Starting Chemo October 2009

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited December 2010

    Suz, I am like you ...I love to paint and remodel....lucky for me my DH is usually ok with it...I almost passed out just reading your post..I can't imaging having to be there for it...My son had stitches a couple of times and that was tough on on us both...

    Alicia,  woohoo to cleavage.  I can't wait for some.

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  • suz45
    suz45 Member Posts: 796
    edited December 2010

    yuck... sitting at the Cancer Agency right now waiting for radiation.... too many memories Tongue out

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  • txstardust
    txstardust Member Posts: 599
    edited December 2010

    (((hugs))) suz...let's hope these treatments help the pain and give you relief.  Stay strong!

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  • txstardust
    txstardust Member Posts: 599
    edited December 2010

    It's back to the waiting game for me...my least favorite thing in the world is waiting for test results.

    Yesterday, went for a chest x-ray and chest CT.  They had to stick me five times to get the IV in.  Yuck.  Tomorrow is the pulmonary function test.  They're trying to figure out why I have elevated lung pressure.  Shortness of breath isn't debilitating right now, but it's constant.  I won't get the results until Dec. 20.  I'm thinking I may be calling the office and making a pain in the a$$ of myself next week to see if they'll give me the results before the appt on the 20th.  I don't care what the results are, I just want to know!

    Alicia, how are you doing in your recovery from surgery?  Hope the pain isn't too bad.

    Hugs to everyone! 

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  • suz45
    suz45 Member Posts: 796
    edited December 2010

    You pester the heck out of them! Waiting absolutely SUCKS, big hugs.... hoping its nothing to worry about.

    Michele, You wouldnt believe the amount of sanding its taking to smooth out the wall... what was I thinking when I did a full room hand painted mural for my son, LOL. Thinkin Im about halfway done with the sanding & patching, thank god for electric sanders!!

    Well I made it through the radiation.. the Doctor had it all marked out & I was in the Rad waiting room. Had a look in the mirror as to where she marked it ( it was a simple press & does it hurt technology) and the area that was marked wasnt the area that I was having problems with... I know as I could touch the first one with my opposite hand and this one I couldnt reach (but it was still just as painful as the first one) so they gave me the shot of radiation & sent me back to the onc to have the second one mapped.... more waiting & then another round of radiation. So its all good, we just didnt know the pain was in 2 areas. For the gals that went through rads this was really different. They line you up then the radiaton part seems to go on forever... way longer than when I had the front fields done. They said it would get pretty painfull quite fast & then within 2 weeks all pain will hopefully be gone. Will have to treat it the same way as the other radiation (aloe & cream) lol, have tons of that left still.

    So back to the reno's for a week.... would be nice to have the walls, lighting & hardwood floors done before my next appointment Laughing 

    Love & Hugs, Suz

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited December 2010
    Sending out hugs to all my peeps (((((Kiss)))))
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  • txstardust
    txstardust Member Posts: 599
    edited December 2010

    Right back at ya!

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  • suz45
    suz45 Member Posts: 796
    edited December 2010

    Same here... Hugs!

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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited December 2010

    AHH Shelby ~ that waiting is torture !  Sending up good thoughts and prayers that you are just FINE.  Keep us posted. 

    I am doing good thanks. 

    Like Michele said HUGS to my peeps. 

    :)

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  • one-L
    one-L Member Posts: 1,110
    edited December 2010

    Good morning girls.  Hope everyone is having a relaxing weekend, even if you are waiting on test results.  Try to do something fun and maybe that will keep your mind off of it.

    I am so glad that I am not having any problems and don't have to see the doctor until the end of March.  I know I am one of the lucky ones, but I do appreciate that some of you are going through some stressful times right now. 

    I know this is a really busy time of year and I think I am through with all my shopping, wrapping and decorating.  It feels so good to be that far along.  Of course, we don't buy lots of presents for anyone anymore.  We buy for the grand kids and then I get one gift for each one of the sons and their wives.  They want to play board games this year, so that should be fun and I have accumulated 30 something presents to give out some how.  I haven't really decided.  If you have some suggestions let me know.  I want this to become our traditional Christmas, so I want to make it really fun. 

    Hugs to all you wonderful gals and have a wonderful relaxing day.

    Juannelle

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  • suz45
    suz45 Member Posts: 796
    edited December 2010

    Well had my ct scan yesterday and a visit with my PS today.... I get the ct results tomorrow but it doesn't matter anymore. The PS is refusing to operate. The DL flap cant be done because that's where the mets are (on my right rib) but she is also refusing to do anything. She doesnt want to put me under for any length of time for other more difficult surgeries (also admitted she hasnt done most)

    I was even going to go ahead & just do implants & she said no to that as well. She said there was no way to do delayed implants on radiated skin... so they are going to do jack all & force me to walk around for the rest of my life flat, scarred and carrying these stupid globs in Granny sacks to pretend they are breasts.

    I'm so f****n mad right now and have to try to figure out what to say to my Oncologist tomorrow. I don't want to alienate her but They forced me into this situation by not doing the immediate recon that was planned. The waiting list is now up to 4 years for some of the good surgeons.... just for a consult! Why did they tell me I had a high quality PS when she doesn't know how to do most of the Breast surgeries.

    Sigh sorry for the rant but this is so damn unfair.

    Does anyone know somewhere I could go in the States that does a lot of different procedures. Also what would the cost be for something like this... It should be paid for by my medical but I dont have 4 years to wait for it.

    Sorry for the rant... Hugs

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  • txstardust
    txstardust Member Posts: 599
    edited December 2010

    Suz, you have every right to be pissed off.  I'm so sorry they've put you into this situation!  I'm not sure what to tell you about how to navigate the Canadian health care system.  I'm holding out hope that you'll be able to find a solution.  Why don't you post on the reconstruction forum, maybe someone there has had the same problem?

    Hugs to you!

    ~Shelby 

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  • suz45
    suz45 Member Posts: 796
    edited December 2010

    NED!! Wow, what a shock & incredible gift!

    The scans came back clear, no evidence of disease & since they radiated the rib Im considered clear. They are going to need to monitor me really close & I will have another bone scan late january. But Im soo happy after these last few days of a nightmare.

    Love & Hugs, Suz

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  • one-L
    one-L Member Posts: 1,110
    edited December 2010

    Suz,what wonderful news.  You certainly deserve some good news, since you received your other news from your PS.

    Juannelle

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  • txstardust
    txstardust Member Posts: 599
    edited December 2010

    Suz, that is FANTASTIC!!  I'm so happy for you!! 

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  • MarieK
    MarieK Member Posts: 911
    edited December 2010

    Suz that is fantastic!!!!  I'm so happy for you!

    If you still want to have reconstruction you should seriously get another PS opinion. 

    Mine in NV is giving me an implant on my radiated side.  I had the TE put in about 3 months after my last radiation.  I'm not sure why your PS is telling you no implants on radiated skin.  There are all kinds of women on here that have done just that!

    Mine filled my TE slowly - once monthly - and now I'm waiting only 2 months from my last fill to have my exchange to a GUMMY implant.  He tells me that I will be a C cup when I"m done.

    Private email me when you stop dancing with NED long enough to sit at the computer again!

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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited December 2010

    Suz ~ that is great news !  enjoy the holidays and don't worry until you have to worry..........

    I agree if you want reconstruction I would try to find someone willing to accomodate you.  You deserve it.........

    Hugs,

    Alicia

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  • valeriekd
    valeriekd Member Posts: 287
    edited December 2010

    Hi Ladies! Have not been around for a while! Caught up with some people and was so pleased Suz that things turned around. This whole thing is such a mind f<c&.

    Is anyone else having a ton of pain with aromotase inhibitors? Can't find one that works was wondering what you all are doing. Merry Christmas! Valerie 

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited December 2010

    Suz, wow that is such wonderful news...now you can truley enjoy Christmas and party it up with Ned...

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  • feistybluegecko
    feistybluegecko Member Posts: 133
    edited December 2010

    So pleased to hear your news Suz - a seasonal gift for us all! Smile

    I wish all you special sisters a very warm festive season if you celebrate, from a very different place from where we were mostly last year.

    Big warm hugs to you all from sunny Yangon.

    Philippa

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  • one-L
    one-L Member Posts: 1,110
    edited December 2010

    valerie, good to hear from you.  I am having my share of pain with the AI, but it seems to be subsiding some, or maybe I am just getting use to it.

    Philippa, thanks for the season greetings. 

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  • suz45
    suz45 Member Posts: 796
    edited December 2010

    Thanks for all the well wishes Kiss 

    Marie I had a heart to heart with my onc & we are getting a second opinion on what can be done. I think there was a lot of mis-communication going on for a few weeks as I was first told that I only had a few months to a year... I think the PS was told the same?? Onc said she thinks that because PS is a perfectionist she wouldn't try anything that might have not so perfect results...

    Anyway will try to move this train forward in the new year as everyone seems to be on Christmas Vacation right now. Am hoping that we can get a consult quickly with the new PS but Im not holding my breath. Yes I would love the info for your PS and see if I can get in for a consult. The reason they don't want to use implants is the skin was radiated on my left side 3 years ago & it will be over a year in spring on the right. I think it has something to do with the delayed reconstruction. Thanks!

    Hoping everyone is having a peaceful holiday season! Love & Hugs Suz

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  • jeanl151
    jeanl151 Member Posts: 146
    edited December 2010

    Merry Christmas All.... you all have a special place in my heart.

    Jean

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited December 2010

    Merry Christmas everyone...

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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited December 2010

    Hoping everyone had a very Merry Christmas !!!

    :)
    Alicia

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  • txstardust
    txstardust Member Posts: 599
    edited December 2010

    Looking forward to a happy new year for everyone!

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  • Hopbird
    Hopbird Member Posts: 387
    edited December 2010

    Hey everyone!  Thought I'd stop by and say all is still well!  All the scans right now show NED...I'm hoping for that for awhile.  I have nothing else from the neck down until March or so, my head they'll check again next month, and if it looks good I think they will wait a few months on it also!Smile

    Hope everyone had a good Christmas.

    Another saying someone gave me was that none of us came here to stay.  That, with the fact that nobody gets to really decide when they leave helps keep it all in perspective.  For now, I go to exercise class, I go to work part time (which was my situation before) and my second child will graduate in May.  I don't feel sick...

    Suz, glad you are going to get another opinion.  You deserve to look the way you want to!

    Hope you all have a NED New year! 

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  • one-L
    one-L Member Posts: 1,110
    edited December 2010

    Hopbird, good to hear that you are NED.  So am I and it is such a good feeling isn't it?

    I am enjoying my week off and am keeping my grandson everyday.  We are going to the museum one day and then will go pick up my granddaughter another day.  I am not really sure how happy my DH is about me spending all my time with the grandkids, because he only has to work two days this week, but that is just the way it is.   You all know how husbands can be.

    Hope everyone has a Happy and Safe New Year.

    Juannelle

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  • suz45
    suz45 Member Posts: 796
    edited December 2010

    So glad to hear Everyone is having a happy holiday season!

    Hopbird your friend is so right and nice to here your getting out to an exercise class! Its something that really makes me feel good. I was trying the Bikram yoga for a month then kinda wasted to last 2 weeks of it when I couldn't get an answer from the docs if it would compromise my bones... lol I know now that if I don't push it too hard there's no reason I cant exercise. I'm really glad to here that as that's where I can really clear my head.

    We had a very quiet but nice Christmas this year, I managed to clear away enough reno stuff so I could put up a tree & decorate the mantle. It made me feel sooo good. I got a small noble tree and decorated it Christmas Eve, such a good feeling.

    I'm not one to make New Years resolutions but am planning on finding good in all the little things and really enjoying the moment. It works for me, so why not.

    Love & Hugs Everyone as we enter another New Year,

    Suz

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  • valeriekd
    valeriekd Member Posts: 287
    edited December 2010

    you are a very inspirational woman Suz even if you don't mean to be. What a trip this has all been-it puts life in the proper perspective but sometimes thats a scary thing. You sound so great....Hope you continue to live for the day!

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