DCIS in both breasts

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valariew
valariew Member Posts: 12

Hi - I just joined.   I have had a year to remember.  DCIS low grade the first time in the left breast 1 year ago today.  I had 2 spots in the left breast at 3 oclock and 6 oclock.  Breast reduction in March.  Radiation in July.  Then a new mammogram Nov. 1, and then DCIS now in the right breast.  The radiologists were puzzled why it did not show up on the mamm from 09.  So I had DCIS high grade aggressive this time.  Had my lumpectomy 12/1.  Everyone believes the cancer was there last year but maybe it was too small to be seen then. 

Has anyone had a similar experience?  I will be doing radiation in the right breast now around Feb.  I was in shock when it happened again so soon, but its not recurrence.  New case that is so different from the left side. 

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  • Beesie
    Beesie Member Posts: 12,240
    edited December 2010

    I recall reading somewhere that about 3% of women are diagnosed with BC in both breasts simultaneously.  This is why the ACS recommends contralateral breast MRIs for anyone who's been diagnosed with BC.  Did you have an MRI when you were diagnosed a year ago?  If not, I wonder whether it might have picked up the DCIS in your right breast.  For me, and many others here, an MRI was more effective at picking up our DCIS than a mammo. 

    Given that your 2nd diagnosis is so close to your first, I'd say that your situation is equivalent to being diagnosed with BC in each breast simultaneously, since in all likelihood the DCIS was already present in your right breast a year ago.  But the other way to look at it is that for any of us diagnosed with BC one time, our risk to be diagnosed again - with a new primary BC, not a recurrence - goes up.  It's individual of course, but I was told that my risk about was double that of the average woman my age.  So this means that I'm "high risk" to be diagnosed again (my risk is around 20%, according to my oncologist).  I know that others here have been told the same thing so I think that this is true of most of us.  Most of us will dodge that bullet but unfortunately, you have not.  Crap.  But at least it's DCIS again, which is the good news part of your bad news.

    So sorry that you are facing this again! 

  • valariew
    valariew Member Posts: 12
    edited December 2010
    Hi Beesie, thank you for your post.   I guess I was the lucky 3% huh!   I do get the MRI as soon as I was diagnosed 12/09.  Nothing was found there except I did have a fibroadenoma that I had removed with the first lumpectomies.  The radiation oncologist thought when she saw my first diagnosis  of DCIS in 2 spots different areas, probably the same quadrant, that there was a lot going on in that breast and I had a high chance of it going to the left breast, she thought at least 35%.  I know if it had not happened this soon, I would have been worried about it.  It was pretty shocking when I first found out... like this year is never ending with treatment.  This time the DCIS was scattered and High Grade (3) cribform pattern.  What scared me is that there was only a 1.5mm margin from the chest wall where some of it was.  I hate the thought of radiation again.  I am still pretty soar from my rads that I finished in mid August.  Frown  But knowing that it scattered I would be stupid not to do it again. 
  • LilRascal
    LilRascal Member Posts: 13
    edited December 2010

    Hi Valariew... I am part of that 3% as well! I had a "normal" mammography in Feb. 2010 which was followed by a breast reduction in March. When I went back to plastic surgeon to get stitches out I was told that DCIS was found in both breasts... digital mammo never picked it up. I  was also told that DCIS in both breasts at the same time was extremely rare. Double mastectomy was really the only option as the biopsied tissue was not mapped so they really did not know how close to the chest wall it was. I was able to have immediate implants as I wanted to be small anyway.... boobs are so over rated! Mastectomy turned out to be the right choice as final pathology showed severe amounts of LCIS... so things were changing. I will be having surgery #5 since March for additional reconstructive surgery in Feb and hoping that is the last! Wishing you a Happy HEALTHY New Year and good luck with the radiation.

  • clare2
    clare2 Member Posts: 31
    edited December 2010

    Hi Valeriew, Your second diagonosis is my fear. KInd of a hunch. Something about your post made me simply want to say that you are in my thoughts and prayers. (I just finished my 33rd rad. on DCIS, 6mm, grade 2) This is a blast from the ether to offer you cyber support, just because... A vibe.) Did you find a good combo of Rad. skin potions for the first round? I used 4 different treatments - so let me know if scoop needed. Otherwise- wow, just a warm mental hug. I hope all goes as well as possible.

  • valariew
    valariew Member Posts: 12
    edited December 2010

    Hi Clare, I sure wasn't counting on another case so soon... it really scared me.  The fact that I had a breast reduction in March for reconstruction and to make radiation easier.  They took out  a lot of tissue and did not find any cancer cells... then opps looks like PS did not take out the right tissue.  Yes my case was visited by the tumor board for discussion... more or less why it wasnt caught when the left breast DCIS was caught.. maybe too small at the time.

    My skin did so well during radiation, no blistering.  Just a light sunburn and used the lotion everyday.  Radiation oncologist said it looks like I did not have radiation, but I do still have the soarness in the muscles especially.    Thank you for posting.

  • valariew
    valariew Member Posts: 12
    edited December 2010

    LilRascal, thank you for posting.  Our cases sound familiar.  I had the breast reduction too and had complication in healing.  Had it March and my incisions did not close til June.  It was awful.  Then did radiation and just as I was getting on with my life, WAMMO... I wonder if it will always be this way.  I know next time if there is another case, MX for me too.  How are you liking the implants... that probably would be my choice.  It sound like you made the wise choice for yourself... just remember its for survival we do any of this. 

    Happy New Year to you also and may you be HEALTHY, HAPPY AND PROSPEROUS.

    Valariew

  • LilRascal
    LilRascal Member Posts: 13
    edited January 2011

    Valariew... Wow, that was a long time to heal from surgery. I have been doing pretty well on the healing end. Also had small infection after reduction but caught it right away. MX surgery they gave me IV meds and I had no complications. As far as implants go, 1st the bad- had to have left one replaced in june (needed to be slightly bigger) and will be having a revision on same breast in Feb. due to some scar adhesions issue. Here is the best part... for the most part they feel very natural. I do not feel like I am missing anything. I have full feeling, no numbness, they are soft and feel real, it is easy to forget that they are implants! As for survival, I also had uterus and ovaries removed in Nov., it was done laproscopic and now 6 weeks later I am 100 %. I chose a very agressive approach and looking forward to putting this behind me. Everyone does what they feel comfortable with, as for me no regrets! I know that WAMMO feeling very well... 2 steps forward one step back... but most important is continuing to move forward however you get there!   

                                           

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