Chemo starting in December 2010

Options
1141517192043

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2010

    I'm spending New Year's Eve in the hospital.  I was diagnosed with 2 blood clots in my left arm, the port side last Tuesday and have been receiving blood thinning shots in the belly everyday since then.  The only way for the nurses can take my blood pressure is on my thigh above the knee, because they can't use the arm with the blood clots and they can't use the arm with the lymph nodes that have been removed.  Yesterday, I had my second AC treatment which was uneventful.  My labs came back great.  My WBC was higher than when I started chemo.  After the treatment I had an appointment with my GP doc.  Since tuesday my pressure has been rising to the point yesterday it was 215/120.  GP doubled my blood pressure medicine and slapped me in the hospital.  I had the worst headache I think that I have ever had and blurred vision.  I was relieved to be admitted as I didn't feel like starting the new year with a stroke.  Anyone else have blood pressure issues.  Before cancer both my blood pressure numbers were always under 100.

  • TonLee
    TonLee Member Posts: 2,626
    edited December 2010

    I'm so sorry Sunflower.  I hope 2011 is better for you.

    ((HUGS))

  • TonLee
    TonLee Member Posts: 2,626
    edited December 2010

    Paso,

    My blood pressure spikes too...don't know why...headaches and blurred vision...I thought maybe its the Herceptin??

    But you're not taking that.....hmmmm

  • gradetchr
    gradetchr Member Posts: 7
    edited January 2011

    Sunflower: I'm so sorry that you are having to deal with that on top of just trying to be well. 

     I haven't written much but I tried to go back and read this board from the beginning so I could know who everyone was and what everyone was going through. I'm up to about page 6.  Tonight I just logged on to say Happy New Year to everyone and to thank those of you who had treatments early in the month for your encouraging words. When I read your post, I had to let you know that I'll be praying for you that everything goes well!

    To all of my other December sisters, I'm sorry I haven't written since my 1st treatment (12/13).  I was knocked down for the first three days.  When I felt better, I had to hurry up and do Christmas shopping and everything else to get ready for our anniversary (12/21) and Christmas.  My second treatment is next week.  My hair started falling out this week.  (I didn't get it cut.) Fortunately I have my wig.

     God bless you all!!!

    Lisa

  • jtbsmom
    jtbsmom Member Posts: 19
    edited January 2011

    the hair cut is good(very short #2 cut)- no traumatic showers.  though it was fun to "freak out" my teens (boys) by pulling out clumps of hairTongue out.

    Went back to work yesterday and it was nice. 

    Happy New Year to everyone!!! 

  • msjag
    msjag Member Posts: 416
    edited January 2011

    Hello everyone.. new side effect, wondering if anyone has experienced this,  I am developing a rash/acne on my head, (its been shaved for a week and 1/2.  I thought I read somewhere this could happen, head is so sore.  Anyone have this?  any solutions to treatment, making head less sensitive?  hoping I don't actually have to go see onc again this week about this..its the first week I don't have an appt in months!!

    Happy New Year!!

  • bambi380
    bambi380 Member Posts: 44
    edited January 2011

    Happy New Year everyone! I am feeling blessed with few side effects and a wonderful husband. My next infusion is the 10th. *WoW* It is a long time until May 1.

     Lifting all of you up in my prayers!

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited January 2011

    msjag, I shaved my head about a week ago. I also have some little sore red bumps. Hubby said it's from the hair clippers. I shave his head all the time, and he gets little red bumps too. I bet that's what it is. I find that using baby shampoo helps!

    Hope all is well!

  • karebear76
    karebear76 Member Posts: 288
    edited January 2011

    I just found this board. I started chemo Dec 22nd. I am getting ready for my 2nd treatment next week. I have buzzed my head in prep for the hair to start falling out. 

  • karebear76
    karebear76 Member Posts: 288
    edited January 2011

    I just read back a bit.

    I had blurry vision the first week after chemo but it has since calmed down. I am getting A/C. Hopefully it is just a temp thing.

    My head is also super sensitive. My kids love to rub my head but it hurts so they can only get one rub each!! Laughing

    I was told that when your hair is getting ready to fall out that it can itch or even hurt so I am chalking it up to that. Frown 

  • LisaMomOfFour
    LisaMomOfFour Member Posts: 465
    edited January 2011

    Sunflower71 -- I am so sorry you are dealing with all of that on top of breast cancer.  That's a raw deal that no one deserves.    Have you considered calling the American Cancer Society for some help with insurance guidance?  They seem to have a lot of resources to help. 

    I'm on day 3 from my first round of A/C.  I had my neulasta shot the same day, since the clinic was closed Friday for New Years Eve.  Kind of waiting for the other shoe to drop.  So far the SEs are minimal... but it's still early so I'm on the alert.  The nausea is under control from the meds, my appetite is way up from the steriods I'm sure. What day did most of you on A/C get hit with SEs? 

    Getting myself mentally prepared to go get my hair buzzed off next Saturday... we have a salon in the area that specializes in wigs, will do the buzz in their salon (less cleanup for me!) and then trim the wig right then and there. My kids are old enough to understand the hair loss (ages 9-13) but also still be bothered by it.    I hope I can tolerate the wig, as I'll be going into my office every day that I can and would prefer to keep as low a profile as possible. 

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited January 2011

    I too have problems with fuzzy vision. especially first week after treatment. Also, i find it hard to wear my contacts for more than a few hours so i wear my glasses alot. again, especially the first week. My head itched like crazy when my hair started to fall out, and it still does, cause now the nubs that are left are falling out as well

  • sunflower71
    sunflower71 Member Posts: 130
    edited January 2011

     Thanks ladies for the support.  I am going to call the cancer center on Monday and deal with my limbo status.  Hopefully my cobra comes back quickly.

     Feeling much better now and am mentally preparing for the 1/2 marathon next weekend.  I am hoping that I can finish, my body has changed so much in such little time.  Fingers crossed.

     Pasofino- I hope that you are doing better and out of the hospital quickly.  Did they give you a reason on why you developed clots after the port?  They can be very scary.  I had one a few years back after a very minor surgery.  Turns out I have a factor V leiden mutation which caused it and now take blood thinners. 

    MsJag- I had that and started to use head and shoulders and it cleared it up for me.  I read about that tip somewhere on these boards. 

  • joystars
    joystars Member Posts: 95
    edited January 2011
    Wondering if any of my December chemo-sisters is under FEC treatment like me, anyone???

    Day 10 post round 1 of chemo: So far very minimal SE, two or three days ago I noticed some tiny white spots (acne like) on my face that come and go during the day. Also... damn hot flashes! and I'm not even on Tamoxifen yet :/
    Hair status: about the same. No big changes. Must be me being the paranoid, but I do feel it less thick and "weird" when I take showers. Plus, I'm on my 5th week post partum, so loosing hair is part of the deal too.... niceee! Is the end coming soon?!

    Karebear, welcome to the wagon! Hope you find the support, answers and the ears you need to vent out here :)
    jtbsmom, gladto hear the hair buzz went fine :)


  • Robbisis
    Robbisis Member Posts: 1
    edited January 2011

    Hello all. Diagnosed November 11, lumpectomy the 19th, re excision Dec 1st. Tumor was invasive ductal 1.8, E/P+ but Her2Nu-    First round of Taxotere and Cytoxan was on the 23rd. Felt worse than I expected..no nausea (how could I with all he anti nauseals they had me on!) But REALLY bad bone and muscle aches. WBC dropped this week to 1, so I am assuming Neulasta will be in the cards next time. That is what I am freaking out about. I hear that a lot of people get very achy/sore from that, but I had it without that. Anyone have similar experience?

    Sorry you are all here, but glad we can be here for each other

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited January 2011

    robbisis, yes you do get achey from the neulasta, but for me it lasts about 2 days. my counts didn't drop at all when i had it from my first round of AC. we will see on tuesday if it did the same. I feel 2 days of achyness (sp?) is totally worth being able to go out with friends, go to the movies, etc without having to wear a mask or superfreak about germs. you still gotta be careful, but it helps tremendously in my opinion!

    well wishes!!

  • karebear76
    karebear76 Member Posts: 288
    edited January 2011

    I also got the neulasta shot. I had a little bit of achiness in my one leg/knee. It lasted a day or 2 but really wasn't bad at all. 

  • Rocky604
    Rocky604 Member Posts: 5
    edited January 2011

    Joystars, I am also on FEC - 3 rounds every 3 wks, to be followed with 3 rounds of Docetaxel (taxotere) every 3 wks.  First round FEC was Dec. 9th and very few SE's so far, just some nausea Day 1 & 2 which were kept in check by the meds provided, and a couple of scary nights of being woken up by a strong burning sensation in my chest that lasted about 15-20 min. each time.  I had very flushed cheeks around Day 4 for a few days, but no fever.  I have been fortunate to be feeling quite well for most of the past 3 weeks and was able to enjoy the Holidays with family and friends.  Hair loss started around Day 14 for me.

    My second chemo round was scheduled for Dec. 30 but WBC was too low so it has been postponed for Jan. 7 and ONC will be starting me on Neupogen then, instead of later for the Docetaxel rounds as had been planned.  I'm super nervous about doing the Neopogen injections either myself or by hubby, but maybe once I've been given the instructions by the nurse it won't be as bad as I think (hoping).

    Hope you're getting as much rest as possible with new baby and all.  Take care!

  • msjag
    msjag Member Posts: 416
    edited January 2011

    thanks for the great suggestions...I had some aloe here for sunburn and put some on my head! (my niece who is a haridresser said you have to treat it like razor burn!) and it felt so much better. I also used the head and shoulders on my stubblies and it stopped the itching also. not sure which did it, but its done!!! 

     I was wondering what supplements everyone is taking? I read on another forum here (not sure which one, I get so lost sometimes!) about taking acetyl l-carnatine to ward off neuropathy, besides the ice stuff, and I have been taking it..guess there is a trial going on with this being given in IV (again if I find where I read it on here I will post it).  I asked my NP and she said as long as I'm not overdosing on vitamins/supplements I could try it.  I found a multvitam for woman at walmart (their brand )that has so many things in it that I don't take extra d3 (it has it) or b complex(has alot, just iodine missing, gonna ask about that).  Geez, I feel like I need to  become a pharmacist/herbalist to get through this!!

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited January 2011

    the D3 is good for you. i asked my onc about it at my last treatment. the D3 is good for the bones, and it is good for breast health. my grandmother who also had BC told me about taking it at the start of treatment so that's why i asked.

    now. i don't take it the day before, of or day after treatment. nobody said to do that, i just do that so that it my own head, it  doesn't interfere with the chemo. again, that's just what i do.

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited January 2011

    ugh.... on my way to walgreens, to pick up my meds for next week.... going to be an expensive day today!

  • ninap7
    ninap7 Member Posts: 50
    edited January 2011

    hello ladies, well i am back for my second infusion on thursday - i had a wicked headache and i threw up twice - i will not drink 10 glasses of water in 40 minutes - what should i eat for breakfast and lunch - last time i had 2 scrambled eggs and a piece of toast for breakfast and during the infusion i had grilled chicken on a bed of lettuce and did not eat after that cuz i felt horrible

  • spartina
    spartina Member Posts: 68
    edited January 2011

    Hello all,

    My third round is tomorrow afternoon.  Wow. It's already been a month.  

    I have been feeling relatively good these last few days and the thought of going tomorrow catches in my gut.  But it is what needs to be done.  

    I am slowly getting better at reaching out and asking for help and that is a good thing.  My supportive network of friends is becoming tighter and stronger and I feel the boost that they give in every cell.  All of you in this group have been a wellspring of support, information and strength and for that I am deeply grateful.    

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited January 2011

    spartina, i will be thinking about you tomorrow! my 3rd infusion is tuesday. the thought also churns my stomach a little too....

  • karebear76
    karebear76 Member Posts: 288
    edited January 2011

    I am glad I am not the only one who gets that feeling when approaching another infusion. My 2nd one is Thurs and I am already feeling icky about it. I know that God will get me through it but it is not something I look forward to. Or the cost of the meds either!!! Embed is horribly expensive.

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited January 2011

    oh, and i cannot look at a turkey wrap without wanting to vomit! I ate a turkey wrap at the hospital during my first infusion, and now when i think about one, i want to barf.

    I'm trying to think about what to eat during infusion, that won't make me have that feeling later.

    the second infusion i ate tater tots, hmm, probably not the best thing but it sounded good at the time

    any thoughts? the hospital i go to has a wonderful chef/cook there, he used to be a chef at one of the casinos in nevada, so the food is great, just eating during infusion is fine, till like a few days later when i think about the food i ate, then it makes me sick to my stomach

  • Maureen813
    Maureen813 Member Posts: 2,893
    edited January 2011

    Hi all,  I'm in the Nov. 2010 group and don't want to infringe, just offer advice.  I eat tea, toast with peanut butter and a banana for breakfast.  Lunch on chemo day is usually a smoothy with whey protein added to it and cocoa flavored almonds.  Dinner is light first two days after A/C, due to no appetite and I eat with plastic fork/knife because of the metal taste.  Other bit of advice, gargle with baking soda 4X per day to keep the mouth sores at bay.

    Maureen

  • karebear76
    karebear76 Member Posts: 288
    edited January 2011
    Can you get the mouth sores with every treatment? I am STILL trying to get rid of them from the first treatment!!Cry
  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited January 2011

    thank you maureen! I have been religious with the baking soda rinsing. I have gotten maybe a couple mouth sores, but they havent been anything that prevents me from eating.

    I think i will try the smoothie idea tuesday. thanks so much!

  • msjag
    msjag Member Posts: 416
    edited January 2011

    I also ate toast and peanut butter before both infusions, then ate oatmeal, bagels, fruitcocktail, and lemon popsicles for the next 3 days.   I think  the chewing on ice during infusions has helped me and I am using the biotene mouth wash along with salt/water gargles.

    Spartina, hdangel, and Kerri, hope your next tx's go well.  It feels like it is taking forever for this chemo journey  to be over, yet it feels like each treatment comes so quickly. We just start feeling better and bam...I admire all of you who are having DD, I get anxious and my tx are 1 every 3 weeks.   Back to work tomorrow, hopefull I make it for the next two weeks before my next tx.  I carry the insurance, so I have to work as much as possible.   Never had anxiety before all of this, wonder if the chemo does that.  Wishing everyone a good week.

Categories