January Mastectomy
Comments
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Well damn, they didn't analyze it on the spot. What's up with that! Of course that's all I know because my surgeon went out and told my husband who was asleep in the waiting room. I'm assuming if it appeared to be cancerous, there would be some news. Otherwise I have to wait until my follow up appointment with my surgeon next Monday. And I know if he doesn't call me before that, I can breathe easy. I'm sure he would call me in if there was a problem.
I'm recovering fine-just a big surgical bra thing on and some Lortab. No big deal. I will probably feel a little more sore tomorrow. I did cook dinner-I felt like spaghetti and the husband is at work. Whee! I chopped really slowly and carefully with my daughter watching. Lol
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{{{{{ KIM AND SALLY}}}}
In my prayers...
Sally, Kat, Laura - Last year this day we were on line not knowing what was ahead of us.... We were waiting for the morning... To have this all behind us. We've come a long way...but, We still need courage, we still need strength. We will be strong for we have eachother...
I would of never been able to do it without you girls. My January Sisters I love you all.
You are in my prayers daily.
Thanks for being there for me.
Donna
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Donna, Kat, Laura - We did it ! I can't believe it has been a year already, and yet in some ways it seems like it has been years and years. This time last year, I was arriving at the hospital. I think the day before and morning of my surgery have been the hardest in this whole experience for me. It was such a relief to have it over and have something (healing) to do. Through the process of appts and tests you feel so helpless, you have no control. After surgery I felt like I had some of the control back in my life.
My daughters realized today is the day and want to get a cake to celebrate - they definately view it as a GREAT day.
Team January, I could not have done it without you ! Love ya !
Never Surrender !
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{{{Kim}}} I'm sorry you have to wait - again.
I will not be able to get in to have this bone biopsy until March. I knew it would drive me crazy, so I did do a little research online. It appears that if someone presents with a cancerous growth in their jaw, it is most likely from a BC - but it is rare for a cancer to mets to a jaw (like less than 1%). With my history, my dentist wants me to have it checked. Better safe than sorry. She said her opinion would be that it is ok and is a 'traumatic bone cyst', I have never had a trauma to my jaw, but maybe it was something not so dramatic. I played 3rd base and short stop in softball for many years. I'm sure I probably took a ball to the face at some point. Anyway, I feel much better having checked out some information. I can probably make it until March without getting an ulcer
I was surprised at my reaction. I was so angry and scared when I got home. (kids were with me, so I acted normal until I dropped them at school). I cried, I swore, I felt defeated....then I got mad and took charge of getting things lined up. I did tell my mom, sister,DH and BF. My mom and sister were both...."oh, it is nothing" "your cancer was caught so early, its fine" "the odds are it is ok"...I wanted to scream at them. I absolutely did not want to hear this type of thing. I wanted to remind them about how the odds were in my favor last time also, and we know how that turned out. I understand they were trying to make me and themselves feel better and not be as scared. I guess I just needed someone to be mad and scared with me for a little while (BFF was fab and sensed that and got mad with me). Anyway, I am over my little snit and am back to normal.(maybe a little more stressed version of normal).
My life is never dull
Tomorrow, I am taking my 14yr old to an ortho. She broke her left ring finger on Saturday. We have to see the ortho to determine if she will have to have surgery (apparently it broke into the knuckle). With the way my life is right now - I'm sure she'll need it.
Hugs Team January !
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I'm celebrating my surgiversary in sunny AZ and thinking of all you!
I know I couldn't have done this past year without all of you.
While visiting my mom this week she is so out in left field...she seriously thinks I had a boob job. I'm like Mom! You were there taking care of me...changing my dressings...you saw that I did not have a boob job! Her response...well you have to be happy with the results! No mom, I'm not all that thrilled with the results...they're ok and I look good in clothes but I would much rather have the girls back...but at least I am alive. "Oh rubbish...you were never going to die" Ok mom...note to self...don't argue with old people.
Hugs Team January...and prayers to all!
Kat -
KAT, SALLY, LAURA. Happy 1 year MY SISTERS.
You think that I would be jumping up and down today. To be honest... I am thankful for everything. But my inside are raging. Just so stressed with everything ----My DS is driving me crazy ..23 going on 24 ... Don't you think its time to fly the coup.????? He will never go... He is healthy, Drug free, I guess I should say Thank GOD, but not going to college in morning for 8 oclock class which I paid for. Snow is depression, almost hit a poll today with snow and ice, and need students loans for kids college.......Just wooh is ME.....Feeling blah.......
Went to PS yesterday for consult on TATTOO... March 1 that is the day it is going to be done.
Any way my thought go out to you and my Other January Sisters.
Kat- wish I was there with you.
{{{{{{{{{{{{HUG}}}}}}}}}}}
Donna
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Oh Kat! I never got back to you. Cave Creek and Queen Creek are about 2 hours apart-you'd think thery would be closer the way they sound, but they aren't. Like total opposite sides of the valley. From where I live, I could get up north to Payson faster than I could get to you. Lol. I hope you're enjoying our weather! Isn't it awesome?
My 1 year anniversay was last week and I totally forgot about it! I was so consumed with the lump stuff going on.
I had a bone density scan done last week too before they yank my ovaries out. Results came back today that I have Osteopinea-precursor to Osteoporosis. Fun. Another side effect of the chemo.
I am a mess and I'm only 40! But I am so thankful to be alive and going strong.
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Burley- I hear you on this Osteopinea shit... My bone density showed it too. I had to do a IV of Zomeda. Which I hated... it was like the Chemo, made you feel like crap.. They (onco) want me to do it every 3 months... Don't thinkl I'm doing that again...
Happy 1 year. I know its crazy with the lump and other testing... It will work out...
I do feel less stressed today... Don't know whats come over me.......... Thank goodness for ambien at night.... Need to ween off that some day soon... But not tonight...(ha ha)
You are in my thoughts and prayers .
Talk to you soon.
Donna
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Mai Tai, so nice to hear you spent some alone time with your daughter. Israel to Florida for a wedding, you sure were a long way from home! I know what you mean by having those days where you just want to put all of this behind you and move on. I too think about it everyday , and some days I do better than others.
Happy Birthday Lynn! I am not on facebook, so glad to see others who can keep us up to date on these things.
Kim I hope you are recovering well and get the good news real soon. It will be such a relief to just get that confirmation.
Sally, sending you hugs. I was mad for you when I read your news, and so wish you didn't have to wait until March to do the biopsy. That's good that you have done your research and have some reassurance until you can get your results. Our new normal, when everything sends us into the deep dark hole again. When I had my recent biopsy scare, I didn't tell anybody, because I just couldn't handle all of the brush offs and those comments. Well except for you guys of course. I find only those people here, really do understand.How's your daughter?Good luck at your appt with ortho tomorrow.
I just came back from a follow up appt in Toronto for the next steps. She seemed a little suprised with how red my breast and abdominal scars are, so she gave me a prescription of silicon sheets to put on them? I haven't picked up the prescription yet, so not sure if this will work. Has anyone else heard of this? She also said that she just came from a workshop, and the thinking now is to do the tatoo first and then the nipple. So that will be my next step, I just need to set up an appointment for the tatoos and then 6 weeks later the nipple.
Take Care
Cathy
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Yay, my daughter's orthopedic appointment went great ! She has to wear a litttle brace/tape thing for 4-6 weeks, but no surgery
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Goodness Team.
(((((((((((((Sally))))))))))))
(((((((((((((Kim)))))))))))))))
You two are at the tip top of the list, but there's so much going on for the Team. Wow.
We are just nearing home from the most awesome of whirlwinds. My biggest presentation-to-date went so well today. I'll be 'high' for the coming week. It was so great to have a team of 4 techie/sound/lights people at my disposal to make sure it was all seamless.
I had asked them to get me a wrap around the head mic and that was so much fun!!!!
It was such a delight to dabble in the big-time spotlight.
We're only about half an hour from home.
Some amazing conversations about future possibilities!
I love planning for the future.
Keep putting one foot in front of the other Team.
xx00xx00xx00xx
Strength and courage.
Strength and courage.
Strength and courage.
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Look Team.
It's our very own Kat, from her professional photo shoot. '
I've taken the liberty of bringing her awesome photo from FB over here for the rest of you to help celebrate such an amazing accomplishment.
WHOOOOOHOOOOOO!!!!
(Kat I hope you don't mind. I just saw that you were slightly techno-challenged & knew everyone would want to congratulate you.)
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Hey thanks Deb! It's pretty exciting indeed! One of the consultants wants me to model for her preview show in 2 weeks...I'm just excited about seeing all the clothes up close and personal since I don't remember them from last October.
Congrats on your accomplishments too! You're doing great
Just got back from sunny (and I do mean gorgeous!) AZ...wonderful time but back to the saltmines today. No worries Kim... I ended up being so busy every day...maybe next time!
Cathy...I was a huge fan of CVS scar tape. Used it every day with some really good results! Here is a link. A pack of 28 sheets is around 24 bucks but you can leave them on for a couple of days and get more use out of them...I even showered with them. You can also trim them to fit. I thought they were very comfortable and was pretty diligent about using them and the results were really good
Also interesting about your tattoos...Good luck with those!
Sally...hang in there. I think that if you have to wait until March they must just be covering their bases...I would also think they could do a pet scan or an MRI instead of freaking jaw bone biopsy...we must be our own advocates to these guys who are running scared we're going to sue them because they missed a spot. Prayers out to you.
Donna, I hear you on the ambien....if we can't take benedryl because of the tamoxifen, how else are we supposed to sleep? Chalomine tea? HA! (I don't think so!)
Have a great day ladies!
Kat -
Debbie, it sounds like you had an amazing time. Enjoy your 'high'
Kat !! Wow ! You look great !
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Cathy: Glad to know I'm not the only one who doesn't do facebook! I barely internet!
Kat: Beautiful photo!
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Kat - that's a great photo and I'm glad to hear of future possibilities. It's amazing the doors that open sometimes.
And DEBBIE!!!! You ROCK! I'm so proud and excited for you; I hope your Europe plans come through and you get to keep on inspiring everyone!
I'm teaching a little workshop for 149 art teachers on the 4th. No biggie, but the local ISD has said they'll use me whenever I want, so I may do more. I've been wanting to teach a particular workshop on imagination and creativity for a long time and have never found a venue for it - this may be it. It's one of those things that in order to refine it, I have to actually DO it, and once I'm able to refine it I might be able to do more with it. So that's a fun thing for me. Of course, this is on top of the 4 jobs I already do - one full-time and 3 part-time, so I just squeeze one more in! And I have another opportunity to juror a local show - I love doing that and want to do more of those, too. Also, if I can get well and get the art done, I'm going to be the featured artist at PrairieFest this year. Large outdoor sculpture, which I want to do but not sure I can physically handle, especially with my current bout with pneumonia. It's not until April, but they want the committment now - should I say yes, ladies??? Let me know what you think!
Elaine
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What color is your parachute Elaine? Yes! Yes! Yes!
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Hello Team,
Haven't popped in for a while and was reading posts for the past month and also holding my breath. Like Debbie and all of you have Kim and Sally at the top of the prayer list.
Kat - picture is awesome. I am sure I speak for the team when telling you how proud we are of you!
Kim - hoping and praying everything will be fine.
Sally - It never hurts to ask questions....why wait until March when maybe some other test might give results....ask all your doctors.
Sometimes I am sure no one really understands the mental aspect of BC except us!! A year ago we all had already experienced the agonizing waiting game: waiting for bx results, mx pathology reports, bone density scans, blood tests, tumor diagnoses, genetic tests, and on and on and on. I think we all agree the tests aren't really painful....it's the damn waiting that pushes us over the edge. And no one knows or understands like we do. So it is right to be here together (when no one else seems to get it).
Well, today is my surgery-versary! Yesterday, I had a 6-week follow up after my tatoo with the PS. He is extremely pleased with the results (as am I) and I won't have to go back for a year! He actually brought up recurrence and told me to be sure to continue with breast self-exams and told me what to look for. We are never done......
Hard as it may be to do, we have to put it on the back burner. Be diligent, of course, but we really do live life "in the meantime". So, while we will pray for each other, my wish is that we all live to the fullest while we are waiting.
By the way, my PS and my oncologist are at a large University medical center and there is a Mastectomy Boutique there. It is where I got my mx camisole before the surgery. They also have just about everything we would need (lymphedema bracelets and sleeves, wigs, scarves, bathing suits, bra's etc). The woman who runs it is a certified bra fitter. Knowing that my insurance pays for a number of bra's, I gave it a shot. OMG, why didn't I go there right after the Exchange surgery??? Duh! She is wonderful and only works with BC patients. Anyway, I got 2 lovely bra's yesterday and she ordered 2 others....one is even black lace! So check your insurance policies and search the internet for the nearest Mx boutique.
Not sure how I am going to celebrate today, but I will, even if only in my mind! It is truly cause for celebration.
Warm thoughts and hugs to all!
Marianne
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wow, wow, wow.....such chatter on the thread since I was on last....lots of news, excitement, anxiety, too....
Love the picture, Kat
Sally....argh
But I'm in hopes (and prayers) that since you (like me) were caught early with DCIS it *surely* couldn't be BC there already, if at all....although that's easier said/thought than done - especially when it's not me.....in the meantime, I"ll be praying for peace through this storm of waiting. (glad your daughter didn't need surgery!!)
Debbie - you never cease to amaze me!!
Elaine - wow! teaching art to 149 ?!?! incredible...and I can hardly draw a straight line!!
Kim - MORE waiting!?!? argh...let's just hope it's "no news is good news"...and keep positive
Cathy - here's for healing quickly, girl. I never used those strip things...just used Palmers oil, and my scars are so faded, they can barely be seen.
And to all the rest of you....I think all of us have had our one-year-surgery date except Gina, who is right at the end of this month. She currently has the flu and strep throat - she really burns the candle at both ends. I need to call and check on her (but I'm a TERRIBLE phone person...)
And I am thankful to report that I have now successfully finished the third and last program for this school year - the Martin Luther King Day program (which was postponed because of all our snowdays) was yesterday.....I wrote the thing, and created it (a TON of work!!!).....Five classes of 2nd graders performed it. AND I was able to direct it walking!!!! The other two programs this year, I was in one cast or another...sigh. Anyway, we performed it twice yesterday...and today, I think I collapsed ...ha! So glad I only work part-time (at least I only am SUPPOSED to be part-time...ha! But I only teach classes two days a week, and that's all I get paid for.)
My SIL is having her surgery on Wed.....she was diagnosed with IDC. She opted for a lumpectomy. They'll do the SNB, and then the oncotype to determine if chemo is needed or not. Praying she won't need it. She's older than all of us, so I'm hoping that her age is a positive factor in this.....
blessings to ALL!!!! robin
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Debbie congratulations on your presentation and thanks for posting the picture of Kat for us "non facebook" people, much appreciated.
Kat you look like a professional model. Maybe you have found your calling! Congratulations! Thanks for the link. I will give it a try and hopefully I have as much success.
Sally great news your daughter doesn't haveto have surgery. Here's hopinghse has a speedy recovery.
I had to chuckly Elaine, "just a little workshop" for 149 teachers. I can barely talk in front of 10 people, never mind 149. I also say yes, yes, yes!
Marianne, does your oncologist say much about the pleomorphic? Mine doesn't say too much about things. He feels things were caught early and he is pretty optimistic. I just see him now every 6 months unless something comes up.
Robin hope your SIL gets good results and doesn't have to do chemo. Just thinking about how she must be feeling right now, is so sad. I think we all remember it well what it is like when you are starting out on this journey. What an awful time, yet it did bring us all together here didn't it. I suppose the silver lining on that black cloud.
Hope everyone has a great weekend!
Take care
Cathy
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kat--your picture was wonderful. aren't you just beautiful.
sally--i ache to think of you waiting so long. any other place they could get you in sooner??
i spent my 'anniversary' in bed with a nasty cold my dh shared with me. we are down here in arizona, so at least it is warm.
it is encouraging to see so many of you talking about your reconstruction so positively. will be tackling that when we get home. my daughter is getting married this summer, so will have to find a dress to wear during reconstruction--ick--any suggestions?
ta ta -
Hey "Team Jan" Checking in ! Thinking of you all as we approach the end of this Month.
Well today is my 1 yr Annivesary & Like Lola (grdnslve) I celebrated sick , Just getting over Streph thoart & The flu ( I had a flu shot too)! so Jan is just not a good month for me, But I am thinking I have 11 months to go & they will be all good for all of us!
Kim, waiting to hear good news from you~!
"team Jan"Thinking of all of you!!
Thank gals for getting me to a new year! Love ya all! I need to go & rest! will check in with you all again soon! {{{{hugs}}} Gina
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Mornin team,
Cathy: re your question on the pleomorphic. Onc never mentioned it, but I did some research and quesioned the breast surgeon at great length about it. She explained it to me as the way the cells line up...didn't really address it as being more aggressive or not. I think there is a lot unknown, but you are right, what is more significant, is the type (IDC or ILC) and the size and grade of the actual tumor (which we all know leads to the stage). I will try to resarch recurrence rates but don't know if there is much categorized in the PILC arena.
Lola: I am sure you will be able to find a dress. Those of us who went through reconstruction were able to do all kinds of things (play golf, exercise, etc) and we wore all kinds of things. Sometimes reconstruction certainly changes the shape of your breast(s) but a good dress shop with savvy fitters will find a style to fit your situation....I am sure you will find something and look awesome.
Yesterday, continuing my surgery-versary celebration (because the Bilat Mx was 1/28 and the eme hematoma evac surg was 1/29), I played golf with DH and friends (23 holes!!) and then went out to dinner to celebrate DH's birthday (31st). We were at a very exclusive steak house but I couldn't resist, so to honor a year ago, and my surgeons, and all of you, I ordered the "Two Stuffed Chicken Breasts". They were wonderful, and I, of course, knew only too well how that chicken felt.
Hugs and best wishes to all of you. A year is a milestone and here's to many, many more!
Marianne
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Hello everyone,
I haven't posted for a while so just wanted to stop by and say hello. All of you are always in my prayers and like others have posted I also feel like no one really understands what we have gone through and are still going through except for my team January friends.
Kat- loved the picture! You look great.
Debbie and Elaine- Wow you guys are really inspiring. I am not good at public speaking and always admire those who are.
Hope everyone waiting for results gets good news soon. I have had a few things going on myself. I went for my regular yearly gynecologist visit early January and after talking to my wonderful dr (who is mainly wonderful because he is one of the few docs I know who actually LISTEN to me) he felt I should be seeing an oncologist just to make sure we are covering all the bases and I actually feel a little relief at that. I was supposed to see one oncologist but my appt ended up being with another oncologist in the same group. I didn't particularly care for her as I felt we didn't communicate well and she didn't seem to know what she was doing. She wanted to do a physical exam and asked me to take off my shirt and bra while she was in the room. Awkward! Never had a doc stay in the room while I undressed and dressed. Very strange. For the next visit I requested to see the original dr I was supposed to see and I really liked him. However, strangely enough I found out during my visit that he is married to her. I wasn't mean about not wanting to see her but had said that I just didn't really like her so that was awkward too! Oh well, I guess what they say about the squeaky wheel gets the oil is true because they are being very thorough and that is fine with me. I am tired of sitting back and not speaking my mind with these doctors. I plan on being more straight forward about what I expect from now on with my medical care. So anyway, the onc. wants me to do the brca tests and take tamoxifen. Hopefully my ins. will pay for the tests. In the meantime I also sprained a ligament in my thumb and am having to wear a brace to see if that will help heal it.
However, on the bright side of things I am going to Universal in Orlando for 6 nights 2 weeks from now. Yippee!
Hope everyone has a great week. I am glad to count each and every one of you as my friends.
Becky
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NO BREAST CANCER-yayyyyy! It is a Dermatofibroma-looked it up, still confused. Said it mostly occurs on the legs, but can occur other places (obviously.) Usually the result of a bug bite or something along those lines. My surgeon said it was most likely because of the trauma to the breast. He said if any others occur, he will take those out as well just to be safe. Whew! I am so relieved. I was so stressed out on the way there I got nauseous and had to take a xanas-lol.
Kat-your picture is gorgeous! I second the motion that you have found your calling.
Sally-sorry you have to wait so long. We're all here for you.
Everyone else, so great to hear from all of you-I love when people at least check in and let us know how they're doing.
I'm on a diet so no beer for me tonight, but I will be having some sort of coctail-yay!
My appointment with the Gynecological Oncologist is tomorrow morning to discuss taking my ovaries out. Fun. I'm not sure if he's going to do a pelvic exam, but I'm all prepared for that just in case. I would like to just go in and say "let's pick a date and get this over with!" We'll see.
Thanks again ladies for all your support, well wishes and prayers :-)
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Kim !!! YAY !!! WoooHoooo !!! Don't worry abou the diet tonight - you deserve a drink to celebrate !
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Hello Team...
Thank you all for your kind words! If I could do that for a living I would for the simple fact that I did not think of breast cancer one time during the whole whirlwind! Actually (and truth be told) I don't typically think of breast cancer during my day anyway...just only when I step out of the shower and see the horrid wretched things in the mirror do I think about it but then I quick put my shirt on and go about my day. I hope if I can portray to other women that life is still a happy thing and you can glow from the inside out then it's still all good!
If anyone is interested in seeing the new line online it can be found at http://www.cabionline.com/
Becky, great to hear from you! I'm glad you're on tamoxifen now...I feel safer being on it and I truly do sleep better too! I've lost weight but that's from giving up the beer! What I wouldn't do for a Corona right about now! Maybe one or two on the weekends...that's all I really need anyway and the 10 pounds you don't gain by not drinking it does make it worth it! (I guess)
Kim praise the Lord your not having a recurrence....and Sally keep that chin up and I hope you get through the waiting and have the same good report.
Lola...no worries on the dress! You will look smashing! Especially since the tissue expanders (if that is your route to reconstruction) really makes them sit up nice and full and high...ok so you can put someone's eye out if you bump into them, but I never had any trouble finding things to wear...the main thing is you enjoy your beautiful daughter's wedding day!
Marianne...so glad things are going well with your DH. 2 stuffed chicken breasts! My goodness...now that's poetic justice!
Well, I'm going to try and 'weather' through tonight...an Adminstrator's nightmare when none of the staff can make it into work...funny how they had no trouble getting in on Christmas and there was as much if not more snow than what is predicted for us in the next 48 hours...but then again Christmas was double time so there you go. My desires to go back to Arizona are getting stronger and stronger.
Stay warm and dry Ladies!
Kat -
Great news Kim!!!!!!!!!!
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Happy Ground Hog Day Ladies,
Kim - we are all sooooo relieved for you! Celebrate!
Becky - good to hear from you!
Marianne
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Happy Ground Hog Day! He didn't see his shadow! Yea Good news! Bring on Spring!!!
Punxsutawney Phil Favorite Holiday: February 2 Fav Movie: Groundhog Day BFF: Gus, the 2nd most famous groundhog in PA Page: 240 people like this.
Hey Jan Gals! Checking in with My "Team Jan" Hope you all are feeling well! I am finally over the Flu & Streph Throat! Robin & I went to Uof L Women Basket Ball game last night, where it was Pink lady night & they Honor breast cancer survivors! it was So Cool!! wish we all could had been there together!! We need to plan a "Team Jan " Retreat??
{[{{{{KIM}}}}} Great news!
HAVE A GREAT WEEK ! [[[[[HUGS]]]]] TO ALL OF YOU! !! ~Gina
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