Please share tips, big and small, that help you.
What do you find that works for you? To lift your mood, to feel better about yourself, cope mentally, lotions you use for scars/skin issues, supplements, diet, how you deal with out of control chemo curl. etc. Right now my private little sessions in my bedroom with Netflix workouts on my computer are helping. Please share, ladies.
Comments
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When I was going through treatment, I spent a lot of time with my TV families -- the Waltons, the Ingalls family out on the prairie, the "Touched by an Angel" group. They were all very positive and uplifting.
Funny movies are good, too. And hot chocolate (with whipped cream.)
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BCO since Dx...anti-depressants since after finishing Tx....working during Tx gave me a sense of normalcy...
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watching and listening to my grandchildren. they are 12 and 13.
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Hi MissBianca, I try to walk every day. Even during chemo when a 1/4 mile walk around the block took me a half-hour, it was worth it. It lifted my spirits to breathe in the air and feel my muscles moving and hear birds singing and children laughing. To feel the life all around me and in me. I also do yoga (gentle yoga for BC survivors) which puts me in touch with my body and my breathing and feeling the earth supporting me as I give it my weight. I know that last part sounds goofy but it's very powerful to feel that elemental support.
Wishing you all the best in 2011, sending you some cyber {{{hugs}}} they always help :-)
(ps I embrace the chemo curls and spike up my hair like Guy Fieri on the food network... cheers me up every time I pass a mirror, or see people's reactions to my 'do (I'm 51 and gray LOL))
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Hugging my puppy Tank cheers me up! He's so funny, I have to laugh at him!
Bren
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Blogging. I started a blog right after diagnosis. I don't have any photos or my name on it so no one knows it's me. I have told no one about my blog so they can't find it. It is out there and I have some readers. I write everything I feel - even the things I can't say to anyone. It makes me feel better to just get it out. I am early on in my situation - only diagnosed a few weeks ago. In time, this may not cut it and I will need to find other things that make me feel better. I know it's a long, hard road and this is the easy part - before treatment. It does help me to get my feelings out no matter what they are.
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Smiles this morning from you guys. Had to google Guy Fieri LOL You are rockin' it! I'll check out your blog, mdg. Great ideas.
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I am doing chemo before surgery so I worked up through this week (3/4 of the way through chemo) and it was huge for me in terms of keeping my spirits up and feeling as "normal" as one can feel being bald and going through chemo. I am out on diability starting Monday through surgery so won't be working again until March sometime.
I go to a naturpath to help deal with chemo side effects and that makes me feel empowered vs. just surviving through treatment.
I have two new kittens (adopted them in June of this year) - they are awesome and make me laugh a lot. They also love to snuggle when I am in bed.
I also blog and that has been hugely therapeutic for me as well.
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I needed antidepressants during treatment. Got off them when I was done. My DH, my two precious black lab girls, and now a grandbaby on the way and my whole family restored back to me after years of being pulled apart because of addiction with 2 of my sons. Actually, I can't ask for more, except to have a healthy strong grandson in March. God hs been so good to me, so I guess my faith has been one of the biggest helps.
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I';ve been using Palmers cocoa butter on my mastec. scar right before bed and it has really helped. (I also use it on my hands overnight to protect from so much winter dryness.)
Hi Miss Bianca - glad you started this thread! I really think exercise is the best coping mechanism. I have to FORCE myself to do the Nordic Track every day, but once I start I zone out & usually end up doing more than 1/2 hour
Reduces stress plus one of the oncs I saw while I was choosing a practice said exercise can cut recurrence risk dramatically (like 50%) and I've read that elsewhere since. Anything from walking to yoga to aerobics as long as you get the blood flowing for 30 minutes.
(Also, if you haven't already, get tested for your Vitamin D levels.)
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Talking to the other people who are getting chemo around me. Seeing how well they are coping with their cancer gives me strength. One woman finished her final treatment and we all clapped. When we leave, we say goodbye and wish each other the best.
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You guys are so amazing to be able to work through chemo. TC layed me out flat. Aren't pets amazing? Got my little snuggle pup under the covers right now. His name is Pablo,but he has a little song that goes "Chiquito Perrito Pablito Juancito Gonzalez Chihuahua Taquito!" Thanks for the tip on Palmer's Cocoa Butter. I forgot all about that product. I used to slather that all over my tummy when I got pregnant and got no stretch marks. The stats on exercise are really encouraging. Mary, beautiful to hear the restoration in your life. Prayer life definitely strengthens me. When I felt bewildered by God during dx and chemo, I used to watch music videos of Leonard Cohen's Hallelujah, especially kd lang's version. It was the lyric "it's a broken hallelujah" that brought me comfort. Also, the song "Only Hope" by Switchfoot (original and Mandy Moore cover) I played over and over.
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The power of music over you. I too love kd lang's version of Hallelujah, have to look for her CD of that. Karen
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I alway make time for a slice of really good pie. The only good thing about chemo is that I eat pie and it goes right thru me..LOL..It sure is good for the mind and soul. Really good pie.
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Bowls of berries, thick whipped cream, with wedges of dark chocolate to go with it.
Reading study results on my own so I felt better equipped when meeting with my doctors.
Smoothies and gatorade during chemo.
Supplements for strength and comfort. Sam -e worked for quite a while to stabilize mood. Glucosamine with Chondroitin for aching joints. Fish oil capsules (odorless kind) for heart protection and mood.
Nioxin shampoos and scalp treatment. Hair was supposed to be gone in 10 days with TC tx. Held on to most of my hair till 4th infusion.
Requested second chance with neoadjuvant hormone therapy (6 months lupron/femara) when chemo didn't shrink lump sufficiently for lumpectomy. It worked. Neoadjuvant hormone therapy is common in Europe, not in States.
Focusing on gratitude for what I had left in my life.
A community that prayed for me. Nearly fearless going into surgery. I felt carried. A songbird followed my car with loud calls at 4am down a long street driving to the hospital.
Writing songs, journal entries, emails, and a blog in moments of strength.
My 7 year old boy with autism, who stayed in bed with me with all his stuffed animals all weekend after surgery. He is a source of constant joy.
Cans of deluxe nuts and a box of raisins to keep in my room.
My secret stash of dark chocolate.
A laptop. It has opened up another world for me because I don't have the energy to sit up for long periods.
A recliner.
A magic bullet miniblender (blends a cup at a time) for no hassle smoothies with no cleanup.
100 % Pure aloe vera gel (from health store) and Curel Ultra Healing Lotion for skin during rads.
Herbal teas for a touchy stomach.
Green tea to make me feel proactive. Lots of studies say it reduces risk.
Humor, wherever I can find it.
BCO!
When Sam e no longer worked and I crashed, probably something to do with tamoxifen, Effexor XR. It's finally working!
Netflix. So cheap, can watch on my laptop, watch whatever halfway, and later if too much for my attention span.
Sought second and third opinions. First surgeon was ready to operate with no neoadjuvant tx. Would have been a terrible, botched job.
Memorized and prayed psalm 41 throughout day and claimed it as my own.
Worked on forgiveness, especially of my father.
Paid attention to red flags. First surgeon didn't know basic risk factors that I asked him about that later I read about in the booklet on BC he himself gave me. Second surgeon whipped out a measuring tape to determine tumor size. He trusted that over ultrasound. Not kidding.
Continued my relationship with God, even though I felt forsaken.
Used my son's stuffed seal pup to elevate my arm with pillows. Perfect fit.
Use a waterpik shower head to massage my arm when the skin was way too painful and sensitive to touch.
Used and still use Burt's Bees Soothingly Sensitive Aloe & Buttermilk Body Lotion on skin of arm for massage when I could tolerate touch (it absorbs well, doesn't pull at skin, and smells great).
Watched Disney movies with son.
Went through photos. Scanned some old ones and sent them to relatives.
Be by myself when I need to.
Sleep like a hybernating bear when I need to.
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Realizing that I would most likely be just fine, and taking that view. That way, I was able to see myself as a healthy woman who had to get hammered, not as a "sick person".
Getting out and walking or cycling every single day. Keeping to a routine of weights/crunches. I am back to skiing as obvious from my picture.
My friends.
Doing as many "normal things" as I could.
Fresh flowers, scented candles, bath oils. Tea in the afternoon with something tasty.
Getting dressed with make up every single day.
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My dear beloved boyfriend - who has been there from the beginning, through everything, with me, and is still here, still patient, still loving, still helpful in every way he can.
My two dogs. My two very loving dogs. My two furbabies. I don't know what I would do without them.
Cocoa butter with elastin and collagen - great for my poor skin when the PS stuffed in implants that were bigger than my original breasts.
Chocolate. I know, sweets are supposed to be bad for us. But I am not sure how much I would like to live in a world where I wouldn't be able to have my chocolate.
Being finally able to "let go" and realize that the sky won't fall if I don't clean the house when I don't feel good, or if I don't get out of my pj's all day. Or if I do nothing else but read or watch tv and snooze.
My online games - World of Warcraft and Guild Wars. Being able to immerse myself in a fantasy world and forget all the bad stuff going on in this one. I wasn't a bald, puffy-cheeked woman, with bone pain and fatigue, I was a pretty elf lady defeating dragons and flying over beautiful landscapes!
My sculptures - some of you know that I make one of a kind figurines - and my jewelry making.
My computer graphics.
Taking a big broom and sweeping out of my life everybody I thought didn't respond right to my diagnostic. I know, sounds harsh and mean, but I decided to not play the fake smile game with anyone. I don't want in my life people that don't deserve me. ha!Here are my two furbabies. No, I didn't "set them up", that is how they cuddle all the time.
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MissBiance --3 meals a day, 8 glass of water a day/ and a good nights sleep. Nap if you feel like it. check in here often and let us know how you are doing. Also, British Mystery programs. loved those.
Blessings.
Lizzie
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On a cold or rainy day a walk in a greenhouse or arboretum is good.
Go to the Humane Society and play with the kittens.
Rent some time in a local motel jacuzzi and invite a friend.
Drop into a care center and visit with the residents (then go home and count your blessings.)
All of the above are guaranteed mood-elevators for me.
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Remembering your suggestions throughout the day! It's keeping me moving in a positive direction.
Seeking hope wherever I can find it, in powerful words, spiritual faith, inspirational stories.
A couple of favorites:
"You can only come to the morning through the shadows." J. R. R. Tolkien
"Still round the corner there may wait, A new road or a secret gate." J. R. R. Tolkien
'Hope is the thing with feathers That perches in the soul And sings the tune without the words And never stops at all." Emily Dickenson
I love your contributions! Thanks, Lizzie for the encouragement. I am in first and second gear these days, and I roll into reverse less and less. Love furbabies, Day. Thanks for reminding me about jacuzzis, Anjanita! My aching bones would like that.
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If it laughs like a hyena, bites like a hyena, and travels in a hyena pack...chances are, it's a hyena. If you are not a hyena, don't drink from the same watering hole.
Reach for the heavens, and reach out to those that carry the love and light of God in their hearts. That is the best medicine for depression I have found.
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My husband and I adopted a NO DRAMA policy upon my diagnosis. We did not allow anyone to vampire us with their drama, negative energy or bad attitude. I worked throughout chemo, walked my dog every day, drank tons of water and rested when I needed to. I felt that walking my dog was an important "therapy" for me. Even if I didn't feel like walking, I knew he needed a walk, too. I always felt better when I got home. I did not journal per se but I did keep track of how I was feeling during chemo and rads. When I felt sad/down about the SEs, treatments, I made list of what I hated about BC from head to toe. It helped. I also made a list of blessings and things to be thankful for. Another list for the nice things people did for me...flowers, food, cards, etc. Retail therapy helps, too! Gina
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Hi Today is 1st day here and this is my 1st post. I have been alone alot of years with only a few left in family in other states. Beings I am also a Hurricane Katrina Survivor,(among others), I have had to learn to find support in other places. Online help is a huge help to me, in the past and now I have to add another form, positive for BC. When I found out Jan 10 2011, I couldn't find any feelings. I went online to my FB acct and there was a post from YouTube with a link to a song "Somewhere" by Barbra Streisand. From there I went to others and was able to start to feel. I have some Cherokee in my background and I found some spiritual music by them. I took a trip into the music, not on drugs of course, but to let the music infiltrate my body. Was kinda like riding on it or in it like a wave. I have always used something of this nature to empty my mind of the troubles and fill it (evenso temporary at times) with something more feeling related to myself. I sometimes play it loud so it seems as if it enters my cells, spirit, memory, or whatever wording feels good to you, and I can replay/recall/remember it when I need it at my command.
Again, this is my 1st post, I just found out the 10th of this month and in need of tips, support, etc. myself.
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Dear Denise, I'm so sorry about this month's news. You must be reeling from shock, and it is numbing. I'm glad you have found us. You have been through so much, my husband is from LA, and when he went back to see his parents, he couldn't believe the devastation. You had to face that alone, and now this...
Music speaks to our spirits like nothing else. It is its own language.
Here is a link to Somewhere with Barbra Streisand. Such a beautiful song from West Side Story.
http://www.youtube.com/watch?v=cAu3a7CMA84
There were songs that really helped carry me in my very lowest moments.
Here is Hallelujah by Leonard Cohen sung by kd lang.
http://www.youtube.com/watch?v=P_NpxTWbovE
The other is Only Hope by Switchfoot. My favorite video is a slideshow where I could meditate on the lyrics.
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If you are going through chemo, try anything with ginger. Ginger beer, ginger cake, ginger biscuits, crystalized ginger is fantastic as you can just suck on it, put ginger in stirfrys, chocolate covered ginger. It removes nausea really really well. It also helps digestion. Hope that helps.
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