met to lymph node in mediastinum
Has anyone been diagnosed with mets to a lymph node in the mediastinum from breast cancer?
The mets are also on bones and one in liver.
What treatment was done and what was outcome?
Thanks for any help!!!!
Comments
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sam, sorry to see you posting. I have had mets to the lymph nodes in the mediastinum, although I have yet to have liver mets (knocking on wood). Tx can be as easy as an AI or as hard as a chemo. My mets were found in 7/06, there were on the sternum, ribs & mediastinum nodes.
First thing you are going to need is a biopsy to determine your er/pr and her2 status. these can change from orginal dx. If you are er/pr positive you will more than likely go on tamoxifen, arimidex or femara based on what has ever failed you. If you are her2 pos you could be put on herceptin. My onc actually didn't start me on herceptin. I got a year of tx before we had to add it. If you are not er/pr pos you will likely go on an IV or oral chemo based on the protocols your onc uses.
From this point in the game on your tx is considered pallative and isn't usually as strong doses as you got in your orginal tx. That helps control the cancer and give us a decent QOL. Please ask all the questions you need to, this is alot to digest in the beginning.
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I have mets in so many places, I've lost count. Having said that, my QOL right now is excellent.
I just found out recently that I had mets to the posterior mediastinal lymph node. After 6 cycles of Xeloda/Tykerb it has resolved.
Best of luck to you.
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Hi Sam,
I have mets in spine and sternum and in nodes in axilla and mediastinum. I'm currently on Femara for the nodes and Xgeva (Denosumab) for the bone mets. Still early days but so far no pain.
All the very best
xx
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Seeing Cheryl's post above just made me jump on my chair. It's taken a few seconds to recall which year we're in...
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I have one of those... I am on Faslodex and dasatinib.. mild progression while relatively stable. I guess I feel great.
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I reacted in the same way as Jan. I do wish people would look carefully before resurrecting old and defunct threads. The original poster hasn't logged in since Jan last year, so she hasn't even been on the boards, let alone returned to this thread, in all that time. I can see the point to resurrecting old threads if they contain useful information which may help us-but this certainly doesn't fall into this category. I agree it was upsetting to see Cheryl's post.
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The person who did this is a new poster and may not be aware that she should look at the dates. I dont think she would even know one of the posters is now an angel.
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OMG - this was upsetting. Seeing Cheryl's post scared me - I thought that I was going nuts. I don't get it - is this a current question -- why is an old post listed. Bless Cheryl's memory.
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My initial PET showed possible involvement of several mediastinal and pulmonary lymphnodes but nothing since treatment. There has been a question as to whether it was there or not from the beginning. I kinda think it was but just glad I am responding.
Best wishes to you with your treatment. Keep us posted.
Cat
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So very sorry I almost did the same thing without even looking at the responses.
Sorry,
Cat
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I have recently been diagnosed with stage iv with mets to mediastinal nodes and some other nodes. I am triple positive. I was originally diagnosed with stage III back in 2015. I was taking aromasin daily and getting zoladex injection monthly but apparently it stopped working. I am so afraid. I am looking for long term survivors. Can someone help me with this. I am 38 years old with a 16 year old daughter.
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Long term survivor here. I can't remember though if I had mediastinal nodes involved. I had intramammary nodes affected as well as axillary nodes and a spinal lesion. My de novo diagnosis was 10 years ago. My daughter was 7 then. It is a scary time but you will get the hang of the new treatment and settle into a new routine with your daughter. She will keep you distracted for sure and hopefully will be a great source of support. Keep us updated on what's happening with a new post as this is an older thread.
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Thank you so much for the encouraging words. I started Faslodex and Herceptin treatment this past Wednesday 09/27/2017. I'm praying for good results. I'm also meeting with the radiologist next week also for additional treatment.
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I was diagnosed with Mets to mediastinal node. It has just been two years. I am ER positive and hers 2 negative. I have an 11 year old daughter and completely understand your anxiety. Hearing from and reading about long term survivors helps me a lot when the anxiety is strong. I hope you get excellent results. Please let us know.
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You're correct. I have bad anxiety about this but I'm glad I can seek some comfort here.
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hi! I’m getting biopsy results on 10/27 (worst part is waiting)! Suspect (PET LIT UP-lung pleura bilateral lungs=multiple nodules & nodes etc) Stage 4 Mets to Mediastinal node & lungs/pleura! Pending bronchoscopy results of nodes (decided not to do lung biopsy—not sure while & makes me nervous that if lungs aren’t biopsies how do we know if treating this efficiently?). I have 2 teens girl 18 (away at college-in Calif) & 16 yo boy & very supportive hubby (I think abbrev is DH). We haven’t told them anything until we get results & thinking of waiting until after New Years (depending if chemo/Tx regime dictates we need to tell them sooner or not). I’m not sure as well as to the etiquette of using this thread vs opening a new post & do not even know how to do that—any guidance is welcome! Certainly have utmost respect for any who go before us (ie Angels!) Any other helpful info is welcome! so many ?'s re: prognosis, Test & treatment protocol etc. & I keep seeing that I should have an NCI doctor which I’m not so sure about how to be sure about oncologist and how to build my team? Also, is second opinion really a good idea—like back in 2010–the whole process leading to Dx and Tx Plan is sooo slow—I feel I should take Dx and make a plan and move forward as quickly as possible—even though logically it has taken 7 years to become aware of my METS; so another month getting second opinion cannot hurt. Last ?: my ONC back in 2011 after my surgeries allowed me to stop Tamoxifen due to side effects and was to “do some scans” & put me in AI once my blood tests showed I was in Post-menopause—but she never dideither! I feel terribly guilty not insisting and advocating for myself; again logic says I may have done all that & still Mets resulted? Also feel guilty that I didn’t see nutritionist & get active after initial do & Tx—battled depression for a couple years after 6 surgeries & initial do! I do agree it is extremely helpful with my anxiety to see others who have faced this or similar mets...reading posts of similar DX not only give me much hope; but it gives one a clearer picture than what my image/imagination of stage 4 DX means and what it actually means. This forum speaks volumes as to the strength one can find within themselves. Sorry to Ramble! I’m a bit scattered & having Brain MRI THURSDAY (day before biopsy results are shared! Oh one more ? Please: my INC is making me wait 7 days after bronchoscope and neither her or Bronch doc will even share preliminary results (even though pathologist was present to confirm that “good/sufficient” samples were taken for biopsy & they expect it to yield good results (which in translation means that the node cells looked atypical enough to confirm that they are cancerous! Thx to everyone and if I should repost this under another “new” post—please advise and I will figure out how to do so!
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I didn't know we had this thread.. My mediastinal lymph node got worse on my recent scan. Anyone have symptoms as it gets bigger? I know of one who has a paralyzed vocal chord because of this. She lost her voice for awhile. Now is better with speech pathologist.
What treatment did it respond to? Mine also got worse in my liver. Changing TX because Xeloda failed. Don't know what TX yet. This will be my fourth line of TX.
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