maybe?
I will be 3 years out of my left lymph node mastectomy surgery in feb. for the past few months I have noticed my affected arm being achey at times and tingly/falling asleep feelings. now past month really noticable all the time aching and other above symptoms. over the weekend when I put on my gloves at work they fit my left hand extremely tight and the right was normal . do you think I should notify my doc now or just wait a bit as its not like the hand/arm is extremely swollen. I tend to be a 'wait and see' and do not jump on a every little thing person, but also do not want to be stupid about this.
Comments
-
If it were me, I would not wait. I would see a lymphedema therapist ASAP.
-
I too would contact your doc ASAP and don't wear the sleeve/glove until you speak with your doctor. Improperly fitting garments can make the situation worse.
The fact that one arm is different than the other is a sign of lympedema. BTW if you doc says to wait I still seek out a lymphedema specialist. My onc wasnt' worried about mine arm a few weeks ago. It wasn't too badat the time but not only did the swelling not go down it got worse and have some discomfort. I have an appointment with a specialist recommended by my PS.
-
I did get a sleeve a couple of yrs ago when I was going thru chemo and was 15 pds lighter than I am now.I jsut tried the sleeve on and there is no way I am going to be able to wear it. I need to admit to myself that there is a problem and will call my doc now. is there anything that I can do in the mean time to try to avoid it getting worse?
-
Pondfrogs--the reason to seek treatment is that early treatment results in the best control--it's not just swelling--the swelling causes inflammation, and abnormal connective tissue, and can lead to fibrosis--you just don't want to go there.
I know that horrible feeling of noticing this--sends chills down your spine.
I would call you oncologist and get a referral to a qualified LE therapist:
http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm
Here's a link to what to do while waiting for the evaluation, I'll copy out the text, but there are links on the web page:
http://www.stepup-speakout.org/How_You_Can_Cope_with_Lymphedema.htm#while%20waiting
What to do While Waiting for Your First Appointment with a Qualified Lymphedema Therapist
DO NOT try and treat this yourself!!! Proper professional treatment is essential to getting control of lymphedema and preventing its progression. Treatment can be expensive and inconvenient, but this condition is life long, potentially disfiguring, disabling and possibly life-threatening (if you get an infection known as cellulitis) so professional evaluation and treatment as soon as possible is essential.1) Get evaluated promptly by your doctor to rule out other causes for the swelling in your hand/arm, and get a referral to see a well-trained lymphedema therapist;
2) Drink plenty of fluids -- staying well hydrated helps dilute lymph fluid and keep it moving freely;3) Elevate the swollen arm or hand as much as possible during the day and on pillows at night; support the arm well so that it doesn't tire;
4) Several times a day pause and do some deep breathing -- this helps stimulate the largest lymph vessels in your body;5) Raise hands over head as high as is comfortable for you, three times a day, and pump fists 20 times;
6) Call for medical help immediately if you have severe pain, redness, fever or feel ill;7) You can try mild compression gloves by either Sammons Preston or Isotoner® Fingerless Therapeutic Gloves if your hands and/or fingers are swollen until your appointment with your lymphedema therapist. Be sure to bring them along to your appointment;
8) Do NOT use ACE wraps or any other wraps without the advice of your lymphedema therapist after your evaluation and your treatment plan is scheduled.Is your job physical? You may need to baby the swollen side for right now.
And good idea NOT to wear a poorly fitting sleeve--bad fitting compression makes everything worse.
Please let us know how we can help.
Kira
-
Hi, Jen:
I am echoing the other ladies - you need to go ahead and get in to see a qualified LE therapist.My LE started with the 'arm going to sleep' feelings as well as the achey sensation you describe.
Best of luck to you - I am so sorry that you are dealing with possible LE.
Suzanne
-
You need to get set up with an LE therapist. Call your breast specialist or who ever you need to get the doctor to order the therapy. Please don't wait until it gets worse. The sooner you catch it the better it will be for you. I had to call my dr 3 times before I got the message through & I know people got a @ss chewing because of it. NJ
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team