osteopenia and zometa
Good news - I get to keep getting Zometa
Bad news - I have osteopenia
Questionable news - don't know what Zometa will do for me (risk of recurrence wise)
Dr is switching me to Arimidex - I have done two years of tamox (as an extensive metabolizer which we also found out probably means nothing) - hope I handle it well.
Happy Holidays all!
Comments
-
I do Arimidex and have no issues except with the bottoms of my feet in the moring. Give yourselfa couple of weeksto adjust.
Wha tis osteopenia?
-
Osteopenia - bone loss, precurser to Osteoporosis. Probably from hysterectomy and chemo. Was hoping not to have it since I exercise and have had 2 years of Zometa
-
Wow, I am so sorry to hear that.
I would have thought that you of all people would have super-strong bones from exercising. And the Zometa....thats quite depressing actually. Once again, you think you do do everything right, and yet.....yada yada yada.....
I am due a bone density in the new year. my last one was perfect, it will be interesting to see what 2 years of arimidex and an ooph will have done to me.
-
My doc told me that Quebec does not recognize the metabolizing test, but he thinks that it is a good thing to be an extensive metabolizer), thats why I had to pay 600.00 for that test . ( Got 80% back from my insurance)
Anyhow, I kinda believe its a good thing, adding + to my outcome.
My Onc wants me to wait til I am 100% post-menopausal to ad the Zometa.
One ?
If you had a hysterectomy, how come you were still on Tamox.
I was told, if I have that, I need to switch right away to Arimidex......???
-
You can take tamox pre or post menapausal. You can NOT take take AIs if you are pre-menapausal. My doc wanted to give me the most time on something so wanted to give me a few years of tamox first. She was thinking 5 years of tamox and then 5 years of AI but recent research showing AIs are slightly better and the fact that we may be able to take more than 5 years made her switch up early.
-
Hi Mary,
sorry to hear about Osteopenia but it's probably good to know early on and watch it. This is one of those things I believe in 5-10 years they'll probably have a great drug to treat it --- we'll be OK!
I'm doing the same as you -- will start Arimidex in January after 2 years of Tamox with no side effects other than the hot flashes (which i'm sure i'd have anyway after chemo and ooph!). I'm a little nervous but both Kerry and Pure seem to have few SEs so that's great! and as Kerry said, every percentage counts :-)
good luck!
-
Mary...
You will probably laugh, but some of the groundbreaking research into osteoporosis is going on in your back yard. The two states for orthopedics are Vermont and Washington. They are doing a lot of research into this at the Vermont Medical Center. One of the orthopedists involved is a Dr Huber who practices at Copley Hospital in Morrisville Vermont. (Putting ski accident patients back together etc.) One of the things he and his UVM colleague are working on is injecting bone strengthening agents into the femurs of women with weak bones to prevent hip fractures.
His counsel to a friend of mine was not to even worry as this whole area is moving forward and we will have a ton of treatment options available in ten year's time.
So while I am concerned about maintaining bone health, I am not stressing it to the degree that I could be. I do need a dexa scan at some point however. I came through menopause with normal readings as got a baseline done five years ago.
Glad though that you are doing Zometa....and that you do benchmark exercising.
As for the AIs, the research I read was Tamoxifen for 2 years, followed by 3 years of AIs. This is another moving target so could change by the time either one of us gets to the five year mark. - Claire
-
The achiness I have from anastrazole is in no way equal to the achiness I have from doing sports. So no worse than keeping ibuprofen with me and Aspercreme for my knees.
I will let you know how x-country skiing goes, and plan on going Saturday on the (relatively) easy course. Thought a good idea prior to taking the chairlift up a mountain than be unable to get down!
-
Sorry to hear about osteopenia Mary. That just seems so wrong based on your lifestyle.
The zometa findings are very confusing. I am waiting to hear back from my dr. as I have had my hormone levels tested and they are indicating that I am in menopause.
Keeping informed gets to be a job in itself.
Bev
-
Hey Everyminute,
I am just new here on this site ... but, I see that you have been on Tamoxifen for a couple years ... my Naturopathic Oncologist has told me that I dont need to take T for ER pos but instead has me on some supplements and good old Fresh ground Flaxseed in the am and pm. I had no use for the side effects etc of Tamox ... Jainey
-
Just one $,
Why are there three different meds on the market for post-menauposal.
Femera, Aromasin and Arimidex........
Dont get it. Could you explain.
Thanks
-
Different companies make them, that's all. Aromasin is different than the other two, and is normally prescribed after 2-3 years on tamox. But they all seem to be as effective as each other.
-
My onc put me on Aromasin from the get-go. Never had tamox. It's chemical make up is based on a synthetic steriod and it supposed to be easier on the joint pain. However, it is not a steriod. Since I've never had Femara or Arimidex I can't compare the joint issues. Mine are usually minimal but I have had days where one or both hip joints are pretty achy.
And I just got the call from the onc's office. Regence ins. approved my Zometa for tomorrow! The irony is that tomorrow is my last day on Regence and then we start Aetna on Jan 1. And we already know that Aetna won't approve it. So at least I get 6 more months. Maybe new studies will be released by then and the ins companies will change their minds!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team