Starting Chemo Feb 2010?
Comments
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Go see the physical therapist now hun. Don't let it get worse. Catch it now.
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Lindee - Noooooo, not the eyelashes again. You are my barometer since you've been a few weeks ahead of me throughout chemo,radiation and hair growth. I, too, read that it could happen and I swear I just noticed a few fallen eyelashes on my cheek. I still have my heavy duty eyeliner and eyebrow pencil, just in case. I stopped wearing my wig 10/8 and my hair is coming in thick but unruly. Not really curly, but wavy and sticking up all over the place. I do not like it but I like how easy short hair is. Every time I start to complain about my hair, I remember that it wasn't long ago that I had no hair, eyelashes or eyebrows and then I'm thankful for my own hair, regardless of the non-style. Sorry to hear about AWS, but it's good you are on top of it. Take care of yourself, Gina
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Gina: That's a good reminder. I find this curly mop odd, but it is hair, and everyone else seems to think it's cute
I went out this morning after a shower and a bit of gel. It wasn't that long ago that I didn't need shampoo at all.
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hey there everyone--just checking in. kind of pinked out, as i can tell are others. oddly emotional lately & not liking it much.
as the hair slowly comes in i realize these many years of hating my hair was not an indication of personal lack of talent with styling...i truly have the hair growth pattern from hell. no wonder it always looked so messy. could be in hats quite awhile. and it is thin to boot. ugh... as are the eyelashes in spite of the latisse. but at least it is coming back.
getting ready to head for arizona for the winter--looking forward to being warm. burly--any hints on clothing to bring would be appreciated.
dh suprised me with a brand new 5th wheel--my 'done with chemo & radiation' gift. he says life is too short, why not enjoy a new one. how sweet is that.
been baking & reading like a fiend...
ta ta
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lindee629 -- is this the first time your eyelashes fell out, or the second? I had mine fall out about a month after my last treatment; then they came back. But I notice they're thinning out again. I'm wondering if it this is what's going on. ARGH.
Happy thoughts on your AWS -- glad you caught it before it became full out lymphdedema, which I understand can just come on so quickly if you don't catch it early. Good luck - let us know how your therapist works out... I'm curious. One just never knows!
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Hellooo ladies, been a little while.
Grdnslve-layers! I'm still wearing flip flops with my jeans, and usually a t-shirt with a light sweater. It's pretty cold at night, so that calls for a long-sleeve tee, sweater and actual shoes-SIGH. A new 5th wheel? Very cool! Sounds like you'll be riding and staying in comfort.
Did I tell you all I got a new Camaro as my "made it through cancer and chemo", anniversary and brithday gift? Wow, quite the car. I feel very spoiled.
Got new boobs again on Tuesday-I am officially a 36D and loving it, except for now I have to wear a real bra. SIGH. The new year will bring nipples and tatts, which I'm really looking forward to.
My eyelashes are looking pretty good, eyebrows are full as ever, and the hair is getting there. Still very thin on top, but the sides and back are super thick like my hair was before. It will be a while before I go completely wigless. It's also a mousy brown color, with tons of gray. As soon as it's long enough, I'm going to color it something funky. The benefits of working at a hair salon.
I turned 40 on Monday, and am feeling great! So thankful to be alive and well. Big birthday bash for me tomorrow night-I stopped taking the Vicodin yesterday so I can get good and drunk. What the heck, right?
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Kim - Happy # 40! I hope you birthday bash was wonderful. Congrats on the new car and new boobs, too! I'm glad to hear you're feeling great and your hair is growing well.
Happy Thanksgiving to all Feb Chemo girls!
It seems like we're all coming up on one year since diagnosis over the next several weeks/months. Mine is 12/8. I have a my annual mammo next Friday and I'm feeling some anxiety. I'm also a little worried that it will hurt. Take care, Gina
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Hi - congrats, Kim - happy birthday - hope you can move forward into your forties and put all this stuff behind you!
Gina - I am anxious about my first mammo, which is the Tuesday after Thanksgiving, as well. I never was before all this stuff and now I'm somewhat freaking out - this weird image of them popping my boob because it feels so not normal still keeps coming to my mind! I know that won't happen but I'm very anxious about the entire procedure. Keep in touch and let us know how you make out.
Mo
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Mo - I completely understand how you feel. It's the squeeze and squash of an already tender part that I'm apprehensive about, in addition to the results. I'm going to try not to think about it this week so I can be productive at work and have a relaxed Thanksgiving. I'll let you know how it goes. Thanks, Gina
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Hi ladies.. I already had my Mammo in Sept.. and guess what?? Started with an almost 5 cm tumor.. and I'm now clean.. Now just thinking about whether to have surgery or not.. in my case it's "UP TO ME!!" ugh.. there is always something..
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Kim : Happy birthday! Glad to hear you are feeling so good. Sounds like you look good, too!
We got a new car, too. My DH said "happy anniversary" at the time; he hasn't been big on marking milestones, but maybe that was part of the decision.
The tech was really careful with my first mammo post tx. I didn't like returning to the "scene of the crime" so to speak--the place where they inserted my wires pre-surgery--but other than that, it went ok.
Happy T'day all.
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hey kim--happy b-day & congrats on the car!!!! we all deserve to be spoiled.
we are in the middle of a snow storm, so are stuck here - hope one day to actually get to arizona...
happy thanksgiving to all--i'm feeling pretty abused right now, so no celebrating for me. the dog keeps wanting to go out, but won't 'go' in the snow...yea.....
got to see my daughters wedding dress yesterday...lovely! they finally picked a venue & date, so if i don't kill myself over the weather, the wedding should be wonderful.
ta ta
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Hey Girls....Happy December! Well, its been a year since I was diagnosed....had my ultrasound the day after Thanksgiving and kind of knew then, but wasn't formally dx'd till Dec 4 when I had my needle biopsy. What a year!!! I think we can all safely say that we will be glad to have this year come to a close!
So when do we celebrate our "cancerversary", when do we deicde that we are cancer-free--at the end of chemo, the end of rads, what? I have the date that this all started for me; now I would like to have an actual date that I can celebrate the end of this. Any suggestions?
I did get a prescription from my BS to go see a physical therapist for my arm, but haven't done it yet because it seems to have gotten better, I've been doing stretching exercises so maybe that has helped. AND I too am due for my yearly mammo...not looking forward to that either....and my first age 50 colonoscopy.....
Hair is wild and curly and thick, but not complaining!! It's hair! A little gel and I am usually good to go. Its probably about 2 inches long now and I have to blow dry it. And now that the cold weather is here, my ears get cold!! And my lashes have stopped falling out, now I just need them to start growing back. They didn't all fall out thank God, so i still have lashes, but they are just shorter than before. Swiftbird, I had them fall out (completely) about 2 weeks after my last chemo and this is the first time they did it again, but it wasn't nearly as bad....and this time I knew they would come back. I had my doubts the first time around.
Happy Belated B-day Kim....and congratulations makmak on your clean mammo! Take care everybody!!!
PS--maybe I should be asking for a car too!! lol
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Hey lindee629! I was dx'd Jan 2010 - not far behind you, so I was wondering the same thing. What's going on with your arm? I went into a full middle of the night panic yesterday - the side I had my lump/SNB on is still sore, and armpit and inner arm area bugging me this week. I've been reading up - doesn't look like full out lymphedema and I've not been stretching like I have been... and I"ve been on a major caffeine-o-rama kick recently -- none of these things are good to keep your lymphatic fluids going. I had surgery end of July so I shouldn't be surprised I still feel pains here and there, but my mind can't help but wander into scary waters sometimes.
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Hey Mo - Just checking in to see how your mammo went. Mine was the Friday after T-giving and it went well. I had the same tech I've had many times before and she's very kind and understood my apprehension. It did hurt. I got the letter yesterday that the results were NORMAL. Yippee! She did caution me that it's not uncommon to be called back for a diagnostic mammo for this first one post tx. I was prepared to go back but I'm relieved to not have to. Gina
Lindee - Glad to hear your eyelashes have completely fallen out. Mine are coming out but not too bad.
Retrievermom - I had some serious deja vu sitting in the waiting room of my breast center. I'm glad I don't have to go again until next year.
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A year ago today I went to see my doctor, and by the next day would be doing my mammo and ultrasound. It would be December 9th a year ago when I heard the news over the phone.
All that seems to be a distant memory now. Yes, my hair is still only 2 inches long (maybe 3 at places), but I'm so happy to be alive. And I had so much support from this board I'm forever grateful.
Going in for my exams in 2 weeks. Hoping for good results.
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faithfulc I couldn't agree more ! I was diagnosed 21 12 10 and the roller coaster ride began. I now have an odd hairstyle, I ache all over from the Herceptin I have gained 14 pounds in weight which no amount of exercise, when I can manage it, seems to shift. I cannot do pilates or yoga as my joints are so tender but hey......who cares ! I am so glad to be here. I look at life so differently now, Thank Goodness we've all made it this far. Here's to a brilliant 2011. Let's keep this site going it has been a lifeline for me. In the darkest moments and during the discomfort of chemo and continuing emotional turmoil there has always been someone on here to help me. I'm truly grateful for that.
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Hello ladies! Thanks for the birthday wishes. I had an awesome party that took me a day to recover from...heh heh. We won't tell the oncologist about all the alcohol I consumed.
I hope everyone had a great Thanksgiving! I know we all have a lot to be thankful for this year.
By this time last year I had found the lump, and was waiting for my diagnostic mammo. My actual diagnosis date wasn't until December 17th, but I knew it was cancer already.
I was hoping I would have enough hair to go wigless by Christmas, but that's definitely not the case. It's still very thin on top, with a bald spot on top right where men get them (weird!) Maybe in a couple of months I'll have enough to have a short pixie cut like Halle Berry at her shortest. I've already picked out a purplish/red to dye it for fun lol
I'm glad to see so many of us are still here-it's comforting to come to a place where everyone knows your name and story.
Have a great weekend ladies!
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Hi, everyone - got through the mammogram with flying colors last week! It was such a great relief and it didn't hurt at all - I was nervous that it would be painful but it was no different than usual. On to every six months with onc, surgeon and mammo on the affected side. Is anyone else out there having hip aches and pains? I never experienced this before but I'm thinking it might be from the chemo - and I'm hoping it goes away because it's bothersome like a toothache. Hope you all are enjoying the holidays and Christmas. I have definitely overdecorated, overbought and plan on over celebrating! Mo
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Hi Mo,
I'm checking back in after almost two months away. Wow, time flies. Yes, I have hip aches and pains, although to be fair they were starting before chemo. I think it's arthritis made a little worse by what I went through. If I get a lot of exercise they get pretty achy at night-- I have to flip from side to side while sleeping.
My cancer anniversary passed a while ago-- Oct. 29. Still getting Herceptin-- treatment tomorrow, and after that, just two more. Port out in late January!
Still no haircut, and no need to blowdry, but I do put "product" on it now. It came back the same color as before, not too gray, and not very curly, but now that it's an inch or two long, some wave is appearing. It's actually kind of cute. I passed the looking-like-I-had-chemo stage long ago-- people just assume I cut my hair super short.
My eyelashes are coming in, but here's what's strange-- my eyebrows started getting fuller, and now they're thinning again! What's up with that? I'm back having to beef them up a bit.
I have spent almost no time worrying about cancer... have been very busy with my business, my family, my life, and helping a couple of other women going through this. But I must say I was shaken today by Elizabeth Edwards' death. She was a fairly early diagnosis girl. It's scary.
Thinking of you all. I hope Michele is doing all right.
Colleen
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Hi all,
I too was shaken by the death of Elizabeth Edwards b/c she was diagnosed as a stage II in like 2004, and found she had bone mets a few years later--after she had chemo, rads, surgery, etc. I try not to worry about the future, but over the weekend, I had a lymph node start to swell midway between my armpit and elbow of my lympectomy side. Whats up with that? I didn't know if it is related to the newly found lymphedema, but I went to see the BS who said he didn't think it was anything to worry about but did a needle biopsy (ouch) anyway. He is supposed to call tonight with the path results, so I am keeping my fingers crossed. I told him that I was having pain under my arm, and around the lumpectomy site and he seems to think its normal because my cancer was near my chest wall and I'm kind of thin and he thinks its just taking me longer to heal. And I have an appt to meet with the lymphedema specialist next week. And a follow-up appt with my oncologist at the end of the month. Still need to fit the mammo in too. Man I just want to feel healthy again. I'm tired of doctors...
But my hair looks good! Its at least really thick and with a weird curl thing going on, so I gel it up and it looks quite stylish. Eyelashes have stopped falling out (yay!)...and I don't have too much bone and joint pain, maybe my knees ache a little at times. The neuropathy in my toes has never gone away and I guess maybe it won't. And I haven't had a hot flash in over a month!! Now that the temperature outside is like 26 degrees I could use one. But nooooo I had to get them in the summer time.
I'm glad we are still keep in touch on this board too!! I tell everyone how great it is. I never could have gotten thru this all without you girls. Take care all and have a great weekend!
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I'm glad to see everyone sticking with the board too. I don't post as much as I probably should, but I love reading how everyone is doing.
I was shaken by Elizabeth Edwards' death also and I'm glad it's being discussed here because I'm not sure how to talk to my husband about how it frightened me even more than when I was diagnosed almost a year ago.
Colleen and lindee629 - I've got a killer short do now. It's come in thicker and much softer than before, but with a bit more grey. It's driving my daughter crazy and is urging me to get a rinse quick! I've had ladies come up to me and say they wish they had the guts to take the plunge and do a short haircut. Before bc, I had wished I had the guts to do it too and now here I am!
Colleen - my eyebrows did the exact same thing. They are pretty thin right now so I just keep filling them in as best I can. I have eyelashes again though. They're sparse and not very long - but they never were to begin with.
Take care, ladies! Praying that Michele is doing alright.
Crystal
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It's great to see so many updates. I've been trying to find a good balance between living life as usual and living life as someone who had cancer. Most of the time, I've been able to put cancer out of my mind, but hearing about Elizabeth Edwards brought it back, so here I am.
Over the past few months, I've met a few women who had breast cancer more than 20 years ago. I played golf in a cancer fund-raising tournament on the anniversary of my diagnosis, and there I met a woman who had breast cancer 30 years ago. So I think of these women whenever I get down, and I know that is possible to live a long life after having breast cancer. But I still think the fears will come flooding in, even if briefly, whenever someone well-known succumbs to breast cancer.
Next week I have my first Pap since the diagnosis, so I've got that on my mind. I'm hoping there's no thicking of the uterus lining due to the Tamoxifen, but mostly I'm thinking about this being another cancer screening. Ugh.
The hair is about 3 inches now, but it looks shorter because of the curls. My eyelashes remain short, but my eyebrows were so thick I had to thin them. If only I could paste the eyebrows onto the lashes, I'd be in business.
Anyone get their period back yet? It's been 8 months since my last chemo and no period. At age 50, I hope it stays away. I notice that I look a lot older, as if I've visibly aged 10 years over the past year. It's odd, since up until 5 years ago, I was getting carded. Now, I wouldn't be surprised if they tried to give me senior discounts! The short hair doesn't help. My parents are coming down for Christmas, and it will be the first they've seen me since before my diagnosis last year. I've told them to be prepared to see a change.
I think of all of you often and am so grateful to have had you to go through this with. My best to all.
Cindy
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I'm in that "this time last year" mode, too. I found out the day of my work Christmas party last year. At the eye doc today, he shared his cancer experiences with me. Yesterday, I learned of another friend who has been recently dx with bc and will have surgery next week. And like you all, the news of Elizabeth Edwards' death saddened me greatly. Sometimes it seems cancer is everywhere.
I have a mess of curls that is now long enough to style. After showering, I spray on some de-curl product, then blowdry while holding each section straight, then use the flat iron, then try to spike my results with goop. When I'm patient, it all turns out pretty well
My arm on my affected side bothers me on occasion. My rad onc wants me to wear a sleeve when flying. He couldn't see any change, but felt it better to treat as le risk. The stiff, achy hands, especially in the morning, still bother me.
I'm trying to strike the right tone in this year's holiday letter. Don't want pity, but don't want to trivialize the past year's experiences, either.
Looking forward to the holidays and my DS's arrival home from college. As for your question, CinD, I'm beyond the period problem, but my "puppy" (now 1 year old) picked now for her first cycle. Poor thing hates her panties.
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lindee, that's so odd because in the last week I had some tenderness in my armpit and my breast where my lumpectomy was. Of course, not knowing how long it takes for things to heal and how lympedema symptoms can pop up months after... I had one or two sleepless nights. Then I found that my arm started being tender, just like it did right after my surgery, from my break through my armpit to my hand -- I had super mild cording right after my surgery, but I kept working to stretch daily and it went away. I realized that I hadn't been hydrating (traveling lots) and my lymphatic system was probably getting drudged up, so, I spent 2-3 days hydrating, trying to flush my system and felt much better. New normal? *SIGH* Am anxious to hear how your tests come back - keep us updated. I thought I felt a lump at first, but then again I kept rutting around like a madwoman and would've found anything... now I don't feel anything abnormal, but keeping a vigilant eye on things. So tired of this ,but thankful to be alive. Tomorrow is my birthday -- trying to stay focused on just being happy to be here.
Also - am glad that I'm not the only person freaked out by Elizabeth Edwards' death. I kinda freaked out yesterday.... better today.
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Cindy, I haven't gotten my period back. Last one was about a month after diagnosis (10/29, a day that will live in infamy). I had been on the pill for forever, in part because of fibroids; I stopped taking it not long after diagnosis, had a period, and that was it. I was just in chemo lite yesterday (I still go for Herceptin and Avastin every three weeks) and asked about it, since I'm also on Tamoxifen, and was told I'll have two years of Tamox, then tests to see if I really am in full menopause. I sure seem to be-- I was in process, but the combination of cancer stress and chemo seems to have sealed teh deal.
Oh, and I'm 52.
I identify with the visibly aging thing, too! The good news is I'm thinner post-chemo, and I've kept it off (weight has always been an issue for me), but the chubbier face does keep one looking younger.
I'm glad to hear I'm not the only one who's been a little freaked with Elizabeth Edwards' death. I really am quite positive most of the time. I don't feel like I can talk much about it, certainly not to my family. I said a little something to my 17-year-old daughter at dinner last night and quickly stopped. I don't want to scare them again.
But it is scary. We were just at a memorial for a friend who battled lymphoma for ten years. Started when our girls were 10 (my older girl, who's now 20). He beat it once and he beat it twice, but the third time it returned he couldn't beat it.
That said, I have met tons of women who've lived long and happy lives post-cancer, and that will be the case for most of us.
Anyway, good luck with all the worries and frets...
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Oh, and I'm having increasing problems with my cancer-side arm. Had a three-month follow-up with the radiation oncologist today, and she noticed I can't comfortably put that arm over my head. I'm so used it... a muscle in the tricep area spazzes pretty badly if I move it back or overhead. I thought it might be a pinched nerve, because my husband has had almost the identical thing, and that's what it was. But the rad. oncologist thinks it's from the lymph node surgery. So another MRI in my future, and hopefully that's all it is and physical therapy will help.
Just sharing in case anyone else has that and is worried. Sounds like it's not a big deal. Although it hurts.
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Oh so many comments to reply to...
Hair-still only 1/4 to 1/2 inch all over with a small bald spot on top of my head. I'm a little frustrated considering my last treatment was July 15th, and so many of you seem to have a lot more hair than me. Same thing at my PS office-they all have lots of hair.
Um, my right arm hurts when I raise it above my head to put on a shirt or something. I also have gotten used to it, but haven't asked about it. I'm not worried, just annoyed.
Eyebrows are pretty much back to the same thickness, and I've had them waxed once. Now I just pluck daily. Eyelashes are looking good-not as long as before, but I started using different mascara and they look pretty good.
I have definitely aged through this entire process. My eyes look sunken, and I have large purplish circles under my eyes. I've only gone without glasses one time to work, and they all commented that I "looked tired." Ugh. I'm pretty upset by it, but there's nothing I can do about it I guess. I just turned 40, and definitely look my age without glasses. In glasses with my t-shirt and jeans on, I think I look about 36-37. Until I go out with my 15 year old son who is now my same height!
My baby turns 11 today-time flies. She's turning out to be a real pistol, kind of like a combination between my husband and I.
I too was very shocked by Elizabeth Edward's death. I will admit it does scare me. As I sit here drinking a beer, and thinking about the candy I ate last night. Do I go in to the oncologist with a lengthy list of questions about what I should and should not eat and drink, or do I just live my life? I don't want to live every day scared about what I put in my mouth. Humpf.
I'm glad a lot of us are still posting and keeping everyone updated. I'm very thankful for all of you!
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Just came back from my first mammo after this ordeal and everything was normal. Although I've been feeling pretty good, it is still a big relief to hear the good news.
Elizabeth Edward's passing made my heart skip a beat. I, too, have not even brought this up with my family. As loving as they are, I feel a more real and intimate connection with all of you here, because only you know what I went through and truly understand how I feel. This bond with this board has sustained me so much I cannot put it into words!!
But what can we do other than focusing on getting and staying healthy, both mentally and physically? It sounds like a lot of us are doing quite well and I'm so glad to be reading everyone's updates.
My hair is about 3 inches long now (my last chemo was May 19 so it's been almost 7 months). I'm ready for a trim at some time. This old wig has been with me since February and I've gotten so used to it. That said, I do look forward to the day (hopefully soon) that I no longer need to wear it. My DH says I can go without the wig any time now, but I'm still not so sure.
My brows grew back in about August/September, and the lashes are pretty normal now. One thing I still don't have (and not missing it) is my period. I had a weird one-day period a few days after an exam of the uterus where the doc took a sample of it (ouch!) and I thought that could be my regular period coming back. Well that was in October and here I am, nothing after that.
I've also been on Fareston for 2 months now. It is an active form of Tamoxifen, since the doc found out that I am a poor metabolizer of the good old T. Initially the hot flashes flared up again, but it seems to have been a bit more tame now. With the cold weather I could really use a few of these every day.
Happy holidays everyone! We are taking the kids to Disney this year - had promised them last year but had the unfortunate change of plans.
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Hi, everyone - have to say I love seeing notes from the board coming into my inbox. I feel very connected to all of you and it gives me solace to be able to read the same thoughts I'm having from all of you! Makes me realize I'm not crazy. But, just to make sure, I've started seeing a wonderful therapist who is helping me put all of the past few years in perspective - lots of dying and medical stuff going on and I realized I had to get some help to sort it all out, rather than worrying all the time about everything. It's been a godsend, I have to say, and she's really hit on some things in my past which I didn't even realize I was still carrying around - much to my detriment. Never had therapy before and actually didn't realize it could be so powerful. Hope you're all doing great things and have fabulous plans for the holidays. Oh, yes, I think I am crazy - we're having thirty some people here for dinner on Christmas! Take care and hugs to all! Mo
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