Triple Negative Breast Cancer

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jcoutee
jcoutee Member Posts: 58
edited June 2014 in Young With Breast Cancer

I am 28 years old and was diagnoised with tnbc in Dec. 2010.  I have 2 small children and can't help but think I'm alone.  I started my chemo Jan. 7, 2011.  Taxol weekly X 12 then AC biweekly X 4.  So far I haven't had any major side effects from the Taxol.  A little joint pain and restless the night of but nothing else.  I'm wondering when my hair is going to come out.  I have a good support system but they don't really know how I feel.  I am scared to death that after the treatment the cancer will return.  I'm waiting on the test results from the gene test to come back so I will know if I carry the breast cancer gene.  The whole situation sucks!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    There are two important resources for you

    1)http://www.youngsurvival.org/  Young Survival Coalition. There will be women in your area you can connect with who are active with YSC, and understand deeply what you are dealing with.

    2) http://www.tnbcfoundation.org/  Triple Negative Breast Cancer Foundation

     There is a forum here at BC.org for Young Women with BC too.    You will also be able to find a support group where you are getting treatment.  No matter how much we are supported by friends & family - there is something very important about being in communication with women who know exactly what you are experiencing.  You are NOT alone, and it's a very, very difficult time.

     I think the last line of your post speak for ALL OF US - just using nicer language than I do off line!

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  • cc4npg
    cc4npg Member Posts: 764
    edited January 2011

    Come over to the "Calling all TNS" thread.  I am 75% done with 4 rounds of TC.  My hair started falling out as everyone had said it would... at day 14.  Everyone is different though.  I'm not in my 20's, but I do have a 3 yr old.  I came across one of your posts on how we found our tumors and noticed you were new to the board.  So sorry to hear you have this nasty beast at 28!!  Really not fair.  I am triple negative, brca2+, dx at 43 just turned 44.  I was absolutely terrified when I found out.  I had no family history except for a half sister.  I can only guess my brca status came from my dad because my sister and I share our father, but honestly, no clue at all.  Please know you are not alone, and the fear you are feeling is normal, as is the overwhelming sense of dread and anxiety.  I thought the world was coming to an end when I found out, and the waiting on test results was hell on earth.  My 19 yr old daughter is also positive for this genetic predisposition.  Please do jump over to the thread above beccause there are a lot of really good supportive women there who will welcome you and do their best to help you.  Several women on this board are younger... you'll find them.  And though family does their best to be understanding, there's no way anyone can know how it feels until they're there... and hopefully they never will be.  Coming here is what kept me sane especially in the beginning.

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