January 2011 Rads
Comments
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Sherryc - The fatigue will be with you for awhile. I am almost 2 mos post rads and just starting to feel really good. I can make through a whole day at work with no problem and am back to my old bedtime.
All those doing rads, hope you are doing well and having a great day.
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#24 done - coming in to the home stretch!
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suepen- I will join you and the rest of you ladies in Feb. I have ordered some Moogoo skin care products. I don't have them yet as they are travelling far. (c: It helps me to read about all of the experiences, so thanks to all of you.
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Hi Adey - will be nice to have you join in!
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sherryc- Congratulations!! Sweet freedom... must be a great feeling! You deserve it!
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lynda-my DH called to see how it felt to not have to drive to NB today for tx. It is kinda strange being at work this afternoon. At least I can slow down in using my sick time.
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Sherryc - When I finished rads, it was really weird staying at work all day. I had an alarm set on my cell phone to remind me to leave everyday and once I turned that off I kinda missed it for a few days. Felt good to not have to drive home is traffic and have to make dinner right away. Way past that now - it is all a distant memory.
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Congrats to Barbcard and Sherryc on finishing! Awesome! To anyone else I may have missed as well!
I am one week out from full breast rads and my last boost was last Friday - already my skin is beginning to look and feel better. It is SO nice to see and sense visible healing. While I am glad not to make the trek to the hospital every day, it feels a little weird to be doing "nothing," so to speak.
Thanks for the support and hugs, everyone.
Julie
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Rachel and Suepen, thanks for all the info, thanks everyone for the encouragement. I feel like I can breathe. My appt is Friday, and I already have my questions ready. So looking forward to my last chemo so I can get on with the rads, and be done. I have triple neg. so no pill or other therapy after the rads...just lots of praying!! So glad I came here, I don't even feel anxious right now, thank you all.
JoAnn
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Hi All:) I have been "Lurking" this site and don't normally join in but I have found the information this group has given me priceless. I had most of my concerns relieved by reading this. (I wish I had found this site while I was doing chemo and before surgery). And for that I thank you all for sharing your personal journey. I started rads Jan 20 so today was #4 of #31. I do however have a question about radiation. So many are afraid of mammograms etc in part because of the radiation. So then why do they give us radiation to kill cancer cells? Can't seem to wrap my head around that one....
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tamos glad you joined this group. It is a great group of ladies. I am finished now but good luck on your journey to the finishing line. I guess I just quit worring about it. I figure with all the mammo's I have had over the years, the MRI's, pet scan and now rads I should be glowing in the dark. I do wonder why the techs were their dosimeter readings. It is part of their licensensing and it is tracked by their social security numbers to make sure that they do not reach thier life time limits of radiation. So I do wonder why we are not given the open to have one of those that we can take with us to everything and figure out what our lifetime limits are. Just saying............
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Hi All...
I started rads last Thursday...
My rad onc gave me a presciption for biafine...
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Good Luck sohardnme--I did not use Biafine, my RO prescribed Xclair but Biafine would be what he would have used it Xclair did not work for me. I hear it is good.
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#2 of 25 today. I've been using Cetaphil moisturizing cream three or four times a day since last week, which was what my doctor's nurse had recommended. About two hours after I came home from #1 yesterday, I started having hot and itchy sensations on that side, especially under my breast. Went to take a look and it was definitely pinker than it was in the morning. So I put on some aloe and also some calendula-aloe ointment that I got at a health food store...actually billed as baby cream for diaper rash, but whatever. That helped. Today when I got home from #2 I put the aloe on immediately, and didn't have the pinkness, and less of the itchiness. I'm still using the Cetaphil too.
Later in the afternoon, I had an appointment with one of my other doctors unrelated to the cancer. My HMO prints out a reminder on every co-pay receipt of any upcoming appointments, tests you're supposed to have, immunizations due etc. The receptionist pulled mine off the computer and said "Oh, something screwed up here....it says you have all these appointments at the same time every day for weeks, and it isn't even with a doctor, it's with a machine!"
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Eloise - I am wearing a soft undershirt underneath my bra and that seems to help with the underside of the breast getting hot.
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tamos, what I understood from my doctor and the education program at my clinic is that cancer cells are especially sensitive to radiation because they are devoting so much of their energy to spreading and multiplying, which normal cells are not. The radiation affects normal cells too, but they have the strength to recover, but the cancer cells don't and will die. The level of radiation we're getting is what experience has shown is enough to kill the cancer cells without doing permanent damage to too many of the normal cells.
The question about whether mammograms expose us to too much radiation is related to the risk versus the benefit. If 1 out of a million women gets cancer because of a mammogram, but 10,000 women have a cancer discovered and treated because of a mammogram, that's a risk most women will take. I just made those numbers up, so don't quote them, but the point is the number of cancers that will be detected because of a mammogram is much higher than the numbers caused. But that's also why routine mammograms aren't recommended for 25-year-olds, even though there are a few 25-year-old women on this board with breast cancer -- the number of cancers that will be detected is much lower, so it doesn't seem worth the risk to give every 25-year-old the extra bit of radiation. Does that make sense? It's good that people are cautious about radiation now -- when my mom was a teenager she got X-rays for mild acne, and even when my older sisters were kids there was an X-ray machine at the shoe store they used to see how well the kids' feet fit the shoes. Those were totally unnecessary exposures where the risk was much higher than the benefit. Mammograms and dental X-rays are worth it for most of us.
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Feeling better today. Able to breath without that intense pain. Coughing still really hurts; fever gone. Got a bit of sleep last night.
Had #15 treatment today and then saw the DR . He was impressed with the way I responded to the meds and said I was "a rose." Difficulty still when laying down (and that hard, cold metal bed in treatment room is no help).
Stay strong and take good care all of you. . .
Teklya
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Hello, all. I'm just starting this radiation thing - next Monday - so I just made it into this January thread. LOL But mine will be to the neck and down to the clavicle. Anyone else have (or had) anything similar? I'll be having 6 weeks, at 5 days a week, which seems pretty standard? Last question, is fatigue inevitable? I'm planning to do the radiation in the afternoons, so I can go to the office each morning, leave mid-afternoon, and then go home thereafter.
Congratulations to all those who have finished their treatments! -
TNBC - Welcome to the group - sorry you have to be here with us. This bunch of ladies are really support and full of good information.
I had the 6 weeks/5days a week. The amount of rads will vary with each person. And unfortunately, the fatigue will get you. That varies with each person also. I started feel the fatigue after 2 1/2 weeks. My appt was late in the day so I could work most of the day, go get zapped and then go straight home.
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I am wondering what the rads fatigue will be like after chemo ....
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marjie - i know it is different for all, but for me, it is just fatigue, not debilitating and nothing like chemo. I am tired but not incapable of fulfilling basic responsibilities of life.
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Raincitygirl - thanks, that's what I'm hoping for. Chemo fatigue is pretty heavy...hoping if I managed it I can manage the rads
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Hi Guys! I've been reading the post and it seems like the average number of treatments is 34. I'm scheduled to have 28 rads with 8 boosts, 36 treatments. Does anyone have as many as me? I'm on #11 and feeling pretty good except for the itching.
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Yes, that is how many I have, Blosson. Today I did #24, so far, so good
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marjie, I really think you will be pleasantly surprised, at least i hope so
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Thanks Raincity girl! It's good to know I'm not in this alone. You're more than half way through. Way to go!
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Hi, Is there a BC group tomorrow, Wed at our place? Nurse encouraged me to go but I don't remember which day.
I have another , or ongoing breast infection. Perhaps that is why I have felt so dragged out.
GInger
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Ginger - I don't even know about a BC group - I would like to though. I will be there in the morning and can ask about it and then email. I don't know what time you go, but I am usually home by about 11:15 and can let you know.
Another breast infection sucks, I bet that is why you are so dragging...be better.
(((Hugs)))
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Day off rads today - Australia Day holiday. We went on picnic to a higher place not far from here - lovely cool breeze. Our DD and SIL are here visitng after spending 8 weeks in Sth America - so nice to see them. Boob still looking good after 7 tx's - no colour change what so ever - maybe the MooGoo is the right stuff!!
Sue
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suepen, do you have your rads 5/week typically? Nice to have your boob unchanged, you must be lubing the boob quite well
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