waiting for chemo

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backpage Member Posts: 5

i was diagnosed in October, spent November having tests and waiting for results.  Surgery was December 10; right mastectomy; a 3 CM tumor.  Found 35 Nodes with metastatic carcinoma.  Not the results I was hoping for.  Starting chemo January 20 for 6 or 8 cycles.  Then radiation.  such a roller coaster and again I am waiting.  Any insights on what to expect?

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  • Gitane
    Gitane Member Posts: 1,885
    edited January 2011

    Hello backpage,  I don't know about insights.  I can sure give you lots of support, though, as can all the ladies on this site.  You are not alone.  Many of us come here with treatment looming before us, and many feel pretty overwhelmed.  I had my surgery on December 2nd 2005.  I remember well the feelings even though it was 5 years ago.  It is a "roller coaster" as you described it so well.  I had part of my chemotherapy before my mastectomy and part of it after.  I had reconstruction, too, and have been taking Femara for 5 years as of this February.  Do you know yet which chemo you will be getting?

    It's helpful to join in on the chemo thread with women who are starting chemotherapy at the same time you are so you can touch base and help one another.  Here on the ILC section you will meet women who have this more rare type of cancer.  I had lots of questions about that when I started out. (still do!!)  Then you can go on to other threads that may help like the one that corresponds to your stage, or your type of reconstruction if you are having that.  There is lots of support and help, and women who care and understand.  

    Hugs, G. 

  • JeanH
    JeanH Member Posts: 281
    edited January 2011

    Backpage come hang out on the Starting Chemo January 2011 board - a wonderful supportive group of women who all started or are waiting to start Chemo this month and are sharing their insights and learnings. If you read from the top you will get lots of feedback and an idea of what is coming. People are joining everyday.

  • amlg1
    amlg1 Member Posts: 596
    edited January 2011

    Backpage,we are here for support.I see you had many positive nodes as I did.I am assuming you will get agressive chemo,as did many of us.Every one handles it different.For me it was doable,there are so many premeds given for naseau.It is a long road,but you will get through it.When I think back now,it seems so long ago that I had tx.I was her2 positive,which is not common for ILC,so my tx ended in August,2010.I made it,you will too.HUGS

  • backpage
    backpage Member Posts: 5
    edited January 2011

    Thank you for the replies and the support.  I will check out the Starting Chemo Board.  I have been doing alot of reading and will continue to explore this site.

    It is a wonderful place where people know and understand what we are going through.

    Thanks and love to you all.

  • cathmg
    cathmg Member Posts: 278
    edited January 2011

    Hi Backpage,

    I was diagnosed with ILC, too, and you can see from my info that it was pretty big. I just wanted to say that chemo is doable-hard, but know that we get through and put it behind us. I didn't know about this site when I went through chemo-it's a big comfort and very informative.

    Hang in there, girl!

    Cat

  • backpage
    backpage Member Posts: 5
    edited January 2011

    Well I am no longer waiting.  I had my first treatment on Thursday.  The actual administration went very well.  Wonderful nurses explaining everything and helping me relax and be comfortable.  I am doing four sessions of AC on a three week rotation and then four sessions of Taxotere on a three week rotation.  Broke a sweat and chills Thursday evening, tired Friday, But Saturday was not a good day.  Woke with nausea and headache, and crying and emotions that I had been able to keep in check up until this point.  The reality of being sick was overwhelming.  I had been able to say I can handle this until Saturday morning.  And then I was not sure I could.

    God bless my dear friend who has been with me through this journey.  She came over.  We cried and then laughed.  We went to the store and bought what I needed to be able to eat; fruit and smoothies and such.  The rest of the day went better with a nap and a movie.  Today I woke up on guard for the emotions and the nausea and had less.  Now I feel ok and think I will be able to return to work tomorrow.  Why am I always worried about work?  Income and benies I guess.

    Prediction is that the hair will go in a few weeks.  Do I have to have a fitting to get a wig?  Can I buy from a catalog or on line?  How about just wearing scarves?

  • Gitane
    Gitane Member Posts: 1,885
    edited January 2011

    Hi backpage,  So glad you came back to check in and update us.  Your Saturday morning must have been so hard.  The steroids especially make us very emotional, not to mention everything else.  When I was prescribed Kytril I began to feel better.  It really controlled the nausea and ill effects much better than Compazine (which I was given earlier).  I also slept a lot and that helped tremendously.  

    Losing the hair is quite an experience.  Yes, you can get a wig without a fitting.  Many buy wigs from catalogs or online.  However, it's kind of interesting to try them on, look at cuts and colors, etc.  For me the scarves and hats were so much more comfortable, I rarely wore my wigs.  However, at work it might not be so easy to do that. It's so normal to be worried about work.  For me, I ended my career.  It had been a long one and it was time.  Not working was so wonderful, and helped me deal with it all.  That you can work is miraculous in my opinion.  Just be good to yourself, listen to your body, and know when it's time to give in and rest.  

    You can handle it.  But don't be frightened if at times you feel you can't.  Remember you are going THROUGH treatment.  There is the other side, and you will get there. Come back and let us know how you are doing with everything and let us help if we can.

    Warm hugs,  G. 

  • JeanH
    JeanH Member Posts: 281
    edited January 2011

    Back page I just noticed we were diagnosed with ILC on the same day...I hope you are feeling better.



    I start Chemo next Thursday DD EC x4 then DD T x4. I am going wig shopping tomorrow and have some scarves, not sure how I'll feel about the wig but at the moment figure I will end up using a mix of wig,scarves and hats. I hope to continue working through treatment, though I will probably need to reduce my schedule. I found it encouraging that you went back. I plan to take Thursday and Friday off and we will see what Monday brings. I am hoping it will be a distraction and health insurance is a definite plus.



    I think everyone finds their own comfort zone regarding hair.. Reading and sharing with the January 2011 Chemo group you see so many different ways to handle and all are right, many proactively shaved their heads or went very short to take control of what part they could. Some go natural, some wigs and some wraps/scarves.

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