Taxotere is a nightmare

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  • tracie23
    tracie23 Member Posts: 598
    edited December 2010

    I just got a call from the oncologist and they will be giving me the Neulasta shot after each treatment from here on out due to the hospitalization.... Whew... OK new question who has gotten the Neulasta shot and how does that work out?

  • InTwoPlaces
    InTwoPlaces Member Posts: 354
    edited December 2010

    I have it before my AC treatments every time.

    I know that some women has a lot of joint pain, but mine was very mild. I think I had the worst pain after the first shot and then I felt almost nothing.

    Good luck!

  • TifJ
    TifJ Member Posts: 1,568
    edited December 2010

    No problems with the Neulasta here. I take a Claritin everyday as I've had a chronic cough due to post nasal drip since tx 1 of TC- it also helps with Neulasta issues. Also take Advil day of shot and a couple days after.

  • Adey
    Adey Member Posts: 3,610
    edited December 2010

    I give myself the neulasta shot the day after tx.  Mild ache in jaw and neck.  I also had a bit more pain with the first shot (I think).  (c:

  • ktym
    ktym Member Posts: 2,637
    edited December 2010

    tracie, I did too. The nurse told me to warm it before injecting which helps with the sting. (I set it on the counter half hour then put it under my shirt to get to room temp.  Clariton I was already taking daily and so many people on the boards swore by it I was happy I was taking it.  I did have deep back and sacral pain the first couple of nights.  I found the best thing for it was one of the pain meds leftover from surgery.  One of those at night to help sleep just seemed to break the pain cycle and I was okay after that.  A few other women on it when I was taking it found the same thing.  Remember to ask your Onc about disposing of the syringes every municipality has different rules. 

     The whole Taxotere and neulast ache thing?  The best thing I found was yoga.  Some real gentle stretching yoga every morning.  If I had it to do over again I'd have gone to acupuncture too.  A few women here said acupuncture was offered in their infusion center.  That would have been great.  The other thing I would do is splurge on a massage now and then.

  • tracie23
    tracie23 Member Posts: 598
    edited December 2010
    So do you think I am going to have to give this shot to myself?Cry because I don't know if I could do it? why do you do it to yourself? PANIC HAS SET IN
  • Leah_S
    Leah_S Member Posts: 8,458
    edited December 2010

    Tracy, it's supposed to be and easy shot to give; yourself - syringe already filled, concise clear instruction sheet with illurstations. They told me to take it out of the fridge 1/2 hour before the shot and I could do it myself.

    Sure.

    I have a friend who is a nurse. Guess who gave me the shot (though my dh said he would do it if she couldn't).

    Best of luck.

    Leah

  • tracie23
    tracie23 Member Posts: 598
    edited December 2010

    and where do you give yourself this shot

  • Leah_S
    Leah_S Member Posts: 8,458
    edited December 2010

    Tracie, the illustrations & insructions show you where on your stomach, thigh, or upper arm to give the shot (though how you would give yourself a shot in the upper arm is something I can't figure out).

    Best of luck.

    Leah

    (I edited the last post for my typos. I think I excell at typos.)

  • ktym
    ktym Member Posts: 2,637
    edited December 2010

    Oh Tracie, hugs.  I did.  Insurance companies and infusion centers are different.  I didn't want to go in and wait for a nurse to do it in the infusion center, I was happy to do it myself.  I used my abdomen (plenty of sub Q there no problem Undecided).  The syringe came pre loaded.  I warmed it up, wiped off an area just to the side and below the belly button with an alcohol pad put the syringe in to the hub (and pulled back a bit on the plunger to make sure it wasn't in a blood vessel) and pushed.  I just did it really quick and got it over with.  It really wasn't bad.  Really. 

    The only thing I had to be careful of was I'm latex allergic and the rubber covering over the needle has latex.  I had to wipe it down with alcohol to use it.  Everything else was set up by the company that manufactures it to be easily used.  I know it sounds scary, but, it wasn't bad, honest

  • TifJ
    TifJ Member Posts: 1,568
    edited December 2010

    Tracie-I go back to the cancer center to have it injected and I live 45 minutes away. I couldn't stand the thought of giving myself a shot!!

  • marjie
    marjie Member Posts: 1,134
    edited December 2010

    Hi there -

    I had Nuelasta after my first FEC treatment because of low WBC but it didn't work and I still ended up in the hospital.  Now after each tx I have 10 daily Neupogen shots which do eventually work...I still end up in hospital for a few days though until they kick in.  Guess it's just my pattern - hoping for different now with Taxotere!

    Giving yourself the shot isn't too bad....just a poke, but it's still hard to convince yourself!  I find if you inject the Nuepogen/Neulasta veerrrrry slowly it is relatively painless.  A nurse also told me I could take it out of the fridge early and let it warm a bit, but then others told me to be careful because too warm can change the effectiveness of it so I don't do that anymore.  I generally inject in my tummy and thighs...best places I can reach to get a good grab of fatWink

    Oh one more tip....applying Emla creme to the injection site and covering it with plastic wrap about an hour prior to injection makes it completely painless but the creme can be expensive.  I use it about half the time....the pain isn't too bad but sometimes you just want a break!

    OOOH - almost forgot...I fill my own syringes which at first was pretty scary but I'm like a pro now.  Also my dh and my daughter have each injected me so I have back up if I need it. Anyhow...that's what I am off to do right now.  Needle time!

  • lrr4993
    lrr4993 Member Posts: 937
    edited December 2010

    Not to diminish the problems that some people have on taxotere, but I have to post my experience in this thread just to balance the fear factor for newbies who may read this.  I did CT x4.  I finished at the end of november.  It thought it was a breeze, particularly compared to what I had imagined.  I had one "bad" day where I slept most of the day and had mild muscle aches.  After that, I had 3 "not great days" where I was fine if I was just sitting, but significant moving around (like walking up stairs) left me out of breath.  Other than that and the hair loss, I had no side effects at all and functioned like normal.  Actually, that is not correct - I had some taste issues, but they were very mild.  Mainly, I could not taste salt very well.  Everything had to be salted to death to taste good.  I worked straight through it (full time in a high stress, demanding job).  My SEs never got worse.  In fact, the last treatment I had only one "not great day" before full recovery.  Never needed neulasta.

    Good luck to you all who are on this one! 

  • TonLee
    TonLee Member Posts: 2,626
    edited December 2010

    I am taking Neulasta now too because of my hospital stay....

    Tomorrow I give myself the shot...I'll let you know how it goes!!

  • marjie
    marjie Member Posts: 1,134
    edited December 2010

    lr4993 - Thank you! It is important to remember that everyone will have a slightly different experience...some similar, some not so much. 

  • lrr4993
    lrr4993 Member Posts: 937
    edited December 2010

    You are welcome, marjie.  I was terrified to the point of almost backing out of chemo because of the horrible things I read here about taxotere.  Of course, some people do have a horrible time, but after scaring myself to death before my treatment started, I now feel it is important to let those heading into treatment know that it may not be so bad.  :)  Good luck!  If you have any questions, feel free to PM me.  I read just about every thread on this board about taxotere and have the tips on managing SEs down to a science!

  • tracie23
    tracie23 Member Posts: 598
    edited December 2010
    I was just telling my husband what may or may not happen with the shot and I thought he may pass out so I guess that is a no go on him helping me out LOL !!! I go Tuesday to find out all about it so I they will tell me if I have to do it or not .... I do have 3 friends that are nurses in my neighborhood so If I have to I can call on an expert Laughing 
  • marjie
    marjie Member Posts: 1,134
    edited December 2010
    LOL - tracie123: neither my daughter or my husband even hesitated and when my son found out he was the only one who hadn't stabbed me he was like "hey when's my turn".  Hmmm my loving family just seemed a little too keen on poking needles into mom if you ask me.....Yell
  • tracie23
    tracie23 Member Posts: 598
    edited December 2010
    That is so funny marjie, my husband almost passed out the other night in the hospital when the nurse kept flicking my arm to find a vein... even though I am sure at times he would like to poke me with a needle Foot in mouth he just couldn't.
  • TonLee
    TonLee Member Posts: 2,626
    edited December 2010

    Neulasta shot was no problem...just did it, 2 inches away from belly button, left it out of fridge for 30 minutes to warm (per instructions)...next time I need to tap the air bubbles to the top better...def heard air going in at the end.

    One down!

  • lago
    lago Member Posts: 17,186
    edited December 2010

    another vote for Acetyl-L-glutamine for neuropathy. I had numbness in my left heel, souls of feet were sore and some tingling in my left hand. Started taking it after TX2 and now just a little bit in my left heel.

    Just iced my fingers with peas this last tx5. Yes the nails were lifting, swollen tips and killing me starting with TX3.This time I iced them during treatment and they are feeling better and a bit less swollen.My onc told me to watch out for infection. So far so good. I did get some fungus in my toe nail from the lifting and water getting underneath. That had to be cut way down to the nail bed but not as uncomfortable as I thought.

    Be careful of drinking too much water as you can have unbalanced electrolytes. In addition to the 8 glassed of water consider soups or sports drinks.

    So far I think the SE that is getting to me the most is the painful fingers. At one point I had trouble buttoning jeans, zippers, remote control, phone buttons, electric toothbrush button or anything that required a strong pinch or press. It's better now. My next worse is the burning tongue but that's only for 4 days. After that it might be the taste change but it really isn't that bad. Things just get a little more bitter and it's only for a week. Yeah chocolate tastes bitter so maybe not such a bad thing.

    Really not so bad if it weren't for the fingers. Ice them!!! Bring a couple of bags of frozen peas with a face cloth to put over them. Seemed to work well for me.

  • Paula1231
    Paula1231 Member Posts: 456
    edited December 2010

    Its is day 6 post Taxol and my bone pain has gone away completely.  I do not have any nausea or tingling in the fingers.  Funny, but the bottoms of my feet hurt.  I can't taste salt either..

  • Adey
    Adey Member Posts: 3,610
    edited December 2010

    Lago, You can get tea tree oil in a little bottle like finger nail polish, paint it on your nails.  (c:  Made an appt with KG.

  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited December 2010

    Lago, what treatment are you on?  Some of the ladies here are getting TC while other, like me, are transitioning from A/C to Taxotere or Taxol.  My Taxotere treatment starts next Wednesday, once a week x 12.  After everything I have read, I am having a lot of anxiety about the treatment.

    Susan

  • lago
    lago Member Posts: 17,186
    edited December 2010

    I'll see if I can find the tree oil. What does that do? BTW let me know how you make out with KG.

  • lago
    lago Member Posts: 17,186
    edited December 2010

    Susan, I'm on Taxotere, Carboplatin and Herceptin. Just had my 5th TX yesterday. Currently making a large batch of chili and planning on going for my 50-60 minute power walk later. For me it's the Nuelasta that really gets me. If I have time I might back some cookies for a friend.

    Don't get me wrong I do get stiff. If I keep moving I do much better. And keeping the fluids going helps too. I almost forgot I am one of those who do not get diarrhea. I get constipation. First round was awful in spite of all the dried apricots, Probiotic, high fiber diet and Milk of Magnesia. Finally took Metamucil. I now start the Metamucil the day after chemo for 2 days as well as the dried apricots, probiotic and high fiber diet. (My chili has tons of beans and peppers in it). Works like a charm.

  • Adey
    Adey Member Posts: 3,610
    edited December 2010
    SAMayoFL  SEs run from slight to extreme, anticipate the best, I bet you're a lucky one!  It's good to plan ahead tho'.  Ice your fingers and toes during tx and chew on ice chips or have a slushy, lots of liquids to flush your system, L-Glutamine powder twice a day, tea tree oil for nails or some recommend Hard as Nails nail polish, ummmmm, if I think of anything else I'll be back.
  • tracie23
    tracie23 Member Posts: 598
    edited December 2010
    Susan, I really think you are going to do ok. I think getting it spread out may be beneficial to not having it so bad with the side effects. Go in positive and I know you are going to be fine. I have my 2nd treatment of Taxotere on the 6th so we can compare notes Laughing Than I am only 2 away from being DONE !!!!! YES!!!! We are all here for you. Gosh I wish we were all closer and could give real hugs but I am sending a ton your way !!! Tracie
  • tracie23
    tracie23 Member Posts: 598
    edited December 2010

    lago, how do the shots make you feel? and for how long?

  • tracie23
    tracie23 Member Posts: 598
    edited December 2010

    tonlee, please keep us posted as to how to how the shot does for you and make you feel. I hope you do great with no se.

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