Losing weight everywhere but radiated breast...wth?

Does it just take longer or is it always going to stay the same size? I'm 3 months post rads, had no major problems, some swelling but that was almost gone by my 6 week follow-up. Post-surgery that breast was slightly smaller but not noticeably so. I haven't lost a lot of weight, but I'm not at my goal yet and already the healthy one has gone from DD to D. I'll probably end up closer to a C. Radiated one is still DD and now I do notice the difference. Has anyone else had this happen? If it is permanent I'm wondering which is the better option, reduction on the radiated breast or implant in the healthy one?

Comments

  • pj12
    pj12 Member Posts: 25,402
    edited January 2011

    I am 18 months post radiation following lumpectomy. My BC breast is still fuller than my healthy breast. I think this is how it's going to be. I expected shrinkage from the surgery or radiation but the involved side has been fuller from the time of surgery. At first I thought it was just inflammation.  I was even before all this. I'm not terribly unbalanced... maybe a D in the BC side, a C on the healthy breast. Not enough difference to want to do anything about it. 

    In your case, my opinion is to augment the smaller, unradiated breast. Radiated breasts don't always handle cosmetic surgery well. 

    I guess we are lucky to have this problem. So many women have the opposite problem. But whatever the cause of being unbalanced, it is annoying.  Good luck.

    Pam 

  • Eloise
    Eloise Member Posts: 137
    edited January 2011

    I'm about to do rads and am interested in having a reduction in a year or two, so I asked my radiation oncologist whether that would be difficult.  He said his understanding is that reductions are not difficult to do post-radiation, but other kinds of reconstruction are more complicated.  (But he's a rad onc, so he may not know!)

  • Binney4
    Binney4 Member Posts: 8,609
    edited January 2011

    Misfit, post-rads swelling is a possibility, but so is breast lymphedema. Before you consider any further surgery, you might want get a referral from any member of your healthcare team to a well-trained lymphedema therapist for evaluation. S/he can tell by a simple physical exam if what you're dealing with is lymphedema, and if it is, can show you how to reduce the swelling and keep it in control. Many of our docs (even the really good ones!) aren't real familiar with breast/chest lymphedema since it's not part of their specialty, so seeing a lymphedema therapist can give you important information.

    A therapist can also take baseline arm measurements for future reference, teach you some lymphedema risk-reduction practices, and fit you for compression sleeves and gauntlets to wear prophylactically when flying or exercising.

    Here's information about breast chest (truncal) lymphedema:
    http://www.stepup-speakout.org/breast_chest_trunckal_lymphedema.htm

    And here's how to find a well-qualified lymphedema therapist near you:
    http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

    Hope you get good answers and solutions soon!

    Be well,
    Binney

  • misfit
    misfit Member Posts: 60
    edited January 2011

    Thanks so much for the replies. That's very interesting about the lymphedema. I've not had any trouble at all with my arm, thankfully. I had a large hard mass (scar tissue?) where I had the lumpectomy for awhile after surgery but by the end of chemo it was pretty much gone and that breast looked and felt almost the same as the other one. Whatever is going on, I think it is from the radiation. I don't have any pain or discomfort but it does feel very heavy and I always have a deep indentation from the bra seam nearest to the center of my chest. I will definitely be asking my onc about the possibility of lymphedema.

    It's funny (well, not really) that I had asked my rad onc if I'd be able to have breast reduction surgery after radiation and he said it shouldn't be a problem, but he didn't mention anything about lymphedema. I guess if I keep losing weight and things still don't improve I'll have to consider augmentation, which is probably a much easier procedure but I'll be stuck with DDs. Not at all the outcome I was expecting. These breast cancer treatment curveballs are really frustrating.

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