February 2010 Mastectomy
Comments
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Hope you get your Wii Fit. It's kind of a pain to hook up, but I've used mine almost every day since I got it set up.
Don't give up on the lymphedema issues. There is a position paper on the site www.lymphnet.org that recommends compression sleeves for air travel for women who are at risk, not diagnosed yet. You could print it out and take it to the oncologist - might get some action that way. Also, it's very valuable to have baseline arm measurements taken by a qualified physical therapist before you have any arm symptoms. Then if you do start to get a little subtle swelling, the PT can tell immediately whether your arm has gotten larger.
It's recommended that ALL breast cancer patients have this done, but it appears hardly anyone does. I was lucky - I had a surgeon who gets it. Most women have to pester and push.
I have both foam rubber and silicone breast forms. I use the foam rubber ones most of the time. I think the weight is important to women who have a natural breast on one side, in order to prevent the bra from riding up. But if you had a bilateral MX, the weight isn't really necessary. Foam rubber works fine. I don't know what they'd look like on one of those body scanners, though.
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I had baseline arm measurements taken the morning of BMX, based on advice here. There was a student nurse assigned to me for SNB/BMX and recovery (they asked first and I said OK). She was with me all the way through and this was one of the first things I asked her to do. It was while we were waiting for the rad tracer shots. For me the frustration is, the swelling is in a non-traditional place (my back) so it's hard to measure and frankly it's hard to see with my back fat. Another good reason to lose some weight.
Had my annual exam with family doc in Aug and he said nope not LE. Had my 4-month follow-up with onc in Nov and he said nope not LE. Surgeon moved to Montana no help there. My medical options are limited. That's one of the reasons I do yoga, it helps me stretch and it moves lymph fluid along. I know that 'cuz some days I can literally feel it draining.
Thank goodness for BCO!!!
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It's been a year since my diagnosis and the subsequent mastectomy in February. At the time, I had no desire for reconstruction -- none, whatsoever -- but after months of dressing woes, I finally realized it DID matter. After much research, as well as interviewing surgeons locally, I decided to go to the Breast Center in New Orleans. On November 17, I had my other breast removed (just for total piece of mind) and Stage 1 reconstruction I chose DIEP flap because I wanted to grow old together with my new breasts and I loved knowing they were all apart of me. NOLA was more than great -- the doctors, staff, nurses, hospital were amazing! In February I will return for Stage 2. So a year after losing one breast, I will be returning home with two new (slightly larger breasts). I love having breasts again. Last summer I was in Costa Rica for 2 months and I hated having a prosthesis -- I ended up wearing a tank top under my sun dresses to give myself more coverage but it was far from the look I wanted. This summer I hope to return and finally wear my dresses as they were meant to be worn.
2010 was quite a year! Wishing and hoping we all have a healthy and happy 2011. Thanks ladies for being the support I needed when this journey all started.
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Thinking of each of you On your 1 yr anniversary! Wow What a difference a year makes!
We did together! We each touch each other lives in specail ways! I am so thankful & Blessed to
have gone thru this
with all of you! Love all of my Feb Pink Pals !! {{{{hugs}}}}} Happy 1st Anniversary " February 2010" xoxoxox
Thinking of all of you! Thank you all for being there for me & each other!
{{{{hugs}}}}Gina
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Thank you Gina for the balloon bouquet ~
Happy one-year anniversary to my Feb '10 mx sisters ~
Thank you Faith for starting this thread way back when. We didn't know what we were getting into but we knew we were facing it together and that got us through.
I'm doing great... hope this finds you all well and thriving! {{hugs}} to all
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Yeah, it's hard to believe it has been a year! I hope everyone who was part of this thread will pop in and give a quick update on "their" anniversary day!
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I'm having a mastectomy on 2/15/11 with no reconstruction. I did post but it must have been overlooked. i am very nervous to have the surgery.
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Thinking of you all! Happy One Year!!!!!
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Today is my one year anniversary of my uni-mx. NED for 18 months now. (There was no cancer left by the time I had my mx.) Still a little lympedema and lots of scar tissue and adhesions across the chest and under the arm and numb. But, doing well. Still on daily Tykerb indefinitely. Just got back from MDA about 2 weeks ago for a checkup. Haven't had reconstruction yet. Since it was IBC, they wanted me to wait awhile before having it but the longer away from my mx, not sure I want to go through with another surgery, so not sure if I'll end up doing reconstruction or not. We'll see. For now, I'm ok with my prosthesis.
Hugs to all my Feb. sisters. Glad to have had all of you to go through this part of the cancer journey with and hope all of you are doing well. I'll be looking forward to hearing from some more of you as this month progresses!
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BMX 2/9 (only 3 days away, yikes) sentinal node biopsy too.
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Good luck, Sue! It is not as bad as you might think. This thread is the Feb. 2010 mx group. They have also made a thread for the Feb. 2011 mx girls. You might want to check that one out. Hope all goes well for you.
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Feb. 23 is the one year anniversary of my bmx. I wonder how I'll feel that day. I was a little down on Jan. 14, the anniversary of my diagnosis, but it wasn't too bad. What a year it has been.
I had chemo April-July then rads in August and September. I didn't have immediate recon. I recently had a conversation with a PS about doing a flap procedure, probably this summer. They prefer for you to be at least 6 months out from rads. (They didn't want to do implants because of the radiation. I think I'll prefer the flap anyway.)
I'm taking tamoxifen and so far haven't had problems with it.
And my hair is growing back fairly well. I quit wearing the wig to work after Thanksgiving, and everyone says they like it. They could be lying, of course, but I choose to believe I look very chic. I debated forever about whether or not to color it, but I finally decided that, as long as I was making a drastic change in my appearance by going without the wig, I might as well just go natural. It's coming in salt and pepper, which I'm kind of getting to like. It's been darkening up, though, so who knows what it will look like in the coming weeks. My original color was strawberry blonde, so it's a big change. And it's quite curly, which I've never had to deal with before. I'm just going with the flow and letting it do its thing, although I do need to get a little trim before it turns into a mullet.
I've been trying to use "go with the flow" as my mantra over the last year. There's a lot of stuff in life that just isn't worth getting worked up about after you've been through the life changes of BC. It doesn't mean I'm always calm, but I try.
Hugs to everybody, no matter how your year has gone.
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Today's my 1-year mastectiversary. I saw my oncologist two weeks ago, and have my next Zometa scheduled for late April. So far, so good - but I'm getting cramps in my hands from keeping my fingers crossed all the time.
No problems with either the Zometa or the tamoxifen.
Hope y'all have a great day!
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Hey Linda, congratulations!! {{hugs}}
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Wow, some how I got the boot off the list! I had my surgery on Feb 11th! I know I did, I have the scar to prove it!
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Hey My Feb Sisters! I been checking in lots & reading post! Thinking of all of you.{{hugs}}
Sorry, I havn't posted for a while, I been dealing with lots of test & appts & finally got the news I didn't want to hear. after being 15 months og being Cancer free ( Had Rt Mastectomy Jan 29, 2010) My MRI Show I have cancer to left breast IDC, I having my left mastectomy this Tues May 17th. So Now I guess I am a 2 timer-LOL.
Any of you go thru it for the 2nd time? Hope you all are doing well! xox Gina
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ah geez, Gina, sorry to hear that. At least you know what to expect this time around.
sending a prayer for you and also some ((hugs}} and will be thinking of you on Tues.
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Sorry you have to go through this again. I have been through it twice also, the first time IDC and the second time IBC, but both times in the same breast so I did not have to have a second mx. I hope things go well for you. We'll be thinking of you on Tuesday. Please come back and let us know how you are doing.
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Thanks Feb Sisters! I appreciate your support! Thinking of you & hoping all is well with each of you!
Well I got My Lipstick pick out for my Mastectomy tomorrow! I will check in,after I get home from hospital wed or thurs! {{hugs}} Love ya, Gina
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Hey Gina, thinking of you and hoping you're doing well. {{hugs}}
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Hello & Thanks for your Support. I did get home this afternoon .I am feeling better then last night @ this time, I was just getting to my room., had to stay in recovery 41/2 hrs, do to Fluid build up in my Lungs ( Pulmonary Edema) was scary, Not being able to Breath, The gave Me IV Lasix & got 2 liters of fluid out of me . The 2 S. Node are clean,sent other to Lab with my Breast tissue. I should have Path report friday afternoon! ,So now we wait hoping for good news! I am doing much better now I am home.Still in pain,, But resting much better today! Thanks for your Prayers! I appreciate you!{{hugs}} Love ya, Gina
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Glad this part is past for you and hope that you get good news on Friday!
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Good news on the sentinal nodes Gina, fingers crossed for Friday. Glad you are home and resting up.
Lisa
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I'm sorry to hear you're going through this all again, Gina. I'll be thinking of good thoughts as you recover.
Karen
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missed you this past week., Been resting & Still having Post-op Pain.I was hoping to get my drain out (20 cc last 24hr But dark red still)), But Surgeon want to wait til wed. I am concern because I have a drsg over Left mastectomy chest incision & I didn't in 2010 with rt mastectomy( open to air,but different doc) anyway I ask him last wed when I got d/c from Hosp. if I should cgh it, he said he would in his office, but I am not to thrilled aobut leaving a drsg with dry Drainage & blood on for 8 days? what your take on it?
Also Path report show all Lypmh Nodes Neagative! Woo-hoo Want share my good news with my sisters! xxoxo Gina
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Glad to hear that good path report. Woo-hoo is right!!!
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Gina, great news on path report! Woo Hoo!! Hope you got that drain out today. {{hugs}}
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Hey Feb Sister, hope you all are doing well & safe from all the storms!
Well,I saw surgeon yesterday & I Got the dressing off & Incision clean & steri striped! But He didn't take Drain out-Ugh! I am to call back Friday with Drain out put & color. If not want he wants, then wait til next week!Thankful I got you all to keep me positive! Have a Great day! {{hugs}} Gina
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Gina - bummer - so Friday means tomorrow? I sure hope it's tomorrow and not next week!
20 cc's seems like an OK number to me but I'm not a doc. And I don't remember my numbers from 18 months ago. Heck I have enough trouble with 18 days ago LOL! {{hugs}}
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thinking of you Gina
any updates?
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