August 2010 Rads
Comments
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Thank you all so much! You all are awesome!
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Hi all - I finished my radiation in October and incredibly my boob seems to be getting worse, not better - it's still red and it itches like crazy. Is anyone else experiencing this? My rads oncologist said to continue with the aquaphor, etc. etc. and I am doing everything she says but it still ITCHES ! ! ! Help. I assume this is normal. Just wanted to vent.
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Hey AnnieBear,
I didn't have any real problems but I did have some itching after I finished rads. They told me to keep the moisture on and I used the aquafore, then later just some really good lotion. Still use the lotion. Seems to me you ought to be healing up fine by now but then the radiation does still go on radiating ( if that's the correct term) for awhile - doing it's job - not sure how long it takes to stop. Good luck
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Hey AnnieBear!
Yes, I am itchy and still sore when I try to sleep on that side at night (finished Rads end of September!) but I keep thinking that any other wound I have itches as it heals, so it must be just healing...
Hugs and Happy New Year. Here's to a better 2011!
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AnnieBear ~ how's your diet? Are you getting enough lean protein and vitamins? Your body heals from the inside better than anything you can slather on the outside. I hope you are feeling better soon.
Here's a ? for anybody. I finished rads the middle of September and have been having pain in the underlying tissue around my left breast for about the last month. The breast itself is pain free, it's what's underneath that hurts. From underneath my armpit up and around my arm to the collarbone and across to my sternum. I won't see my Rad Onc for 2 more weeks and have been doing some serious stretching which does help, but has anybody else experienced this and have any ideas for me?
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Hey Phxsunshine, Are you on Tamoxifen? I have pain in my collar bone and shoulder blade which started out on the same side as my rads and so I thought it was affiliated with radiation treatments, but then I also started getting it on the other side. When I went to the doctor he confirmed that this pain was from the tamoxifen....
just an idea...
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I am on Tamoxifan, just about 4 months now. Thanks for the info, I appreciate it. I have been REALLY stretching and it does help. But it's still there.
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phxsunshine - I too have had some pain in and around the side of my breast where I had the lumpectomy. I asked my surgeon about it and she said that it will take awhile to heal - even up to a year. I had a lot of nodes removed (23) and I wonder if that's the culprit. Stretching helps me too. She also told me that exercise is good and that a new report says it's better to exercise the arm than not - that lymphedema is not attributed to an increase in exercise. Seems they're always changing things....
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ECT--I just want to clarify the lymphedema and exercise information: a group from U Penn has published two studies, one of women with lymphedema and one looking at women "at risk" of lymphedema--in neither study did the VERY careful and controlled weight lifting and exercise program either cure lymphedema or prevent it--except for a small group of women who had >5 nodes out.
The author of the studies wants women to be strong and not afraid to be active, but in the study with lymphedema, she only enrolled women who were rock solid stable, and even then, some of them flared and some couldn't tolerate weight lifting.
In the study of women "at risk"--weight lifting was "not superior" to not weight lifting, but under controlled conditions, it did not appear to cause harm.
The key is to work with good trainers and to be very careful.
There is a web site from the author of the studies--Kathryn Schmitz:
http://www.penncancer.org/physical-activity-and-lymphedema/
The media has headlines like "weight lifting cures lymphedema" "weight lifting slashes lymphedema risk"--the truth is, careful exercise is a good idea, but it doesn't cure lymphedema.
Kira
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Thanks Kira - I'm sure you are right to sound the alarm. I certainly don't want anyone to think I would encourage them to start weight lifting. I really don't know what to think about it myself. I'd love a trainer who understands lymphedema and exercise, just not one where I live. So, I really have done very little but my arms need it and I miss the weight lifting. I'll check out this site.
Thx again, Carolyn
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ECT & Kira ~ Thanks for taking the time to post. I've been doing a lot of sustained stretching/range of motion exercises. I was in pretty good shape, for an old gal, when I got the diagnosis. I was 5 months into a very regular routine in anticipation of my daughter's wedding next month. Then the surgery and rads and I slacked off quite a bit, to say the least. I've started back pretty regularly for the past 2 months now that I am healed from the rads, but this pain under my arm and the lack of flexibility is frustrating to me. I will say, the more I stretch, the more the pain subsides, so I'm sticking with it. My weight lifting so far is just pushing myself away from Mother Earth with good old fashioned pushups and dips. Lymphedema is not an issue for me, I had only one sentinel node removed and my surgeon told me not to worry about it, so I'm not. God Bless the both of you real good.
Hugs
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Okay. I'm not losing my mind. I've just finished my second week of radiation and I noticed an odd smell to my urine, too! I have a nasty taste in my mouth and I've been having bouts of nausea ever since I began radiation. My radiologist says that the nausea isn't caused by the radiation because its just on my breast. And yet it's the only thing that's changed. No new meds or supplements, no discontinuation of meds. I don't know if I should bother mentioning the bad taste in my mouth or the odd odor of my urine. I'm glad we have these forums where we can share our experiences because it seems that doctors so often dismiss our symptoms and concerns.
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