Calling all TNs

Suze35:  Yes, I had surgery first, on 10/7/10.  My tumor was 3 mm in size, so small that I actually had to have a second opinion to figure it out because the entire invasive portion had been removed during stereotactic biopsy on 9/1/10!!  The only thing remaining was a small amount of DCIS, so truly whoever reviewed my mammo really caught this super early.  I was a wreck before surgery, but what my mind was imagining was way worse than the actual event.  Here's to you having a smooth, uneventful surgery and super quick recovery!  I have one last surgery Feb 28th... my exchange and ooph.  I'm BRCA2+ and so thankful I could schedule both surgeries together.  Then I'm looking forward to seeing what's at the end of this tunnel!  I can see a little glimpse of it: green grass, sunny blue skies, warm weather, and hey, there's even a little rainbow I think! 

Hi ladies I have posted before just been awhile. I am indeed a lurker obsessed I might add several daily viewings among 5 threads. I was dx 9-1-2010 with 1.2 cm medullary BC. Had lump. and sentinel node removed. Was told right after surgery no node involvement. BS called 3 days later to say good news clean margins bad news sentinel node was dirty. I was told at first rads and on your merry way. I was dx er+pr-her2-. After having affected node chemo was mentioned. I asked for oncotype test to be done. My score was (48) 32% chance of recurrence. Also changed dx to tripe neg. Now we know what we are dealing with.  Did go back and have axillary nodes removed 27 taken all clean.I have had 3 tx of 5-FU,Cytoxan,Epirubicin,Dexmethasone. Feb 2, I start Taxotere x 3. Then 30 Rads to follow. My mind keeps going back and forth if I had all the correct info  from the very beginning would I have opted for bmx. I feel my answer would have been YES. I see my bs in a week for a follow up. I'm gonna discuss it with him. He always put things in terms like if you were my wife I would want her to. I want to know what would you be suggesting to her. I so love the discussions here some days I'm so down I lurk around and one of you makes me smile.   HUGS to you all... Diane

Cc4npg - that is wonderful it was caught so early! My mammo in April was "clear" but I have such dense breasts I'm sure what was there was impossible to see. That's why I'm going for the bilateral, I just can't trust a mammo. I can see more than a rainbow...be sure to grab that pot of gold!!





dianemoe - please try not to beat yourself up over your decision. Statistics show that overall, lumpectomy with rads is just as effective as a mastectomy. Many TNs get lumpectomies and have no further problems.



Kelben - I will keep my fingers crossed that everything is just fine and your doctor just needs to go over the results "officially." I think sometimes doctors forget that we are sensitive to every little nuance. I told mine I wanted results - bad and good - the same way, in person. No phone calls. That way I don't get worried if she doesn't call or sets up an appointment. My thoughts are with you!

Kelben:

Good luck Kelben - and I'm not fond of how this was handled!  Jeez, I'd be apprehensive too. Did you ask when she called anything about "what test results" etc.????  The only thing I can think of is that they tested the fluid removed and maybe some infection???? I really have no idea. I too had a seroma and had a breast MRI to double check only because of their being really complete on everything because of the dang TN, but it verified it was a seroma and they told me they were going to let it self absorb on its own and not drain it, so I really have no idea what this could be about.  Try to put it on the shelf until Monday when you see her (like you have a choice).  Keep us posted, please.

Linda

Teka:

 Mine is Miley Cyrus (!!!!) - The Climb. It got me through all my chemo, especially when I wanted to just quit the whole dang thing.  I'll have to listen to yours again -it's been a long time since I heard it.

Linda

Titan- so *that's* what happened to your *ss?

Oh, Titan, another parrot head?  Almost anything by Jimmy Buffett, he's been with me on the mp3 player all through chemo, along with meatloaf, Queen and others.  I did some Disco dancing too, but it didn't help my @ss, it has stuck around for years. 

Becky 

Yeah - that was me - 25 lbs lighter pre-treatment.  Now my feet are even too fat to get through the ankles of my skinny jeans - let alone the rest of me!  But I do have the memories of when life was sweet and I was so naive as to what was to come!

Am  I the strange one in this group?  I have lost 25 lbs (not that I needed them)  while on chemo?  Is it the Taxotere, Adrimycin, Cytoxan combo?  I have had to get new jeans, and my scrubs for work really look like I am wearing somebody else's PJs now.

 Not bragging, but I was kinda used to the comfy clothes I lived in.

My problem during chemo is crappy comfort foods - spaghetti o's, pizza, raviolis...I had lost 20 pounds over the year prior to my diagnosis by completely changing the way I eat, and now, I just eat whatever I can stomach, blech. But I've only gained about 8 pounds so far.

Yeah I know the crappy food syndrome.  When I can stand food it is red jello, potato soup,or scrambled eggs.  I am thinking that potato soup will never cross my lips again after this is done.  It is really bad when dark chocolate tastes like soap.

I lost more than 20# from dx to the end of tx. When I started eating and tasting again it started piling back on which is why I'm on the TN ten pound take off thread. I might not get rid of 10# but want to be back under 140. Before dx, it was many years since I had been under 140, and I am determined not to let it all creep back on. I had to buy lots of new clothes during tx and found old ones that fit again. I'm not buying bigger clothes!

LRM216 - defintely not a thong girl!!! The perfect bathing suit for me would cover from chest to knees! I certainly could use some toning up!!

Just hearing Jimmy Buffet, Beach Boys, Jesse Winchester, Police, Jackson Brown, john Prine, takes me back to the "good old days"  and people think I am crazy sitting in the recliner during chemo with my eyes closed and a smile on my face.  Its funny how music works.