Starting chemo Sept 05

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  • tinkermax
    tinkermax Member Posts: 269
    edited November 2005
    Hi Everyone

    Had fourth FEC today, and im feeling very tired. i came home and went to bed for a couple of hours.

    Has anyone had there neutophils go up during chemo, without getting nulasta or something similar to boast white blood counts?

    I had my flu jab 10 days after treatment 3, and I had my blood test yesterday, and my counts have risen as follows:

    HAEMOGLOBIN treatment 1 = 14.1 treatment 2 = 13.5 treatment 3 = 13.1 treatment 4 = 12.5
    WBC treatment 1 = 7.3 treatment 2 = 5.6 treatment 3 = 4.2 treatment 4 = 5.8
    PLATELETS treatment 1 = 187 treatment 2 = 236 treatment 3 = 3 211 treatment 4 = 247
    NEUTROPHILS treatment 1 = 4.9 treatment2 = 3.2 treatment 3 = 1.8 treatment 4 = 3.2

    Could it be my body is reacting to the (dead) flu viruses, and therefore making lots of anti-bodies to combat them?

    This is the only explanation I can come up with.

    I hope everyone who is having a hard time has a better day tomorrow.

    Best wishes to you all.

    Maxine
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  • lisag
    lisag Member Posts: 22
    edited November 2005
    Hello all,
    Peg, so glad to hear your liver tests were normal, I bet you are feeling better now. Hard enough to deal with this treatment stuff and try to be positive. I'm doing this genetic testing stuff and got this questionaire as part of it asking me how often I'm doing BSE since I got cancer, and I thought "what, am I suppose to be checking what's left of my breasts each month while on chemo, why didn't someone tell me". I get the runny but itchy eyes that won't focus, too and I quit with wearing contacts.
    Nikki, my onc said I may see some hair regrowth on taxol, not holding out any hope for that I have this stubble that seems to be in a time warp-it won't fall out but doesn't seem to grow a bit in like a month, am tempted to shave again...
    Bubbles what form of iron are you taking? I'm looking for some that doesn't make the 'droids worse.
    Broke out in head to toe giant hives for no reason yesterday and was itching like crazy. My car battery was dead so my wonderful boyfriend took me to the onc.(here's to the men who pretend we are still beautiful when we are bald, bloated, grumpy, pale, nauseated and now covered with red blotches) Now am on yet more steroids and still don't know what caused it. Can't get a flu shot yet but hopefully still on schedule for taxol number 2 on Thursday.
    Wishing all good thoughts
    Lisa
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  • marg1
    marg1 Member Posts: 73
    edited November 2005
    Hello everyone, I have enjoyed reading all the posts. I was hospitalized 2 days after AC#3. I had another sudden onset of chills and temp and landed in the ER and hosp for 3 days. Turns out my central line had a nasty bug and it was removed. I can shower like a normal person for 10 days before I have to have a PICC line in my arm for the rest of my chemo. My onc said I have to have some type of line for the AC tx and that I could do Taxol with regular IV sticks each visit but to try and keep the PICC line in my arm as long as I can stand it. I have been tired a lot lately like all of you. I decided to take a leave of absence from work for the remainder of my chemo. I love being a stay home mom for now. I was yelled at by my boss about how behind my work was etc.... so I told her "SORRY" I am taking a leave of absence -- she freaked but right now it is all about me and spending quality time with my family. I want to walk my dog and my daughter to school then take a 30 minute stroll with my dog at the park like some other moms. I did twice this week -- it was great. Of course I come home a take a litte nap -- also great. I have worked since I was 16 -- never had a break -- here I am 38 and the only break I am getting is becuz of my BC. Something really wrong with that picture. I am off for my last AC (#4) next monday. I glad to read all the taxol report since I have to do 12 weekly taxol with hercepin. Glad all of you are doing well.

    Peggy -- what is the hair situation on taxol? I so hoping my will grow back soon!!!!!!!!!!!!!!

    I pray daily for all of us ---- Marg
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  • leannem
    leannem Member Posts: 137
    edited November 2005
    hello lovelies

    I have just got back from #4 AC- my last yay!!! Feeling a bit crap as I forgot to take my ativan before hand. Now I am getting truly freaked about starting the taxol. Any advise ladies?

    Marg, sorry to hear you were back in hosp with the chills and fever. As we always say, the gift that keeps on giving huh! Fantastic news that you are taking some you and family time. I think at this time it is definately needed at times isn't it.

    I was glad to hear I wasn't the only one with funny eyes at the moment! Mine also have problems focusing but I am finding that using revive eye moisturisers help a fair bit.

    Feeling very down today as per usual for chemo so will keep this short!

    xo
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  • Liezel
    Liezel Member Posts: 192
    edited November 2005
    And here I thought my itchy, funny eyes were just a fluke or because of the hot, dry weather! Thank you so much for clearing that up! I am really battling with my contacts, and I just got new ones before I was diagnosed because my eye sight has improved. Thought they made a mistake and now I hear it is because of chemo! When I hear things like that I wonder what else I am doing to my body!!

    I spoke to my GP yesterday about Barley Green (she is also a homeopath), and she said that it is really just a food supplement and does not have any of the anti-cancer, detoxifying properties they are claiming!! Should have called her before I bought the stuff!!

    My skin is also a complete mess. Itchy rash all over and extremely dry. And because of the kortisone (sic) and steroids I look like a barrel!! Can I quit now....

    Leanne, hope you are feeling better. I really do not know how you cope with a busy toddler and a baby. I just looked at your website and like you, I noticed "that lump"after I stopped breast feeding. Also thought it was just milk - only difference is I waited 2 years and only had it checked out when it started getting really big. At the end of the day it was 6cmx5cmx4cm. I can kick myself. Were you and Scott planning another baby? We were, but my onc. advised me to forget about it. Is it possible to mourn something you never had?

    I hope all of you are hanging in there. It looks as if most of us are having a transition time in our treatment - either finishing with chemo or going onto the next one. My last CEF is next week and then starting taxotere. Worried about how I handle this one, but I guess we do not have a choice...

    Keep well all of you...
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  • txred9876
    txred9876 Member Posts: 392
    edited November 2005
    Well I am starting to come out of my funk....At least my stomach feels better so far this morning. I am so not looking forward to my last treatment...having it the day before Thanksgiving is going to be rough. Although...I do have many things to be thankful for this year.

    As for the job situation Susan thats a rough one. I think my social security is going to come through shortly (unfortunate...since I have Inflammatory it gets approved most times within 90days). I am not sure what to do in my own situation. There is no way I could have worked during this chemo and now I am facing at least another 15-18 months of treatment and without health insurance I may just have to sit tight to go back to work....one day at a time....

    Take care and have a great day,
    Tina
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  • jlpd
    jlpd Member Posts: 54
    edited November 2005
    Greetings everyone. I'm sitting at my desk taking a break from classes...Sandra, I gather you are also an instructor. Quite frankly I have to say that in addition to needing to keep busy, I also wanted to continue to work as I did not want to worry about another instructor taking over the classes I love to teach...primarily because there is one lerking around the corner!...It's been hard after the treatments, but I also was on an infusion every three weeks, not every two weeks like a lot of you...I don't think I could have kept this up if I were in a chemo fog continually.

    Tina...I also have my last AC on the Tuesday before Turkey day. It was supposed to be Wednesday, but they needed to move it up so that I could get my Neulasta shot on Wednesday.

    Vision problems...yes! I too thought it was my sinuses playing havoc...I also were contacts and just plain can't see very well...I didn't know that this would potentially be a permanent condition.

    Calico...loved your description of the 'thing'...I can relate to that! When I look in the mirror, I keep thinking I look like my brother when he had put on some weight...not a pretty site!!! (He's since lost it.) So I have an extra 10 pounds I'm carrying around...stubble for hair...washed out looking...missing one of my breasts...just lovely....Oh well, beauty should come from within and you know what...we're all beautiful!!!! If we weren't, we wouldn't be going through all of this, now would we. Lisa, glad you're boyfriend sees that and loves you more than ever!

    Wanted to let you all know I went to a physical therapist about my lymphedema...mine is not in my arm, but around my armpit and down my side to my bra line...she gave me exercises and taught me self massage to help the fluid move and be absorbed by the body. I'll let you all know if it works. I also get to see my onc today instead of next week (as my chemo isn't on the right day)...at least I HOPE I get to see him instead of his physician assistant...Does anyone else run into that problem?

    Well, need to get back to grading papers....talk soon...and remember...there is a light at the end of the tunnel!!!! Love you all...Janet
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  • lynellb123
    lynellb123 Member Posts: 69
    edited November 2005

    hello my september chemo buddies. I just had my 2nd of 4 Taxol treatments along with a flu shot. I'm going back today for my Nuelasta & that's what really seems to bring on the aches. I've gained a total of 16lbs...I'm plumpin up like a Thanksgiving turkey. My dear family Esp. my hubby try to reassure me tht I'm fine & they love me but I'm not loving myself too much these days. I'm glad to read so many of the posts that express the same sentiments. I've been feeling a bit more blue these days. I've also had the eye problems with Taxol and a runny nose that morphed into some sinus mess. I just hope that It doesn't develop into anything more serious.Good luck to everyone as we try to remain brave through this awful mess that we call "treatment" Gentle hugs to all!

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  • Pegk
    Pegk Member Posts: 389
    edited November 2005
    Susan, I've been checking your progress at Camp Nookemboobies. I'm glad things seem to be going well. I'll probably be joining camp activities in January and I'll be prepared. (Love the camp song!)

    Marg, I'm so sorry you ended up in the hospiital again. Hopefully, taking a break from work will help. It hasn't been lost on me that I seem to be easier for me than for a lot of you. I was able to take a leave of absence from work when I started all this, so I've never had to push myself beyond my limits. When I needed to rest, I did. I'm also older than many of you, and I don't have young children to deal with. My 18 year old is living away from home and my 16 year old doesn't require the same type of attention that young children, toddlers and babies need. You, and others who are going through this while working and taking care of your families have my utmost respect and admiration. I hope that taking the time off work for your well being and being with your family will help you physically and mentally.
    Tina, I hope you can take as much time as you need to take care of yourself before you take on the stress of work again.
    I'll admit I sometimes miss the routine and the camaraderie of working, so I can emphathize with Sandra about getting back to work. I've gone to visit my coworkers several times and they all complain about this and that, but I can't wait to have those problems again instead of mine. I just know that the commute to the city would not be in my best interests.

    Leanne, conratulations on your last A/C. I've been through 2 Taxol so far. Some achiness, no major problems yet.
    Marg, I still have fuzz on my head, no noticeable new growth yet, although some on taxol seem to get some.

    Lisa, I hope your taxol #2 is on schedule on Thursday.

    Janet, my typical schedule at the onc. center is that I see the PA every week. During the infusion and then the following week when I go in for blood tests. She asks a lot of questions and checks my heart.I see the onc. approx. every 3 weeks when she gives me a complete exam.
    I hope your PT is succesful dealing with your arm.

    I hope your feeling better soon, Lynell

    Keep up the good work everybody.
    Love Peggy
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  • tinkermax
    tinkermax Member Posts: 269
    edited November 2005
    Hi Everyone



    I'm on FEC as you know which is 8 doses, (every three weeks) which will take 24 weeks. The only time my onc has examined me, was two weeks before chemo, to check my mastectomy wound, as he wanted to make sure it was healed enough to start chemo. I spoke with him for about a minute before I started chemo, and saw him in the corridor two weeks ago, when I asked him if I should have the flu shot (he said..."might be an idea", a Yes or no would have sufficed).



    My chemo nurse told me on Tuesday that I probably wont see him until I finish chemo.



    I have never had a physical examiniation to check my heart, or anything else since I started chemo.



    My nurse takes my temperature, and weighed me this week before the chemo was administered.



    If I could change my onc I would, but he is the only one on the island.



    I hope you all have oncs with better "bedside manners" than mine.



    Take care everyone



    Maxine
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  • nmherr
    nmherr Member Posts: 63
    edited November 2005
    Quote:

    Norine, how are your arms doing?

    My arms are ok, did I have a problem with them? They are always open for hugs. PS Taxol sucks and my onc is a liar, but I still love him.
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  • nmherr
    nmherr Member Posts: 63
    edited November 2005
    LisaG Thank you Thank you. I finally got the gagging Lglutamine and started taking it. But not the way you (or your onc ) is instructing. So I wrote down the way you are taking it and I will try that regiment. My onc actually seemed happy that I would try it. Can you say hi guinea pig?
    I also was too stubburn to use much pain med. I ended up with severe back pain and couldn't sleep for the next 9 days. Finally it dawned on me that I slept great with Sudafed Nighttime that I took on E/C so I tried it. I slept like a baby for 9 hours and no back pain the next day. Most of the body aches are gone. I don't want to take tylenol as it is known to interfere with liver function so being bullheaded and having a high pain threshold I am trying to stay to the minimum of pain meds. The down side to that theory is I tend to get a little cranky. Ok a lot cranky. Well if Mama ain't having fun no one is having fun.
    Number 2 Taxol is next Monday and the chemo nurse said that my body could actually do better with that one. Yeah I heard that before. So I am going to get active over the next few days and get as much enjoyment out of this time as I can.
    Love and faithful prayers to all of you
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  • lynellb123
    lynellb123 Member Posts: 69
    edited November 2005

    hi Marge, So glad that you are taking some time for yourself and your family.I am also took a leave during chemo & don't regret it for a minute. I agree with you though it's sad that we have to finally take some time for ourselves because of BC.Well maybe now we'll all stop & smell the roses and remember to be kind to ourselves during this difficult time. Rest when you can & repeat after me...It's all about me....It's all about me....Keep saying that to yourself & maybe you'll start to believe it

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  • foxxf
    foxxf Member Posts: 171
    edited November 2005
    My Onc does all of the surrounding districts (100km radius) so when I bump into people down the street they say "oh Dr Begbie isn't he lovely" and I reply that I wouldn't really know.

    I saw him the first time for about 20 mins when he went through the treatment plan/side effects and had a Q & A session. He did not examine me just checked out my surgical scar and has never once examined me. (The nurses do bp and temp). Then I see him for around 60 seconds before my treatment which consists of

    How you going? (fine)
    How's the nausea? (o.k)
    Do you need more prescriptions? (yes)
    o.k that's great see you next time.

    I don't know if it's because I am 33yrs old and most of the others look like they are 100. Maybe because I have the advantage of youth I shouldn't have anything to winge about. But I have had 9 weeks of treatment and only seen the Dr maybe 45mins in that whole time. Doesn't exactly inspire confidence.

    "Well if Mama ain't having fun no one is having fun." Norine you crack me up...lol... too bloody right to!

    hope everyone is feeling well
    best wishes
    Nicole
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  • tornadogirl
    tornadogirl Member Posts: 133
    edited November 2005
    Had first Taxol today, was in there from 10AM-3PM! They were really careful. Got a bag of decadron first, next the IV benedryl, then the IV Taxol.



    (I half expected the bag of Taxol to look "brown" with little bits of Yew bark floating in it but no, it was clear....)



    Soon, with the help of that wonderful Ativan and all the Benedryl, I was chatting away with the girl on my left (we had beds today, with TV's.



    She had ovarian cancer and was getting Taxol and some platin drug. I gave her my banana and she gave me some nice banana bread she made. Then we both fell asleep in our beds for a Benedryl nap for about an hour.



    It was uneventful, and my fears of dying, having a reaction or going into a coma did not happen.....I am so happy I am alive that i even drove myself home....slowly!



    I am so fearful can anyone be worse than me regarding the unknown????? NO! No one is worse than me.



    Next time I will march in there without anxiety. Only three more Taxols to go.....I will tell you about the pain and other stuff if I get some in a few days.



    I love you all!
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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited November 2005
    Quick Note to my September Sisters:

    I just realized that it has been a full month since my last chemo! [Whooohooooo!] Anyhow, thought you would like to know where I am 30 days later.

    The bad things: skin is still a mess, feels like parchment paper. If I walk too much I get blisters on my feet, and the outer layer of skin on my feet is constantly peeling. I still need to nap for about an hour each day, around 5, but sometimes earlier. My digestive/intestinal system is still finding its equilibrium.

    The Good News: I can think again! Sequential and logical thought is returning and I am no longer the dumbest person in the room. [Still have some trouble pulling up exact words though.] I only need to eat two or three times a day, and the freezer goodies that I made to get me through chemo are almost all gone. Short term memory is coming back though I am keeping long lists of 'what I did' and 'what I need to do' as backup. I can sleep for more than 7 hours again and start the day feeling very rested.

    I have been back to work now for a week and hope to get my first round of bills out tomorrow which is a very good thing. Our savings is pretty much wiped out about now. I still need to be very careful about my expectations of myself. Already I have started to overschedule which brings on stress. My new normal is all about avoiding stress!

    My daughter is coming home for the weekend and I can't wait to see her and hear all about her current life in college. Will try to find time to post back to each of you, but suddenly life has gotten so full, finding time is difficult.

    Take care,

    *susan*
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  • tinkermax
    tinkermax Member Posts: 269
    edited November 2005
    Great to hear from you susan, I hope you have a relaxing time with your daughter.

    Best wishes

    Maxine
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  • sholroyd
    sholroyd Member Posts: 288
    edited November 2005
    Marg – what a great boss you have (not). I want to get back to work but I have been told by more than once person to make sure I am well and truly ready cos once back people will ‘forget’ and expect me to immediately be back to that person I was (and will be again) – never having time off work, giving 100+ etc etc etc. Oh this work thing does play on my mind. Janet I was lucky in that I finished off the academic year and had my op during the holiday so I had not started new classes with new students – so I am not worrying about particular students being taken over – obviously my timetable has had to be filled. Numbers are not so good in my department also this new academic year which is worrying – will they consider me ‘dead wood’ when and if redundancies occur – Oh well more important things to worry about.

    Peggy – great to hear about your good results – another worry off your mind.

    Well the washing machine is out of intensive car and is being brought home with a £90 care bill. My dog (Jimmy, black poodle) has been at the Vets since Wednesday and has had to have another hip operation – hopefully picking him up tomorrow with another £320 bill – already paid £300 – somehow I feel like it is coming up with thunderstorms round here??!! My new car is good though.

    I have had another period, 3 weeks after the last one and for the first time I had night sweats last night – well affected my sleep! But apart from the inevitable tiredness I am doing OK after battering number 4. Have decided to go with meeting some work colleagues tomorrow night – fashion show and chicken in the basket – just hate meeting people for the first time when wearing ‘the animal’ – hope it is not too windy ?!

    I do not hear of Taxol and Taxotere over here in the UK? Is it known by a different name?

    Janet I saw my onc’s side-kick on Tuesday – felt sort of let down really – but I suppose Oncs are only human and can’t do everything.

    Have I missed something? What is Camp Nookemboobies?

    Maxine I would also like a heart check – not been offered – Would I be paranoid to ask for one? I want everything checked in fact??!! (Paranoid stage).

    Norine – we have a lot to follow with the strength you possess and share with us.

    Susan – enjoy your daughter’s visit. One of my daughters is having the day off – study leave she tells me – but she is already planning ‘my’ day.

    I have been worried since hearing about the tornado – anyone affected?

    Speak soon.

    Sandra from the UK
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  • Taff
    Taff Member Posts: 5
    edited November 2005
    Sandra, I am from the July group and live in the UK. Taxol and Taxotere are available here. I have had Taxotere and have just moved to FE chemo. As for heart scans, have you not had a Muga Scan? I had one before starting treatment and another last week. I am being treated in Derby.

    Love
    Taff
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  • txred9876
    txred9876 Member Posts: 392
    edited November 2005
    Well it looks like everyone is doing pretty good...I have had my share of ups and downs today already....and it is just noon! I found out that my social security got approved the first time around and should start jan 06...thats the good news...the bad news is...I may make to much with it to qualify for medicaid...so its all a revolving door around here with no health insurance to count on.... There are other programs out there that can help but just not sure what they are so now I have to research to be prepared for the "no insurance" thing again. One thing is for sure...they had better get my masts done in december while I am covered!

    All this crap...when I should just be worrying about getting well....Plus I am looking at 12 weekly taxol after surgery...and 52 weeks of herceptin....and somewhere in there...rads!

    I will quit rambling...I am off to the grocery store to get stuff for Turkey day (so my daughter...13 ...can cook most of it...the BF's mom is not the best cook...so will be preparing things up until tues...)

    Tina
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  • Pegk
    Pegk Member Posts: 389
    edited November 2005
    Tina, I'm sorry that you have to go through so much stress about your medical care. You're right, there should be a better way. Have you been working on your book?
    It's great that your 13 year old is tackling the turkey. She must be a great kid! I hope you both have a great time cooking up a storm and your BF and his mother appreciate it.
    Peggy
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  • Pegk
    Pegk Member Posts: 389
    edited November 2005
    Right now I'm looking at 2 big bottles of Barium that I'm going to have to drink in a little while. Although my sonogram came back fine, my liver enzymes are still elevated for the third week in a row. So I'll be going for my first CAT Scan. Is it the Taxol causing this or something else? I guess they just have to keep checking to make sure it isn't a problem. Like they say, we're all snowflakes. Similar but very different in dealing with disease and treatments.
    Hope you all have a great weekend.
    Peggy
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  • tornadogirl
    tornadogirl Member Posts: 133
    edited November 2005

    Peg, hope your liver is ok, with all the many meds we are taking, who knows how our livers can even handle them. I got the achy muscles the third day as predicted. Wow they are bad. Wish I could just take something and be knocked out for the three days of this.....I never gave birth but I can imagine that that would be much worse than this pain! Hang in there all, we can do this!

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  • Pegk
    Pegk Member Posts: 389
    edited November 2005
    Thanks Bubbles!
    I survived my first CT scan yesterday. That Barium...bleah! It had kind of a coconut flavor-I don't think I'll ever drink another pina colada. But I had a great nurse, a BC survivor. I barely felt the needle stick for the contrast solution.
    Now another weekend wait for the results.
    My 3rd Taxol is Tuesday and my pains have been starting Thursday night. I hope I get through Thanksgiving before they kick in.
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  • sholroyd
    sholroyd Member Posts: 288
    edited November 2005
    Hi All

    It is very cold over here in the UK – Jack Frost is very busy during the night and it has been very cold and white with frost in the morning – brrrrrrrrr.

    Taff – hello – I live in Tamworth (near to you) and am being treated at Good Hope Hospital. I have not been offered a Muga Scan but have just added it to my list of questions for next visit – thank you. What are your credentials? I am Invasive Ductal (was) grade 3, one lymph node affected and not sure whether I am Her2+ or - yet as the department are struggling to meet the demand for results with the Hercepton news.

    Peg I am thinking of you – the waiting game is not nice. I remember one of the hardest times as being between that first test day and when the official results were dropped. Although this time you will receive good results – I feel it in my bones Peg. (My dog is feeling very sorry for himself right now, still trying to follow me around everywhere on 3 legs – I am still reeling from the vet bill)

    I plucked up the courage and went to meet some work colleagues last night – sort of fashion show including a chicken in the basket meal. Well we sat on a long table with other people and the lady sitting next to me (never met her before) asked me where I had my hair styled as she liked it – she was quite surprised by my honest answer??!!

    I found it quite daunting but was glad I summoned up the courage to meet some of my work colleagues – I hadn’t seen them since I broke up for the summer holidays – before mastectomy, before losing hair. This BC certainly sucks up one’s confidence doesn’t it?

    Enjoy your weekend if you can – speak soon.

    Sandra from the UK
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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited November 2005
    Ugh, spent a long time writing individual responses last night, and then the web site posting script ate all my text!

    I don't have the energy to recreate though. Peg, I hate the waiting game, and that barium stuff is awful. Mine was called a Bari-Smoothie, berry flavored. Absolutely horrid!

    Marg, so glad that you are using your energy for your family. Your boss sounds very unsympathetic.

    Sandra, between the dog and the washing machine I don't know how you are managing. Glad you enjoyed seeing your colleagues. Has your doctor indicated when you can slip back to work?

    Janet, did the physical therapist give you any indication of how much of your strength you might get back? So glad that you found someone.

    My daughter is home for the weekend, but not spending much time with her parents. Friends, movies, everything else is the priority, as it should be.

    Wishing everyone well....

    *susan*
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  • sholroyd
    sholroyd Member Posts: 288
    edited November 2005
    Susan - know what you mean about the kids - good they have a base though.

    I am due to go back to the Drs for sick note at the end of December and will discuss returning to work with her then.

    Dog and washing machine doing OK

    Sandra from the UK
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  • tornadogirl
    tornadogirl Member Posts: 133
    edited November 2005

    You gals on Taxol are brave. I think i may have to drop out of the Taxol. The lst two days the muscle pain was so great i could not walk, well barely...My feet hurt so much i tried every pain med we had here, well not all at once and nothing touched it. What is really bad is my muscles seems to be damaged so they are weak and i am having trouble walking today. I dont want to ruin my nerves an muscles. Have you had this terrible pain or is your pain mild? It seems to be a bit better today, the 4th day after chemo. But so weak i cant walk.

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  • txred9876
    txred9876 Member Posts: 392
    edited November 2005
    Well today is a much better day for me....We are celebrating with one of our "families" today...My good friends parents are kind of like surrogate parents to me since mine are 2300 miles away. They wanted to make sure we celebrated before my next chemo...

    I hope everyone is doing better now!

    Tina
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  • cazza61
    cazza61 Member Posts: 34
    edited November 2005
    hi all
    hope every one is doing ok.
    Im a bit nervous about starting taxol tomorrow,dont want to do it,feel like running away.Im scared about having a reaction to it,I know they watch u closly but its still scary,guess i should take some meds to relax me a bit.
    How is everyone coping with all this,I know I just want my life back to the way it was,but guess its never going to be the same after this.My biggest fear was having a heart attack cancer never came into the equation.I had to give up work when i got b/c because I was on a contract and couldnt fullfill it so the contract became null and void,now i have to start all over again when all this is finnished,dont know what to do for work when its all over.I know im not going back to working 7 days a week and 8 to 12 hour days,oh I miss the money.I want a change,but what?guess ill find something.
    sorry to be rambling on but its the nerves that have got me
    hope you all have a good week
    love carol
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