Alternative/Complementary/Holistic Resources
I'd like to share a few of the resources I find particularly helpful for researching alternative, complementary, and holistic treatment topics. Feel free to share any that you find useful!
Memorial Sloan-Kettering Integrative Medicine Service
Health on the Net Code of Conduct (helps to identify reliable health/medical information)
Complementary/Alternative Medicine on PUBMED
National Institutes of Health on CAM
Susan G. Komen Integrative and Complementary Therapies
National Cancer Institute OCCAM
Questions and Answers About Complementary and Alternative Medicine in Cancer Treatment
FTC Information on Recognizing Cancer-Related Scams
FDA on "Fake Cancer Cures" to Avoid
Mayo Clinic on Alternative Cancer Treatments to Consider
FDA's Poisonous Plant Database - searchable for various herbs, supplements, etc.
Comments
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Thanks for that list -- very helpful! I'm always concerned when people post websites that are commercial (.com).
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Thanks, this is excellent!! (And much needed...)
I have a few resources from school, but will have to post after the holidays.
Lisa
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Good post!
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The fox's explanation of the henhouse!
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National Council Against Health Fraud - Lots of information on topics discussed in this forum.
Sue Stiles Integrative Oncology Program at UCLA
What are some of your favorite resources?
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Let me share another great UCLA site:
http://www.simmsmanncenter.ucla.edu/index.asp
Within that site, click on Cancer Support Community, and then General Health & Medical Sites, for a list of recommended resources.
Also, although not a list or index -- under Information Resources, click on Archives, Insights Into Cancer Videos. Here you'll find presentations by integrative specialists such as David Servan-Schreiber, and topics like Complementary Medicine in Cancer: A Panel of East-West, Manipulative Therapies and Herbalism; and Can Natural Nutrients Prevent Cancer and Its Recurrence? -- all information from trusted integrative specialists, based on science. Deanna
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Thank you so much for posting these resources. Strong Work!
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Awesome!
Thanks for this!
Jane- don't understand your comment?
Molly
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Thanks for taking the time to put this together. I had been to some of these sites, but really nice to have them all in one place. I'm working my way through.
Also, the link that Thenewme posted in her reponse has some great resources. I'll put this link below but don't know if it will work directly since it's a pdf file (from UCLA integrative oncology site). It's a very comprehensive powerpoint with amazing information -- including the "natural" genesis of many of the existing chemotherapy drugs! In my mind, it is actually a continuum - that is growing all the time with results from new trials. Also some good reminders of everyday potential carcinogens -- ie the teflon used in many pots/pans - on same list as car exhaust.
http://www.canceralternatives.mednet.ucla.edu/StilesLecture2007.pdf
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Hi Janet - Good stuff! Thanks for sharing!
Here's your link "hot" : Herbal and Natural Products for Cancer Prevention and Therapy
Deanna- Thanks for sharing the Simms Mann link! You had shared that before and I forgot to save it to my favorites and couldn't remember it.
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Here's another one I've used and passed along in the past: http://www.integrativeonc.org/
Within that website, go to For Patients, and it will bring up lists of Resources (including some of those given above), and also a list of Open Clinical Trials. Deanna
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From Aetna/Harvard Medical School :
Finding a Doctor Who Understands Complementary and Alternative Medicine
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Also from Aetna/Harvard Medical School
Alternative Treatments - Some are Unproven and Potentially Unsafe
Anyone else have favorites to share?
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Bump for Adrian.
Please feel free to add to this list any helpful resources you discover!
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Jane is reacting to mainstream medical sites that discuss alt approaches, such as Mayo or Memorial Sloan Kettering.
But I think these are great resources. Thanks everyone.
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And yes, and I would like to add these (not necessarily about alternatives or complementary, but all of these sites provide a different critical point of view):
http://bcaction.org/index.php?page=non-toxic-household (essentially concerned with environmental toxins, and quality-of-life/benefit-of-medicine issues). http://www.annieappleseedproject.org/ (there are some other annieappleseed members/supporters on this breastcancer.org forum). http://cancerdecisions.com/index.php http://www.drweil.com/ http://www.breastcancerchoices.org/resources.html -
Hi Yazmin,
Thanks for sharing your resources! I'm not familiar with all of them, but I'll definitely check them out. I'm always looking for good credible information.
Unfortunately, I don't consider some of them credible,reliable, or accurate. Please don't take this as a personal affront - I do appreciate your sharing, but hopefully I can explain why I feel this way. I'm not looking to attack anyone, nor invite an us-vs-them battle. I'm looking for subjective information to help distinguish credible sources from non-credible sources.
Cancer Decisions is Ralph Moss' personal commercial site, which to me is a huge red flag. His information is most often very vague, deliberately incomplete/inaccurate, and without citations to confirm the information. Evidently, to get to the "meat" of his information, you have to pay exorbitant fees for his reports that likely don't contain anything you can't get for free by doing your own research. I haven't paid for his reports, though, so this is speculation on my part, so I'd love to hear or read otherwise.
Annieappleseedproject - has a lot of useful information, but unfortunately also presents a huge amount of misinformation on unproven/disproven cancer treatment mixed in with credible information, so for me personally it loses all credibility. Also, most of the links on the site are merely regurgitated from other sources I consider very unreliable and unprofessional.
Breast Cancer Choices - I'm not sure where to begin with this one. That site, for me, is the epitome of quackery and misinformation. It's a commercial site pretending to serve breast cancer patients, and instead it's fearmongering, misinterpretations, and very heavy reliance on bad sources (such as Jeffrey Dach, Mike Adams, etc)
Dr. Weil - another purely commercial site, lacking in substance and depth of information.
Again, these assessments are my own opinion, and I'm perfectly comfortable with disagreement and discussion/debate. If anyone disagrees or finds errors in my assessments, please post so that we (and anyone looking for more information) can discuss and learn.
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Dear thenewme:We'll just leave it for everybody to decide for themselves, right?
We'll also let it to everybody to decide whether or not some of your claims are as unfounded as they are one-sided.Having said that, I am grateful to you for much of the EXCELLENT clarification/information you have been providing on this forum over time. And I mean it, though we obviously disagree on some other points.
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thenewme-
I have actually found some of the information on Breast Cancer Choices to be quite informative. Their recommendations to get rid of chemical cleaning products, cosmetics and things certainly can't hurt. I think they are a non profit site. I know they sell supplements, but actually at much lower prices than other places. I don't see them as a commercial site.
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I don't see Breast Cancer Choices as a commercial site. But I guess thenewme would disagree......
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Hi DesignerMom - I absolutely agree about recommendations to avoid, as much as possible, chemical based cleaning products and cosmetics. BreastCancerChoises does have some valid and credible information, but for the most part I don't consider it a credible resource in general. I know they say they're a nonprofit, and to be honest I don't know all the ins and outs of nonprofit status. However, for example, I find the site overwhelmingly supportive of iodine therapy - oh, and they just happen to sell it. To me, that's a huge red flag. They have lots of links to other commercial sites, and I just don't find it to be impartial and unbiased at all. Not to mention that I find their information to be very cherry-picked, inaccurate, incomplete, and misleading. Again, that's my assessment, which may or may not agree with yours, and I'm totally okay with that.
Hi Yazmin,
You said, "We'll just leave it for everybody to decide for themselves, right? Wink We'll also let it to everybody to decide whether or not some of your claims are as unfounded as they are one-sided."
I say - absolutely, we let everyone make their own choices. That's why I think it's important to bring out and discuss differing opinions and data - so that we can all learn from it and make our own decisions. Exactly! And that's precisely why I was hoping that, instead of just calling my claims unfounded and one-sided, people might share their thoughts and clear up any of my errors or oversights. Seriously - I'm asking for your discussion, corrections, and even disagreement. Isn't that how we learn? I don't presume to have all the answers, or to be "right" or that anything is black vs white or alt vs conventional or whatever. Yazmin, your tagline says to question and question more. I agree wholeheartedly!
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Okay, I will jump in here. I actually find the articles on breastcancerchoices.org very intrigueing. After my own research, I have decided to supplement with iodine. As there is not enough money to be made by running a trial (pharmaceutical companies pay billions for a trial), there will never be evidence based studies about iodine. Having said that, breastcancerchoices is trying to compile their own data by offering free lab tests to BC women. As far as their profiting on selling supplements, their prices are easily 25% lower than other discount sites, I don't think they are getting rich. When the nuclear accident happened in Japan, and people needed iodine, other sites were selling iodine for $150, profiting on the panic. Breastcancerchoices iodine remained $30. You are correct about "non profits" . Very often the CEOs take huge $500,000 salaries, then report "no profit". The last time I looked, The Red Cross only gave something like 25% of their donations to people in need. The rest went to their administrative costs and salaries.
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No argument about that the price gouging that's going on surrounding the Japanese radiation disaster is just despicable. It's taking the economic theory of supply and demand to a new level of unconscionable business practices, if you ask me!
I know what you mean about the CEO salary issue, but actually, I looked up the Red Cross on Charity Navigator, and it shows that their administrative expenses at only 4.4%, fundraising expenses at 3.6%, and the top three execs each receiving salaries of 0.01% (which is still an enormous salary by any standard!).
I was hoping to find Breast Cancer Choices listed on the Charity Navigator site, but it wasn't there, and I wasn't able to find any financial reports on the site itself, but I'd be interested to see their records. I also wonder what percentage of people who take their free lab tests end up with results indicating they need supplements or services provided or sponsored by the very ones offering the tests. It just seems like a huge conflict of interest to me.
As for the "not-enough-money-to-run-a-trial" excuse, I think it's often repeated as fact but in reality the "Big Pharma" companies spend a much larger percentage of their profits on research than the "Big Herba" companies, despite disgustingly enormous profits from both. In fact, I started a thread yesterday with a link to an editorial about why it's not a valid excuse. If you're interested, you can find the discussion here:
http://community.breastcancer.org/forum/79/topic/766926?page=1#idx_6
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thenewme:
As I said it above, if you search hard enough, you will find that, more often than not, Big Pharma and Big Herba are actually the same "entity". Many "herbas" [love that expression! LOL] are actually made by well-knowns pharmas).
On a more serious note, the battle is not, I think, about Big Pharma against Big Herba: I feel it is about what works best for which breast cancer type, and certainly not about loading everybody with a standard, heavy (or even toxic) treatment.
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yazmin.
definitely agree with you
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I knew you would, nanay.
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Hi Yazmin, once again, you seem to be either responding to a different discussion or deliberately changing the subject.
You said, "if you search hard enough, you will find that, more often than not, Big Pharma and Big Herba are actually the same "entity". Many "herbas" [love that expression! LOL] are actually made by well-knowns pharmas."
If Big Pharma and Big Herba are the same "entity," then why is it that one of the basic tenets of the pro-alternative crowd is that Big Pharma is evil and Big Herba is good? Interesting concept, but irrelevant to this discussion (maybe you could start a new thread to discuss your ideas?)
The point of the article I posted was that the Big Herba companies making the claims (whether they're manufacturers or distributors or whatever) aren't putting their money where their mouth is, and funding the research to prove the claims. At least not to the extent that Big Pharma companies are. It's pretty simple, really. Why aren't those companies stepping up to fund the research? I guarantee you they could exponentially increase their profit margin if they'd prove their claims. So why don't they? Why aren't consumers demanding it?
You said, "I feel it is about what works best for which breast cancer type, and certainly not about loading everybody with a standard, heavy (or even toxic) treatment."
We can absolutely agree on that! But honestly, who would disagree or argue that statement? Think about it.
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Yazmin -
I have worked for Big Pharma for my entire 20+ year career and none of the companies I have worked for have any holdings in Big Herba. Have I missed something? Can you give some examples of Big Pharma/Big Herba connections?
Thanks.
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I think a big factor behind research is necessity. A drug can't be brought to market without some, whereas a herbal "remedy" can. I'm sure the drug companies would be more cavalier about it, if they could operate the same as the supplement industry. From one person's perspective the pharmaceutical industry isn't sufficiently regulated, and from another's it's over regulated and too slow to bring new drugs to market. How much risk do we tolerate in the cause of expediency? Depends on whether you are dieing or not, I suppose.
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