Taxotere, Carboplatin and Herceptin

iI think I said before I have been getting herceptin weekly, thought I'd be every three weeks now that I am done with TC but found out today I will still be getting herceptin weekly til radiation is over 1st week in Feb. Really? I'm thinking this is because I was a very strong her2neu.

On constipation, I have tried naturally but for a stool softer starting the night before chemo has a lot.

Sue I am highly (like 15) HER2+ and I only get Herceptin every 3 weeks for a year including the every 3 week chemo. I think if you get it weekly you don't get as high a dose.

idk how the doeses go but I heard them say my herceptin 140 was the amount.I thought they told me once it is all based on you weight. But i can see why the would give lower amount with it being weekly but its kind of a pain have to drive the 35 miles weekly if I could go every 3.

@ Lago, I will get Herceptin every week for the first 18 weeks, then every 3 after that.  I will check the doseage....

TonLee

My onc nurses told me I could only take Tylenol, which made my first round of chemo and the nuelasta shot so awful, I didn't know how I could continue. Well... talked to the doctor and he told me it wasn't a problem to take something like Aleve. Aleve is my friend now along with Zyrtec. I take Zyrtec the day before chemo and then for the next week or so to help with the reaction to that darn nuelasta shot. Also, Aleve starting the day after chemo. My onc said it wasn't an option, had to have the shot. I blame most of my aches on it. Tylenol does nothing for me when it comes to aches or really anything. 

My reactions since the first chemo have been much less. #4 was a bit hard to recover from, but #5 wasn't as bad. We'll see how the final #6 is next week!

Also, to those talking about Rads. I'll be starting in January and after reading up on it, I'm a bit scared. Chemo is awful, but like someone said, at least the side effects were over after a few days. Rads sound awful. Burning your skin!

Yay Omaz! Someone I know to keep on the journey! At least I feel like I know you...

Have you joined any Rads sites yet? I've been reading the Nov and Dec Rads. I get so annoyed with the health system. I called a few weeks back to get going with the Radiologist and they actually said, well, just come in when chemo is done or whenever you like. I'm like what? I need you to tell me when I should come in. Arghhhhh.... anyway, I made an appt for next week, day after chemo to discuss what my treatment will be and how to get going. When I met with him way back in July he said 6 - 7 weeks, didn't give any specifics.  My onc told me to start 3 - 4 weeks after chemo.  Getting through chemo has been hard and now something else to go through... Thank god for these message boards!

TonLee Don't take Aleve or Ibuprofen unless you check with your onc. It thins your blood…

That said I take Zyrtec everyday and the night before, day of and day after nuelasta I take Aleve. It makes a huge difference. I could take narcotics but those will give you constipation and as you knkow many of us have that issue right around the same time.

You onc might want you to wait on Nuelasta because some do get SE but also it's very expensive ant therefore some insurance companies don't cover it or initally refuse to cover it. Mine covered it.

OK off to chemo #4 (of 6). Chat latter. Good luck to everyone else going in today.

I finished #5 last Friday.  I have yet to have a neulasta shot, although they cut my carboplatin back to 80% dose on #4 because it dropped my platelets way too low, but I guess they bounced back for #4, then just upped 2% for #5.  I'm surprised some ONCs are saying you have no choice but to take it, but perhaps there's something in a person's bloodwork that tips the ONCs off to needing it.

During Day 3-6, I feel like crap.  I've finally started taking off work to baby myself.  I've got the eye twitch, and holding my finger on the eyelid does it for me!  I've got jiggles.  It feel like my kidneys or liver are shuddering, and it only does it on my hardest days, then tapers off retty well if I stay away from caffeine.  Anyone else have jiggles?

So glad I jumped on the Neulasta is kicking my butt.  Told a friend that the chemo was nothing compared to the shot.  Will have to try the claritin the next time.  Can deal with the achyness but the chills stink.  on day 5 after the shot so hopefully things will turn around soon.  Tylnelol takes the edge off but not much more.  Oh well live and learn and hopefully next cycle will be better.  Have a great night ladies. 

Hey ladies have a few questions for anyone that has insight or suggestions.  had my first cycle last week.

So what are you guys doing to prevent getting colds and that?  Really feel I am over paranoid.

When did your hair start falling out?

Did anyone else have a really bad reaction to the tape uses on thier port?

Thanks for any infor.