TN stage 4

tkcmom
tkcmom Member Posts: 18
edited June 2014 in Triple-Negative Breast Cancer
TN stage 4
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  • tkcmom
    tkcmom Member Posts: 18
    edited September 2010

    Hi there, I just got the news yesterday that I am Stage 4.  for the past few weeks I thought i was stage 3 with no mets.  now i have multiple lesions in my spine, thoracic and lumbar and my pelvis.  I start gen/carb next week while waiting to get into a Parp inhibitor clinical trial at Stanford.  I was handling this well, but now, I truly am scared.  Anyone else in this situation?

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  • Luah
    Luah Member Posts: 1,541
    edited September 2010
    tkcmom:  I can't help with any concrete information... I just wanted to say I'm so sorry you're going through this.  I'm sure some other ladies with be along shortly, and you might try the Stage 4 board too.  ((((Hugs))))
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  • justpayton1
    justpayton1 Member Posts: 786
    edited September 2010

    Hi tckmom,

    I am sorry you had to join us but glad that you found us. I was dxed w/ mets March 15, 2010. I did 6 cycles of Gemzar/Carbonplatin. I had a pet/ct scan after 3 cycles and showed no progression. I am currently on Gemzar as a "maintance" every 2 weeks. I am also waiting for a PARP.

    I know this is scary right now. You arent alone w/ your feelings and we are all here for you.

    Hang in there

    Many hugs being sent your way

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  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited September 2010

    tkcmom,

    (((((((HUGS)))))) from what I have seen reading the Stage IV boards is that there is a lot of hope for you.  The ladies there will help you through this too....I know we are all joined together by our triple negative status, and wishing you the Best outcome and to let hope in, while pushing the scared out.  easier said, I am sure.  Please keep us updated on how you are and how you are dealing.

    Blessings,

    traci

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  • Carlatap
    Carlatap Member Posts: 96
    edited September 2010

    tkcmom,  I'm so sorry. Just know that my thoughts and prayers are with you. I hope you have a good team of oncs. who are very aware of what is out there to get these lesions under control. What every you do, do not give up!!!!

    "Be strong and courageous"

    Carla

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  • angelsabove
    angelsabove Member Posts: 363
    edited September 2010

    I am soooo sorry u had to join us...but know we are here for you. I was stage IIB. That was April 09. I barely got three months out of radiation and I too was dx with metastatic disease. That was May 2010. I was 36 at dx. Now I am 37. My mets are mediastinal node. Left mammary node, and liver. The regimen we started was Carboplatin/Avastin/Taxotere. After three treatments we scanned and results were markable shrinkage. They say it is responding to the chemo. I am hoping to soon get on maintanance. Just know that YOU ARE NOT ALONE. If you need to talk....please know I am here for you.

    I did have to stop the Avastin.....Long story....due to blood clots in both lungs.

    Hang in there!!!!!!

    May God Bless Us All,

    Diane

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  • sstw0324
    sstw0324 Member Posts: 13
    edited September 2010

    TKCmom - my mother was recently diagnosed stage 4 and is a triple negative.  She is now in the middle of her second round of chemo - after the first round, the doctor noticed a definite shrinkage of the mass in her breast - and after completion of the second round, will have a PET scan - but so far, just by feeling the mass and seeing the decline in the amount of swelling, the bc is definitely responding to the treatments - and (knock on wood) she is tolerating the chemo pretty well - other than being tired and taste buds being a bit off, she's good.  She's on carboplatin and taxotere.....and she is 83 years old!!!  So, keep the faith - you can do it!

    Hugs and prayers to you,

    Sharon

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  • celticsgirl143
    celticsgirl143 Member Posts: 30
    edited January 2011

    I haven't been technically diagnosed with stage 4 yet, but they found it in my lung, clavicle area, and my arm, I have a scan today to see if it is anywhere else. I am really scared. I just finished my last chemo treatment of Taxotere and Cytoxin, I guess it didn't work, I had a bilateral masextomy last July with clear margins, I'm really scared too, so scared, I have a 2 1/2 year old and an 8 month old baby, it sucks, and you aren't alone. I send you hugs and positive thoughts.

    Sarah

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  • LRM216
    LRM216 Member Posts: 2,115
    edited January 2011

    Sarah:

    Hang in there, honey - and you're correct - it does suck, big time.  I so hate it when anyone comes on these sites as newbies, especially when they are as young as you are.  This is just so damned unfair.  Don't lose hope - ever.  I wish you decades and decades of enjoying those children.

    hugs,

    Linda

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  • celticsgirl143
    celticsgirl143 Member Posts: 30
    edited January 2011
    • thanks, I want to see them grow up so badly
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