treatments soon...im reaching out.

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I'm 39 yrs old and was diagnosed with BC on Jan 10, 2011.

Jan 20, biopsy...Jan 21, mastectomy left breast, removed 15 nodes (14 positive), a nerve that was attacked with cancer, part of the chest wall, and began reconstruction.

I will have chemo and radiation starting mid February.

I do have fears. I do not know what to expect. I meet the doctors on February 7.

What did you feel like and what were you thinking?

How did you do with treatments?

Were you scared? What were you afraid of?

I don't have BC in my family. I don't know anyone personally who has gone through this.

I've started juicing veggies to help my body prepare for the treatments. I still do limited yoga and have started meditating. I have reached out to a friend to help coach me in meditation...is there anything else I can do to prepare?

Oh...I have so many questions...but no one who has been there...

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Comments

  • coonie
    coonie Member Posts: 7,618
    edited January 2011

    Hi Fuzzy---

    I'm so sorry you've had to join this club. We ALL felt a vast array of emotions when we were diagnosed. You said you've had a biopsy? Do you know th results? What kind of cancer....IDC, DCIS....etc. Your treatment will depend on your diagnosis. I know once I found out everything I could about the tumor, etc and had a treatment plan in place, I felt much better. Now, I was still scared silly, but it sure felt good to get things started. The sooner you can start, the quicker you'll be done.

    It might be helpful if you carried a notebook or small tape recorder to your doctor's visits. It's REALLY hard to remember and understand all the information you're being given.

    I was in total shock when I was diagnosed too. There is no family history on either side of my family.

    BUT!!! There are LOTS of wonderful sistahs here who can answer just about any question or fear you may have. Just keep checking back on the boards. You'll get more responses!

    (((((((((((((((((((gentle hugs)))))))))))))))

  • renee2010
    renee2010 Member Posts: 93
    edited January 2011

    Hi,Sorry you have  bc.

    Its is very scary.It all happens so fast.My journey began last April.I was very scared,cried alot.

    I did well with my treatments.Chemo had some side effects. 6 rounds taxotere and cytoxane. 33 rads.Finished up Dec. 17th Take Armidex now for 5 years.Had right breast removed and ovaries and had aport put in for chemo.Yes I was scared,I was scared of everything.This si a wonderful group of women here.I will b happy to talk with you anytime.I live in NC,Where are you?

  • coonie
    coonie Member Posts: 7,618
    edited January 2011

    Fuzzy--another thing I wanted to mention about the boards. Until you get familiar with them, it gets a little confusing. Or at least, it did with me.

    If you haven't already done so, up at the top of this thread you started is the option to "save as favorites". If you'll do that, this thread will always come up for you with the latest comments.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited January 2011

    OMG!! I can't believe I have responses!!! I have tears in my eyes!!

    Renee, I live in Wisconsin.

    Coonie, I do not know exactly where I'm at with my cancer. I think my doc is waiting for me to discuss this with the oncologist and radiologist...definitely stageII, and it escaped the lymphnodes 14 out of 15positive)...it all just sounds so...horrible.

    Thank you ladies...I can't tell you how much this means to me.

  • coonie
    coonie Member Posts: 7,618
    edited January 2011

    The good thing is to catch it early. I'm also stage IIA.  Just don't hesitate to ask questions....or even to vent your feelings here. We ALL can relate to what you're going through. And you know, someone told me when I first joined the boards that in a few years I'd be trying to encourage newbies. Soooo....here I am........a little over 3 years out and doing great. There are MANY MANY women here who are REALLY long time survivors. Treatment options have come so far with breast cancer.

    Just remember to breatheWink Stay busy to keep your mind occupied on something else. I PROMISE, you're gonna be just fine!!!

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited January 2011

    I'm trying to figure out the favorite link...tricky little bugger. ..



    You said 'catch it early'....I like soooo much that You said that...but I feel like I waited too long. I was misdiagnosed by a local doctor early last year...I'm regretting that pretty bad...



    I'm really pleased that you are here. Really, you're an amazing person to me already. I'm going to fight and fight hard...I want to be just like you and the others who support the newbies!!



    Gentle hugs: ) (I'm learning and very happy to be here)



  • renee2010
    renee2010 Member Posts: 93
    edited January 2011

    I am stage II B ,2 of 13 lympnodes,grade 3 and excapular invasion(probably spelled that all wrong)lol

    I will send you some links to things that helped me.

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited January 2011

    Hi Fuzzy, 

    You got your diagnosis on the same day as my 3 year survivor!

    I would suggest have good anit-nausea meds to help with the chemo.  I didn't have any on my first treatment and I was really sick.  Took them religiously until the end of chemo.

    Have you seen an Lymphedema Therapist?  I would suggest that you do just to get a baseline measurements.  I didn't have any problems for quite awhile but do have lymphedema in arm on the bc side.

    Not sure of the chemo drugs you will have but if you will be loosing you hair they suggest you go before you loose your hair.  That way they can match the color & style that you have now.  Most people didn't know my wig wasn't my real hair. 

    Starting treatment is always scary because of all the unknowns.  I wish I would have had a place like this to get support.  But it has helped just the short time I have been here.

    Sending lots of support. NJ

  • coonie
    coonie Member Posts: 7,618
    edited January 2011

    MrsNJ is right! There are some WONDERFUL drugs for nausea. Chemo is nothing like it used to be. I guess that is what worried me the most at the beginning. But I had a great drug called Emend and I NEVER not ONCE threw up during the 4 months of treatment. Dealing with the hair loss was a little sad at times. Before I started treatment, I had my hair cut and donated to "Locks of Love". After my 2nd treatment, it started falling out so I just had my daughter give me a buzz cut. From that day on, I wore caps, hats, scarves.....didn't do wigs (it just wasn't me), but I loved my hats! You'll find something you're comfortable with. HANG IN THERE!!

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited January 2011

    Good info...wow, the knowledge on this site..

    I will do the measurements...I never thought to do that.

    I had hair all the way down my back and cut it to less than an inch just before surgery...this may sound crazy, but I will shave it before it falls out. And proudly, I will be hairless...crazy, right?

    I am so positive and wanting to beat this demon...but my doc thinks I'm unrealistic and not facing the truth...I do have fears but I wont let them root...does that make sense?

    So, that led me here...to talk realistically and be with those who know, understand, did it or are doing it.

    I feel like a part of a very special group of women...all of a sudden.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited January 2011

    To each of you...I'll figure out this site: ) I wanted to send a few messages to your site but I'm not quite there yet.



    Thank you again. I'm sending each of you my happiest thoughts.



  • coonie
    coonie Member Posts: 7,618
    edited January 2011

    Good morning Fuzzy

    Just thinking about you. Hope your weekend was good. Weekends were always so long right at the beginning of my diagnosis. I always liked Mondays 'cause you can get the ball rolling again.

    About this site----if you're new, I think you're only allowed to post a limited number in a 24 hour period. There is a thread that Seyla started for newbies that's really good.  The more you're here it'll get easier. I'll try and find that thread and copy it for you here.

    Sending gentle hugs!!!

  • coonie
    coonie Member Posts: 7,618
    edited January 2011

    I hope this works for you Fuzzy. This is the link Seyla started for newbies.

    http://community.breastcancer.org/forum/108/topic/743394?page=204#idx_6096

    It explains it alot better than I tried to about posting limits, etc.

    In case this doesn't work, go to:

    Forum Index

    Connecting with others who have similar diagnosis

    Stage 1 and 2 breast cancer

    Calling all Stage 1 sisters

  • sheila888
    sheila888 Member Posts: 25,634
    edited January 2011

    ALL NEWCOMERS ARE ALLOWED  5 POSTS IN 24 HOUR PERIOD UNTIL THEY REACH 50 POSTS.

    YOU HAVE UNLIMITED PRIVATE MESSAGE POSTINGS BY CLICKING ON THE PERSON'S NAME YOU WANT TO COMMUNICATE.

    JUST FOLLOW INSTRUCTIONS WHEN THE NEW PAGE OPENS UP.

    I HOPE THIS WILL HELP ALL THE NEWBIES.

    SHEILA

    Hi Fuzzy...I copied this for you because the link is not working.

    Hugs to you.

    coonie ...I hope you dont mind.

  • geewhiz
    geewhiz Member Posts: 1,439
    edited January 2011

    Hi Fuzzy,

    Just wanted to stop by and say keep up the good work with the juicing! I juiced all the way through chemo. I had the most agressive chemo my body could handle...and I didnt miss a day of work or getting my kids off the bus. I think the juicing made the difference. I also exercized all the way through, even when I didnt feel like it.

    The mediation will keep you on the right path. Find the calm in the storm. You will be fine. You are NOT alone in this. We have all been right where you are, and will be right here beside you!

  • littletower
    littletower Member Posts: 333
    edited January 2011

    Hey Fuzzy, welcome and so sorry you're here. One of the things that struck me from one of your posts, if you're optimistic and convinced you'll beat the beast and your doctors aren't - Find new doctors!!! Read these posts on any of the threads and you'll see what I mean. Hugs from a NY sista!

  • Beanius
    Beanius Member Posts: 1,697
    edited January 2011

    Dear Fuzzy,

    I got the BC diagnosis last March almost April. I'm so sorry you have to be here! But just know you are not alone. I was in treatment most of 2010, just finished in Dec and now I'm on tamoxifen for 5 years. What a whirlwind of emotions. So many tears I've cried. I love what littletower said about finding optimistic doctors. I went for many opinions and found great doctors who I trusted. I wish you all the very best!! The women on this web site got me through so much I hope you will find healing support, love and encouragement!! Big Hugs!! ~Beans

  • Lowrider54
    Lowrider54 Member Posts: 2,721
    edited January 2011

    Hi Fuzzy...just wanted to pop on and say Hi!  Wishing you the best - did my go around with this beast starting in 1998 - still fighting on with bone mets now and just found out last week, I have stabilized! 

    There are Abbreviations for Newbies too...just do a search - click on 'search' right about the 'GO' button on go to a forum...real helpful to understand what all these abbreviations mean - wish I had found that one sooner...lol!

    Juicing isn't bad, just be careful if your white counts drop real bad (mine did) - you won't want to be touching any raw fruit or veggies - get someone to wash them and juice them for you. 

    Sending cyber hugs..LowRider 

  • musicalmaven
    musicalmaven Member Posts: 10
    edited January 2011

    Hi Fuzzy!

    I was terrified too when I got my diagnosis in March 2009. But I learned also that fear can be a friend of this disease - don't let it be! And don't overdo it on the research side either. If you are researching your disease and you find yourself get unnerved - stop and do something that you enjoy. My treatment was delayed because of my own fear - don't let that happen to you. I'm doing well now because my inner person got a nice continuous shot of spirituality - never underestimate that either. But get good rest and think good thoughts ALWAYS!! You'll make it - you'll see.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited January 2011

    Hello to every wonderful and amazing person that feels (and responds) to my needs - how very giving for all of you to reach out - I feel blessed.

    Today I had the drainage tubes removed and, to my suprise, the staples removed!!!  My usually not-so-positive doctor said, "You're healing well ... remarkably well!"  I about flipped!  I know he wouldn't have said taht if he didn't mean it!  What a great feeling - and then to come home to the messages - wow!

    The doc said the radiologist and oncologist will be very blunt and scare me pretty bad ... is that normal?  I was hoping they would be be nicest and most caring people...maybe not ...

    I was a little bummed when I got locked out after only 5 messages!!  So now I will send 5 every day ... until I hit 50!  That was great news!! 

    Thank you for the newbie help!  Thank you all for everything!  How many times can a person say thank you before its meaning is exhausted?  I hope there isn't a number because I am filled with thanks.

    I have an appointment with a great Coaching friend of mine to enter deep meditation tomorrow morning.  She's amazing and the only person to ever affect me this way. 

    One more tiny little thing ... it's so hard to have some one "try" to take care of me.  My husband was not designed for this ... and having a tough time with that.  And now, there's a whole bunch of money issues (I blame that on being irresponsible ... and I know that sounds terrible but it's true).  I think he might enjoy the attention from his friends and work peers because I have this beast ... oh boy, I better stop on that one.  I can't believe this is the person I have to lean on ...

    Well ... on to making sure my benefit department has all that it needs ... and try to get out to fax it in the blizzard tomorrow!!  Wisconsin is some kind of crazy place to live!

    Hugs, warm thoughts and a smile to all of you :)

  • coonie
    coonie Member Posts: 7,618
    edited February 2011

    Sheila---thanks for posting the information for newbies.

    I can remember being so confused when I first joined the boards. I would have LOVED to have had something like this to steer me in the right direction!

    ((((((((((Fuzzy)))))))))

  • catbill
    catbill Member Posts: 326
    edited February 2011

    hi fuzzy-

    Just catching up with your thread,  Sorry you're here, but glad you have found us...a couple of thoughts.  Just remember while you are limited on the boards to 5 posts each day, you can send anyone private messages as often as you like.

    About hubby...I actually asked my husband to read the book called STAND BY HER A Breast Cancer Guide For Men by John W. Anderson.  He says he found it helpful.  I found it in our local library, so maybe you have it in yours, too.  You might browse through it to see if there is anything useful to you.

    I'm one of your northern neighbors , and we're getting snow too, but you're getting it worse.  Are you tired of winter, too?

    Many radiologists  and oncologists are caring individuals who can be very gentle, but they will tell you the truth.  Sometimes that's not what we want to hear, but we do need to hear the truth.    I'm not sure your doctor needed put it the way he did, though. Unrealistic, pooh!  What would he have you do? Be positive!

    I am sorry you have to go through this crap, but try to take things one step at a time.  We will be here for support.  Be selfish.  Take care of yourself first.

    Wishing you peace.

  • Tammy65
    Tammy65 Member Posts: 38
    edited February 2011

    Hi Fuzzy

    I will be starting treatments mid february/march too. I meet with my BS next week then on to the oncologist..I had surgery on Jan 20.

    Don't have any advice, just want you to know you will not be starting this alone, scary stuff, long road ahead....have to stay strong and be positive!

    good luck to you

    Tammy 

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Hello Sisters ... (I love that ... I really do)

    Today, I connected with a master hyponsis/meditation friend of mine.  She is just amazing.  We talked about breast cancer, my feelings, what I thought and what I wanted to release.  She, like everyone here, knows the importance of a positive attitude and what that actually DOES to our bodies.  Doctors are not trained this way, husbands may not be hard wired this way (mine for example) and as we talked, she knew where I was ... positive and realistic with real fears that are ok to possess ... I (we) just can't let them root and control us.  We have to see them, move them out, let them go and become light outside of ourselves and thank them for teaching us what they needed to.  I learned to separate my mind from my heart ... and found that my heart knows WAY more than my head!

    Meditation will become part of my every night in just the way she trained me today.  I could feel it ... I know that sounds crazy!  But it's true ... and layer by layer, I will continue to rebuild the inside the best that I can ... before, during and after treatment.

    I hope this helps someone, or at least brings a smile.  My days are now filled with healthy, healing and selfish (in a great way) acts that will power me up for (and through) this incredible process.

    I told her about all of you and what a powerful group of women gather here to support anyone and everyone.  When I thought of happiness, my heart came here. 

  • sheila888
    sheila888 Member Posts: 25,634
    edited February 2011

    thefuzzylemon....Thanks from the bottom of my heart for your beautiful post.

    It brought peace.

    HUGS

  • kriskat
    kriskat Member Posts: 163
    edited February 2011

    thefuzzylemon:

    I will be starting treatment late Feb/early March also.  I had a lumpectomy yesterday with SNB and just waiting to see doc on Thursday,  they took 4 nodes becasue he didn;t like the look of one.  Everyone here is so encouraging and positive.  Your positive attitude makes me smile!  As hard as it is , we have to be positive!!! I'm new here too so if I can help, please PM me.  We need all the help we can get!!

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    YES!  It really is about being ... strong and happy with that!  I learned so much from this group and I know, in my heart (I've just plain given up on my head after today!!) that I can be afraid and that single feeling alone can teach me so much! 

    Whoa...that may have been a run on sentence .. I'm pretty excited after the day I had, the PM's I received and that I'm waking up tomorrow (to a blizzard) and doing it all over again.  I'll be so glad when I get past the Newbie 50 ...

    You are all part of my warmest thoughts and I thank you for every minute of your time and energy.  You help me (and who knows how many thousands of others) heal and become more healthy every day. 

    Hugs and a Smile!

  • lrr4993
    lrr4993 Member Posts: 937
    edited February 2011

    Fuzzy - you have the right attitude.  Wallowing in this disease will get you nowhere.  Good luck with your treatment.  You will find a tremendous amount of useful info here. Read the chemo forum before starting your treatments . . . there are some great tips (ice on the fingers and toes, eating ice during infusion, insisting on Emend for nausea, drinking tons of water, etc).  I sailed thru chemo with only one "bad" day where I slept all day and had mild muscle aches.  I am convince that part of my success with the side effects was stuff I read about here and planned for.

    Good luck! 

  • kathleen1966
    kathleen1966 Member Posts: 793
    edited February 2011

    I finished my chemo four weeks ago. It had a cumulative effect on me and I got more tired, down towards the end. Though I didn't feel great on day two, three and four, I never felt like I wanted to vomit and had no other horrible side effects. I received the white cell booster shot after each treatment with no side effects (neulesta...sp?).  I once needed procrid for anemia but then declined it once I read about the side effects.  One of the side effects was having a recurrence (no one told me, so I am telling you ahead of time).  I lost all of my hair and then my eyebrows towards the end, but not the eye lashes.  I also had a mascetomy and had all the nodes removed.  I am now being treated for lymphedema.  Wearing the "pre-compression" sleeve is harder emotionally and physically then the chemo. But I know it is not permanent so I try to remember this. I am now onto radiation, as I assume you will be too with more than three nodes positive. I don't know what to expect. You sound like you are doing everything right and trying to get in the right frame of mind with the meditation, etc....I wish I could have been in this state of mind but was too busy with the young kids and being tired. I wish you all the best and hope you have a good support system in place.  It really helps.  Friends who visit and make meals, a husband who will massage your feet....And when you finish summer will be here with all of its greenery, flowers, beauty.  Winter has been long and hard for me. Hearfelt positive wishes for you!  

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Kathleen -

    Thank you so much!!  It sounds like you and I may have a lot in common here!!  I just joined Gildas Club yesterday and I am super excited about that!!  These boards, my baby girls (ok, they are 18 and 16 but still my babies :), this puppy of mine and my friends could not be better to me. 

    When I found out about the monster ... I looked for someone to lean on and realized, there isn't anyone who can help me when I feel defeated.  I get so aweful and angry that I didn't want to put anyone thru it!  So I took the leadership position, decided it is my journey and I will take my family and friends through it.  That decision really changed my entire world.  It didn't "just happen" though ... I became a Certified Life Coach last February and I have been steadily increasing my own potential ever since ... just part of that "Everything happens for a reason" I suppose :)

    I appreciate all of the information that every one sends.  These are the most valuable connections and I find myself happy and peaceful in these discussions ... hard to explain and I hope that makes some kind of sense!!

    Monday is a big day for me ... I meet my oncologist and radiologist ... I'm certain I'll have a thousand questions Monday night!!

    Hugs and a Smile!

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