Anyone starting chemo in June 08

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited November 2010

    Hi girls I'm researching where to live, now.  Something to do, besides walk the dog.  The neuropathy, is getting worse and on the bottoms of my feet.  I had to buy a cane, OMG.  But at least with the cane people get out of your way.  California is getting worse and worse, and I have lived here most of my life, but I can't wait to get out.  It's got pushy people, crime, and it's going down the tubes. Now I lived in New Mexico, and loved it, but it was high desert, and I just don't want to live anywhere near the Mexican border. I lived in a nice town called Las Cruces, but it was 40 miles from El Paso, which is right across from Juarez, where all the illegals cross the Rio Grand.  I'm thinking Eugene OR, or Medford OR, but I need to be near a hospital and there not fond of CA's. I'll have to change my plates as soon as I move there....But then I'm just going to rent not buy anything, so maybe my neighbors won't hold it against me.  Everyone in CA, wants out

    It was a nice sunny day, but now has turned grey, and it got to freezing last night, but it's really only snows here at 1500 ft. and were in the valley.

    Take care girls

  • Kellke
    Kellke Member Posts: 424
    edited November 2010

    Leggy, there used to be a website called find your spot where you could enter all the important things to you and then it helped you narrow down your choices.  It helped us pick where we live.  Look and see if you can still find it. If you move to a nice small beach town I will come be your room mate!  Kelly

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Wow....havent checked in for a while.  Had a pretty good Thanksgiving.  It was nice to be home for 4 days.  I am over my cold and gearing up for a couple doc appts this week and next.  I have one more outpatient surgery scheduled.  Found a new oncologist about a 2 hour drive from here.  My old one left.  RATS!  I havent met the new one yet.  Don't know when he will want to see me.  Hope everything is well for the rest of you.  We have winter weather and plenty of snow.  You don't want to move here Leggy.  You would hate it.  I can feel my fingers ache...knees, back, you know how the cold works against you anyway.  I feel lazy cause I know better than to shovel snow.  I have to get through this hernia repair surgery before I start throwing snow.  I have my tree up and it is so nice to sit and look at the pretty lights at night.  Today is DH birthday and what I ordered him didnt make it here.  He has to settle for chocolate chip cookies.  That is what he asked for anyway.  Tomorrow is Friday!  Yea!  Hope those going through trts are coping.  Hugs to all.....Hunkydory

  • LeggyJ
    LeggyJ Member Posts: 726
    edited December 2010

    I think I found my new home away from home.  There's a place called Green Valley AZ, and it's a little green belt near Tucsan AZ.  I like the high desert and this place is beautiful!  Now I just have to figure out to sell my place.....Not easy in CA right now or in the future, I'm afraid, but ya gotta have a dream.  Monday, I go to my new GP in order to get my script filled, followed by an appointment, with Chronic Pain.

    It was a really nice day here.  Midday it had to be in the low 70's.  At about 11am the couple that bought my little teardrop trailer came and picked it up. Sad, but he paid my asking price, and I got some new furniture and a TV for Christmas....Bad Girl.  But I've had the same miss matched bedroom furniture for about 20 yrs. and had a big old TV.  So I finally got a flat screen  TV. 

    Hope everyone has a Merry Christmas!

  • KKing
    KKing Member Posts: 425
    edited December 2010

      Hope you like your new Onc, HunkyD.

    Time seems to be flying right now.  I have a whole week off next week and man am I looking forward to that.   I had a call from my Doctor that the osteopenia has increased so I am to see her in January.  She may put me on medication, will wait and see what she says. 

    Hope everyone is doing alright.   Merry Christmas to all the Junies.   I will check in when I am off next week.  

    Enjoy the day.

    Karen

  • KKing
    KKing Member Posts: 425
    edited December 2010

    Leggy J....that sounds like a great place to move to.  Hope it all works out for you.

  • hunkydory
    hunkydory Member Posts: 1,241
    edited December 2010

    Hi everyone....I will hit the surgery table again tomorrow for more repair on my incisional hernia.. I have been busy at work and anxious about this.  I will have to check in later. I am so sad to have seen on the Active Topics board that our miss Chocolate passed.  I hate this disease...I hate it with all my heart.  Hugs to all of you...and may you all be feeling OK!  Hugs....HD! 

  • LeggyJ
    LeggyJ Member Posts: 726
    edited December 2010

    Oh no, not our Chocolate, that is so sad.

  • KKing
    KKing Member Posts: 425
    edited December 2010

    I am so sad about this, she was way to young.   I hate cancer.

  • hunkydory
    hunkydory Member Posts: 1,241
    edited December 2010

    Hi, made it through another surgery.  I am feeling quite sore still but is to be expected.  Hope you are all getting prepared for holidays, etc.  I got mine done before I went in.  So, now I sit back and heal.  Leggy, hope you get your pain under control more and are enjoying your new furniture and flat screen.  My goodness, you have waited a long time for a flat screen.  KKing, hope you get some answers to your osteopenia.  It sure seems like we have hit the age of never ending pain, and with the cancer piled on top...who knows what is what.  As I stated above...I hate this sucking disease.  I can't even think about Chocolate without tears.  There is nothing I can do about it.  Well, time for my afternoon nap.  I am pretty lame....watching old reruns of Bewitched, Bonanza, Gunsmoke, and Andy Griffith.  Wow, I need another movie from Netflix.  Be well all.....hugs...Hunkydory

  • LeggyJ
    LeggyJ Member Posts: 726
    edited December 2010

    Speaking of my flat screen, I didn't even know I had to get a new HDTV box, for my new TV.  So I called Direct TV and told then I've had the same box for about ten years and a new TV and it's blurry!!!  Oh well, their coming on Monday.  While I was working I just didn't watch much TV.  Now with this Peripheral Neuropathy, and the rain I'm tied down. 

    Hope your feeling better HunkyD, yes we've all got our problems, don't we?

    Take care

  • KKing
    KKing Member Posts: 425
    edited December 2010

    HunkyD..hope you are recovering alright.  Was it to do with the hernia?   

    LeggyJ..Yes we did get the HD and it does mean the HD box as well, which of course costs more.

    I am still feeling sad about Chocolate.  It will be such a hard Christmas for her family.

    Hope you all have a Wonderful Christmas with your families.   I hope everyone is feeling well.

    Karen

  • Kellke
    Kellke Member Posts: 424
    edited December 2010

      I can't think straight to post much but wanted to say I am sad about chocolate too.  While we were away I read several sad posts and struggled with what to say so I didn't say anything. 

    It has been a sad month but the nice thing about having an eight year old at home is that you have to set all the sadness aside and figure out how to make Christmas happy for her and the rest of us too.

    Love to you all,  Kelly

  • hunkydory
    hunkydory Member Posts: 1,241
    edited December 2010

    Merry Xmas to all.  Leggy, hope you are enjoying your new HD flatscreen.  We have dish which provides quite a few HD channels.  It is so nice though and love having the DVR ablility.  We have one box which will work for two TV's.  I woke up really sore this morning.  Not sure why but maybe just the way I slept.  I also have been having to put this cream on my face for some pre-cancer spots.  It has really made a mess of my face, scabs, etc.  It is working though so that is good.  Kelly, hope your daughter enjoys today.  It is aways a lot more fun with children at home.  I probably will be off work one more week.  Anyway, just wanted to drop in and wish you all a great day.  Hope you can enjoy with family and or friends.  Hugs, HD

  • LeggyJ
    LeggyJ Member Posts: 726
    edited December 2010

    Hope everyone had a great Christmas. Yes I love my HD, what a difference, I'm still figuring out the new remote, but I have DirectTV and it's still similar enough to the old one. Don't worry about your face, just do what I do and walk away from the mirror.  Went to a new doctor at the Chronic Pain Dept. and she said there really isn't anything new to help me with my neuropathy.  The alternative stuff, just won't work on the bottoms of my feet.  The only thing right now, that will help are the opiates, and as much as I hate the idea, I'm back on Vicodin.  She also said there are new trials, on something like a pacemaker they insert in your tummy, that blocks the pain, but there's no telling if it will work, and for how long. I really liked her and she gave me some interesting info. on constipation...She said take magnesium, and it's as simple as that.  I've heard about it, but she swears by it so, at least I'll be pooping, and on that note..

    Love to you all 

  • Bonnie02
    Bonnie02 Member Posts: 193
    edited December 2010

    Hi everyone,

    I just got home tonight from Alberta spending time with my kids and all for Christmas. We had a good time but found the drive just to long. I thought I would come on here and see how everyone is doing and the first thing I saw was that chocolate had passed away, I just felt like crying because we had been talking quite a bit on facebook. I hate this terrible disease, I wish someone would come up with a cure before someone else passes from it.  When I heard about choc. it brought back all the memories of my daughters death. Oh crap!!!!!! don't know what to say right now just feel like crying, I feel so sorry for her family, it just hurts so bad. 

    Well better go as I am not making anyone else feel any better but thanks for listening.

    Bonnie

  • LeggyJ
    LeggyJ Member Posts: 726
    edited December 2010

    We understand Bonnie, this awful shit just keeps coming, for all of us.  I just wish I could have met Choc.  She will be missed.

  • LeggyJ
    LeggyJ Member Posts: 726
    edited January 2011

    HAPPY NEW YEAR!

  • hunkydory
    hunkydory Member Posts: 1,241
    edited January 2011

    Happy New Year to all of you!  Can't say it twas a joyful year, but it is over.  I hope this next year can bring less pain, surgeries, and problems to all!  Hugs, HD

  • Bonnie02
    Bonnie02 Member Posts: 193
    edited January 2011

    HAPPY NEW YEAR!!!!

  • KKing
    KKing Member Posts: 425
    edited January 2011

    HAPPY NEW YEAR EVERYONE.

    CAN YOU BELIEVE 2011, WELL WE HAVE ALL COME THIS FAR.

    GOD BLESS CHOCOLATE.

  • LeggyJ
    LeggyJ Member Posts: 726
    edited January 2011

    Yep, it's one day at a time!  Shit tomorrow I could get run over by a car.  Live each day like it's your last...OK we can have bad days, but today it was sunny and even got warm in the sun, and I got a new CD, from Amazon.com, I'm rock in!!!

    DITTO

    GOD BLESS CHOCOLATE!!!

  • Kellke
    Kellke Member Posts: 424
    edited January 2011

      This has been a hard holiday.  My mother died without any warning early in December and the shock has been stunning to my family.  We keep logically saying that we were lucky to have such a great mom for so long but that doesn't make it easier when you want to call and tell her something or think of our dad alone at home.  I am tired of crying too.

      I have finally rescheduled my scans and dr appts for this and next week.  I really hope they are stable as I don't think my dad or sisters can take any more sad stuff right now.  But... I don't think they will be.        :(       Feeling very pessimistic just now.

    Kelly

  • hunkydory
    hunkydory Member Posts: 1,241
    edited January 2011

    Kelly, so sorry to hear the news of your mom.  I just don't know what to say.  I had a rough holiday too but only because I developed some problems after last surgery.  Nothing like yours though!!!!!  Nothing serious, just painful and now on a lot of antibiotics.  I miss Chocolate too.  Nobody is posting as much, I guess it hurts sometimes.  It does me.  We need some good news.....and I am praying for good stable scans from you.  Leggy, you are right with your analogy about living life....just hard to follow sometimes eh?  Nothing from Wyoming?  Karen, Bonnnie, just shouting out Hi from the Hunkster!  I am back to work after 3 weeks off after surgery.  Hard to put myself in motion.  Still get tired easily.  Also, I haven't met my new oncologist yet.  No appt scheduled.  I go to my blood doctor on Friday.  Had some issues with bloodwork on my pre-op so will see what else he has to say.  Just checking in....Hugs...HD

  • LeggyJ
    LeggyJ Member Posts: 726
    edited January 2011

    Oh man, this year had better be a good year for all of us, since last year, just wasn't up to snuff.  Kelly I'm so sorry to hear about you mom passing, you got a lot on your plate, so please take care of yourself.  Hunker down HunkyD!!!  Your a tough cookie, after all your surgeries, I sure hope you get this over with soon. 

    I'm having to be my own advocate again, with the hospital paperwork mill...Geewhiz there slow about getting medical records for the insurance co.  I wish I had driven the two hour round trip drive to get it myself, since I've been waiting for 2 months, and then they told the insurance co., Oh we didn't receive the payments for my records from the insurance co., so they had to cut another check.  Talk about slow mail.  I don't know who dropped the ball, but if I hadn't followed up I'd still be waiting next year, in 2012!!!  It doesn't help when your in pain, and really want to rip into someone, but know it will only hurt me. 

    Where is Wyoming????  Come on girls we miss you.

  • KKing
    KKing Member Posts: 425
    edited January 2011

    So sorry to hear about your mom Kelly.  I do hope your scans are all good, your family needs a break right now.  Best wishes.

    HunkyD..sorry to hear you were having a hard time.  Hope all is well with your follow up.

    LeggyJ...You too,  it must be awful having the constant pain, I hope it all gets sorted.

    Yes, I was thinking about Wyoming as well,  she hasn't been here in a while, maybe she is having a good holiday and hasn't had time. 

    Well I am back to work again.  Doc prescribed Actonel to try to offset the osteopenia caused by the arimidex.  When I see the onc in July I will have to discuss the longterm about this.  Knowing I have a few more years of the arimidex not sure what state my bones will be in by then.  I know you are all going through much more than me but I needed to write this down just to let it go.   I think this whole thing willl never end.   I am babbling.

    Take care my Junies.

  • LeggyJ
    LeggyJ Member Posts: 726
    edited January 2011

    Hi ladies, I'm still fighting with the long term disability insurance co. and my hospital, trying to get my flipping medical records, so it can all be processed.  One is blaming the other and I'm still waiting, for information and my health insurance, with my soon to be former employer, ends at the end of the month....The stress is killing me and no on is helping, and I have to do all the work and put the pressure on.  I was trying to handle all this in a nice way, but sometimes you have to be a bit*h.  In CA the health care system sucks now, big time.  Hosptial's are full of people here, who are here illegally. 

    Thanks for letting me vent!!!!

  • Kellke
    Kellke Member Posts: 424
    edited January 2011

     Leggy,  I am sorry you have to deal with that.  It seems like some days our burdens are endless.

    I'll keep my fingers crossed for you,   Kelly

  • SanDeeLou
    SanDeeLou Member Posts: 96
    edited January 2011

    Hi ladies.

    Kelly, so sorry to hear about your mother.  Hope everyone had happy holidays this past year.

    I have a question if anyone can help.  My CEA tumore marker is up to 11.?  Had a PET scan this past Monday and see my onc tomorrow.  She wants my TM to star under 6, so is 11.? that hig or is she overcautious (which is fine with me).

    Thanks

    sandy

  • KKing
    KKing Member Posts: 425
    edited January 2011

    SanDeeLou

    Sorry I don't know anything about this.  It isn't something they do here. Good luck with your onc tomorrow.  Maybe someone else would know.

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