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  • Beesie
    Beesie Member Posts: 12,240
    edited January 2011

    barry, I'm so sorry to hear this.  Crap. 

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  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited January 2011

    I guess it turns out that mri's are good, even when there is a lot of movement on them.

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  • louishenry
    louishenry Member Posts: 417
    edited January 2011

    I'm so sorry to hear about your news. It sucks. Thank goodness that you had the MRI. My guess is that the new primary was found early. Keep us posted.

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  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2011

    barry,

    Sorry to hear the news, it truly sucks. 

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  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited January 2011

    I saw my breast surgeon today (thought it was Wednesday, glad they called to remind me :)

    My breast surgeon said that mri's are no longer an approved screening for bc followup, unless you have BRAC gene. The reason was the expense and false positives. I also asked if you got a mx, if you would be annually screen by mri's. She said if I got a mx there would not be future screenings, because recurrence is less than 1%. I guess she has never had a patient who has had a mx with a recurrence. But...on here at bco, I read of those recurrences all the time. From what I understood protocol is changing.



    For my dx...complex because there are different features to this cancer...seems to be two different types of cancers.. It is infiltrating ductal carcinoma, low grade, stage 1. In my other breast it was dcis, grade 3 or high grade and not invasive. I asked her which was the worse cancer. She said this one because it had an invasive component. Because it is invasive she is concerned and wants to do sentinal node removal. Right now, I'm considering a double mx, lumpectomy only or doing nothing but alternative. I have a very complex situation...and the answer to this one isn't an easy choice. I'm at high risk no matter what choice I make.









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  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited January 2011

    Barry, so sorry I haven't been on for a few day - I HATE that this has come to invasive!!!  But as you said you are still glad you made the choices you made and that in a nut shell is what we all have to come to terms with... We all look back on our decisions (the many decisions) and question our apporach.... I'm so very sorry Barry I just can't tell  you!   How brave you have been doing "watchful waiting" and alternative!  And now you will have to make a decision once again!  The thing you noted about it being "complex" I thing that is probably the most important thing I learned about bc - (probably all cancer) but it is alway complex - each individual develops cancer in different patterns - there is just no caught all for this!!!

    Listen, I'm heading out right now but I want to send you an IM - I hope you will be around tomorrow?  Take care and please know my thoughts and prays are with you!  Warmly,  Deirdre

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  • greekchick
    greekchick Member Posts: 2
    edited February 2015

    Hi I was originally dx with bilateral DCIS, but the mri report said something else.

    Findings suggest bilateral DCIS with radiological signs strongly suggestive of invasive carcinoma in the right breast

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  • Annette47
    Annette47 Member Posts: 957
    edited February 2015

    Greekchick - this is a really old thread, so if you have specific questions you might want to start a new one. Sorry to hear about your test results though. I was never offered a MRI at any point. My breasts are not particularly dense and the original cancer was easily found on mammogram. Still though, I wonder ....

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