Calling all TNs

I am glad to see that others have been down from the recent deaths.  I don't mean that in a bad way.  I have cried just about every time I get on this board lately.  I was beginning to think I had a problem, but it sounds like this is somewhat normal.

I am trying to spend less time here myself.  The main reason is that it is just too scary sometimes. I do enjoy the positive stories and the good advice, but the bad news just kills me.  The only time I am not my old, normal self is when I get on the internet (here or elsewhere) and start reading about this disease.  I think it is time to try to get back to living my life like I used to, but with fruits, veggies, supplements, and exercise added.

I hope everyone has had a very happy new year! 

My vote is let's have a new thread. It makes it feel like a fresh start.

OK, I created the TN Ten Pounds Take-off thread...

slcst12, 11/19th was the magical day for me... im chemo first, then surgery and then radiation...I will have taxol for 12 weeks and with avastin every other week, then ddAC.Im participating in a clinical trial...I look forward to the increase monitoring and details...my goals was to take anything that could kick this thing.  For me the waiting was the hardest. once i decided to go to UNC everything started happening..I love that i have a multidisciplinary team who communicate together and all know whats going on.. As for taxol the SE's have been diarrhea, heartburn, fatigue (not horrible), tiredness, body aches, and thrush..it seems like a bunch, but ive been very blessed to not have any extremes....I keep my nausea meds, imodium, pain killers, and zantac handy...I occasionally have to take a ambien, i worry at night and sometimes can't sleep...

I will tell you these discussion boards have been wonderful for me...I get to vent, read, and have a connection with many tremendous women...

If you need anything pm me and we can chat!  

Actually Teka, I had no idea what you meant, and still don't. I was merely trying to understand your acrimonious statement to a fellow poster who was making a generalized statement.

Beyond that, I don't have the time or inclination to further the pettiness.  Mostly, I skim these posts.

moe0279,

I am in Clinical Trial  E5103 with Avastin, until the end of March.   No side effects with Avastin.   January 5th, I'll continue with (PT).   Take Care.   HAPPY BIRTHDAY!!

moe0279, I agree with you on lots of your comments -- when I was going through chemo, boy this and the thread of ladies who started my chemo my same month were so helpful.  It really helped me, with expectations with with letting off some steam.  Incidentally, I also had thrust -- some people thought I was exaggerating or was getting the symtpoms wrongs, but, yep, I got thrust almost every round about the 3rd and 4th days -- and fortunately, I tried eating lemon nonfat yoplait  (one of the FEW things I could choke down those days... thank goodness) and that cured it each time.  I was so happy not to HAVE to have ANOTHER prescription for another dang drug!! Try it - worst thing is that you'll get some protein and calcium, best case is you'll get rid of your thrust.  I just ate it reaaalllyy slowly - even throw it in the freezer for a bit, it's kinda like sorbet! 

That's just my little two cents... for whatever it's worth.  There's been some bad news on this thread this month.  Well, with so many of us... and we really don't know all the details of everyones journey... it's sad, but overall, this is a great and uplifting place to come and get education, comfort and a kind ear.  Keep coming back. I lurk a lot, but I do check in at least every other day or so.   

Lovelyface -

Yes, she was Stage IV.  Apparently, a few months after her original treatments ended, she was found to have progressed.  I can only assume that either none of the chemo worked for her and she must have had a terribly agressive form of TN, or, since I have no idea if she had all the precursory scans prior to treatment, perhaps she was Stage IV from the start and not Stage II as thought.  I really do not know. She lived in Arkansas but then switched her treatmentto CTCA in Chicago and fly there for treatments.  It was widespread and I believe in the brain.  I'd go back over all her posts, but I truthfully don't think I could stand to right now.  I know, even on this board on the Stage IV forum, in mid December, she was celebrating that she was NED and was elated.  Then it appears just days later, her husband was posting on her care pages (DIVA21 was her sign in on Carepages.com) that she had worsened was hospitalized and needed prayers - that it was bad.  Then the news that she was gone.  That's why we are all so puzzled with this one as it seems there was something missed here.  How do you have all those scans at CTCA and be NED - and then a short number of days later, it's all over.   I have not heard of any other case of a TN's death that had these circumstances.  While it's terribly upsetting and scares all of us, I think we all must remember that this isn't the usual, or at least not anything I have seen or read my diagnose and to the present.  Just so terribly tragic.

oh yeah, im going to take the yogurt with me!!!! thanks for the tip!

moe0279,

I am having no side effects while just taking Avastin.   Good Luck!!

kittycat:  I cravbe healthier foods, too.  Now that the holidays are over it will be much easier to have healthier eating habits.  I am no longer shocked at how low corporations, especially Monsanto, will stoop to make a buck.  I had read about this particular thing before and thought it would be good to share since so many of us are trying to eat healthy.  I hope I haven't gained 10 pounds.  Kind of go by what isn't fitting right now, lol.  I find if I stick to not eating pasta, bread, potatoes, I can lose it fairly easily but I have a horrible sweet tooth.  It's my biggest downfall.  Well, and red wine, too.  I have never camped in wintertime!  It sounds so cold but I do love camping.

Hi everyone!! Try to stay focused on the positive, and be thankful for all the small blessings life has for us. I am in on the 10 pound challenge, but I am making it 20 for myself. 

After researching and researching, and talking w/ Drs I am learning that TNBC is no more worse than regular BC, and that we are blessed in the sense that we are HER-2 neg. It's just keeping the beast contained because of lack of treatment options. That's our REAL struggle we don't have treatment options, and options that don't cause harm later in life. *This my opinion* You would be foolish not to combine holistic and conventional methods. All we can do is combine all methods and fight for the best outcome. TAKE CARE LADIES!!!

Great post, Fighter. Definitely one I think we all need to read from time to time.  Keeps it all in better perspective, especially after our spate of heart-rendering news lately.

Linda

Lol Titan!  I still have no groceries in the house so my DD and I are eating ChexMix that I bought at the airport yesterday for a snack.  Does that count as brunch? Just heading to get some real (heathly) food shortly.