mets 2 years after original bc

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cyalata
cyalata Member Posts: 19
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

I had a lumpectomy in 11/08, 6 rounds of chemo tch & herceptin for one year.  I've had a cough for a couple months & after chest x-ray, ct scan & brochoscopy it was confirmed that my BC was back in my trachea & lung.  I went today for a consult for a clinical trial & had a PET scan & brain MRI. My onc just called to tell me the brain MRI showed a very tiny spot & that should be watched & I'm not eligible for the clinical trial because of it. She said that the standard of care would work better because it gets to the brain also.  I am so scared I don't know what to do.  I'm trying to stay positive but it's so hard.  I need some success stories PLEASE! The onc told me to discontinue my arimidex because it isn't working & my ER/PR+ was very low to begin with & now is showing negative!  This site helped me so much before so I'm reaching out to you all again!  Gail

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  • hrf
    hrf Member Posts: 3,225
    edited December 2010

    Gail, so sorry you are going through this. You are allowed to scream and yell and express yourself. There's still a lot that can be done so remain optimistic. We are here for you

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  • lisalisa
    lisalisa Member Posts: 824
    edited December 2010

    Gail, I'm so sorry for your bad news.  Does your oncologist have another plan for you since you can't be on the trial?

    Sending (((Hugs))).   

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  • cyalata
    cyalata Member Posts: 19
    edited December 2010

    Yes, I will get the best treatment available & am hoping to start today. Thank you all. Gail

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited December 2010

    Gail, I'm so sorry to hear this news. I know how you feel - when I got the news i was Stage IV I felt lilke the bottom had fallen out of my world.

    There are a lot of ladies on the Stage IV forum with similar stats to yours - if you go there, you'll find a lot of good info and loads of support. And, yes, lots of success stories too.

    Sending love.

    Leah

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