February 2011 Rads

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  • beacher4209
    beacher4209 Member Posts: 540
    edited February 2011

    Sherryc, wow you keep a very active life through this. Did you always have a lot of energy before bc? I am afraid to exercise, could you tell me what exercises you do, i keep thinking about ! So now that you are done with rads what is next... Do you just go on with your life?? i hope so :)

  • beacher4209
    beacher4209 Member Posts: 540
    edited February 2011

    msbeasly38, what kind of work out do you do? im asking everyone who is working out for info i want to start but scared i will hurt myself!! take care

  • beacher4209
    beacher4209 Member Posts: 540
    edited February 2011

    Well i found this thread today coming from Jan thread myself. i have had 12 rads so for and have 16 left that 28 total. So not 1/2 way quite yet. im feeling ok, Although i have a T/E in so its a bit different alot of tightness as another T/E sister put it its like having a piece of tupperware in your chest ! Ha Ha ,not that funny feeling tough. But if idid not have this T/E i think i would feel better my skin is pinkish and tan not painful and my energy is not gone .yet? i use aquafor, Miaderm And Andr Sina, The Andra Sina is not well known i do not think, but a great product,go on the web site and check it out :) So to all the new ladies welcome we are all together in this, sorry you are here but happy we got each other  god bless

  • twozzs46
    twozzs46 Member Posts: 26
    edited February 2011

    Thanks ladies,  I seem to be ok on Monday & Tuesday, Wednesday may or may not be good depending on the week. But Thursday & Friday I am wiped out.  I come home so tired I make it to the couch.  Work has been extremely stressful since October.  I am a mid level supervisor and we are required to spend time on all 3 shifts. To add to this I don't sleep well. I am often awake for 2 - 4 hrs a night. I am thinking about workin part time to aleviate some of the stress.   If I do that, I can delegate some of my duties & hopefully sleep a little better. Right now I am  adjusting my schedule to make up for the time I have to leave for treatments (easy to do with our reqirements).

  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2011

    girls---its ok to play hookey once in a while....i did...the snoow storms actually did me a favor and i am retired.If you feel fatigued or burning and you really just have to push yourself dont go to treatment.im really not supposed to say this but hey we are human and if you cant you just cant.save the hookey for when you really need it.Rest and sleep is healing and very very imprtant.I missed 3 snow days and 1 hookey day.they just add it on to the end.

    Be good to yourself.hugggggggggggggs K

  • Victoria67
    Victoria67 Member Posts: 44
    edited February 2011

    I've done 23 tx and one of the things I noticed was that I went red very early on and I was worried about how my skin would hold up and whether I'd end up very badly burned but it seemed to stabilise a bit and not get too much worse from that point. I have 2 regular tx then 5 boosts to go.  I'm still very red, itchy and peeling a bit but if you had seen my skin early on you would have thought I would be in really big trouble by now!  I'm very fair and have sensitive skin.  So my point is, hang in there and keep applying the cream as much as you can.  And whilst it does get tiring going in every day, I'm actually amazed how quickly the time seems to have flown by - for me anyway.

    Good luck grannydukes with only one tx to go!

    And twoozzs, I hope you can get part time work as it sounds like that will help alot.

  • Teklya
    Teklya Member Posts: 435
    edited February 2011

    Only 3 rads left and then I am done!  Can't wait!  It will be fabulous to finally "heal" and start to feel better.  This past entire year (almost a year for me) has been about surgery and treatment, chemo and then rads.  Sheesh.  No wonder I am so pooped!!!

    You are the most courageous and amazing women I have known and I thank you all for everything you have done to help me on this path.  You will NEVER know how incredibly awesome this has been to have your support, wisdom, advice, concern and empathy.

    Take good care and just breathe. . .

    Teklya

  • lakefront
    lakefront Member Posts: 14
    edited February 2011

    I also have te. I cannot wait to exchange them for implants although now with the rads I dont think it will be for quite some time. I went ahead and had a double mast...I finished chemo 3 wks ago and have had 3 rad treatments and I the bolus is used every other time. I have been told to use aloe and aquaphor, it sounds like alot of others use the same.

  • libraylil
    libraylil Member Posts: 528
    edited February 2011

    Count me in  for Feb rads.  I attend my planning session on Feb 15.  Met the radiology onco right after my lumpectomy.  I had to have a re excision for clean margins which had me in a dumpy frame of mind.  The RO asked me if anyone had mentioned a mastectomy (my surgeon swears that is why radiologist don't work with patients so much directly) .  Lack of social skills. 

        Anyway, I cried (why I don't know). Despite this I like the RO, even though he looks like the devil with his black facial hair. He went into detail about what areas they are targeting, drew a pics, etc.  Everyone loves a crier:)   We'll see if I still feel this way after scheduling.  They have promised they can schedule me early, at lunch, or afternoon.  The RO is about 10 minutes from work so either will work.  I'm not scared of the rads, just did too much internet research and saw lumpectomy patients with severly deformed breasts after rads.  My BS said it might lift up a little. 

        Question:  All of the info you posted about creams for skin.  The RO said he would tell me what kind to use.  Do you use this before/after and can you only use the kind he recommends?

    Glad I found this group and I am ready to get the show on the road.  libraylil

  • heathermcd
    heathermcd Member Posts: 142
    edited February 2011

    Lakefront - i'm having the bolus every time. Did your RO explain to you why they use the bolus? I'm still a little confused!

    Librarylil - Sorry you had a hard time with the RO. I also cried when I met with mine. Different reasons, but same idea. The cream my RO gave to me is a diaper cream for babies and then some other lotion. Both contained parabens (which i'm steering clear of because of my ER+ BC). I mentioned this to my RO and she said that, really, its ok to use anything within reason and her patients use a variety of things. I ran my combonation by her and she agreed that it was fine and already used by a number of patients she is treating. I am using Calendula gel mixed with 100% aloe vera gel 2-3x daily. I paid about 5.00 for each (much cheaper than ordering the Miaderm) So far its working great. I bought a tube of the calendula and then a bottle of aloe from our natural food store and mix them together in my hand. The RO actually said if the office could afford to purchase the Calendula cream and hand it out to everyone they would because it works so well. My naturopath also recommended opening a vitam E capsule and adding it to the mixture. I haven't done this because the aloe already contains E and I don't want to "overuse" antioxidants and mess up treatment.

  • lakefront
    lakefront Member Posts: 14
    edited February 2011

    Heathermcd- The bolus is used to "trick" the radiation beams into depositing the max. dose onto the skin.

  • beacher4209
    beacher4209 Member Posts: 540
    edited February 2011

    where do i find candendula gel ? i have the the oil but cannot find gel? and of course im not using the oil on my bc breast oh i guess it no longer has bc???? whatever...

  • heathermcd
    heathermcd Member Posts: 142
    edited February 2011

    beacher - I found the gel at a local private natural food store. The brand name is Boiron, if that helps.

  • saturn
    saturn Member Posts: 139
    edited February 2011

    I found the Boiron Calendula ointment on Amazon after receiving the first two tubes thru my onco pharmacy at $7.00 per 1 oz tube.  Amazon had it cheaper but you had to buy 3 tubes.  Just got an email from Amazon that they do not have in stock right now though... the $7 per tube is not bad but I've been using it so much I've practically gone through 2 tubes in just over 3 weeks!

    Update: I was just looking and found it at another website... vitacost.com.  It is $3.88/tube and their shipping is $4.95 per order no matter quantity.  Never have used them though so cannot make comment on the company.  Just wanted to pass info along.

  • krista613
    krista613 Member Posts: 34
    edited February 2011

    Hi there!  I am new to the boards and also just started radiation last week. I am having 28 regular with 8 boost.  I can't wait to get it over with so I can get my tissue expander out and be on with my life!  Hoping radiation isn't as rough as chemo!!!

  • saturn
    saturn Member Posts: 139
    edited February 2011

    Hi Krista!  I am having 28 + 8 too.  Exactly halfway through last Friday.  Will start my boosts next week then go back to the remaining 10 regular rads after that. Not that I'm counting, hehe!

  • Eloise
    Eloise Member Posts: 137
    edited February 2011

    I am also using natural diaper rash ointment containing aloe and calendula -- I got it at a natural products store, but I've seen similar stuff at Target -- the "California Baby" line.  

  • GIJan
    GIJan Member Posts: 7
    edited February 2011

    Hey ladies! Happy Super Bowl Sunday to all.

    As of Friday, I have been formally released from my daily visits to the cancer center for radiaiton treatments. I had 27 regular shots and 9 boost treatments. My RO said the area being treated would "pink up" but what he should have said was that I'd turn red as a lobster with radiation burns. But, the redness faded even as the boost treatments began. The clinic gave me a cream called Vanicream that I alternated with applications of aloe. I also used an Avon Naturals product that was a soothing cool jelly moisturizer. During the boost treatments, my nipple did crack a bit and Neosporin took care of that problem very well.

    I'm so very glad to be done w/radiation and hope to assume some sort of normalcy now. Best of luck to everyone who is struggling with treatment.  

  • beacher4209
    beacher4209 Member Posts: 540
    edited February 2011

    where is everybody???

  • lestwin
    lestwin Member Posts: 83
    edited February 2011

    I'm here Cool.

    Fighting a UTI, does anyone know if the RO will give anti-bio-tics?  I've held out now for about 5 days trying to do it myself but nooooooooooooo it is persistent.  I see him at about 4:00 today after #6 rad.  I read that rads can give you infection.

  • beacher4209
    beacher4209 Member Posts: 540
    edited February 2011

    oh lestwin i do not know ?? im fighting a soar throat and wanted to know if i should go to rads myself?? looks loke nobody is around to answer our question i go at 11 west cost time maybe we should call our rad dr.'s but i got a feeling they will just say come u will be fine seems like they just want to get us through it no matter how bad of shape we are in

  • elaineg
    elaineg Member Posts: 198
    edited February 2011

    OK, I am jumping on board, I have my first appointment with RO coming up Wednesday.  Went to the Jan rads boards too to see some experienced comments, nice to see some of those ladies have moved over here.  I love the sharing!

  • lestwin
    lestwin Member Posts: 83
    edited February 2011

    I absolutely agree with you.  I had a surgical biopsy and woke up to find out from my DH that I had cancer.  6 days later my RO called and wanted me to come in the following week, I didn't know anything about the cancer (how big, what grade etc. or what treatrment I needed) and I never even been there.  I explained I was 6 days past surgery and was told you need to make an appt.  I put them off until I decided against chemo and then went.  I felt like it was rush, rush, rush.  I didn't even get a chance to pick my RO.

  • beacher4209
    beacher4209 Member Posts: 540
    edited February 2011

    lestwin..that was rush rush rush,did they take the cancer out at during the biopsy? see i do not know how that works cause i had a masectomy,and had to wait for that to heal before rads which i was told i would not need ,till they got in there and so how close the cancer was to my chest wall. but i just hate going everyday cause i know by friday ouch!!!! and weekends are suppose to be the rest time but all i do is have pain from the culmative week i say 3 -4 days rad then 3 -4days no rads recup ect...

  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2011

    beecher so I am a little behind you asked what kind of exercise I do.  I do an hour of yoga twice a week and love it, would do it more if offered more often.  I also do 20 minutes on my elliptical in the am and on the days I do not do yoga I walk 2.5 miles.  I was trying to run but then the rads fatigue kick butt on me so had to go back to walking.  I am trying to run again just not getting very far with it.  I am only 2 weeks post rads and still have the fatigue.  I can tell it is getting better though.  My RO did tell me that the exercise would help my skin because of all the oxygen going to the skin through the exercise.  I still had some skin issues but once I started the boost the rest of my breast healed quickly and once boost were over my nipple was able to start healing and healed quickly. Because I had built my stamina up with my exercise I  cannot even image how bad my fatigue would have been had I not done been exercising.

    Also someone on here mentioned their nipple being sore.  I had this issue from the beginning and my RO had me purchase silicone nipple guards.  I got them from the mastecomy supply place although you could probably get them on line as well.  The stick to the nipple area without adhesive and give protections from rubbing, which with them being sore was a able relief to me during rads.  I never went without them.  They were a lifesaver for me.  Just thought I would pass that info on to any of you starting out. OH and they were not expensive.  I think $6.50 and they come in a pair of 2.

    Good luck to all of you who are starting and do use the creams and often.  You will not regret it in the end.

  • lestwin
    lestwin Member Posts: 83
    edited February 2011

    beacher4209:  Yes, they removed the cancer and 21 nodes as it was so close to the chest wall and very near my armpit.  (that is not being radiated though (nodes clear).  I went for a core biopsy but was not performed due to location of abnormality so had to have wire insertion (piece of cake except for squashing my boob so much).  Before I went for surgery, I had to once again go to surgeon for him to go over the same crap and I believe they knew I couldn't have biopsy.  I had a blowout with the nurse because I questioned why my insurance company had to pay twice for the same info!  She hates me!  She yelled at me again for the 2nd appt. when I questioned having to have a blood test as I was already set up for my 3 monthly ET check.  I hate insurance companies, got cancelled my 1st day of rads (now reinstated, their fault) and the week before my house insurance was cancelled again because of where I live (barrier island).

  • ToriGirl
    ToriGirl Member Posts: 1,188
    edited February 2011

    lestwin-Sorry to hear that you are fighting a UTI...that on top of everything else can not be very pleasant..hope you find some relief soon...

    beacher4209---Awww man, you too?  Sorry about the sore throat...do you think it's from the rads or just something going around?  I'd like to hear what you RO says about it, if you don't mind sharing..

    elaineg-Welcome!   Many more ladies are jumping on board this thread so we should all be able to get questions are answered...if not, the other ladies on previous threads are great too!  But, come back and let us know the answer here if you do go to another board...someone here will eventually ask it here too!  :)

    Eloise--what is the name brand of the ointment you are using if you mind me asking? 

    krista613--Welcome to the thread!  Since you have started treatments already, can you tell us what ointments your RO is having you use?

    lyndalynda-thanks for the information on what you are using and where we can find it.  

    libraylil--Welcome!  I was told nothing on the skin at least 4 hours before treatment and then you put on whatever they approved after treatment.  I'm sure someone else will chime in on this if I am incorrect.  Also, my RO is recommending stuff and say I MUST ask them before applying anything else on my skin....they want to give the okay...

    I'm trying to get different names of creams/ointments to present to my RO when I go for my simulation to find out if they are "okay" for her or not...I was told NOTHING on my skin unless I ask them first, so I figure the more I present, the better chance I have of finding a couple of different things to choose from and get opinions on them.. I know that everyone is different and that some work better for others, but having a few to choose from just makes it easier on me later... 

    Not much else going on...just waiting to hear from the RO office when my simulation is...I"m ready to get his show on the road...

    Have a great Monday!

    peace and prayers,

    Tori

    DE COLORES! 

  • Adey
    Adey Member Posts: 3,610
    edited February 2011

    I'm in too.  I start Monday, Valentine's Day!  Hah, now I won't forget my start date.  I have a scrip for RadiaPlex, has anyone used it?  My newly filled up boobs are bursting at the seams.  I hope this settles down before the tightening I hear about with rads starts...

  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2011

    Adey, I am two weeks post rads and my RO prescribed Xclair for me which I really liked.  It was not greasy and is made for radiation therapy, but expensive.

  • Teklya
    Teklya Member Posts: 435
    edited February 2011

    And I am on #23 of 25 and have been using Glaxal Based cream (prescribed often in Canada).  The skin under my armpit is tight and tender, the area under my breast is as well.  The entire left side of my chest is red and sore and swollen too.  I am exhausted and I was battling a raging case of pneumonia along with inflamed pleura (lining of the lungs) which was likely caused by the rads!

    Other than that, so glad this is almost over and I can rest, relax, take a deep breath.  It has been a long year (alomst a year since diagnosis).  No wonder my poor body is so pooped! 

    You can and will get thru' this and I know how amazing you all are. 

    take good care and just breathe. . .

    Teklya

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