Colon Cancer related to breast cancer??!?!

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  • MaryNY
    MaryNY Member Posts: 1,584
    edited December 2010

    Not sure if anyone is still posting in this thread, but just wanted to look for some advice on my situation. I was going through chemo this time last year and the worst side effect I had was severe constipation which led to anal bleeding. My onc insisted that I have a colonoscopy both because of the bleeding and because I have a family history of cancer of the colon (my father died of it at 67). I got the all clear on the colonoscopy and the gastroenterologist said to come back in five years.

    Then last week when I visited the gyn, she did a fecal occult blood test. It came back positive for blood. How reliable is this test? I'm hoping it's just piles. The gyn is sending me out a home test kit in order to repeat the test. My insurance will not cover a return visit to the gastroenterologist I saw last year as she is out of network.The funny thing is that I've been feeling better than I had in a long time and my bowel movements were finally normal. 

  • flash
    flash Member Posts: 1,685
    edited December 2010

    sounds like a good gyn.  There are some other things that also cause the blood that can be a concern without being cancer.  In particular, diverticulitis or the precursor diverticulosis.  good luck.  I hope it's nothing.

  • Springtime
    Springtime Member Posts: 5,355
    edited December 2010

    Mary, same here, I had terrible constipation, activated my hemmarhoids and I also had an anal fissure that was bleeding. It was awful. I get into the same mess after surgeries too. But now I prep for each surgery with Myralax, stool softeners, etc!! I am okay now though, I stopped eating meat for the most part (I still eat fish and eggs)  and all the veggies are so high fiber that I am doing very well in this department now! Just sayin!!

  • MaryNY
    MaryNY Member Posts: 1,584
    edited December 2010

    Springtime: I think I developed an anal fissure during chemo too as I had the most excruciating pain which added to my difficulties with BM. I have become lazy about my vegetable intake lately. I think this should be a warning to me to do better.

    Flash: having had a colonoscopy a year ago, I find it hard to believe that I would have developed colon cancer since then. Since they usually only recommend that one comes back every five years (three years for men I think) they must figure that it takes that long for polyps to develop and become cancerous.

  • flash
    flash Member Posts: 1,685
    edited December 2010

    mary- exactly why i think they would be thinking more the diverticulosus  direction.  that will also cause some blood in the stool. Usually just gets watched until it flares up (diverticiulitis)

  • MaryNY
    MaryNY Member Posts: 1,584
    edited January 2011

    I finally followed up with a gastroenterologist about my positive FOBT. I actually saw some blood in my stools a week ago, so figured I did need to follow up. Being able to see blood made me think that the blood in coming from the rectal area and likely to be from hemorhoids.

    The gastroenterologist said that even though I had a colonoscopy last year, she would advise another one because of my family history (my father died of cancer of the colon) and because of my breast cancer. I didn't know there was a link but she tells me there is a correlation. Last year I got the all clear on my colonoscopy and that gastro told me to come back in five years. She did't mention any link between the two cancers. 

    Anyway I'm scheduled for the colonoscopy on Tuesday and concerned now about the prep. Last time the prep was dreadful but I was going through chemotherapy at the time with nausea and chronic constipation, so I figure this time can't be as bad. I hope the suggested Citrate of Magnesia and Dulcolax do the trick without causing too much pain and discomfort.

  • zap
    zap Member Posts: 2,017
    edited January 2011

    Hi Mary:

    I just happened upon your post.  I just had my three-year colonoscopy last week.  I get them every three years because my dad died of colon cancer and I am a breast cancer survivor.  There is a link between BC  and a few cancers, including colon.  I think some people get cancer and some don't, so having a cancer puts you at risk for other cancers.

     I was hoping to go for five years but the doctor says the three-year is better as my last conoloscopy showed pre cancerous polyps.  My thought is I can handle pre-cancer anything...just get it out, and so I do the prep and just get through it.

     My doctor does not use the easier prep as it  requires the patient drinks LOTS of water so no kidney damage.  He worries that his patients will not add the large volume of water, so I have to drink that gallon of yuck.  The sheer volume and taste makes me feel sick, so this time I had a method I would like to share with you,  Get peppermints (life saver types) and straws.  Each time you take a swig, crumble a peppermint first to coat the tongue.  Then use the straw to suck in the yucky stuff so that most of it skips your tongue.  It really helped this time.  Also, know that you can stop when what you pass is all clear.  I kept myself on clear soups twenty four before so there wsn't that much.  And make an early appointment so you are not hungry.

     I feel your results will be fine.  Colon cancer takes a time to develop and you just had a colonscopy.  I am sure the doctor said to do this beacuse of the blood and there are a number of reasons why that appeared.  I wish you well!

  • MissTW
    MissTW Member Posts: 98
    edited January 2011

    I am a stage 3 colon cancer survivor and recently diagnosed with stage 1, ILC breast cancer.

    Doctor said there is a connection between colon, breast and ovarian cancer.

    I will be having genetic testing for lynch syndrome and BRCA test.

  • MaryNY
    MaryNY Member Posts: 1,584
    edited January 2011

    Thanks ladies! Zap, would the Citrate of Magnesia be what you call the "easier prep"? I know last time I had to drink something (maybe Miralax) dissolved in multiple containers of Gatorade. I got hardly any sleep that night as I spent most of it in the bathroom in pain.

    MissTW: I've never heard of Lynch Syndrome. What is that?

  • Mantra
    Mantra Member Posts: 968
    edited January 2011

    It's interesting how each doctor seems to have their own opinion of how often a colonoscopy should be done. My first colonoscopy (last year) found a tubulovillous adenoma. Two of my doctors said I need to have another colonoscopy after 12 months because of what was found and one of my doctors said it should be repeated in 3 years. I'm going to play it safe and have it done within the year.

  • maria38
    maria38 Member Posts: 40
    edited January 2011

    Colonoscopy removed a pre-cancerous polyp when I was 37, six months before BC dx. In 2009, same thing happened to my mother, a big polyp was removed and stage II BC dx after a year! So are they related or just a coincedence? Surprised

  • MaryNY
    MaryNY Member Posts: 1,584
    edited January 2011

    The gastro I saw last week spoke more of a correlation than a direct link. As in more colon cancer is seen in women who have breast cancer than in the general population. I take it to mean not that one cancer causes the other, but that whatever risk factor(s) one had for one cancer may also put you at risk of the other too. Obesity would be one such factor. Or it could be genetic.

  • zap
    zap Member Posts: 2,017
    edited January 2011

    Yes, mantra, it is interesting how they differ.  makes me think they are not all sure!  Since polyps were found, I am a BC survivor and dad died of it, I did offer Frown to have it every two years.  He said that would not make the difference, but I do wonder about how 12 months either way could or could not make a difference.  Like all aspects of cancer.....just another element of chance in the mix.

    Good luck to all!

  • catbill
    catbill Member Posts: 326
    edited January 2011

    Hi everyone-

    I am a veteran of 3 colonosopies thus far, because I started earlier than most people.  My grandfather died of colon cancer, but since that isn't a 'first degree relative' (like mom,dad or sibling) all I have to do is go in every 5 years rather than every 10 years.  One thing I learned after the first one is that the instructions for the prep on the day before can be adjusted a little bit.  Instead of starting the awful  "Go-Lytely" (that's the gallon of stuff you drink) in the evening, start in the afternoon.  That way you aren't up into the wee hours of the night.  Chicken (not beef) broth is allowed by many physicians.  Personally, I eat green or yellow Jello, too.  This can help you feel less hungry, and lots of water can help with dehydration.  Dehydration can make the insertion of your IV the morning of the test more unpleasant.

    There are two different kinds of colon polyps commonly found.  Hyperplastic polyps which have no cancer potential and adenomatous polyps are often termed "pre-malignant".  There are a number  of different kinds of adenomatous polyps'', but they all have the potential to become cancerous.

    When I told my oncologist about the colon cancer family history, she didn't think it was enough history to even test me for the BRCA gene.  I was a little surprised, and I hope I haven't missed anything.

    Edited for spelling errors.

  • MaryNY
    MaryNY Member Posts: 1,584
    edited January 2011

    Catbill: I'm going to take your advice on starting the prep early as I don't want to be up all night. My procedure is at 8:30AM on Tuesday. My instructions are: 5PM take four Dulcolax tablets 7PM drink one bottle of Citrate of Magnesia. Then drink a second bottle of Citrate of Magnesia four hours prior to colonoscopy -- that would be at 4:30AM on Tuesday.

    I stocked up on Trader Joe's low-sodium chicken broth today. Also some apple juice. I'm not a fan of Gatorade or any of those kinds of drinks.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2011

    Hi Ladies,

    I wanted to say one thing: I agree that doctors are generally clueless about a true connection or not.  However, as a(n almost) 2 year survivor of colon cancer (and 6 years in September for breast cancer!), I really want to encourage ALL of our sisters to get their a**es checked if there are ANY curious and different symptoms you notice.  It is so easy to explain away things that your body does....I do it all the time.  I also have had 3 cancers, MS, arthritis, fibromyalgia, carpal tunnel, lymphedema, Factor V Leiden coagulation disorder, a history of 3 blood clots, gallbladder disease, the list goes on.  Anything my body does could easily be attributed to something on my list.  My polyp biopsy turned out as "benign," but pathology said I had colon cancer.  I was 31 for breast cancer and not quite 35 for colon cancer.


    We are all intelligent and were proactive enough to get our breast cancer under control and treated.  When it all comes down to whether our breast cancer could be the culprit for a potential colon cancer, I am begging you to get checked.  Yes, it may be IBS, constipation, anal fissures, hemmorhoids, diverticulitis, diverticulosis, but get checked out because the last thing you want is colon cancer.  Wait, rephrase....the last thing you want is ANOTHER cancer. 

    Love and prayers, Deb

  • MaryNY
    MaryNY Member Posts: 1,584
    edited January 2011

    I started my prep two hours earlier than suggested on Monday but I still think they need to revise their instructions as even at that I wasn't completely flushed out by yesterday morning. I certainly had watery stools but they were not clear.

    Anyway, I ended up have both upper and lower endoscopy. No polyps or anything suspicious found, just some internal hemorrhoids. The gastronenterologist suggested that I follow up with another doctor who does the capsule endoscopy in order to check out the small intestine too. Have any of you had that procedure?

  • sflow
    sflow Member Posts: 297
    edited January 2011

    Sheesh--I had IDC 4 1/2 yrs ago and when I had some bad reflux, my doctor suggested a colonoscopy and endoscopy.  He found one polyp--not even pre-cancerous and now I have to go for colonoscopies every 3 yrs!  Does anyone else have to go that often? 

  • MaryNY
    MaryNY Member Posts: 1,584
    edited January 2011

    When I had my first one -- a year ago in the middle of my chemo treatments -- the doctor gave me the all clear for five years. But then because I had the positive result on the FOBT, I had to go through it again. The discharge notes this time again say "repeat in five years."

  • lbrewer
    lbrewer Member Posts: 766
    edited January 2011

    There is a condition called Lynch syndrome (HNPCC or Hereditary nonpoly posis colorectal cancer ) in which the gene mutation causes colon (80%) endometrial (60%) and ovarian (10%) cancers.  It is characterized by a single lesion or polyp as opposed to regular colon cancer which usually has multiple polyps.  The gene can be tested for via a blood test.There is a 50% chance it will be passed on to children.  Mine was passed from my mother's father through her.  There is no evidence of a direct link to BC however statistics show a correlation between women with the affected gene and an increased rate of BC. My mom had BC and colon cancer.

    Colonoscopies are literally a pain in the A---, but really far easier than most BC tests and treatments. Far easier than any of the biopsies!  It is one of the most easily cured if detected early.  I lost my two brothers before anyone suggested genetic testing.  Now I am the only surviving sibling with the gene.  I get tested every 2 years. 

    If you have BC and ANYONE in your family had colon cancer, at least please discuss HNPCC with your ONC.  To go through everything BC patients go through and end up with colon cancer is tragic.

  • MaryNY
    MaryNY Member Posts: 1,584
    edited January 2011

    lbrewer: Thank youi for that info. When you say colon 80% -- does that mean that if you have the gene you have an 80% chance of developing cancer of the colon? I am going to discuss HNPCC with my onc. I have five brothers. Three go regularily for colonoscopies, the other two have never gone.

  • susan_CNY
    susan_CNY Member Posts: 276
    edited January 2011

    my doctors did not feel genetic testing was or is neccesary for my family, but said to make sure my children all all aware and are tested early for colon and breast cancer. My dads mother, her twin brothers, my Dad, his 1 brother and 2 sisters all had colon cancer, his Mom and 2 sisters also breast cancer , both for me also, my only sibling was dx at 29 with MS, a very severe case, was in nursing home by 40 ( passed at 49 with an undiagnosed mass in her abdomen, had never had a mammo ) Makes you wonder, I feel is in the genes. Best of luck to all, is scary.

  • MaryNY
    MaryNY Member Posts: 1,584
    edited January 2011

    Susan: sorry, your family have had it very rough. I notice in your sig you say your lumpectomy was benign, yet Grade 3 bc. I'm puzzled how that can be unless the lumpectomy result was a false negative.

  • susan_CNY
    susan_CNY Member Posts: 276
    edited January 2011

    the first lumpectomy in 2003 was stage 1, followed with rads, my second  lumpectomy  in 2009(same breast ) was benign, had an MRI this past summer since the mammo is so hard to read now from scar tissue, I was very frustrated and asked for mast but docs talked me out of it, this bull gets so tiring...

  • lbrewer
    lbrewer Member Posts: 766
    edited January 2011

    Yes it means that I have an 80% chance of colon cancer.  Susan your family history may very well be indicative of HNPCC.  This is the ctiteria:

    • Three or more relatives with an HNPCC-related cancer;* one relative must be a first-degree relative (parent, brother, sister, or child) of the other two
      At least two generations with cancer (such as a parent and child)
      One or more cases of cancer diagnosed younger than age 50
      Familial adenomatous polyposis (FAP) is ruled out as the cause

      *(colorectal cancer, endometrial cancer, small bowel, ureter, or renal pelvis cancer; some people would also consider including ovarian cancer)

    My children have chosen NOT to get genetically tested at this point.  Since they are all adutls it's their decision. There is nothing they can do to prevent it, but the colonoscopy guidelines are usually every 1 or 2 years.  Female children should have transvaginal ultrasounds and endometrial aspirate testing, usually annually.  Unfortunately there is no routine test for ovarian however a new blood test is available to help determine if a mass is malignant prior to surgery.

    I chose to have a complete hysterectomy.

    THIS CANCER IS DEFINATLY IN THE GENES. MD Anderson has a registry of women with family colon cancer histories you might be interested in and is also looking for women to particiapte in surveys regarding their screening options.

  • jdeking
    jdeking Member Posts: 408
    edited February 2011

    My turn for a colonoscopy! I am going in this Friday and totally dreading the prep. I have the gallon of Golytely plus dulcolax and Reglan.

    During chemo I had really terrible diarrhea, that resulted in anal pain and bleeding. My oncologist thought it was most likely a fissure. It eventually cleared up and BM's returned to normal for about a year and a half.

    FF to October 2010. My routine onc visit showed that I was becoming anemic, with pretty low blood counts and hemoglobin counts. I am 36, so my onc thought that maybe it was related to my menstrual cycle, and suggested I take iron. Around this time, I had started suffering from occassional constipation, and worried that the iron tablets would make it worse, so I held off taking them. By December my BM's were horrible, painful, and causing bleeding and blood in stool. I saw my onc on Jan 26th, and blood counts had gone lower. Meanwhile, my menstrual cycle has vanished, and has been gone about 50 days at this point. My tumor markers are normal. Onc did a rectal exam and felt no tears, fissures, or hemhorroids.

     Would tumor markers be elevated if this was colon cancer? How worried should I be?

    I also have developed uterine fibroids that are doubling in size every year, and ovarian cysts. My gyn wants me to have a total hysterectomy, but I have not had children yet, and was still holding out hope for trying once I am off Tamoxifen.

     Any thoughts on all of this would be great. Thank you!

  • jkelso54
    jkelso54 Member Posts: 4
    edited June 2011

    I am so sorry for that incident.  Should not happen ever.  I have been diagnosed with Invasive Lobular Cancer that has spread to at least the lymph nodes in my breasts.  I am going to surgeon today to get results from CT and Bone scans.  I have large hard area at umbilical area and feeling like it is colon.  I had polyp removed about 15 years ago that was benign and have had 2 or 3 colonoscopies since that were clear.  I am praying I don't have CC too.  Lobular cancer doesn't show up AT ALL even in breast MRI, just lymph node so I am really confused.  I am wondering if anyone else has had same problems.

  • spigneh
    spigneh Member Posts: 1
    edited June 2014

    Hi am just joining in. I had breast cancer 6 years ago. My onco score was 51 highest Duke had ever seen. I have been on Arimendex since. I had both breasts removed, hysterectomy, and left lymph nodes removed. I had a colonoscopy just yesterday and they found a large 2 cm polyp. He says he feels all is fine but is sending it out to be tested. I worry only b/c I had the high recurrence score yet I had 6 treatments of TAC. do you think my high onco score could be related to this large polyp? They are rushing results but the worry of 3 to 5 days is brutal. 

    Thanks Helen

  • lekker
    lekker Member Posts: 594
    edited June 2014

    Spigneh - sorry to hear you're waiting on these results. I hope it turns out benign.  How old are you?  Polyps are more common as we get older.  

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