can you describe what truncal LE pain feels like?

My fairly mild truncal lymphedema is on the side of my breast towards the armpit.   It is more of a tenderness than pain but it hurts when I push on the area.  Hang in there.  

Sue 

My truncal LE hurts like a bruised area, but of course, there's no bruise. So not only when I tough it, but if I move a certain way or clothes touch it. Do you wear a bra? That could be an irritant. Also, google Costochondritis. I have that too and may be what you're experiencing.

Well it sucks.  I am 2 years from my double mastectomy with sentinel node dissection and 6 months of CMF chemo.

My breasts are extremely painful, stabbing pains along with my left arm from the lymph nodes being removed.

My onc put me on Ativan for the pain.  Sometimes it helps and sometimes it doesn't.  I also take 3 or 4 Advil every 6 hours.  I just want to feel better.

My onc is sending me to PT for truncal Lymphedema.  I am hoping my insurance will cover it.  My employer is giving me a hard time about going.

Sometimes my back hurts too.  I also have bad joint pain in my hands, fingers, knees, shoulders, and arms.

There is someone who just posted about getting hers out. Hairspray somebody......check the members list by typing in hairspray.

 I have LE in both arms, trunk, and back. It definitely feels like deep bruising.  It also can feel very sore and tight when I have a flare. My skin is hypersensitive and I have a difficult time with many fabrics rubbing against the area from my armpits around to my back. I didn't have reconstruction and have just made the final decision that I never will as I know it will only make my pain worse-and I cant imagine how painful a bra with prosthesis would be so I've chosen the natural look! 

Boyzbeebs,  Ativan is not a pain medication. It is prescribed for anxiety.

Ativan was first used years ago for something completely different and then was found to be good for anxiety. Go figure! I was given it for an inflammation or something, and I remember mentioning to the doctor that I didn't seem to be as worried any more......hehehehehehehe  that was about 30 years ago.

Thanks Binney, I'll let you know

I found 2 spanx I'm trying.  Holy Cow.  What an ordeal, hot flash and trying to get those things on.  At least with a lymphedema sleeve you have a glove to help don the sleeve.  I'm just happy candid camera wasn't on in the dressing room.  One I tried on that is supposed to work as a long camisole and short slip, got twisted up around my neck and started choking me.  I'm moving and flopping around trying to find a grip on the thing to get it to go in any direction but my neck, down up I didnt' care, just wanted it off.  It was a sight.  I'm happy to report I made it home still breathing.  I did find one camisole that puts pressure in exactly the right place below my clavicle.  Did get a lighter one for the days I'm not as working as streuously since it is a bit more comfortable.  They were about 45 a piece.  I'll let you know how I think the brand works and wears.  I'll try looking at Target too

I think I have mild truncal lymphedema, as well as in my arm and under arm. I didn't realize why my back would hurt. I thought I didn't have surgery there, so why would my back be hurting. My back hurts on the same side. All my pains increase as the day progresses, usually @ 3:00 it starts hurting. My friend who underwent a mx and sentinel node biopsy had pain and swelling at the base of her bra line. Her PS told her it was caused by the intentional cutting of a vein or artery during surgery. Boy, the things they don't tell ya....

bookart, I had to laugh later too,

barbe, Just about spit my coffee out on the computer when I read about you hitting speed dial.  I just asked DH if he'd have answered that call if I had done that, he said, hmmm, you called and told me you were strangling yourself, hmmm.....   I do love that man

Then how do I get them over my ass???? That is almost as wide as my shoulders....

You ladies have me laughing out loud with your dressing room stories.  I dare say my DH would not have come to rescue me....he would laugh his butt off.  I also have truncal lymphedema.  I keep describing it to my doctors as feeling like I've been beaten with a baseball bat under my arm and next to my breast in the ribs.  Some days are better, some are worse. I wonder if it will ever get better?