Please share how breastcancer.org has impacted you....

Options
Moderators
Moderators Member Posts: 25,912
edited June 2014 in Stage I Breast Cancer
If you could provide us with one or two sentences on how bc.o has impacted your life, we would greatly appreciate it! 
Thanks, 
Melissa
· Share on FacebookShare on Twitter
«1

Comments

  • Lowrider54
    Lowrider54 Member Posts: 2,721
    edited February 2010

    Moved to stage IV thread

    · Share on FacebookShare on Twitter
  • Moderators
    Moderators Member Posts: 25,912
    edited February 2010

    Thank you so much for sharing! 

    (((((Lowrider54)))) 

    · Share on FacebookShare on Twitter
  • Moderators
    Moderators Member Posts: 25,912
    edited February 2010

    Thank you so much for sharing! 

    (((((Lowrider54)))) 

    · Share on FacebookShare on Twitter
  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2010

    BCO gave me the shoulder in the middle of the night to cry on; the friendship circle of people who "get it"; the venue to rant; the encylopediacal base of knowledge to draw on. I never felt alone during my journey.

    · Share on FacebookShare on Twitter
  • Moderators
    Moderators Member Posts: 25,912
    edited February 2010
    Thanks Everyone!

    · Share on FacebookShare on Twitter
  • tkone
    tkone Member Posts: 511
    edited February 2010

    BCO gave me friends both virtually and physically.  I have met some of the most wonderful, supportive people here and it is the place where I can share and get information that I can't get anywhere else.

    · Share on FacebookShare on Twitter
  • flash
    flash Member Posts: 1,685
    edited February 2010

    For someone who's in the "you're an exception" camp, it saved my life. Literally. If I hadn't gotten some of the information that I did in the chat room, I probably would be dead right now. I have been able to find people who have some similarities and connect with them. Emotionally, it's given me a chance to come up out of the depth and breathe.

    · Share on FacebookShare on Twitter
  • badger
    badger Member Posts: 34,614
    edited February 2010

    I cannot say enough good things about BCO. 

    The forums and participants have informed, prepared and supported me through the process of diagnosis, surgery and aftercare.  I am eternally grateful to all the amazing, honest, funny, crazy, caring, angry, hopeful people who post here, and am proud to count myself among the ranks.

    I could go on and on but you only wanted a couple of sentences.  {{hugs}}

    · Share on FacebookShare on Twitter
  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2010

    BC.org has given me, or prompted me to get, answers to my B/C questions.  Hearing the experiences of others lessened my treatment anxiety.

    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010
    I am new to the diagnosis of BC and new to various treatment modalities. My first chemo treatment truly went bad (belief and inference from ONC that I was overdosed 4x the normal amount). These women saved my life. If I had not had the info, encouragement and support from the women on BC.org, I believe my treatment outcome would have been a very different one. This was a life/death issue for me and I am still struggling with SE's from the chemo, but good news is that I have a new ONC team. SV
    · Share on FacebookShare on Twitter
  • ruthbru
    ruthbru Member Posts: 57,235
    edited February 2010

    It was INVALUABLE during treatment. The information I got gave me the questions to ask; when the answers didn't add up to what I had learned from BCO, it caused me to ask that the pathology report be rerun, which led to a different diagnosis and treatment plan; which possibly saved my life!!!

    · Share on FacebookShare on Twitter
  • EllieD
    EllieD Member Posts: 31
    edited February 2010

    BCO has been a one-stop shop for expert information and support any time of day or night. Thank you.

    · Share on FacebookShare on Twitter
  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited February 2010

    BCO has been my life raft when I felt like I was drowning.  The support and information found here has kept me sane, knowing I have a place to go when I have questions, concerns or just need to rant.  BC can be very isolating when you do not have someone to talk to who 'get's it'...BCO is a place to come where you do not have to explain what you are going through...where it is safe to talk about your hopes, fears and frustrations and where you are validated when your doctors tell you 'oh that's not a SE of chemo...'  Thank you!!!

    · Share on FacebookShare on Twitter
  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited February 2010

    Being a member of BCO has been like a neighborhood group hug...we all need support some times and we all give support too...I have met an incredible group of fellow travelers on our breast cancer journey...thank you

    · Share on FacebookShare on Twitter
  • nene2059
    nene2059 Member Posts: 270
    edited February 2010

    BCO is the reason that my onc tells me that I "keep him on his toes".  It is also the reason that I did not go running through the streets screaming (lol) when I was diagnosed with BC in BOTH breasts.  The other posters understand it all and help you navigate through the sometimes very turbulent waters of cancer treatment. This site reminded me to hope.

    · Share on FacebookShare on Twitter
  • kerry_lamb
    kerry_lamb Member Posts: 778
    edited February 2010

    I got gold standard information of the most concentrated kind on this site. I was not interested in what doctors or books or studies say; I wanted to know what WOMEN know. During chemo I found my May 08 sisters by accident and I cannot articulate how solid we are on our journey. Also, the humor on this site is the most fantastic, blackest, funniest, most inappropriate ( and never judged!)..real sister stuff. There is also the softest, sweetest most supportive care and love. MORE sister stuff! Thanks!

    · Share on FacebookShare on Twitter
  • debbie6122
    debbie6122 Member Posts: 5,161
    edited February 2010

    Besides meeting and making some wonderful friends here on BCO, It really helped me thru the hardest times, and I learn new things every day that the dr's never tell you, And the woman here always calmed my fears when I was having surgeries etc...This place has been a God send

    · Share on FacebookShare on Twitter
  • rreynolds1
    rreynolds1 Member Posts: 450
    edited February 2010

    I have been directed to great books and nutritional ideas to help with my emotional and physical recovery.  I am better informed about my options and am able to ask better questions when I see my doctors.  The sisterhood has been a comfort.

     Roseann

    · Share on FacebookShare on Twitter
  • Patriotgirl
    Patriotgirl Member Posts: 26
    edited May 2010

    The simple fact that I can read and/or interact with women going through the exact same things as I, is very uplifting.  It is taxing to discuss BC with family members and friends.  I get tired of listening to the words come out of my mouth.  I have gotten some valuable insight already and have only been coming here for a short time.  Thanks to all for sharing.

    · Share on FacebookShare on Twitter
  • tgood02
    tgood02 Member Posts: 26
    edited June 2010

    I was so terrible frightened. Breastcancer. org was the only place were I could voice my fears. It will be the middle of July before I'll finally have the  surgery. The long wait, since the middle of March, has been a nightmare. If I couldn't come here, I could never deal with it all. I am just so grateful.

    · Share on FacebookShare on Twitter
  • candyapple61
    candyapple61 Member Posts: 2
    edited October 2010

    I still this is all a nightmare and cant believe I have cancer. I am half way thru my radiation treatments and have to have chemo after that. Im scare and not sure what is going to happen to me if i dont have chemo and also what will happen when i do have it. I want my "normal" life back. God help me!!!

    · Share on FacebookShare on Twitter
  • karen333
    karen333 Member Posts: 3,697
    edited November 2010

    My daughter found this site for me after I had had my surgery and course of rads, when I felt I was literally drowning in my fears. I found women who were going through some of the same hell I was going through, finding insurance after my Cobra ended and coping with my diagnosis of cancer.  I found I was not alone, that I was supported, I was validated, I also found black humor that only a fellow travelor would appreciate.  I laughed till tears were running down my face.  It is the first thing I do when I open up my computer.  I wish I had found it earlier during the terror of waiting, now I can offer support to newly diagnosed women.

    · Share on FacebookShare on Twitter
  • Claire82
    Claire82 Member Posts: 684
    edited November 2010

    It gave me the knowledge to stand up to my doctors and say - This isn't right. And it gave me the wisdom to find doctors that were up-to-date on new procedures.

    · Share on FacebookShare on Twitter
  • mdg
    mdg Member Posts: 3,571
    edited January 2011

    The biggest thing for me has been talking to other women who "get it".  The ladies here know what to say because they are speaking from experience. The other thing has been learning about the tests available, good questions to ask my surgeons/doctors, and new clinical information.  I feel like after being on here a few weeks I have completed "Breast Cancer For Dummies" training!

    · Share on FacebookShare on Twitter
  • annettek
    annettek Member Posts: 1,640
    edited January 2011

    This site has been no less the difference between total insanity and being able to exhale. No matter what time of day or night I log in, there is someone here. Does not seem to matter what stage, all have much to offer and it gies me the ability to help, albeit in a small way compared to what I receive, Warriors, that is what I have decided. You are all the bravest warriors I have ever met. Thank you for the hope, the laughter and the understanding when the fears outweigh the light.

    Happy New Year

    · Share on FacebookShare on Twitter
  • Bonnygg
    Bonnygg Member Posts: 115
    edited January 2011

    Being dx'd with BC plunged me into what felt like eternal darkness. Saying I was terrified is an understatment. BCO saved me. The infornation helped me make life changing decisions. The Boards gave me the tricks/tips on managing through. This site gave me a light at the end of the darkest tunnel I've ever travelled. Being able to reach out to others that truly understood saved my soul. Everyone I've read about & communicated with are each & every one a Warrior Angel that gives me hope that I can have a life. Because of BCO, I have a life yet to live.

    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011
    Hi, have not been posting for some time but stop by every once in a while to see how my fellow "travelers" are doing. So very sad to see some who are no longer with us, really happy to see many who are still on the boards. BCO was my life preserver! I learned what to do about the constipation, mouth sores and the "roids". What to ask the onc and surgeons, why you bring someone with you to appts because you never hear anything being said for the first several weeks.(just busy trying to get your mind wrapped around "you have cancer") I learned how close people can get who never meet each other in person. It gave me some place to cry on a shoulder at 2 in the morning or help someone else over a hump. I learned that there are many really loving, great people in this world. My very best to the oldies, newbies and everyone in-between. Your in the right place!!Cool
    · Share on FacebookShare on Twitter
  • edwards750
    edwards750 Member Posts: 3,761
    edited February 2011

    The Women's Health Center where I was diagnosed with Stage 1, Grade 1 BC directed me to this site and I am so glad they did. I am scheduled for a lumpectomy tomorrow and am really scared. My breast surgeon said I have a wimpy cancer which I know is encouraging but it is still the C word. I know it could have been a lot worse but until I hear the final Path report after surgery I am still extremely nervous. Has anyone had a different diagnosis from the Path report after surgery? I know the drs can know for sure until they do the surgery. Really hard to deal with the uncertainty. You guys are great testaments to this website. Friends and family are great but you really do have to have gone through this to understand. Also so far he didnt see anything in the lymph nodes but that test is tomorrow too. Thanks.

    · Share on FacebookShare on Twitter
  • girlsmom3
    girlsmom3 Member Posts: 28
    edited February 2011

    BCO has become my own private island. The strength and knowledge is worth gold.

    I am still in the middle of trying to figure out what to do. I haven't been lucky, with the failure to operate on the correct area of my breast and being terribly fibrocystic dense, the remaining 3-4 mm has becme a needle in the haystack search with core needle through remaining hematoma. Soooo looks like I will be lingering around here for a little bit longer....finding encouragement not to lose my sanity even before my treatment steps begin.

    I am grateful for the form of cancer I have and the stage but still wish my case wasn't so botched up. It just made a very straight forward situation very complicated and my black and blue, needle punctured breast agrees.

    I just want an answer. Is that too much to ask in 2011? 

    · Share on FacebookShare on Twitter
  • LynMichel
    LynMichel Member Posts: 102
    edited August 2011

    This is a wonderful site with great information.  When I visited my breast surgeon I knew what questions to ask because of this place.  I was diagnosed the beginning of July with Stage II breast cancer. I am having a mascetomy.  Gee saying that word sorta scares me.  I was worried about waiting for my surgery because of coordinating the breast surgeon and plastic surgeon's schedules.  But I read here that others have also done this and that made me feel better about waiting.

    · Share on FacebookShare on Twitter

Categories