born in Dundee, Scotland and I haven;t been back in 35 years.  So my cousin said she will take me to see where my family came from.   I am so looking forward to this.  

    I am off to bed after the acadamy awards....anyone watching them.

    Karen   

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited March 2011

    Wish I could go with you KKing, I've been to Scotland twice, in the early 80's, so it's been way to long ago, for me as well.  I love Scotland!  Most of my family on both sides are Scot's: Watson's, and McClellan's. There's a lot of them, it's like Smith, over there. 

    The other day, I finally had to trade in my Toyota Tacoma. It was a great truck, but it had a stick shift, and the clutch petal, was killing my foot.  The Neuropathy, is really bad on my left foot, and pain was getting so bad, I traded it in for a new Toyota Rave4. Just when I was getting used to having no car payments...But I love my new car, and it sure drives a lot smoother than a truck.

    Hope your all surviving the winter, and I long for spring!

    Cheers

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  • Kellke
    Kellke Member Posts: 424
    edited March 2011

    I love all the travel talk.  We are also planning a few trips.  I am taking my daughter to Florida for spring break to see my brother, sister in law and their two little ones.  My sister is bringing her family as well.  And my Dad.  We all invited ourselves since my brother Sean is training down there and has a three bedroom condo close to the beach.  I don't remember if I told you that my mother died exactly three months ago today and we have always been a close and traveling family but now we feel some urgency to stay connected and keep up the good memeories of Nanny.  She loved walking along the beach so I am sure she will be with us there too.

    Three crocus blooms in my front yard, so spring is on the way,  hurrah.  Kelly

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Wow, Karen, that is exciting.  You should have a wonderful time and after 35 years it will definately have some new surprises for you.  I am so happy you get to go!  Please keep us posted on it all.  Leggy, I am a toyota person too.  Had a celica first, then bought a 4 runner, (all stick shift)  My DH bought a Tundra the year I was diagnosed.  He loves it.  I know that new one will be a good vehicle for you.  I so wish I didn't have to fight with the clutch and my coffee in the morning...LOL!  Kelly, hope you have a great time at the beach.  The weather should be great!  Guess I missed hearing of your mothers death, I am sorry and I know she will be with ya on the beach.  Great thing is, when you think about her, she is always with ya!  I have learned that from loved ones I have lost!  Bonnie, how are you?  I hope you are doing well.  We are planning some kind of road trip but not sure when.  My leave time is finally building up at work.  Yay!  I still don't have any warm weather or flower buds to focus on yet, but hopefully, it is around the corner.  Take care all of you!  Hunkydory

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited March 2011

    HunkyD, I wanted a Tundra, when I bought my Tacoma, and it was a great truck, and I wouldn't own a truck without a stick shift, it just does't seem right with an automatic, so I have to agree, with your husband, but an SUV with an automatic is OK!  That's my excuse, and I'm sticking to it.  My truck is missed, it had 101,786 miles on it and will go on for another 200,000 miles, but every time I breath get in my little SUV, and smell that new car smell, I'm happy!  It gets a whole lot better gas mileage, Thank God!  The gas prices are awful here in CA, so right now I'm enjoying a lazy day, looking at my car out the window...It's cold today, and raining.

    Does anyone know how Wyoming is?  It sure has been a long time since we've heard from her.

    Have a good time at the beach, Kelly.  I'm thinking about going to the beach for my birthday, on the 20th, I'll stay over night at a little motel, I know on the beach, where they take dogs.  It would be to lonely, without Wolfie, and  he loves the beach.

    Take care everyone

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited March 2011

    Well, I'll just talk to myself, since you girls are leaving me hanging here.  I just got my appointment card for my Onc. on May 18th, so I know I'll be getting my appointment for a mammo. on the 5th.  No matter how many years go by it still is scary, especially since I've been getting some pain on my good breast and I'm they are so dense, that it really feels lumpy to me.

    I've just been staying home, reading and watching the horrible news in Japan.  That is so terrible beyond belief.  Out hear in CA, your always wondering when the big one will hit, while we try and prepare in my house, with bottles of water and food in the pantry, I think I'm not doing enough. 

    Thanks for being there girls, she said with tongue in check!

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  • Bonnie02
    Bonnie02 Member Posts: 193
    edited March 2011

    Leggyj you are never talking to yourself, I am sure there is always someone on here even if they don't say so.  Most times it will be late when I look to see who has been on here and I am usually to tired to write anything.   Not much happening around here except for all this rain, really getting tired of it and of course my kids say oh I feel so sorry for you when they have lots of snow and it has been -30 C  a lot of days this year, then I feel better.

    I have a question for everyone, does anyone have really sore muscles and pains in there whole body especially in the joints. I have tried exercising to see if I can strengthen my muscles but all it does is make them hurt more. Hoping maybe this is just from the pills I take, if so I will only have to put up with this for another 2 years.  Please let me know

    Everybody take care, I think of you guys all the time.

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