Anyone else ILC and IDC?

Hi,

I had three cancers in right breast. One was IDC, other was mixed, and third one was ILC. According to my onc they are staging You according the biggest one and risk is not any higher as they all started with same trigger. Now, my third one was the smallest one and only 0.2 cm and it was not tested. I had mastectomy and margins were widely negative. My other two were ER/PR positive and Her2 negative. I had 4 T/C and I just got my first zoladex injection.

I asked him if he would change Tx if third one was tested and pathology was different and he said no. Maybe I should push for Her2 testing for that one.

Me, too -- 4 lesions -- one mixed ILC & IDC; 2 smaller ILC; and 1 tiny Tubular (which is a form of IDC).  Is there any chance you were on HRT?  I was for many years, and I think that was the primary cause of my bc.   

My breast surgeon basically said what Nikola's said -- staging & treatment is based on the size of the largest one, and multiple lesions, while they increase the tumor load, do not mean any worse outcome.   

Trisha-Anne, were your lesions both Her+ or Her-, but just varying degrees?  Or was one + and one - ?     Deanna

My breast was full of cancer....my finally Dx is ILC, tage 3A, ER/PR+, HER2-, but in recenlty reading my path report, I believe there was also IDC...there were at least 3 biopsies done as well as lymph nodes that were cancer....the boob was just a mess!!! even at time of 1st set of biopsies was told lumpectomy was not an option as 2 places were too far apart...never worried about having more than one type "bc"...maybe because it was all so overwhelming at time of Dx, I really didn't read my path report closely other than what BS and I read together which focused on hormone status, grade and being ILC....since I had bilat, chemo, rads, ooph and AI's I've pretty had all available Tx....

My mom was diagnosed last week (Merry Christmas) with both.  Anway, were meeting with the surgeon in the morning..I have no idea what to expect..We know nothing except she was both lob and duc both invasive I guess..The waiting is the hardest. Until last week I had no idea there were different types of breast cancer.

I had 1 tumour 5cm mixed ilc/idc her2+ pr+ er+.grade2

I was 40 at dx having been misdiagnosed 4 years earlier age 36, still here age 43 and feeling great.

I was diagnosed with both  IDC and ILC. They didnt know this until I had my bilat, masect.and did the pathology. The biopsy got only the IDC, because they were piggy backing eachother so to speak. Actually worked out to be a good thing because it was 2 seperate tumors so that brought down the size . The IDC was 1.1 and the ILC was 6mm... I am being treated with TAMOXIFEN, both are er and pr positve and HER2 neg. Will need to ask my onc about the Tam and the ILC.

Yep, I pretty much had chicken soup in my breast.  My tumor consisted of IDC, ILC, DCIS and LCIS - was also ER/PR ++ her2 neg.  Had a bi-lateral and my good breast showed atypical lobular hyperplasia so probably would have cooked up the same thing with time.  Had the full course of treatment, bi-lateral w/reconstruction, chemo, rads, oophorectomy and will complete five years of anti-estrogen therapy in July (Femara). 

shelley: I had a second primary (IDC) diagnosed in the other breast 12 months after the first (ILC) - it was missed on my mammo the year before. I was still having herceptin treatments and had had chemo and rads. My surgeon and onc did suggest a BMX, but I didn't want one. I have had a lumpectomy again. I had my port removed after my final herceptin tx a couple of weeks after the breast surgery in late November. If only they ordered MRI's before surgery - all of this would have been taken care of a year ago. I am glad, in a way, that it wasn't found last year and I would surely have been talked into mastectomies. I'm a big sook and hate any kind of surgery. I'm having rads for the second one at the moment.

If it does turn out to be a new primary, I guess it's up to you to decide what you want - the main thing is to get it out of there. I just want to give the hormone treatment a chance to work and not panic. IF (a big if) there is a next  time, I have no choice, but I am glad I have taken the conservative route for now.

Sue

Shelley - if you want a lumpectomy, they should agree to it. That, of course, if it is anything sinister. The surgeon did suggest genetic counselling owing to the bilateral issue, but that can wait. My surgeon listened to my reasons for not wanting BMX and was happy to go along with it. She actually did 2 lumpectomies to get all 3 spots (I had 2 areas of ADH as well as the IDC) - that was really nice of her.

Sue

Ok, well get this. Finally got the MR report which recommends a biopsy, but the nurse read the report to me and it says "NO enhancement of 5 mm suspicious area see on US 12/30/10". The nurse thinks the recommendation for a biopsy is a case of CYA by the radiologist. Opinions? I thought MRI was supposed to be definitive?

That's what I was thinking, Sue. I will see the surgeon on Friday to look at the images. I feel much better now.:)

"Bumping" this thread because I have both. Can't figure out how to update the diagnosis description listed below. MRI found an 8mm grade 1 IDC lesion with tubular features in the typical upper outer quadrant on 3-28 after mammogram/ultrasound detected the ILC in what my plastic surgeon called 'no man's land' (upper inner quadrant: hard to do a nice lumpectomy there I guess). Neither was palpable.

Now in recovery from right mastectomy with DIEP done April 26 however micromets were found in the sentinel node so had to go back into surgery for axillary dissection last Friday. Awaiting pathology report and anticipating a summer of chemotherapy.

Having trouble finding reliable literature or references regarding incidence and optimal treatment for this dual condition. Feedback welcome!