Getting tired of the arguments on this board!!!!
Comments
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Pompeed:
I'm not criticising your personal choice - I may have not chosen to have chemo if I had not been HER2+ve - in fact my onc might not have recommended it. I did ask him what he would have advised and he said we would have discussed it - probably a similar discussion to what you had with your onc.
Yes, we are all adults and we can read what others are going through, but notice that none of us come right out and criticise the treatments offered in such a way.
Diagnosis: 10/13/2009, ILC, 1cm, Stage I, Grade 3, 0/5 nodes, ER+/PR+, HER2+ -
Well, if the subject of the downside of treatments hasn't been fully aired and has been kept under wraps and hidden in secret places, might be useful, at least to some, to get it out of the dark corners and put it out into the light and air.
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Athenia...my dr.was trying to make a point.there was no trickery involved.all meds are poison.everyone knows that.BUT we still have to take some of them to keep us alive.THE BEFEFITS OUTWEIGH THE RISKS...IN SOME CASES. again chose your own poison OR dont take it...in the end bottom line....your decision.
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grannydukes, I think you just said it well. It is poison, and for some the risk outweighs benefits, and for some the benefit outweighs the risks, and we will all draw that line according to our own life experiences and values priorities and beliefs. Every single person here has a unique set of circumstances that in concert with a different biology of tumor will mean that each of us makes a unique decision.
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BTW---- my son just called me and told me they took childrens tylenol and motrem off the market.he has a 2 1/2 yr old daughter....just so funny that my dr used tylenol as an example of poison. It does get scary if you stop and think about it.We the people are the guennea pigs.I swear i got bc from HRT that i took for over a decade.4 different drs.told me to take it.
this bc sure does suk.
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Pompeed wrote "Like it or not: there are serious and permanent side effects to therapies for the treatment of cancer. That's not my opinion. It's scientific fact."
Actually, it is your opinion. Scientific fact would state "there MAY be serious and permanent side effects for the treatment of cancer."
You make all your statements with factual assertion (and lots of conjoined sentences which is truly annoying). Anyway, it just isn't the case.
I doubt anybody is really going to fall for your agenda and you are right - if they believe a stranger on an internet board over their doctor, than they have bigger problems than anybody here can fix.
You are entitled to your opinon of course. We all have them. But don't disguise it as fact. The person who gets to spout facts on this board is Otter - she's the only one who does it right.
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We each "do" have the right to speak to our minds. If you dont like something said, you "do" have a right to say so.
I honestly believe that when Pompeed first posted, many of us who responded to her were simply trying to make sure she was educated enough to make such a drastic decision or had at least consulted with the experts. That is what we do here...we care enough about each person who comes here that we risk some people getting mad at us for awhile as long as we think we are educating etc. We try to find out what we can and give advice based on our experiences. It was Pompeed who went on a major defensive and would type pages of responses and made a mountain out of a mole hill, "in my opinion". Giving over exaggerated responses to a group of ladies (some who have been thru their own hell) who were only trying to help her, certainly didnt impress me. It was made clear many times that she was free to do as she pleases.
This site and most of the members welcome new people, new ideas, those who choose no treatment, those who choose treatment and those who choose their own method of treatment with open arms. We have learned so much from eachother. When no one else understands...there's always someone here who will. Nowhere is perfect but this site is the best out there for most going thru breast cancer, whether you are getting treatment or not. You can not expect that everyone is always going to like everything you say. I have been a member of this site for years and Pompeed's tyraid at anyone who dared to disagree with her was uncalled for and she definitely caused most of her own problems. I think Pompeed's defensive attitude reflects her insecurities in her decisions and that she is sort of making a "case" trying to make sure she made the right one. All the above is in "my" opinion. Peace to all..Mazy
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All you have to do is Google the possible side effects and there they are. No one is trying to hide them from anyone. In fact my onc asked me the side effects of TCH when I met with him as he knew me well and knew I would already know all about it.
Hey, the worst permanent side effect of chemo is my crazy 70's perm hairstyle - I hate it but I'm alive!!!!
Sue
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Mazy you may have hit on a note of truth when you referred to Pompeed's insecurities about her choices. I think her insistence on "her opinion" is something that fuels our own insecurities about treatment. No one is sure. We all do the best we know and can do. The best defense is a good offense and I think she uses her vocabulary to bombard the perceived opposition. It has been difficult to persuade her that we are all on the same team. Does she honestly think the "down side of treatment" has somehow slipped by us, or that anyone on this board needs to be educated about side effects and the POSSIBLE results of prescribed treatments? I don't think so. Some have actually DONE those things and are much more informed about the associated side effects than she is or will be (considering she has chosen a different path) . We are not in the dark or ignorant about BC treatments. We do not need to be educated or lectured. She believes we do not understand "her opinion" and for one, I have to say, I do not, but that's "my opinion".
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Thanks ladies..I really do care about everyone here.
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Sorry for having dragged the 'Not Buying in to it' thread over to this one but it is the one thread I've read here that is SO argumentative. We did offer help and support but that was obviously the wrong thing to do in that case.
Sue
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I've just never seen such inefficient "lawyering" as witnessed on this and the other thread. Sounds like my family growing up. We would defend ourselves, defend and defend, going round in circles, solving nothing and just defying the law of physics against perpetual motion. I am also reminded of hunters whose method is to simply exhaust their prey. Fine for a crappy family meal or the African savanna, but it's tiring here. Pompeed is spending energy in a rather disorganized way.
Mazy and Madalyn - I don't think Pompeed could answer the question you pose of what her goals are here. I speculate that they have changed but I am disturbed by patterns of her behavior that seem unhealthy as evidenced on this web site. I do feel sorry for her because she has been harshly spoken to, but playing a lawyer's dance is wasting everybody's time and resolving nothing.
On the other hand, I must thank Pompeed because some of her views about treatment dovetail with mine and I do not feel BCO is sufficiently tolerant of those views. She has opened avenues for discussion which some of us feel were missing, and to some extent, she has had to bear the brunt of the push-back that those of us who preferred to stay silent may have endured. It doesn't make her a hero, but it does put things into perspective. It's a shame that the atmosphere in which these "not buying it" ideas have been expressed has led to "arguments," shall we say but perhaps there was that much pent up emotion to let out.
It's also true that not everyone will find someone who feels/has been through the same thing on BCO. A small thing: I had a TE that folded into itself --a rare complication-- and no one had experienced that (quick surgery corrected the problem). A big thing: Lupron was my nemesis, but I had to go to a prostate cancer forum to find advice on dealing with SEs. And -most importantly for me, personally-- there is really nowhere here to talk about the role of major comorbidities in choosing cancer treatment and shaping our decisions, and efforts to get a forum on that have not been successful.
However, for many things, you will find an echo.
I tend to wager that Pompeed is "secure" in her treatment decisions and she is not pretending that those are binding. It's the endless attention-seeking that worries me. Perhaps she is furious about getting cancer. Totally understandable, but a disorganzed Quixotic sword fight with the four winds can only make that worse, surely?
Cancer forced me to take stock of who I was as a person. Perhaps Pompeed is in that process - who knows. I'm not inclined to read yet another several paragraphs of self-defense at this point. I would rather she did something better for herself, like look at the forums that might help her such as "Surgery" and "Breast Reconstruction"/Non-reconstruction. I bet she would get good advice on the drain situation. Or start a thread on riding - that would be a great way to bond over something she loves with people who also have bc.
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Talking about the downside of treatments...
I was so freaked when I first learned that chemo was recommended for me due to Her2+ as my friend had just passed away during her chemo treatment. I logged on to BCO and a bunch of ladies made me feel better telling me their chemo stories and giving me encouragement. In my mind chemo was linked to death because that was the only personal example I had.
I finished chemo in March and I am grateful to you ladies for helping me get through it.
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Someone once said - and I don't recall where - paraphrasing...'at least we don't argue like they do on the stage iv forum'...apparently we aren't alone anymore...
Oh, and the "You Know You Are a Cancer Patient When..." is absolutley a riot!
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Ooops...... It was really not my intention to start another argument.
I guess I should rephrase- I really do see the benefits of disagreeing opinions and discussions- absolutely! I guess I really just have an issue with certain individuals getting personal- calling each other names or posts having a disrespectful tone. Or just arguing for the sake of arguing.
Anyway- if we can all learn from each other- that's awesome, and what this site is intended for. But if some are belittling others for voicing their opinion- well then that's where I have a problem.
I'm truly sorry for opening up a can of worms, especially one that was already opened elsewhere.
Molly
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Hi Molly .. no need to apologize .. I've been around a number of years and have seen all kinds of arguments on this site. They usually burn themselves out .. and the posters move on. For many of us the main thing we have in common is breast cancer ... beyond that, our lives may be very different and we come from very different backgrounds. Arguments are bound to pop up from time to time, especially on controversial topics.
We may fuss and fight a bit, but underneath, I believe there is real concern for one another.
Hugs,
Bren
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I think some of our posters need to learn the difference between "Arguments" and "Disagreements". You evidentally have never spent a day or two with Sicilians. Want to really know what a real Argument is? Sicilians are the owners of how to do it "right"! They also are tough skinned enough to know the difference between the two words. Sometimes I think I am back in grade school on some of these threads!
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Interesting thread. I orginally joined BCO back in '04 when my cousin was Dx-ed with BC. I spent months researching, asking questions, sitting back and learning from those on the board at the time of what their journeys were like.
FF now to '10 with the possibility of it now being me. I knew BCO was where I need to go.
I never ran into thread back then that were argumentative and lashing out at one another. What I saw was a great deal of support, encouragement and information.
Not sure why that dynamic seems to have changed in 6 years. The website has options of blocking people, one can chose not to read a thread if it's they dont find it helpful or constructive/supportive whatever..
But I dont remember there being serious heated threads back then.
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Marie, I've been here a few years and I think what's changed is that the board has expanded to include a lot of topics that have nothing to do with breast cancer. Generally these forums provide a diversion and everyone who participates enjoys themselves. But sometimes when you have social discussions that move into politics or religion, or when you discuss hot topics like how healthcare is managed in the U.S. vs. other countries (certainly a relevant topic for this board), arguments start. The other area where there are disagreements are in threads that discuss alternate treatments or where the benefit of traditional treatments are questioned. This one isn't new. I recall back in 2006 we had some really heated debates about this that required the intervention of the moderators.
Although the support from women on this board on breast cancer issues is tremendous, I hope it turns out that you don't need to find a home here.
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Oh, if you want to see a bashing, all I've got to do is express my opinions about reconstruction options.
tl
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Thanks Beesie...
I can see that the forum not only has a totally new look (or at least different from the old board) I can tell that there are much expanded number of topics.
If I need to be here more than I would like, I will be chose to picky with which threads I want to participate in.
It's unfortunate that women facing cancer would bash one another, Tammy, but if anything it goes to show that women, or human beings in general, still are that even before being BC patients.
Hoping that all stays well with you both.
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In my humble opinion, I don't think it's appropiate to 'talk about' a specific person, name names, etc., on a public thread that that person can read; which I realize is probably the intention, which is the first thing that makes it inappropiate.
If someone feels the need to discuss their opinion, about a specific someone else's opinion, (or thoughts, feelings, insecurities, etc.) they should do so via a private message, or talk to that person directly.
Not everyone wants to know what one person 'thinks' about another person.
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I have seen some posts that suggest the idea of posting PM's on the boards is ok though?
Seems to make the idea of PM's pretty moot.
Ah well. Guess we are all just pretty much cut from different clothes.
The culture, she is a-changing. For good or ill, but she seems to have changed. <shrugs>
I'll just navigate the waters carefully.
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Marie .. you're not supposed to post PM's. But, a long time ago, I got some hate mail and in order to make it stop .. I threatened to post the hateful stuff. It solved the problem .. I'm a woman of my word and I would have posted them.
Bren
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Wow, Bren. Sorry to hear that you got hate mail and that was the only option to make it stop.
Last thing that anyone needs is hate mail when they have much more important stuff to deal with.
Glad it stopped, though.
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It was a long time ago .. and everything is fine and dandy now.
Hugs Marie,
Bren
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Traci, How did you get a picture of my kitteh Zorro for your avatar? Same black mask, black nose, black goatee....twinsies?
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Awe, what a cutie!!! My kitten, sadly, died not to long after I took that photo.
He had some kind of freak blood disease. I drove all over Dallas to four different vets trying to save that poor kitty. The first kitten I ever had too. He was cute....he was actually a Scottish Fold. His ears were folded over. When I took him to WalMart to get all his kitty stuff, people kept saying "awe, look at the little puppy". Sniff Sniff.
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Wow! They really do look like twins no that their pics are right next to each other! That's cool!
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The local humane society was giving away cats due to overcrowding a year ago and my daughter insisted I get one to keep my 11-year-old manx marmalade lady, Fidget company. Zorro outweighs her by about five pounds, but she rules the roost!
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