Nurses with Breast Cancer

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  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited December 2010

    Rita--let us know how it goes as soon as you feel up to it!

    Yesterday went better than I thought it would. I took the "less is more" approach and wrote the very minimum I could on the evals, one sentence for each problem noted on the mid-term eval, one sentence for each of the top 2 positives and let it go at that.  It was sooooo much easier to sit there and listen to the complaints and negativity knowing I wouldn't be dealing with it next semester!  I will miss a couple of them, but such is life.  Final exam on Thursday, then the whole group is someone else's problem for a semester!  YIPPEE!  

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited December 2010

    Native,

    I meant to comment on this "situation" earlier. I am well, disgusted at the thought a "future Nurse" would behave in such a way. I fear in the future that she and a few others will become our problem, in the sense that they could eventually be a Nurse for one of us some day. I had appalling Nursing care after my BiMx. Thank God it seems to have been limited to the surgical floor, but so disheartening. Keep up the good works Native, and keep your chin up. I'm proud to have you out there, working so hard on behalf of our profession. Our society today supports this behavior, can you even imagine Florence N.'s response to these students? Funny, as I was typing this, I got a follow up call regarding my port removal on Friday, and they all did a super job. Well, keep on keeping on, and glad you are out in the trenches :)

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited December 2010

    Thanks, Squid!  I'm looking forward to a fresh start with a new group next semester.  Bonus:  I get to teach some of my favorite subjects (pain management and stress management)! 

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited December 2010

    Well you go!  I spent about 30 minutes with one of my patients today, telling her there are many more options than the short acting meds for her very real back pain s/p failed surgery...cymbalta, lyrica, long acting pain meds, lidocaine patches (my little friends...but do keep them away from your curious pets...yes, mine had a little nibble but was fine,) implanted tens....and we also have started a pain management group at our clinic with other modalities such as massage, meditation...not too bad for a community based clinic :) Do you go into the whole nervous system, pain pathways, mediators, role of serotonin, nerve pain vs,cancer vs surgical, vs visceral...boopie de boo? (medical term... :)

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited December 2010

    Squid--no, I don't go into great pathophysiological detail, I only get 2.5 hours and these are first year ADN students.  I do talk about nerve vs cancer vs surgical vs visceral vs chronic pain, and I do review  the major drug classes (opioid,anticonvulsants, antidepressants, anti-inflammatories, benzos) but I focus mostly on assessment and non-pharmacological management.  I spend a fair amount of time on the effects of pain on functioning and learning, and how things like stress, fear, anxiety, fatigue, etc affect the pain experience.  The there is the obligatory talk about drug diversion, addiction and abuse.  I try to keep it as practical as possible, and trust the A&P class they take will fill in the details. 

    Having a pain management group is a great resource!  Good for your clinic!  

  • RitaD
    RitaD Member Posts: 30
    edited December 2010

    Well,made it thru! So far so good. Had node mapping while I was out,so I didn't feel a thing.Then went right into surgery.Partial mastectomy went well and lymph node removed. Tissue sample of node negative so far. Can't relax until path report is in. Not in much pain at all.Wish my hair would grow back!How long does that take? Now one month post chemo,still no sprouts.

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited December 2010

    Hooray for you, Rita!  Having the node mapping while you are out is the ONLY way to do that procedure!  Here's hoping node negative is still the word after the more in depth exam!

  • HantaYo
    HantaYo Member Posts: 280
    edited December 2010

    Namaste!

    Rita:  So glad your surgery is over.  Will be praying for the best possible pathology report.

    I would like to post a picture here.  Can anyone help me with this?

    Also want to let you know I just posted my pics on the picture forum from pre-mx to current.

    Karla

  • RitaD
    RitaD Member Posts: 30
    edited December 2010

    Recieved the best possible Christmas gift ever! NEGATIVE margins and lymph node from path report. Thank you to my  friends for your support. It is a nerve wracking experience! Always got to keep the faith.If you start worrying( about the what if's),it will get the best of you.Still have to go thru radiation after the holidays. What a relief!

  • HantaYo
    HantaYo Member Posts: 280
    edited December 2010

    Namaste!

     RitaD:  GREAT NEWS!!  Now take good care of your self and enjoy the holidays.  Indulge in your favorite cookies and take a deep breath.

    Karla

  • dfwgal
    dfwgal Member Posts: 33
    edited December 2010

    Hello all, I just found this post and I am also a nurse. Being a patient is a bit of a strech for me, but I am working hard to be the patient. I had the Sentinel Node Biospy last week and did great hiding the fact that I was a nurse until they asked history stuff and I rattled of the medical terms. However, the nurse did great and continued on like I was a normal patient. I also promised not to be the worst patient. When all was said and done, they said I was a great patient. I think it was the drugs they gave me. :)

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited December 2010

    for Rita!!!!!!!

  • RitaD
    RitaD Member Posts: 30
    edited December 2010

    Thank You Native Maine and all the great friends I've made on the web!Your support has definately helped.Went to see Radiologist yesterday-6.5 weeks for that.Last leg of this journey. Incision in axilla area still very sore. Can not believe how long this process is. No matter which way you go on your decision, takes lots of time for healing and repair! Working on healthy living . Keeping my weight down at this time of year is a challenge.My  2 dogs are always willing to take on the weather(more than me)for a walk.Merry Christmas!

  • HantaYo
    HantaYo Member Posts: 280
    edited December 2010

    Namaste!

    Happy Holidays to all,

    Tomorrow, after 5 months of being off work and losing my job I am going back to work.  It is only a supplemental position with no garanteed hours but it is the same department where I was when I ran out of FML (they eliminated my position when I ran out of FML).  I am very pleased that I now have my foot in the door and if a positon now opens up I should have an excellent chance to get it.  For the next four weeks I have been able to pick up 110 hours plus one holilday call shift.  If census is down I will be the first sent home or cancelled but I can deal with that.  I will be getting my first check on 1/14! 

    I am actually a little anxious.  I will be doing pre-op, PACU and Phase II Recovery.  Although I had done PACU for years I only had 1 month in the new facility and had never done Pre-op or Phase II before then so I never really "cemented" my organization for these two areas.  I will get two days this week for "refresher" before being on my own but the supervisor said I can ask for more if necessary.

    Karla

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited December 2010

    congrats, Karla!  I bet you'll find you remember more than you think, but if you need a bit longer re-orientation ask for it!  What a good start to the New Year!

  • RitaD
    RitaD Member Posts: 30
    edited December 2010

    Karla,I'm sure your job will feel like 'old home' once you get in the swing of things. I understand feeling anxious about it after being off. I'm at 4 months off now, and my job has had alot of new people come in while I was gone.The state hsp. I'm at had a big retirement incentive,which alot of my friends took. Unfortunately I'm not part of that plan,so I'm hoping to go back at 6 months.Will be starting radiation next week.Went in for my marking and molds today. Tattoo markings-ouch. No deoderant and shaving the pits(or at least one)-good thing it's winter!

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited January 2011

    Rita,

    Congratulations. What wonderful news! And Karla, I know the feeling of coming back into your Nursing after an extended leave. You will be great, wishing you the best!

  • HantaYo
    HantaYo Member Posts: 280
    edited January 2011

    Namaste!

    My DH who has been such a terrific support from the get go just came up with something that totally turned me off.  He wants to mark my DX date by going to a nice Bed and Breakfast place.  NO! NO! NO!  I would rather have a drug that makes me totally forget the terror of that day and subsequent weeks until I started treatment.  His anouncement made me stand there with my mouth hanging open.  He thought I would be pleased but I don't know what he was thinking. 

    Am I just being selfish?  I am dreading going through that time of the year. Something died in me with the BC diagnosis.  I don't know exactly what it was but it includes no longer being able to trust my body, no longer trusting my dreams will come true.  It is as if I sort of lost my way in my life.  I do OK when I don't focus on this part but to "mark" the loss is just unthinkable. 

    Karla

  • RitaD
    RitaD Member Posts: 30
    edited January 2011

    Karla,I definately would not be celebrating "that day".When I heard that diagnosis,I shut down and cried for 2 days.Those were dark days also. Men can be a support but clueless! We went away before I started tx and it was so stressful I did not enjoy it.Hubby couldn't understand why I did not have a good time. How about celebrating end of tx. Maybe his thought  was one year of being cancer free? Focus on that ,and change the date to happier times.

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited January 2011

    Karla--maybe he meant to have a pleasant experience to offset the bad memory?  Men think funny that way.  I understand your not wanting to mark the date at all. 

  • HantaYo
    HantaYo Member Posts: 280
    edited January 2011

    Namaste!

    Rita and Native Mainer:  Thank you for your thoughts.  I do think I want to celebrate when I get "finished". 

    Karla

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited January 2011

    Karla--let DH know that's what you want.  Then let him use his male "fix it" gene kick in and watch him set up the party! 

  • hymil
    hymil Member Posts: 826
    edited January 2011

    Karla I guess from his point of view you have been carrying this thing together for a whole year, i guess he thinks (and I hope it's true) he has been your tower of strength for all of that year.... i went off and cried for nearly a week at diagnosis, def not a day to remember. But then I finished rads (and all active treatment) on what would have been my 25th anniversary if we hadnt have split up long ago, so that made a bad day good again. While I was on pre-surgical tamoxifen and getting totally frustrated about lack of progress, DD and her BF took me off on holiday that was great although I was constantly anxious, and we could do things i knew I wouldnt be able to do post=op, we have great memories and got to know the lad so much better in that surroundings. Have a great time together whatever you choose to do. 

  • jacgrehanjul
    jacgrehanjul Member Posts: 17
    edited February 2011

    Hi Guys-

    Did you know there is a Facebook Page about breast cancer for nurses?  It's really good: updated with the latest info really regularly.  http://www.facebook.com/BreastCancerNurses

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited February 2011

    Thanks...I haven't peeked over here for awhile due to life stuff. Great to know, and I will check it out. Hello to all my fellow Nurses!

    Traci

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2011

    Karla  dear one I believe you have a lawsuit against your hospital for violation of your fmla rights---but as a typical nurse you won't go after it--------only catching up this morning (night)....Nursing AND Hospital administrations suck. Except for mine that made all available rights to me . sheila

  • AnneW
    AnneW Member Posts: 4,050
    edited February 2011

    Thanks for that FaceBook link.

    Wishing all my fellow nurses well today!

  • jacgrehanjul
    jacgrehanjul Member Posts: 17
    edited February 2011

    You're welcome Anne! 

    Also, Karla, have you talked to the nice people at Cancer and Careers? http://www.cancerandcareers.org/    They can let you know your rights so you will be able to advocate for yourself.  It's a free service to patients and survivors for exactly the kind of situation you are in.

  • PitPat
    PitPat Member Posts: 156
    edited March 2011

    Update.

    Good Morning Everyone!!

    March 2nd has come and gone and chemo thereapy is a thing of the past. I'm in recovery now abut knowing that I don't ahve any more treatments just makes me feel like a huge weight is off my shoulders. I didnt bounce back as well as I'd ahve like after treatment 5 so thinking this recovery might take longer too. I'm activity intolerant (walking up stairs makes my heart pound) but a hemoglobin of 110 will do that. I'm stocked up on prunes, spinach, beef and iron pills so that I can do my part in getting my levels back up tthe 140s where I'm used to. Lethergy sucks.

    I'll be heading out to the Canadian west coast on the 15th of March for my radiation treatments. I have 28 of them so will be gone from my family the whole time. I'm thankful though that I will be staying with family so it all works out. Plus I'll be near the ocean and I find that is always healing.

    I still have 10 Neupogen injections to do and the side effects of that, but I know that every one I get is one more to be completely done. YEAH!

    I'll be on Tamoxofan for at least two years and then the doc suggested the aromatse inhibitors (?), I haven't done the research for that yet.

    I'll also be looking at book my surgeries for reconstruction. I have made the choice to re-create breasts and not just get the TE out and live flat. though I have a PS that I really like, I've requested a consulation with anothe PS for post radiation. I want an unbiased opinion of the skin after it has been radiated. As I have full thickness scars from a burn injury to my torso as a child this factors in with any micro surgery. I want to hear what this doc has to say. Though he works out of a hospital 4 hours away from me, if i feel more comfortable I'll go with him (I've heard that he has no personality and just gives you the facts, where as my first PS is soooooo charming!!)  I really look back and wished that the PS who did the immediate recon did not put in the implant and instead went with the TE on both sides as I believe the stress on the incision played a part on the area that did not take and eventually broke down and lead to the loss of the implant.

    Shoulda, woulda, coulda...

    On the time calander of getting reconstruction I'm going to have to wait longer until the rads skin settles down and options can be given. I'm getting the 28 treatments to my chest wall, the upper chest and the arm pit. I will not be getting the ALND as the research shows there is no diff in re-occurance vs LE and the problems women have with that.

    On another positive note..I have my full count of growing hair back, it is about half an inch long and my regrual dark color with grey poking through...my luck. BUT it does feel thinker in the crown. I did not lose any to the Taxotare. though my eyebrows and eye lashes did thin significantly. Did I read that Vit D helps with that cause i got a whole bottle of that stuff and I'll be on it like a junkie on heroin if it helps!

    So glad this part of the journey is over. You gals have been great and I've loved reading all your posts.

    Blessings to you all,

     Patti

  • RitaD
    RitaD Member Posts: 30
    edited March 2011

    Hi All, So glad Pitti your done with the chemo,it is a hard -core tx.Sounds like you have your tx on track. I just finished my rad tx-32 in all. Got painful toward the end in the axilla area.Anyways got through it and Pitti you will too. MY journey is coming to a close, as I am returning to work next week. I will not wear a wig but go in with my 1'' of hair. At this point I'm thankful for  my hair, and that I had a good outcome.Will continue to log on and give encouragement.Take care,Rita

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