2nd cancer in the midst of treating the 1st

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mssmybabys
mssmybabys Member Posts: 5

Hi

I hope this isn't offensive to anyone that I am posting, I am doing so because my mom was diagnosed with stageI/II (they couldnt tell if it was a 1 or 2 cm lesion) IDC in June of this year.  She completed 6 rounds of Adriamycin, Taxotere and Cytoxan 3 weeks ago and went to get her MRI and meet her surgeon for her planned lumpectomy last week and they found a new, different tumor in the same breast, not IDC.  Her original tumor was  1-2 cm, grade 9/9, stage 1 or 2 and her new one is grade 9/9 also, but that is all we know as of now.  She has decided to undergo a double mastectomy next week and continue on with chemo after that, not sure what kind seeing as the above combo did not touch this new cancer.  I'm just wondering if anyone else has been through this, found a 2nd cancer in the midst of being treated for the 1st?  what kind of outcome does this have?  from what i understand the 1st and 2nd cancers don't have anything to do with each other since their pathology is different but is that wrong?  does this 2nd one mean bad news?  if anyone can offer any info or insight i'd really appreciate it.  

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  • flash
    flash Member Posts: 1,685
    edited December 2010

    actually, you can't tell if this new cancer was touched or not touched by the chemo cocktail.  It's not uncommon for other tumors and types of cancers to show up during the treatment when a different testing modality is used.  right now it's too early to tell until you have the pathology reports from the mast and get a really definitive info from the "slice and dice."  As an example, I had a third type of cancer found during the slice and dice that wasn't even found in the earlier tests.  Each time I had a test type, a new tumor or type of cancer was found.  It was only the final that gave us the full information.  So right now, take a deep breath and just be supportive until you have more information.  Don't borrow trouble.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited August 2013

    It could have been there from the start. Did she have an MRI before?

    I've just had a new primary removed 8 months out from chemo and it looks like it was missed a year ago. The chemo/herceptin may have stopped it growing but it didn't kill it as it was a lower grade and a different pathology.

  • lago
    lago Member Posts: 17,186
    edited December 2010

    I did surgery before chemo. They did find a small amount of LCIS in my other breast once I had an MRI. MRIs are more sensitive and can find things that a mammogram and ultra sound can not. The problem with MRIs is they do tend to show false positives since they are so sensitive. My MRI showed 4 suspicious areas but they were really concerned about one.

    BTW LCIS rarely shows up in mammograms or ultra sounds.

  • maltomlin
    maltomlin Member Posts: 343
    edited December 2010

    How old is your mum - it makes a difference!

    Mal

  • karen333
    karen333 Member Posts: 3,697
    edited December 2010

    a second tumor was discovered on my MRI, close to the first but of a completely different type.  The MRI also found  a second area of concern on my right breast but it tested B9. Karen

  • mssmybabys
    mssmybabys Member Posts: 5
    edited December 2010

    thank you for that flash.  she is getting the double mastectomy thursday and will assay the tumor and see what, if any chemo she can get.  apparently this new tumor is proliferating at 100% which is really scary.  and her dr mentioned that she may be eligible for methotrexate depending on the assay because it's weird that the ACT cocktail of chemo didn't affect this tumor...her dr said those chemos are almost always used for breast cancers so it is odd that it didnt touch this new tumor.  did you (or anyone else out there) get chemo other than adriamycin, taxotere and cytoxan for their breast cancer?

  • mssmybabys
    mssmybabys Member Posts: 5
    edited December 2010

    no she did not have an MRI at the get go.  her dr said that it may have been masked by her primary tumor or it may have originally been a part of her first tumor and broken off and took a pathology of its own.  the dr's are saying they havent seen this before which is really scary.

  • mssmybabys
    mssmybabys Member Posts: 5
    edited December 2010

    my mom is 58....another thing to note is that she works at an insurance company across from an airport and there have been 6 or 7 women in her company that has been diagnosed with breast cancer in the last year....and my mom is the oldest of all of them....

  • mssmybabys
    mssmybabys Member Posts: 5
    edited December 2010

    karen333:  thank you for your reply.  did you get the 2nd tumor removed?  was it worse than the 1st?  and your original chemo didn't affect this 2nd tumor?  and if not, did you then just get different chemo for the 2nd?  i'm sorry for all the questions...

  • karen333
    karen333 Member Posts: 3,697
    edited December 2010

    Yes, the second tumor was close to the first and was removed in a partial mastectomy.  It was a great deal smaller than the first and was a different type completely than the first, which was a mucinous carcinoma..I did not choose to do chemo, since thre was no node invovement and mucinous cancer is not an aggressive cancer. I did have rads for 7 weeks and am now on Arimidex for 5 years.  No unbearable SEs, some nighht sweats and stiff ankles and legs.  I can work those off within 10 minutes of arising.  Karen

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited December 2010

    I had that too..found it at the end of my chemo..I had had a lumpectomy

    and then I proceeded to have a mastectomy and then tamoxifen and arimidex..that

    was 9 years ago..

  • Faith316
    Faith316 Member Posts: 2,431
    edited December 2010

    After being diagnosed with IDC, having a lumpectomy and axillary node dissection with 2/8 malignant nodes and having taken Adriamycin, Cytoxin, Taxol and while still on Herceptin and in the middle of my 30 radiation treatments, I was diagnosed with IBC.  I was referred to MD Anderson Cancer Center in Houston, TX to their IBC program.  My onc. there stopped the Herceptin and switched me to different chemo ---- Xeloda and Tykerb.  I took them both for 6 months  and then had a mastectomy and another axillary node dissection.  The pathology at the time of the mx showed no cancer left.  Now am just on Tykerb.  I am now NED and have been for over a year now.  Good luck.

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited December 2010

    This makes me nervous, because I felt a lump right after chemo and rads and biopsy said benign, but it still feels WRONG.   My BLMX isn't until March.   Can't get insurance to approve a 2nd opinion on the biopsy.

  • myesan22
    myesan22 Member Posts: 40
    edited January 2011

    Faith316, You give me hope...am on Herceptin and have found malignant-appearing calcifications in the same area as my original cancer, more aggressive this time around only 4 weeks since ending chemotherapy. Knowing that you are now 1 year NED gives me tremendous hope for my coming through this...

    SoCalisa, you also give me hope with 9 years cancer-free. This is just so unexpected and scary...

     I'm sorry you both had to go through this but it does give hope to those of us who are experiencing the same thing to see that you are both surviving...

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited January 2011

    Faith, did you get recon?   I don't see many women who get mastec.  after lumpectomy/rads, which is what I am going to do - so I was just curious about your recon?  

  • Faith316
    Faith316 Member Posts: 2,431
    edited January 2011

    I had hoped to have DIEP at the time of my mx but since IBC is so aggressive and so likely to recur, all my doctors wanted me to wait awhile before having it.  (Since I have previously had radiation, they do not want me to have implants.)  But, the longer I am out from my last surgery which was in Feb. 2010 makes me question whether or not I even want to have the reconstruction done when I am given the green light.  I may decide I don't want to go through another recovery.  I am doing ok with my prosthesis for the time being.  We'll see about a little further down the road how I feel about it then.  Good luck.  Keep us posted how you are doing and if you have any other questions we can help with, ask away!

  • dillymonster
    dillymonster Member Posts: 24
    edited September 2011

    dillymonster wrote:

    I just finished chemo 4wks ago. I had a baseline mammo and an MRI to check for margins before starting radiation. An area on concern was found. An ultrasound and biopsy was ordered. They were not able to see it with U/S. An MRI guided biopsy was ordered. I received the results today, it was DCIS. How can that be?????? I had 6 rounds of TAC. My original lump diagnosed in apr was IDC with 3 positive lymph nodes. I had a lumpectomy (2.5cm) with axillary dissection. I also developed lymphedema 2 months into my chemo treatment. I have been struggling with controlling the lymphedema, and now this. The recommendation from my radiation oncologist for this new finding is a lumpectomy, and after the result of path if invasive mastectomy. She also said to delay mastectomy if it's what I choose till I complete radiation. I have an appt with my onco. Next week to discuss options. I am scared since I had lymph node involvement is there another stray atypical cells that they have not caught???? I don't know what to do. I have a little boy and a husband that are very scared, so is this mommy :(

  • Binney4
    Binney4 Member Posts: 8,609
    edited October 2011

    Dilly, I see no one has answered your post, and I know you must be so anxious about this new diagnosis. I'm so sorry! But I have to say it sounds like you're in very good hands, with a healthcare team that's ready to take quick action to get on top of this.

    I can relate to the anxiety, and I hope you're able to get some sleep in spite of it. Being mommy to a little one is exhausting, and a full-time job all by itself, so if you're having trouble sleeping do ask one of your doctors for some help with that.

    It's so tough to be faced with yet more treatment, and the uncertainty of a second diagnosis, but you've already learned how to hunker down and tough out whatever treatment is needed. Just remember to enjoy your little guy every day, because that's how they thrive -- and the joy is healing for you as well!

    Hugs to you both,
    Binney

  • Mom2Tots
    Mom2Tots Member Posts: 30
    edited October 2011

    Hi, just wanted to let you know my experience.  I had a 5cm, triple negative, IDC. I did neadjuvant chemo therapy with a good response.  It went down to 1 to 2 mm.  So, doctors were recommending a lumpectomy.  I instead elected to have a mastectomy.  Once the pathology report came back, I had clear margins but there was over 6 CM of DCIS.  The mammogram, ultrasound, MRI all missed the DCIS.  With regards to DCIS....DCIS is noninvasive (doesnt have the ability to grow outside the breast).  As I was told, Chemo does not work on DCIS.  Chemo is for invasive cancers.  DCIS should be removed as some believe that it is a pre-cursor to invasive cancer or that that the DCIS cells mutate and become invasive.  People who only have DCIS are considered stage 0.  So i think they just need to get the DCIS out.  Hope this helps.   

  • dillymonster
    dillymonster Member Posts: 24
    edited October 2011

    Thanks Binney :) I had my appt with my onco last week. I am having yet another lumpectomy on oct. 18. Please pray for good pathology results.

  • dillymonster
    dillymonster Member Posts: 24
    edited October 2011

    Since my last post I had another lumpectomy and received the results 2 days ago. They found an area oh DCIS and an area of IDC. I had my consult with my oncologist yesterday and he offered 2 options with the same survival rate ??? Have a mastectomy with radiation to follow (because of initial lumpectomy found lymph node involvement). He said that the axillary area would need to be radiated as well as the breast. The other option to just have radiation and have frequent mRI's and biopsies if area of concern is found. He said is I can handle the waiting in between the MRI's and path result if biopsies are done then I can choose the lateral. I am scheduled for a bait mastectomy and reconstruction on Nov 22nd, but I don't know if I am making the right decision. The onco just offered the choices but did not help me by providing me with solid info to help me decide. For instance, I have read many resources the stated that with breast cancer and recurrence that mastectomy was the decision. The onco said my survival rate is the same with either decision. Please help. Thanks

  • bevdurrant
    bevdurrant Member Posts: 68
    edited October 2011

    Hi Dillymonster, i think it is a matter of personal choice, i chose BMX and was glad i did as biopsy on other breast showed a 2cm tumour, so i was glad i made that choice, make sure you get loads of advice before you make a firm decision.  stay in touch if i can help in any way let me know Bev :)

  • dillymonster
    dillymonster Member Posts: 24
    edited October 2011

    I think what is making my decision harder is the fact that I still need to have radiation. Also that the reconstruction process requires 2 surgeries. After my recovery which will be 6wks then I have radiation for 6 wks, then finally go back to surgery for nipple surgery. I know that it's a personal choice but I just need some solid facts to help me decide that the BMX surgery has a better survival rate and lowers the chance of recurrence. Can you steer me to articles that might help educate me more about MBX and recurrence rate. Thanks

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