February 2011 Rads

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ToriGirl
ToriGirl Member Posts: 1,188

Okay warrior survivors...on to RADS!

I'm having my "prep" session this Thursday (tattoos, molds, etc)...simulation next week and then starting the actual treatments shortly after that...I will be having 28 regular and 9 boosts....

Hoping to connect with some other sisters starting radiation this month as well!  (especially if some of you are starting tomorrow...then you can give me and others the dirt on everything that is going on before we go!)  :)

It's got to be good for us to talk about our radiation experiences, vent if we have to, get advice from our sisters who have "been there, done that" already and just be with others who are going through the same thing, right?

peace and prayers,

Tori 

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Comments

  • cms77
    cms77 Member Posts: 28
    edited February 2011

    Hi Tori,

    I'm starting rads this month too.  I call today to set up the prep session.  Three weeks ago I had a BMX with TE's.  Had neoadjuvant chemo.  Path report shows chemo did it's job on me; no tumor left and only 2 nodes had microscopic cancer left.  It's all good news. Now onto rads.

    I agree, it's good to have all us share out experiences and learn from each other. Looking forward to hearing from others starting rads this month and those that have already been through it. 

    Christine 

  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2011

    TORIGIRL-----you are up to the rads...yay.ask away.i am almost done.i did the first boost today.4 more to go.anything anyone needs to know just ask away.I started in Dec.lol.lots of cancellations due to the weather.Rads are really no big deal especially if you did chemo.Anyone of my sistas can PM me and ask any questions I think i know a lot due to the fact i have been on this thread for 3 months.ha.My best advice is to cream cream and cream a lot.ask your dr.what to use as all drs.like different ones.start now.

    I wish you all the very best.GOD bless all of us.WE WILL BEAT THIS MONSTER.

    HUGGGGGGGGGGGGGS K

  • walker2222
    walker2222 Member Posts: 558
    edited February 2011

    I am here too, on my fith week, (missing two due to bad weather closings).  As with grannydukes you can ask questions.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2011
    Thanks for your help mjbmiller.im gonna need it.I hope some more sistas will join us in supporting this thread.I remember when I first started the rads how scared I was.The sistas helped me soooo much.ITS A WALK IN THE PARK....RIGHT???
  • walker2222
    walker2222 Member Posts: 558
    edited February 2011
    Granny - It depends on who is asking!Wink
  • Blindsided
    Blindsided Member Posts: 68
    edited February 2011
    I have been lurking on the Jan Rads thread all month, and found out yesterday that I will be starting rads 2/7/11.  I have a big problem though.  I still have an open wound from my sentinel node biopsy 5 months ago!  My chemo start date was delayed 3 weeks because of this @#$% wound, and radiation has already been delayed 2 weeks, so now it is time to proceed- open wound or not.  After reading all the skin complaints from the Jan girls whose skin was intact before starting, I am so nervous about how my wound will react etc.  I am just really bummed right now, and in a self pity funk,  but its nice to have a place to vent...
  • ToriGirl
    ToriGirl Member Posts: 1,188
    edited February 2011

    Welcome Christine! Contests on being done with your chemo! I hope your are recovering well! Thanks for your input already! Please come back and let us know how things proceed for you, ok?



    Granny and mjbmiller...thank you so much for being our "go to" people when we have questions and advice! We will look to you "veterans" to help us out during this part!



    Hope to hear from some more ladies!



    Peace and prayers,



    Tori



    DE COLORES!

  • twozzs46
    twozzs46 Member Posts: 26
    edited February 2011

      Started Rad 1/18/11.  Was very scared.  Not so bad now.  Have been emotional off & on since this all started.  Think it may be because I haven't taken the time to really grieve.  I was Dx'd 3 days before Thanksgiving and we have the holiday at our house.  I was supposed to be having surgery to remove ADH.  When the path report came back it showed LCIS and IDC in addition to the ADH.  Surgery was on 11/15/10.  My DH asked if I wanted to cancel, but I felt that I would be more depressed if we did that so I had to pull myself together & have the holiday.  I had been hanging out on the January site just reading what others have to say and it has been comforting seeing that others are feeling and experiencing the same thing that I am so I decided to join in.

  • Hope60
    Hope60 Member Posts: 223
    edited February 2011

    Hi ladies - I will be joining you here.  My first treatment is today.  Was having a bit of an emotional meltdown over this, but I think I've calmed down. I keep telling myself that if I got through chemo, I can deal with rads....hope I'm right about that!  Anyway, we'll all be going through this together...

    Good luck to all! 

  • ToriGirl
    ToriGirl Member Posts: 1,188
    edited February 2011

    Welcome Hope60!  We look forward to your updates about how things will be going with you as you start rads today.  Good luck!

    peace and prayers,

    Tori

    DE COLORES! 

  • heathermcd
    heathermcd Member Posts: 142
    edited February 2011

    I'm here! I'm here! I started today! It was so weird, but totally do able!

     So, my Onc gave me some cream and I noticed it contains Parabens. I've been trying to stay away from Parabens because they mimic estrogen in the body. Any ideas on good creams that don't contain parabens?  They gave me some miaderm also, but I can't find any information on the Miaderm as far as parabens go.

     Hope everyone is doing well so far!

  • ToriGirl
    ToriGirl Member Posts: 1,188
    edited February 2011

    Welcome Heather!

    My RO recommended Aquaphor....I haven't even checked the ingredients in it yet, so I probably should!

    Glad to hear that your first treatment went well..how many do you have to do?  

    We have a couple of followers who are almost done with rads (from other threads) and helping to answer questions, so hopefully, they can answer it for you...if not, please let us know what you find out, k?

    Thanks Heather!

    Hope to keep hearing your updates...I still have a week to 10- days before I start.

    peace and prayers,

    Tori

    DE COLORES! 

  • lestwin
    lestwin Member Posts: 83
    edited February 2011

    Hi ladies:  I'm also on the January rads forum as the 31st was my first day, #3 today that means I am 3/5ths thru the week!  To all the newbies, welcome, sorry it has to be because of BC.  I have about a 20 minute ride to the cancer care center so it's not to bad.  It was 83 degrees here today (east central florida) and beautiful outside so I made myself walk to get some exercise.  Not feeling too much (my breast was red before rads) but just feels different so far.

  • walker2222
    walker2222 Member Posts: 558
    edited February 2011

    Well due to bad weather my 5th week of rads has been extended.  I got in Monday and will be missing three days this week.  Hopefully Friday I will get in.  They were suppose to do scans for my boost treatments next week and give me more markers.  I guess I do not get my Valentines gift of no more rads.  Well at least my skin will have a break.  Saw a big change from the fourth week to the fifth week.  All I can say girls is keep the aloe vera/Miaderm or what ever you RO recommends on multiple times each day but not at least 2 hours before your treatment.

  • ToriGirl
    ToriGirl Member Posts: 1,188
    edited February 2011

    Welcome lestwin!  We welcome any information you can give those of us who haven't started yet, but soon will!

    Sooooo jealous that it's 83 degrees where you are...it's not even in the teens here today..Brrrrr!!

    peace and prayers,

    Tori

    DE COLORES! 

  • Teklya
    Teklya Member Posts: 435
    edited February 2011

    Hi there.  I have only 5 left to go (of 25 treatments).  I managed this very well for the most part.  I am exhausted at present and my poor breast is very tender, red and hot to touch.  My armpit is red as though I burnt it in the sun and feels very tight. 

    After completing 6 session of gruesome chemo this certainly is easier in many ways.  And yet, more difficult in many ways, more visits, daily trips to cancer centre, parts of the day are ruined with either transportation or actual appointments, etc.  

    Not trying to be a downer, only sharing my reality with those of you who are unclear about the path you are now finding yourselves on.

    take good care, be gentle with yourselves, and just breathe. . .

    Teklya

  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2011

    Hello sistas...the group is growing..sooo sorry but glad we can all comfort each other in this mess we are in.My dr. recomended aquafor and or calendula.i use both.the aquafor is like vasaline very thick and it kind of ruins your clothes but it does work.I wear a t shirt and then a bra on top of it but the t shirts get messey.i switch off with the calendula its a gel and not messey at all.i started the cream before tx.and i do it as often as 4-5-6x a day.i am a 34DD and i never blistered which is very unusual.down to 3 more boosts.yay.

    Teklya WE ARE ALMOST DONE.YAY. we did it and so will all of you.fight like a women.we are gonna win this fight.one sista at a time.God bless.huggggggggs K

  • sjames59
    sjames59 Member Posts: 22
    edited February 2011

    Hello all, I'm new - diagnosed at age 51 in December, lumpectomy shortly thereafter, and had planning session yesterday for radiation sessions, which will start in two weeks. Standing outside the clinic yesterday, looking at the ONCOLOGY sign, it just all seems so surreal. My mom passed away from BC in 1987 at almost 55 years old. I've learned a lot from reading in the different forums here and will be keeping you all in my thoughts and prayers.

  • Eloise
    Eloise Member Posts: 137
    edited February 2011

    I'll join in from the January thread too....today was #8 of 25, and so far so good, no skin issues yet, saw my doc today and he said not to get complacent about using the cream because it may start getting red and uncomfortable next week.  No fatigue yet either, but I'm mostly on leave from work so that helps. 

  • Victoria67
    Victoria67 Member Posts: 44
    edited February 2011

    Hi all, I'm also on the January thread but I wanted to offer my support to all of you just beginning or about to start rads.  I have done 22 of 30 treatments and whilst my skin reacted strongly early on by getting quite red and hot, it seems to have stablised a bit and is quite bearable (fingers crossed that continues), just a bit uncomfortable and itchy.  I do have very sensitive skin so I was always going to have a strong reaction but I took the advice of many of the ladies who had been through it and put lots of cream on, drank lots of water and went braless as soon as my skin started going pink.  I bought some cheap stretchy camisole tops which sort of helped hold things in place but I also found that darker clothing seemed to disguise 'jiggling'!

  • lestwin
    lestwin Member Posts: 83
    edited February 2011
    I am drinking lots of water too and I've been bra-less for weeks, even before rads and when I go out, I wear a camisole and then a big shirt.  My boobs aren't that big (well the BC one is swollen but it was bigger before anyway) and as I'm not working (got laid off) I don't find it a problem.  My RO doesn't seem to be concerned with cream but he gave me some samples of Aquafor and told me apply once a night before bed but wash off 2 hours before rads.  I am not happy with this as I was pink/red before rads.  I am going to ask the nurse today (haven't seen her since my first rad) (#4 today) and show her my Udderly Smooth cream and ask if I can use it.  My RO was none committal but indicated that there was no data on it so better not.  He didn't even mention anything about drinking water either, he just smiles a lot! Laughing
  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2011

    Lestwin- My RO said there were too much chemicals in the Utterly Smooth cream but i saw some Drs. do rec.it.Im sorry you dont like your RO.that is a bummer.Listen to the sistas.they know a lot.AND if we dont know we can find out for you.There is a lot of info out there.The WHITE COATS do not know everything....Im sorry if I am offending anyone.Hey we are sistas and we try to take care of each other.Do drink lots of water,cream often,eat protein and ask away.Ya know what he can do with that smile of his dont ya..I hope you like your techs...they are very important.ask them questions too.We love you.hugggggggggggs K

    PS I have 2 tx.left.yay

  • lestwin
    lestwin Member Posts: 83
    edited February 2011
    Grannydukes:  Just got back from my #4 (30 to go which includes 7 boosts) glad you only have 2 left Laughing.  I don't really dislike my RO, however, he seems to think and tell me it's a walk in the park having rads and very few patients have a problem.  We know differently, thanks to this forum, so why can't he just be honest and not give false hope?  I do like my techs although they always seem to be different ones.  By the way, does anyone else get a headache after rads?  I always have one due to the ET disorder medication but it seems to get worse right after rads.  It's not too bad so maybe I should just shut up.
  • walker2222
    walker2222 Member Posts: 558
    edited February 2011

    Did get in today and back to work with out troubles, took two hours though.  Most of it was on the road.  The RO stopped my bolus treatments (it is for mastectomy patients and radiates only the skin area) since it was making my skin real red/purplish, only had two more of those any way.  Well three more regular treatments and the five boost, on the home stretch.  RO said to use the silver sulfadiazine cream they perscibed on the bad areas.  Asked the tech if I could put it on before the treatment, she said yes but only if she cann't see it.  So at least two hours before should be fine.

    Possibly more snow tonight or in the morning.  If the schools close, they will too.  Geish, can it stop now.

  • twozzs46
    twozzs46 Member Posts: 26
    edited February 2011

    I'm not sure if this is the right place to ask, but I don't know where else to ask so I came here.  I will be going for 13/36 rads today.  Was diagnosed in Nov. then had SNB in Dec. and started rads in Jan.  I am still working full time, but I get so tired by the end of the day.I'm coming home and needing naps.  How did you ladies that are done or almost done deal with work?  I have a very suportive supervisor and have enough sick/vac time to go part time for a while.  We also have company paid STD insurance if I need it so I don't have to worry about that sort of stuff.

  • ToriGirl
    ToriGirl Member Posts: 1,188
    edited February 2011

    Hello February RADs!  (Really Awesome Divas!)

    Barely made it to my planning session yesterday...all this friggin' snow made it craziness on the roads...and we are getting more snow today!  Ugh...

    At any rate...all went well with the planning session, including the scans, the markings, the tattoos, (ouch on the middle one though!).  There are only 2 rad techs where I go, so I met both of them and they were great.  I"m not finding any reason to whine or complain....yet!  :)  Simulation will be in a week and then we start...I'm ready...really ready to get this part of the journey going and over with...

    Thank you Tekla, Eloise, Grannydukes, and Victoria67 for jumping over from the January thread to give us advice and cheer us on....again, any and all information and tips you can give us is very much appreciated!  xoxo

    Welcome sjames5... I"m sorry to hear of your mom....and I know EXACTLY what you mean when you talk about the "surreal" feeling of it all....I went to my planning session too and as I walk off the elevator and into the center, there is HUGE sign that says, ARTESIAN CANCER CENTER...I had to stop for a second and ask myself, "Is this where I"m really supposed to be?  Is this real?".... I"m glad you found us...we have all been there and are doing what we need to, in order to beat this beast down!  We can do it!  Please come back and let us know how things progress for you...

    Welcome twozzs46...I have started my treatments yet, but there are other ladies that have here and other ladies from the January thread who are checking in on us that can answer that for you.  If you'd like, pop in on the January thread and I"m sure they would love to help you out.  You are more than welcomed to keep posting here too...we'd love to hear what you've learned so far!

    Welcome blindsided....I'm sorry to hear of the difficulties you are having Blindsided, and I hope that they are working themselves out.  What does your doctor say about the open wound and the rads?  How will this affect the healing of the open wound?  Please know we are here for you and wishing you the best as you move forward...please keep us posted if you can, okay?

    For those of you buried in snow..be careful out there today..for those of you having great weather, please send it our way, k?

    Have a great Friday all!

    peace and prayers,

    Tori

    DE COLORES! 

  • walker2222
    walker2222 Member Posts: 558
    edited February 2011

    Twozzs - I have worked through my treatments and what I do is go in early about 7am and leave at 3:30.  Go home and rest then pickup DS from HS.  Since you have an understanding supervisior, if need a day off to requp, I say do it.  I have taken a break from rads due to the weather which is nice since my skin has blistered under the arm.  Have three more regular tx and 5 boost, keeping the ointment on.

    Like it has aready been said, drink lots of water and keep ointment on your skin.  Aloe vera, Miaderm or whatever your RO recommends.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2011

    twozzs42-I finished my rads a couple of weeks ago, but I tell you I went to part time.  I had a 50 minute drive to the rads center and back.  They were limited in the time they gave me so I worked from 8-1 then took off.  Got home about 4pm and took a nap.  Usually an hour sometime longer.  Then I had the energy to exercise which is important to me and then cook super and do normal stuff that has to be done. the fatigue really hit me about week 4.  I am back working full time and I now fall asleep about 9pm, just can't seem to stay awake any longer.  Good luck with your tx's

  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2011

    MONDAY IS MY LAST TX.YAY.

    Today is world cancer day.please pray for a cure

    huggggggggggggggs K

  • mrsbeasley38
    mrsbeasley38 Member Posts: 62
    edited February 2011

    Hello everyone. I had two rads in January. And this is what I know after 6 treatments. I have felt some twinging in my chest area. not neccessarily my breast area.  but the techs forewarned me about this twinging feeling I may experience.  Seems to happen a couple of hours after treatment.  Maybe it is my body trying to clean itself up after the radiation influx.  My RO told me that he does not expect me to get tired.  I am thinking he is trying to keep me optimistic.  I have been working out and do feel like It gives me great stamina for all this. Keeps me healthier. I am prone to get pink and I know from being  a redhead that the whitest virgin skin burn will hurt like none other. Also I think the smaller the boob the better .....finally a good reason to have small ta ta's :) So far my only sympton was the first day after I felt like I was kinda gettin a virus ...maybe I was ......maybe it was my body fighting.off the rads....but after that I have felt great. My aerola  (sp) is tender already but no big deal.  I can just tell it is more sensitive than it was before.

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