January 2011 Rads

Options
1…3233353738…55

Comments

  • beacher4209
    beacher4209 Member Posts: 540
    edited February 2011

       HELP !!!!ok putting this out again to the T/E ladies, i feel so alone cause or situation is so different. Not that the other ladies are not dealing with alot ours is just different ,has to be we got these water filled balls with very hard edges in our chest. i wanted to ask if anyone feels like there is like such a tightening sometimes but then will subside to the regular tightness, i would really like to hear from some of you to know what you are going through to compare im on my 11th rad today,skin is pink but not so bad it inside that feels like its getting harder and harder.....Anyone been here or is here? 

    · Share on FacebookShare on Twitter
  • localgirl
    localgirl Member Posts: 39
    edited February 2011

    I'M DONE I'M DONE!  Woo Hoo!!

    Thank you all so very much for all of the support you have given me these past 6 weeks - you all are amazing women!  

    It was a tear-filled moment for me ringing the bell this morning and saying goodbye to my techs.  In a way, it's a little scary to be done and no longer surrounded by such supportive people because it feels like now I'm off and into "good luck" territory - it honestly feels like when they hand you your child leaving the hospital and say "off you go!"  out of the protective cozy hospital environment.

    I'm trying to stay strong and confident that I'm now in the driver's seat and I'm really being active in changing my diet, doing exercise and reducing stress - it's a different kind of prescription.  

    I wish everyone the very best of luck.  Kickon2it - I'm so sorry that you back in this position again and I send you tons of good vibes.

    Thanks again all - I'll stay on for a while to see how everyone is doing!

    · Share on FacebookShare on Twitter
  • walker2222
    walker2222 Member Posts: 558
    edited February 2011

    Kick2it - sorry to see you here but big hugs.

    RO office open today, have to give myself extra time to get there here in the deep freeze of TX.  I hope I get to see the RO today since I misse Tuesday which is the normal day I see him.  I want to show him my purple spot next the the SNB area under the arm pit.  It is bothering the heck out of me.  See if they have a gel pack like rancygirl recomended.  Put an ice pack on yesterday and it felt sooooo goooood!

    · Share on FacebookShare on Twitter
  • Pennythoughts
    Pennythoughts Member Posts: 81
    edited February 2011

    localgirl & others - I am also done.  The same thing happened to me yesterday at my last appt., I walked out of the treatment room and by the time I got to the waiting room, I was bawling my eyes out.  All the people in the waiting room were so sweet and came up and gave me big hugs, then walked around the corner with me as I rang the bell.  I totally relate to you localgirl about the scariness of the treatment being over.  It's a whole new world now for us, one we have never lived in before.  Or maybe I should say that the world is the same, but we aren't??

    I also thank all of you ladies for all the amazing support over the last few weeks.  You are all most amazing women!

    Have a killer headache since finishing rads yesterday - - probably more to do with the aftermath and emotions, and tension than the rads themselves.  Breast is very purple and sore, but no skin breaking open.  Absolutely exhausted, and they tell me that is the last thing to resolve and can last several months.  So even though it's over, it's not really over.

    Love you all, best of luck to everyone still in tx.  Will check on you now and again.

    · Share on FacebookShare on Twitter
  • walker2222
    walker2222 Member Posts: 558
    edited February 2011

    I guess it is normal to go through withdraw when you finish treatments.  I did when I finished Chemo and problably will with rads too.  Looking forward to the end and beyond.

    · Share on FacebookShare on Twitter
  • jo1955
    jo1955 Member Posts: 8,543
    edited February 2011

    Pennythoughts - CONGRATS ON FINISHING RADS!!!

     

    · Share on FacebookShare on Twitter
  • beacher4209
    beacher4209 Member Posts: 540
    edited February 2011

     hurray! for all you girls finishing treatments!!! good luck live happier than ever :)

    · Share on FacebookShare on Twitter
  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2011

    kickon2it-so sorry you are back dealing with this nasty disease again.  But this is a great place to be for support

    Localgirl and penny -CONGRATULATIONS!!!!!!!!!!!!!!!!!!!Woohoo doing the happy dance

    · Share on FacebookShare on Twitter
  • Marl5900
    Marl5900 Member Posts: 32
    edited February 2011

    to beacher: I am right there!  this is my rad #20 so 13 to go (incl. 5 boosters).  My TE feel like tupperware under my skin and the skin is red/purple and so so tight.  I have to take pain killers at night.  Oh, well during the day too esp. late afternoon. Ibuprofen oraspirin. I use two creams: biafine during the day and calmoseptine at night.  It is hard but most of the time it feels doable! Whenever I get too "in pain/anxious/fedup"...I go take a break in bed or do some yoga if I have the energy (not today).  I found that walking helps me just as it did during hard chemo. 

    Now I just hope I'll get to keep the TEs (I got attached to them a little ;))... and then get the silicone implant as fast as my skin allows!  If not, well, at least I will know that I tried.

    · Share on FacebookShare on Twitter
  • marjie
    marjie Member Posts: 1,134
    edited February 2011
    Yay!!  Happy dance to being done, so happy for you all but little jealous tooTongue out.  I keep moving forward because of the strength and support I get from those who go before me.
    · Share on FacebookShare on Twitter
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited February 2011

    kickon2it - I read one of your posts where you said you didn't have an MRI last year - same here. I think when you are diagnosed, an MRI should be mandatory. Although I'm still glad they didn't find it then as I really didn't want a BMX. I was very firm about having another lumpectomy. It is upsetting to go through it all again so soon, I'm still upset. But, it won't be long and we can try to get back to normal.

    localgirl and Penny - Congratulations!!!!

    Sue

    · Share on FacebookShare on Twitter
  • redninrah
    redninrah Member Posts: 773
    edited February 2011

    I have two left- :) however now im being treated for 2nd degree burns!! not happy about that. Im in so much pain, i cant even move my arm, theres blisters everywhere!!

    · Share on FacebookShare on Twitter
  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2011

    redninrah so sorry about your blisters.  I had them but mine dried up as soon as they popped.  Your's sound worse than mine.  Have you asked for pain pills.  I had to take them the last week because my areola was like hamburger meat. That was the only way I could get through without just quitting.

    · Share on FacebookShare on Twitter
  • saturn
    saturn Member Posts: 139
    edited February 2011

    Congratulations localgirl and pennythoughts (and any other new "graduates" I may have missed)-- must be a great feeling!!!   No more daily appointments and on with your life!!! Enjoy it!

    redinrah - you're almost done, I hope things don't get worse, and that they will be better soon!

    I'm about halfway through myself (#18 of 36 tomorrow) and will be starting boosts tomorrow, got a CT today in preparation.  They tell me the boosts are even quicker, although I find the rads pretty quick already.  We will see how the skin holds up.  It is turning red and a slight bit itchy but that's it so far.  Any comments on the boosts from anyone??

    · Share on FacebookShare on Twitter
  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2011

    lynda the boost are easier for most.  My reg breast skin liked it better.  It is just that where my scar was I also got part of my nipple at the boost and that was what gave me so much trouble. Should be nice having it done in the middle and then go back to the reg, will give you somewhat of a break

    · Share on FacebookShare on Twitter
  • saturn
    saturn Member Posts: 139
    edited February 2011

    My tumore bed is deep in chest wall at about 2:00, and the scar is also near my nipple.  Oh well, this too shall pass...  at least I am making several new friends in the waiting room, and we all have something in common!!  :)

    · Share on FacebookShare on Twitter
  • walker2222
    walker2222 Member Posts: 558
    edited February 2011

    Congrats on those who have finished, sighing with envy. 

    Did get in today and back to work with out troubles, took two hours though.  Most of it was on the road.  The RO stopped my bolus treatments since it was making my skin real red/purplish, only had two more of those any way.  Well three more regular treatments and the five boost, on the home stretch.

    Possibly more snow tonight or in the morning.  If the schools close, they will too.  Geish, can it stop now.

    · Share on FacebookShare on Twitter
  • lrr4993
    lrr4993 Member Posts: 937
    edited February 2011

    Congrats to localgirl and penny!  How exciting to be done with this daily treatment.  The treatment itself has not been too bad for me so far (I have 5 more plus 5 boosts left), but the daily thing has gotten to me.  I am over it!  Two more weeks . . .

    · Share on FacebookShare on Twitter
  • rachel5738
    rachel5738 Member Posts: 920
    edited February 2011

    As of tomorrow, 5 regular and then 5 boosts. My skin is a little pink and a little sore. I am counting down the days....I agree with lrr4993--the daily thing is getting to me. The one saving grace is that the Techs are great and so friendly so it makes it just that little bit easier!

    Congrats to those that are finished.....like mjbmiller--I am sighing with envy!!

    · Share on FacebookShare on Twitter
  • Omaz
    Omaz Member Posts: 5,497
    edited February 2011
    I am getting there too - 5 more regular then 7 boosts.  I asked the tech about the boosts today and she said they target electrons right into the scar area straight on, but the electrons don't penetrate all the way through you, they just penetrate into the breast tissue and then stop.  My skin is holding up - being a real trooper!  I goo it often.  I have named the radiation machine Hubert.  For some reason every time we get close, I think of the name Hubert.Smile
    · Share on FacebookShare on Twitter
  • saturn
    saturn Member Posts: 139
    edited February 2011

    Hubert!!!  I love it!

    · Share on FacebookShare on Twitter
  • bher
    bher Member Posts: 86
    edited February 2011

    beacher and Marl -  The extreme tightness of your TE should hopefully go away after rads is done.  I finished 36 rad treatments 3 weeks ago and my TE is feeling less tight now (more like before I had rads).  My skin is almost back to normal also, started wearing a bra again.    I found that aquaphor helped with the tightness.  I also took ibuprofen as per my RO recommendation. I am now using real cocoa butter as recommended by my RO and I really like it.  Hang in there, I know it is rough but it will get better after the rads is done.

      

    · Share on FacebookShare on Twitter
  • walker2222
    walker2222 Member Posts: 558
    edited February 2011

    Cann't wait to use the Palmers I got for post rads celebration. 

    bher - did the RO give you a time when you can start regular lotion after rads?  Just wondering.

    · Share on FacebookShare on Twitter
  • beacher4209
    beacher4209 Member Posts: 540
    edited February 2011

    Marl59,Thanks so much for telling me about your experience so far! and ya that is a perfect discription "piece of tupperware under your skin" i'll add with hard edges too. i hope you do weel and are able to get your implants cause you have come so far. keep me posted i would love to follow you im right behind you and i will cheer you on :)

    · Share on FacebookShare on Twitter
  • bher
    bher Member Posts: 86
    edited February 2011

    mjbmiller - The day I finished rads, the RO told me to start using cocoa butter but it took me two weeks to find one I liked so I kept using the Miaderm and Aquaphor until recently.  I am using 100% cocoa butter from the health food store but it is not convenient because it comes in a solid form and you have to melt it in your hand. It is very moisturizing and smells good (chocolate).

    · Share on FacebookShare on Twitter
  • beacher4209
    beacher4209 Member Posts: 540
    edited February 2011

    redninrah, i am so sorry u r in so much pain... can u wait a few day to finish your last few? Im really feeling for you and will pray for some relief.                  What are u using for the pain?  Did u use creams during rads ? Im sure u did,i hope the rest of this nasty journey is over for you . God Bless

    · Share on FacebookShare on Twitter
  • beacher4209
    beacher4209 Member Posts: 540
    edited February 2011

    bher!!! yay glad u r doing well.. im happy every one doing well! keep us posted on your implants please bher1

    · Share on FacebookShare on Twitter
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited February 2011

    No 14 done - 16 to go, but there will only be 4 next week as they are closed for servicing - bummer. Skin is still not showing any signs of redness - quite amazing.

    Have a great weekend girls - enjoy staying at home and not having to go for rads.

    Sue

    · Share on FacebookShare on Twitter
  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2011

    mjbmiller--my RO told me to use my Xclair that I used during TX for two weeks then to start using a good vitamine E cream after that.  Wants me to continue to use it until I see him for a 3 month check up.  I have bought a couple and not sure yet which I like the most.  I bought Burts Bee's but no fragrance and kinda stinks so I think I am going to add Lavender oil to it.  I also bought Fruit of the Earth Vitamin E cream

    · Share on FacebookShare on Twitter
  • LuvMyLab
    LuvMyLab Member Posts: 82
    edited February 2011

    Hi Girls, Congrats to those who have finished rads.  I have done 9 with 12 to go and have a question.  My rads onc gave me the option of having either 19 with 5 boosts or 16 with 5 boosts saying that there's absolutely no difference.  Of course I opted for the shorter course, but I haven't heard anybody on here with as few treatments as me.  My BC was highly aggressive grade 3.  Perhaps I should have gone with more...  But he absolutely assured me and he's a professor and highly regarded.

    btw: I HATE rads :(

    · Share on FacebookShare on Twitter

Categories