Are Mammograms Radiation? Are they killing us?

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  • RachelKa
    RachelKa Member Posts: 174
    edited January 2011

    Mammo misses tumor 50 percent of the time in dense breasts and catches it about 78 percent of the time otherwise. My mamo missed the tumor twice - even after it was big and hard and practically popping out of my skin. An ultrasound and mammogram together are more accurarte. MRI is the best, but who's insurance pays for regular MRIS? :(

    I ladies, I'm a16-mo bc survivor and writer. will you check out my site if you get a chance/ informational, feel good stuff for us as well as lists of Free and Discounted "c" items and resources. www.1UpOnCancer.com

    Be well!

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited January 2011

    I question the 50% accuracy rate in dense breasts.  

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2011

    The accuracy of mammos for those with dense breast seems to vary considerably depending on whether it's a film mammo or a digital mammo.  According to this article from the NCI, digital mammos are 70% accurate on women with dense breasts while film mammos are 55% accurate:

    Digital vs. Film Mammography in the Digital Mammographic Imaging Screening Trial (DMIST): Questions and Answers 

    More on this study:

    Diagnostic accuracy of digital versus film mammography: exploratory analysis of selected population subgroups in DMIST. 

    It appears that the experience of the doctor reviewing the films is another critical factor in whether the film is accurately read of not. This really supports going to a busy, high volume, well-established facility for your mammos, especially if you have dense breasts:  

    Physician Predictors of Mammographic Accuracy 

  • RachelKa
    RachelKa Member Posts: 174
    edited January 2011

    Hi Fearless,

    Do you think accuracy is more or less than 50 percent with dense breasts/. That's what i got from Johns Hopkins research and my oncologist seemed to think that was about right. I saw a woman at some other univeristy  cancer center on a video. She reported mammo is about 40 percent. Both burns and  chills me when I meet all the ladies during chemo whose mammograms missed it. Some, sadly already had  advanced disease.

  • RachelKa
    RachelKa Member Posts: 174
    edited January 2011

    I keep hearing digital isn't astoundingly better with dense. Digital missed mine a month before I felt the lump and again three days before the biopsy. Chills and burns me when I think about all the women I did chemo with who had the same experience. Some, sadly were already advanced.

    Hi Fearless,

    Do you think accuracy is more or less than 50 percent with dense breasts?. That's what I got from Johns Hopkins research and my oncologist seemed to think that was about right.A woman at some other university  cancer center reported mammo for dense breasts is about 40 percent, though I wonder.  

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2011

    "I keep hearing digital isn't astoundingly better with dense"  

    That seems to be a common opinion but the research seems to suggest otherwise.  

    I only included links to the one study in my previous post because it's the one that's discussed most often, but I read the results of a number of other studies done in countries all around the world that also showed that digital mammos are better than film mammos for women with dense breasts. 

    MRIs - or a combination of MRIs and mammos - clearly are preferable for women who have extremely dense breasts.  But not everyone reading this will be able to get an MRI and I don't think it's right to scare these women into thinking that mammos are useless for them.  It's particularly not right to scare them using inaccurate data and personal anecdotes. Sorry, I don't mean to offend anyone but we have to be conscious of the effect on others of what we write here.

    First of all, the issue of breast density does not affect all women, and the category of density that is of the greatest concern is those who have "extremely dense" breasts (as I do).  

    Digital mammos appear to be significantly more effective in diagnosing breast cancer, and particularly, early stage BC, in women who have extremely dense breasts.  Digital mammos appear to be 70% accurate.  

    Getting your mammo read by someone who reads thousands of mammos every year and who's been doing it for years is another way to try increase the effectiveness of your mammo.

    So, for women who have extremely dense breasts, if you are unable to get an MRI, try to find a facility that uses digital mammography and that is well established and busy (a major breast center, for example).  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    Indigoblue,

    read about the article published by BCO about Elastography-- its the latest clinically approved diagnostic tool for breast malignancies

  • thenewme
    thenewme Member Posts: 1,611
    edited April 2011

    Hi Ruth,

    Again, you've completely misunderstood the information you're presenting.  You said, "[elastography is] the latest clinically approved diagnostic tool for breast malignancies."

    NO- That's not what it says at all!  Please reread the BCO article you posted. 

    BCO Elastography 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    why do you have to "SHOUT" thenewme?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    if I have misunderstood it, then tell me what your understanding is--

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited April 2011

    Ruth, it was just a small study with further research suggested.  The article and BCO explanation weren't set out very well and I had to go over them a couple of times to figure out what the point was, but there was no suggestion that this is in use now.

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