Anyone familiar with Sloan's High Risk Program?

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shabby6485
shabby6485 Member Posts: 679
edited June 2014 in High Risk for Breast Cancer

Hi,

 I am looking into Sloan Kettering's High Risk Survelliance Program on Long Island.  I have atypical Lobular Hyperplasia.  My surgeon now feels that I could go to yearly mammos but I am uncomfortable with that.  Especially after reading on this board.... there seems to be no real consensus on how to deal with this.

Is anyone participating in a similar program?

thanks in advance for any input! 

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  • mdoak
    mdoak Member Posts: 219
    edited January 2011

    Hi Shabby,

    I'm beginning in a high risk surveillance program soon, too, because my radiologist continues to put me back in "screening" even though I have problems about every other year. I haven't been yet (and I'm going to have to reschedule my appointment, because I have new issues to investigate, and you have to be "clean" so to speak before you begin) but I'll keep you posted.

    Melissa

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  • Letlet
    Letlet Member Posts: 1,053
    edited January 2011

    I didn't realize they had a high risk surveillance program in LI. I am familiar with the  one in NYC headed by Dr. Mangino. The usual criteria is that if you have a first degree relative with BC or had LCIS that was surgically removed or had had previous chest wall radiation. The MD will see you, perform a breast exam, and order the appropriate scans if necessary mammo, sono, MRI...basically that's what it is, surveillance

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2011

    shabby----do you have any close family history of bc? The general recommendation for ALH/ADH is just yearly mammos and twice yearly breast exams unless there are other significant risk factors, such as family history. That's what my oncologist was recommending initially even with my  having LCIS (which confers a much higher level of risk) AND family history of ILC (my mom). I had to really push for my MRIs. So my high risk surveillance is not really a part of a specific "program"; but I am doing the same thing with my local oncologists---alternating mammos and MRIs every 6 months (US as needed), breast exams on the oposite 6 months, took tamoxifen for 5 years, and now have been on evista for almost 2 years.

    anne

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