Never hearing the word Cured!!!!

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  • faithfulheart
    faithfulheart Member Posts: 544
    edited January 2011

    Rayof sun,

    short lived, thats the key. The fear comes, with every ache and pain. I belive thats just what we will deal with, for a while,  and then one day it will be so far in the back of our mind we won't remmember why we were so worried.  We will all get there.  My mom told me that I was going  to live to be 90 today.  I don't know how she came up with that number, but I'll take it!  My mom just seems to know things,  her and the big Man above are real close. I said hey mom Iwill take five NED right now, and she said " great because by then there is going to be a cure" so lets all keep on keepin on !!!!

    HUGS!!!!

    Faithful

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  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited January 2011

    Living our lives mindfully, one day at a time means even if we do not hear the word 'cured', we live our lives well. I am assuming everything I have done is to keep cancer at bay ...hoping this was a 'one off' situation and that I die in my sleep or get hit by a bus some day...but I am also preparing for th efirswt 6month mammogram check up in June to say ' sorry. it is in the other breast'...just in case. I have ALWAYS been a rose coloured glasses kind of gal...my ex-partner was always a half empty, people will disappoint you kind of guy...but I persevered with the pink-hued glasses. This event (well, actually, his leaving 10 months before this event), threw me for a major loop but my glasses are now perched back on my nose. I had a mom who was diabetic with lots of complications (and death at 53) and a father who had numerous heart attacks and open heart surgeries (but lived to his mid-70's)...it is all a crap shoot really....avoiding salt, ensuring I exercize..doing all the things necessary to not have the same health issues or high blood pressure and I end up with breast cancer? All I figure I can do at this point is live my life fully...exercise, eat well, surround myself with people I love who accept me and keep things in perspective...I would settle for 'cancer removed and eradicated' in lieu of 'cured'

    Sandee

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2011

    Sandee you say what I say, "Prepare for the worst, but expect the best". Then you aren't blindsided by something. I am always amazed when I hear women say that they were blindsided by their breast cancer. Um, you have breasts! That's the number one risk. And every year you don't get cancer brings you that much closer. Morbid, but hey, reality sucks.

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  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited January 2011

    Yeah....not my usual take on things but I figure it is beter to be realistic with this issue...I actually was not surprised that I ended up with breast cancer, despite having no indicators ...my only fears re. health have been my eyes (my mom was essentially blind because of diabetes) and breast cancer (because I am a small woman with large breasts and they are such a part of my physical identity I guess)...but I wear glasses and have survived this far with breast cancer so...no point in worrying about something I had no control over. Onwards and upwards!

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  • 116
    116 Member Posts: 108
    edited December 2012

    It has always been my understanding that the survival rates actually "decrease" with time, so I do not like to focus on getting to 5, 7, 10 years etc. because it makes me think the farther out I am, the less my chance of survival. Plus I do not like all these wrinkels I am getting as the time goes by either :)

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  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited January 2011

    Ah well..the wrinkles are an indicator that you have been living your life...consider them a map...and as for the stats...I guess the further out we get from our treatment, the older we get so it makes sense...but it could also be becaus eas we get further away from the crisis, we return to our old habits and stop taking such good care of ourselves,,,I plan on keeping the gig going by taking care of myself afer the 5 years too.

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  • lago
    lago Member Posts: 17,186
    edited January 2011
    Giddyup I figure the chance of dying increases for everyone the longer they live. In some ways it's not that different.
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  • carol1949
    carol1949 Member Posts: 562
    edited February 2011

    Lago,  I'm with you!  Ladies!  No one of us is guaranteed anything more than this moment of this day....  with or without cancer.

    Sandee, your comment on looking through rose colored glasses grabbed my attention and I want o suggest a wonderful book called just that!  Through Rose Colored Glassesby Donna Deegan.  Donna is a news anchor from First Coast News in Jacksonville,FL.  She is at least a 3 x survivor and very inspirational!  Just today was the 26.5 run in Jax, which Donna co sponsors with Mayo Clinic.  All of the money earned stays in Jax to help women there and also for breast cancer research at Mayo in Jax!  She truly is making a difference!

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  • lovujja
    lovujja Member Posts: 119
    edited April 2013

    I am with you Caaclark. I like the news/findings too.

    I chose to look positive things than negative. I can't change i am a BC survivar but i can chose what kind of attitude i should have. i am all about being hopeful and working each day to live normal life.

    My Onco doctor recently died from car crash that was eye opener for me about death and life. No matter what all of us supposed to die one day. Our hope is to live healthy and happy life as much as we can, Smile.

    Thanks.

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  • karen1956
    karen1956 Member Posts: 6,503
    edited April 2013

    I don't remember if I posted on this thread when it was first posted (does that make sense!!!)...but I am fine with NED....as long as I'm NED, I don't have cancer!!!  I'm now 7 years from Dx and every day that I'm NED is one more day that I'm cancer free....I don't concern myself with the word "cured".....

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  • jennifer1
    jennifer1 Member Posts: 185
    edited April 2013

    My dr says we will most likely not see this bc again however that doesnt mean I cant get another kind.  He wont even do scans, says I dont need them however I did sneak one in when my rib broke and everything was ok about 8 months ago.  Even though mine was large it was encased in a cyst and went to 4 nodes. He said that is what the nodes are for to catch it.  OK, made me feel better .   I had bi-lateral and the other side was a small spot and I have more problems with that breast than the other.  To date I dont always feel the survivor thing except after mammogram or scan.  I have a friend that at one time was listed listed as stage 4 and that was about 15 years ago.  She had something like 18 nodes but she is still NED.  I look at that to inspire and it does.



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