Only 1 node removed

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I had my BMX on 11/17/10 with only one node removed that was negative.  I assumed this was a great sign but now see that most women have many more nodes removed.  I did have the SN injections prior to surgery.  Now I am worried that there could be positive nodes that were not tested because he only took one.  Any other women with only 1 node removed?  Should I be concerned?

Comments

  • JanetinVirginia
    JanetinVirginia Member Posts: 1,516
    edited December 2010

    Hi 4Darla - I don't know the answer to your question, but it's never too late for a 2nd opinion on any aspect of your treatment.  That would give you some peace of mind.  Cancer centers are your best bet (if you are not already being seen at one).  They can review your case -- all your films, CDs, and even request copies of your pathology slides.  Here is a link someone gave to me that I found helpful to find cancer centers.

    http://cancercenters.cancer.gov/cancer_centers/map-cancer-centers.html

  • j414
    j414 Member Posts: 321
    edited December 2010

    I only had one node removed. Actually pulled out my path report and it says: "Lymph node, sentinel, biopsy: One benign lymph node, negative for tumor.  Five additional levels unremarkable . . ."

    My doctor is considered to be one of the best in NYC and she certainly knows her stuff, so I have absolute faith in her surgical ability and decision to only remove one node. But I agree with Janet, if you are uncomfortable about anything, then get a second opinion. 

  • Makratz
    Makratz Member Posts: 12,678
    edited December 2010

    I only had one too.  I thought that was how they did it now???

  • changes
    changes Member Posts: 622
    edited December 2010

    I only had one node removed. I think it's fairly common when people have sentinel node biopsies to have only one node removed.

  • hrf
    hrf Member Posts: 3,225
    edited December 2010

    That's the whole idea of the sentinal node biopsy. They test the node closest to the tumor. If it is clear then the others  that are farther away are also clear. That's the way it's supposed to work. As recently as a few years ago, women had all nodes removed because they didn't know how to find the closest one. That meant many more issues with lymphedema,  range of motion etc. The SNB is a much better way and less invasive way of checking.

  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2010

    Hi Darla....I had a SNB 1 node removed and negative.

    If the sentinel node is negative it means didnt spread to the L Nodes.

  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2010

    Darla...I sent you a PM (Private Message).

    Look at the top of the page on PM and you'll see a pink sign saying 1 NEW

  • bevin
    bevin Member Posts: 1,902
    edited December 2010

    HI Darla, My lumpectomy was in August. I had 5 nodes removed and was taken care of at a large cancer center.  In my sentinal node biopsy, I had 2 nodes take up the die and the radioactive substance.  My surgeon took each of those , and then one behind each of those sentinal nodes. My tumor was 1.9 cm but all nodes were negative.  I agree, if you are uncomfortable, seek another opinion.  Its not worth it to worry.

  • 4Darla
    4Darla Member Posts: 33
    edited December 2010

    Thank you all for your replies.  This has been at the back of my mind for weeks now and I was afraid to ask because I didn't want to suggest to my doctors that I wanted more surgery.  I will sleep much better tonight knowing there are others who are confident with their nodes.

    Be well

  • Lilah
    Lilah Member Posts: 4,898
    edited December 2010

    I'll echo what others have said: the whole idea of the Sentinel Node Biopsy is that the dye travels through the breast and lights up at the first (sentinel) lymph node... they remove it while you're under and test it for cancer... if it presents as negative they don't need to remove other nodes (and if it does, they do remove more, all while you are still under).  As it was explained to me, nodes come in clusters, so when that first node does indicate cancer they remove the cluster (which varies in number of lymph nodes by the person -- some have a few, some have many in a single cluster).  As long as the final pathology report shows no evidence of cancer (and they can identify "micromets" so they look for very tiny evidence) there is no reason to go back and remove more.  Don't be afraid to ask your doctors to explain!

  • amoccia53160
    amoccia53160 Member Posts: 57
    edited December 2010

    Seyla888 just fyi, I had a sentinal node biopsy and both were negative but......one level one node was positive.  My surgeon was surprised but the sentinal nodes can be negative with spread to other nodes...rare but possible. 

  • lago
    lago Member Posts: 17,186
    edited December 2010

    4Darla what the others  have said is correct. I did have a sentinel node dissection on the right side were 4 nodes were taken. My BS was very disappointed he had to take 4 but 4 lit up. Sometimes they are so close together that more do light up. Usually a sentinel node dissection is only 1-2 nodes.

    On the other side my BS took level I nodes out (10 nodes altogether). They ended up all negative. This is pretty standard with a tumor as big as mine (5.5cm), high grade (grade3) and very fast growing HER2+ tumor. Personally I wish we did a sentinel on that side but statistically with a tumor my size and all the other factors there was like an 80% chance of micro-invasion. I think in your case with a small tumor and Grade 2 that the sentinel is pretty typical/standard care.

    BTW the nurse who gave read my path over the phone practically cheered when she read off no nodes. No one was expecting that except me.

  • jacee
    jacee Member Posts: 1,384
    edited December 2010

    The only thing I would add is that during my SNB, I had 2 nodes that "lit up", as sentinel nodes. One was in the axillary chain, but the other was all the way across my breast to the internal mammary node chain. So I had 2 sentinel nodes. My BS removed  both, and they were both positive. My BS said it was the first mammary node she had ever removed ( not recommended due to the location under the sternum and between ribs). But she was able to get it, and I'm so glad she did since it was positive. Almost unheard of to have this kind of spread with a 7mm , grade 1 tumor, but as we all know, breast cancer is not predictable.

    Your situtaion seems to be very common and especially that your node negative is great news! 

  • kira1234
    kira1234 Member Posts: 3,091
    edited December 2010

    My goodness jacee I've never heard of such a thing. Thank goodness your BS could get both, and was able to use the info in decision making.

  • jacee
    jacee Member Posts: 1,384
    edited December 2010

    Yes, I consider myself very fortunate. I didn't believe the pathology that my tumor was grade 1 and had spread like that, so I got a 2nd opinion from Johns Hopkins(sent them my slides). Same result. So I don't put alot of faith in the classification of grade 1 being least aggressive. Mine was very aggressive....not in growing, but in spreading!!

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