How long NED after 2nd bc

I was originally dx with IDC in April 2008.  Had lumpectomy and node dissection in May 2008.  Chemo (AC, Taxol and Herceptin) from June 2008 - Nov. 2008.  Continued with the Herceptin and had 30 radiation tx from Dec. 2008 to Feb. 2009.  During the rads, I started having signs of IBC but all my doctors thought they were just side effects of the radiation, so we just watched things.  I didn't have a biopsy until June 2009 at which time I was dx with IBC.  I was referred to MD Anderson in Houston, TX.  My onc there stopped the Herceptin and switched me to Xeloda and Tykerb which I stayed on for 6 months (July 2009- Jan. 2010).  Stopped Xeloda in Jan. 2010 but continue on Tykerb to the present.  I had a mx and another node dissection in Feb. 2010 and at that time, there was no sign of any cancer, nor had there been since one month after I started the Xeloda and Tykerb (which would have been back in August. 2009).  All scans since that time have all been clear.

Long story short ----- I have now been NED for 18 months since my second BC dx.  I just got back from a checkup at MDA and my scans remain clear.  In fact, my onc told me I didn't have to go back there for a year!  But, to still see my  local onc every 3 months and continue to have monthly blood work since I am still on Tykerb indefinitely.

You can be NED after a second or third dx.  I am and I intend to stay that way for a long time!  Hope this helps you.  Good luck!

Well, I'm almost 9 years NED from my first primary and heading toward 4 years NED from the second one in the other breast.

No reason to think that you can't have this, too!!

I'm 14 years out from my 1st Dx with node involvement and nearly 5 years out from my 2nd Dx on other side. Had 29 Pos nodes that time and am doing well so far.

i am so alone in this battle, I really dont have many friends and this is my third time with this BC.I will be starting tykerb  thursdaty praying this will get rid of the very small tumors in my lungs,should I be on any speacial diet? what are some of the side effects from this drugs?I also am taking fasodex,my dr she somewhat not worried about anything. I am 62 years young and my daughter told me  she hates me and she wish I would die from BC. I have been so depress,but I realize there are some women worst off than me,please keep me up in prayer,I know that gods loves me if knowone else does.

I was NED for 11 years after my first primary on right side, that was triple neg.  I am 6 months NED from recurrence of ER+ PR+ in the same breast.  

I never worried about having a recurrence as I reasoned that if I found it the first time, they'd surely find it if it came back!   I was right.  

I'm scheduled for a DIEP flap procedure on May the 2nd, and I hope to be able to cope as well this time as I did 11 years ago.

I wish you all the best!

Rainez,

What type of chemo did you do the second time around? I have just been diagnosed with a second primary (i think, as it is in opposite breast) I was triple neg before (2003), haven't got the final path work back, but probably triple neg again. First time I did ac followed by taxol and am just wondering what type of chemo they will use this time. My appointments start next week and I just want to have an idea of what I am going to have to face. I am having a hard time, was it harder the second time around?