Liver Mets - need encouragement

2»

Comments

  • jneumann
    jneumann Member Posts: 67
    edited December 2010

    Thanks stitchyphish for the encouragement, I have morphine that really helps curb the pain but I am needing it more frequently.  Saw my onc about 2 weeks ago and he said if the pain got worse we would have to start back on chemo, but if I can tolerate the pain we can wait until after the holidays.  He said it is what he calls the quality of life to let me have the holidays without chemo.  I have been off chemo for 4 months now and just started on the sister to tamoxofin, I forget how to spell it.  Ibuprofen helps take the edge off but really doesn't do much.  I really don't want to go on chemo until after the holidays because I have so much energy but was really just curious whether the lymph nodes with cancer can cause pain.  They must since I have 3 behind my stomach and one in my chest and that is exactly where the pain is. 

     Maybe I just needed to vent, I have been trying not to let on to my family.  They all know I have to go back on chemo after the holidays so I don't want them to think I may have to go back on sooner and not feel well for the holidays.

     There is always hope and this site to help remind me of all the hope there is.  I am just curious if there is anyone else that Xeloda didn't work too well for and what they went on after that.  I know there has to be something but I cannot find it in this website.  So far my onc has followed everything this website has talked about so I feel good about what protical I am on.

     Thanks for letting me vent, I would appreciate anyone's input.

    · Share on FacebookShare on Twitter
  • stitchyphish
    stitchyphish Member Posts: 50
    edited December 2010

    Okay, I know you didn't specifically ask for opinions, but you did ask for input.  I gave this some thought over yoga today :-)

    If you are in so much pain that you need morphine, is chemo really going to negatively impact your quality of life over the holidays?  I admit, I'm not really big on the holidays and I don't have children, but I would think that the heady opiate haze combined with really bad pain wouldn't be much of an improvement over chemo side effects.

    Remember to take care of you!  Do you have access to a hospital that runs clinical trials?  I'm in this one, but it seems to be working best on BRCA mutation carriers.

    http://clinicaltrialsfeeds.org/clinical-trials/show/NCT01009788 

    · Share on FacebookShare on Twitter
  • betsye3450
    betsye3450 Member Posts: 1
    edited December 2010

    I too have liver mets which was diagnosed a year and a half after my breast cancer in 2007. I am stage IV also having nine tumors in both lobes of my liver. I was so scared in the beginning and read everything I could find on the internet relating to my diagnosis and prognosis. Decided that each person is different and reacts differently to treatments. I have changed my attitude and am determined that I will fight this all the way and never give up my hope. I had six months of chemotherapy and have been taking Herceptin for over a year now. My Pet Scan after my chemo showed that all my tumors had shrunk and were very tiny. This was great news and put me into remission! Yeah! Your situation sounds very close to what I am going through. I just want you to know. Keep your attitude positive(even when sometimes) thats very hard to do. Trust in your Doctors and go for any treatment options you have opend to you. We will survive this and beat all these negative statistics. I am proud of you and hope that perhaps we can build a great friendship and allience between us to help each together througout our battles and our struggles. All my prayers are being lifted up for your well being. God Bless You!

                                                                      Betsye

    · Share on FacebookShare on Twitter
  • jneumann
    jneumann Member Posts: 67
    edited December 2010

    Hi, I am always looking for input.  The pain isn't too bad and the morphine is only 2mg and my onc said I can take 2 or 3 per day and/or I can take 1 or 2 each time.  So I think I am handling the pain rather well and luckily am not in a fog. 

    The worstest part for me in this whole thing is the waiting!  Waiting for test results, waiting to take scans, waiting to see if hormone therapy works, waiitng to see if chemo works, waiting to see how long of a break from chemo my body needs, waiting to see how much pain I can tolerate in my back, liver and legs before we start chemo again.  Wait, wait, wait!  I hate it and not working gives me nothing to do to distract myself.  I have taken up sewing again so hopefully that will help.

    I need to walk!  I wish I had someone to walk with!  I have severe arthritis in my knees and got orthovisc injections (it's a lubricant much like your own) in my knees which has really helped but I need to walk and I have to admit I am lazy.  Can someone put a fire under me?

    · Share on FacebookShare on Twitter

Categories