Chemo starting in December 2010

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  • hopefortomorrow
    hopefortomorrow Member Posts: 193
    edited February 2011

     We all have come quite a ways together haven't we?

    Linda, I totally believe things happen for a reason. How nice for you. I always like to hear people's stories.

    I know the one day I was in the grocery store with a scarf on a lady went purposely out of her way to give me a big warm smile and a hello. I knew she wanted to say more. I just knew.

    I am totally living with hot flashes... hot, cold, hat on, hat off... blankets on, blankets off. I don't know of a full night's sleep either. I have blamed it on having to go to the bathroom all of the time! I do drink alot of water, but it seems like alot more comes out! I sometimes take ativan and get four hours.. or benedryl..but I have also napped so alot of the time I think, "Well I just must not be tired?" My husband the other night got irritated with me trying to get out a tums for heartburn. I was trying to be quiet, but it did seem like the bottle was especially noisy!

    I go for my taxotere tomorrow. I am kind of disappointed I was switched. My fingernails and toenails hurt- feels like someone is squeezing down on the nail. I hate the idea of them getting icky! Why don't the onco nurses suggest ice mitts? I feel kind of silly in a way doing something I haven't seen anyone else doing in that huge chemo room? There are like 20 chairs where I go. I have had soreness through my ribcage and back, occasionally aches in my hands and feet. Can I take you guys with me? ;-)

  • nolaa
    nolaa Member Posts: 76
    edited February 2011

    someone squeezing down on my nails!  Yes!  That is the feeling I have too.  It actually started before I started Taxol.  Which I thought was weird.  But I guess AC can do it too.  So far it's only the middle finger on my right hand, but it hurts now to pick up things.  I keep thinking that if Taxol is supposed to be bad for finger nails then I'm really screwed seeing as I have 3 more months of this.  Do you think they'll fall off??   Or just hurt more and more over time?

  • joystars
    joystars Member Posts: 95
    edited February 2011
    3rd round of FEC done!

    To be honest this time I've been feeling pretty miserable! The nausea is there, right there haunting me... if I don't eat small snacks every now and then or take my medication or the Afripan (which I can take anytime the nausea strikes) ..... I can feel pretty miserable! :/

    On top of having my 3rd round (3 more to go, we are half way if I wanna see it in a positive way) the exact same day I had my MRI in the evening... uuugghh!!!  AND MY PERIOD IS BACK!!! (After my pregnancy, first time, so it means quite heavy bleeding and uncomfortable cramps!) How on earth do they do that to me?

    I wanna thank my DH for all what he did that day for me, he woke up early to prepare me some breakfast and give our baby the morning bottle, we went together to the blood test (when he always gets his hand so daaaamn squeezed from me as I don't like needles) then appointment with onco. Onco didn't notice I was wearing a wig.. he actually thought it was my hair... funny guy. Then the round of FEC.. this time it went very smooth but oh boy! It really hit me when we arrived home... what makes me more upset about it is not really much the nausea is the fact I'm useless to look after my baby :(  Bless my mum and DH who have been in charge of a 2 months old baby for the past 2 days...

    Ok, off I go, feeling nauseous right now... better to stop it right here.
    Big hugs for you my bc sisters and linda I do believe things happen for a reason. Lovely that you share that story with us. Thank you!


  • mommafluff61
    mommafluff61 Member Posts: 40
    edited February 2011

    I would love to know if any of you have had this side effect..... 

    Anyone have the SE of itching hands and feet? My last chemo was Jan. 20th. I took benadryl and it really helps. Except that I want to nap at work...hehe! (sure wish I could!)

    NAILS...I have taken 4 bags of frozen peas to each chemo treatment...my chemo buddy helps me keep them on my toes and fingers during the treatment...so far, none of them "feel funny" or have turned colors.

    I had an allergic reaction to Prilosec OTC (hives). Doc said to try Pepcid AC...I take one every moring and night...no more nausea/heartburn.

     Thanks so much for sharing!

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited February 2011

    how do you guys post pics? i have tried everything and can't seem to get a pic uploaded on here! i've tried to insert image, copy and paste, none of it works!!! any suggestions?

  • joystars
    joystars Member Posts: 95
    edited February 2011
  • joystars
    joystars Member Posts: 95
    edited February 2011
    angel, I read on another thread that if you have Facebook you can simply right click on the image you want to share and posted there and hit copy image and then hit paste in the box where you type.

    BTW that last picture is me and my wig. Girls, I need your honest comments about it... What do you think?
  • mommafluff61
    mommafluff61 Member Posts: 40
    edited February 2011

    joystars...

    I would have never guess that you are wearing a wig! You look great!

    no wigs for me...my friend made me some awesome hats and today I am wearing my soft black velour wrap from Gailia! Love it!

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited February 2011
  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited February 2011

    http://www.facebook.com/photo.php?pid=607060&l=59afa49630&id=100000325103961

    This is the link to my picture i had done, it's the only way i could get it to work!! let me know what you think!

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited February 2011

    i suck at trying to post pics.....

  • karebear76
    karebear76 Member Posts: 288
    edited February 2011

    Linda: I believe that God gives allows things to happen for a reason. He knew that you needed that encouragement to get through the memorial service. (((HUGS)))

    I am HALF way through!!!!! So excited!!!! But crazy about the amount of steroids I have to take with Taxol!!! YIKES!!!

    I am also lucky to get a lupron shot. Temporary Menopause OH yeah!!! LOL I have had my period for 12 days now and it was flooding a lot. So this is their plan to stop it!! I get that tomorrow with my neulasta shot. 

  • karebear76
    karebear76 Member Posts: 288
    edited February 2011

    Joy: I would have never guessed it was a wig either!!! It looks great!!!

    Here is my wig.

     

    It is puffier than my real hair was but it is pretty close! 

  • mcsushi
    mcsushi Member Posts: 174
    edited February 2011

    Hey ladies! Just popping in to give you this info on a free cleaning service for women going through chemo. Hope it helps...

    Cleaning for a Reason 
    If you know any woman currently undergoing chemotherapy, please pass the word to her that there is a cleaning service that provides FREE housecleaning - once per month for 4 months while she is in treatment. All she has to do is sign up and have her doctor fax a note confirming the treatment. Cleaning for a Reason will have a participating maid service in her zip code area arrange for the service. This organization serves the entire USA and currently has 547 partners to help these women. It's our job to pass the word and let them know that there are people out there that care. Be a blessing to someone and pass this information along.


    http://www.cleaningforareason.org/ 

     
  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited February 2011

    karebear and joystars, you both look so beautiful! can't tell it's wigs! and you ladies would be beautiful even without them! just want you to know that!

    now... if i could get my damn pic in here.... lol..... having technical difficulties all day! lol!

    or chemo brain.

    i'd rather blame it on the chemo brain!

    by the way, had my first of 8 taxols tuesday. i am surprised at how I feel, got pounding headaches, but no nausea! yay!! we will see how the other 7 go!!!

  • hopefortomorrow
    hopefortomorrow Member Posts: 193
    edited February 2011

    Well I had a setback today. Not sure if I am happy or sad about it. I went for my taxotere today and they could not get any veins. Frown Two nurses both tried several times.-I couldn't believe they couldn't get one! They have always been great at it. One went and told my ONC and then came back and said I could either get a pic line put in or have a port. I am going for the port next thursday and then I will have chemo on Friday. Just a little nervous, that is all. My sister is a retired RN and reassured me that it should be ok. It is nice to feel good for a few extra days, but not wanting to prolong this either!

    Karebear and Joy- your wigs look wonderful! Love the little headband! I can see why he thought it was your hair, Joy.

    Nolaa.. this week it is my toenails too. I have wondered about the length of the taxol or in my case now Taxotere. Positive thoughts.. they won't fall off! lol

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited February 2011

    hopefortomorrow,

    you will love the port, it is a godsend. at least to me it is. a "one stop shop" of sorts. no more sticking and poking for veins, you get one prick, then they take your blood, give you your chemo. they have a great numbing cream to put on before you go too. I wish you well, and really think you will love the port!

  • msjag
    msjag Member Posts: 416
    edited February 2011

    Karebear and Joystars, the wigs look great!

    Hope, sorry to hear about the set back, but everyone who had the port where I had chemo loved it, I used my viens and luckily things went ok, but I only had 4 t/c, the nurse yesterday said if I needed more, it could have been a problem.

    Had my last chemo yesterday, yeah, now bracing for days 3-5 when its the worse because of sleep. well, they are trying me on yet something else for sleep, valium instead of ativan, want me to try to see if it helps with muscle spasms from steroids.  I will get marked for radiation on the 16th, and then start the first week of march.  Another road on this journey, glad to be done with chemo, but being triple negative, that's all I have is the chemo, so hopefully it worked.

    (((((((((Samm))))))))))))))thanks for starting this thread (((((((((((everyone))))))))))))) for all the support through chemo. I am so greatful to all of you.

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited February 2011

    holy cow... I am finding on taxol I am sooo fatigued all the time. I had my first one on tuesday and since then i sleep about 11 hours a night, and during the day, i have zero energy. no tinglys yet, but this fatigue is nuts!!! I am thankful I am not nauseous though all the time. Just very very tired. 7 more weeks of it!

  • karebear76
    karebear76 Member Posts: 288
    edited February 2011

    Hope: Sorry for the set back. I have a port and it is wonderful!!! The prick is nothing most days and then they can do everything they need to. They leave my arms and hands alone and they are free to do anything! It really is great. You will love it!

    I had my last a/c yesterday and man I am sooo soooo tired. Nausea is at bay and doing well so that is really good. My appetite is down though. Just not hungry. It has been that way for the past wk or so. I just eat to eat but don't really want to.

    I had to get a lupron shot b/c of my 12 day period that ended today as I get the shot! Go figure! So the hot flashes I get now are just going to increase! At least I won't be cold this winter!!! LOL

    hdangelbaby: I have heard with the taxol the exhaustion is the worst but the nausea is nothing. Hang in there girl you are almost through this!! 

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited February 2011

    thanks karebear, just woke up from a 2 hour nap, in addition to my 11 hour sleep fest last night! lol!

  • peacebear
    peacebear Member Posts: 10
    edited February 2011

    hey karebear i just saw your post on your genetic testing. im interested in hearing more about it. since my genetic counselling apt is coming up feb 22....they are looking for a genetic mutation in me because of my no family history, age, triple negs, and type of cancer.

  • peacebear
    peacebear Member Posts: 10
    edited February 2011

    i just finished my third a/c treatment the 28th. it knocked me out pretty badly i could hardly get up until this past thurs without feeling really ill. is it a normal side effect to feel really tight in the chest area, like around my sternum and up towards left upper chest area or is this in my mind. the bones in the area literally feel tender....and the whole acid/ gas thing is full on:( tums doesnt seem to be working, any suggestions?

    Dreading the start of taxotere....one more a/c treatment then it switches to every 3 wks for 4 tims taxotere:( 

  • joystars
    joystars Member Posts: 95
    edited February 2011
    Anyone having FEC?! Pleaseeee!

    My gosh this 3rd round is really taking the best from me! I'm having trouble to drink water, just tap water as it has a horrible metallic taste.... can't get rid of it. Only thing that seems to help is to eat but I can't eat all times!!! Eating, anything, whatever kinda wash away the taste...  pleaaaasee I need help!


    Also, hot flashes! Dear I'm wearing just undies and a t-shirt at home, while mum, baby and hubby are in long sleeves....  I feel funny!
  • nolaa
    nolaa Member Posts: 76
    edited February 2011

    peacebear - sorry to hear the ac is so bad. Mine were too.  For the acid, my oncologist told me to take Prilosec every day until ac was done.  It worked well for me.  On the few days when I still had acid I just took over the counter Maalox and that seemed to help a lot.  As for the tightness in the chest, I never had that but it did have the severe tenderness in my ribs.  It felt like they had been bruised.  That's probably from the Neulasta and will just go away with time.  Although try taking Claratin a few days before and after the shot next time and that bone pain should be much less.

    Joystars - I had the same problem with water.  I couldn't drink it for weeks and weeks.  Try adding some lemon to it and see if that helps. If not, just drink juice, tea, a gatorade-type electrolyte beverage or anything else that is fluid.   I literally drank no water for weeks - just other fluids.  To make the bad taste go away mix baking soda (soda bicarbonate) in water and rinse in your mouth all day long.  It's supposed to work.  I only got partial relief, but some is better than none!  And as far as I can tell, there is pretty much nothing you can do about the hot flashes. :(  Sorry!

  • karebear76
    karebear76 Member Posts: 288
    edited February 2011

    Peacebear: I take prilocec every day and I also take ativan a 1/2hr before the steriod and that helps the chest tightness. I hope you can find something that will help cut some of those SEs for you.

  • sammolisa
    sammolisa Member Posts: 180
    edited February 2011

    Hi Ladies !!!

    Checking in with everyone...... Sunday is over... on to Monday.  I have started a Micheal's cake decorating class that starts tomorrow night.   Been wanting to do that for awhile now.   Feeling good.  Have a little neuropathy goin on on both my heels.  Nothing too bad.  Wednesday is round 2 of Taxol.  I have a plan in place this time for the side effects - hopefully it will work.  

    Haven't been sleeping too well lately - kind of on and off - one night is good and the next night i don't sleep - weird.

    Peacebear - if you had neulasta shot then, yes the pain and tightness in your sternum and ribs are side effects from it.  I would still ck with your doctor about your symptoms tho.

    Joystars -- getting hot flashes too !!  covers - no covers - covers- no covers - all night long.....

    Well, hope everyone is doing as well as possible this beautiful sunday night.

    Night all for now-  hugs to all!

    Lisa

  • LisaMomOfFour
    LisaMomOfFour Member Posts: 465
    edited February 2011

    Getting ready for my final A/C on Thursday.  My nails are starting to hurt a bit and darken.... what have you guys tried that has worked to prevent them from getting worse?  It's pretty cramped in our infusion center, there is no one doing any icing during infusions, the nurses have told me they have never seen anyone icing, so I've been reluctant to try it during infusions... is it effective to ice when you get home? 

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